2018-06-26T13:06:46-05:00 2017-12-31 410746749 CLIFTONLARSONALLEN LLP 220 SOUTH SIXTH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2017-01-01 411984675 CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION CHIL 9528467942 201 CHICAGO AVENUE NO 200 MINNEAPOLIS MN 55415 ANN H TILTON MD PRESIDENT 9528467942 2018-06-12 1 DEIRDRE HODGSON P01484710 6123764500 2017 2022-09-23 18:48:47Z ANN H TILTON MD 30 PELHAM DRIVE METAIRIE LA 70005 1106775 0 X WWW.CHILDNEUROLOGYFOUNDATION.ORG X 2000 MN TO SERVE AS A CONNECTIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGIC CONDITIONS. 16 16 0 16 0 0 1407084 840999 169165 242502 3897 17224 2000 6050 1582146 1106775 292753 290730 0 0 252675 426324 0 0 82054 391687 396191 937115 1113245 645031 -6470 1916094 1874530 442000 506906 1474094 1367624 X CNF SERVES AS THE CONNECTIVE CENTER OF EDUCATION AND SUPPORT FOR CHILDREN AND FAMILIES LIVING WITH NEUROLOGIC CONDITIONS 1 0 301134 290730 RESEARCH GRANTS: SINCE 2001, CHILD NEUROLOGY FOUNDATION HAS AWARDED OVER 3.5 MILLION DOLLARS TO THE RESEARCH ENDEAVORS OF 69 YOUNG INVESTIGATORS, AIMED AT IDENTIFYING TREATMENTS AND CURES FOR PEDIATRIC NEUROLOGIC DISEASES. GRANTS SUPPORT TRANSLATIONAL, CLINICAL, OR BASIC RESEARCH BY CHILD NEUROLOGISTS EARLY IN THEIR ACADEMIC CAREERS. 275857 242502 EDUCATION/ADVOCACY: CNF SERVES AS A CONVENER IN THE CHILD NEUROLOGY COMMUNITY RELATED TO EDUCATION AND ADVOCACY EFFORTS, DEMONSTRATED BY INFANTILE SPASMS ACTION NETWORK (25 NATIONAL AND INTERNATIONAL ORGANIZATIONS COLLABORATIVELY ADVOCATING FOR DISEASE AWARENESS), TRANITION PROJECT ADVISORY COMMITTEE (TPAC; PROVIDERS, CAREGIVERS AND INDUSTRY COLLABORATING AROUND THE ISSUES OF TRANSITIONING YOUND ADULTS INTO THE ADULT HEALTH CARE SYSTEM); SUDDEN UNEXPECTED DEATH IN EPILEPSY ANNUAL EDUCATION INITIATIVE (OVER 25 NATIONAL PARTNERS COLLABORATING TO DEVELOP EDUCATIONAL MATERIALS AND DISTRIBUTE BROADLY TO THE LARGER COMMUNITY). CNF PROVIDES COMMUNITY AND FAMILY GRANTS TO SUPPORT THOSE PARTNERS' EFFORTS. 157932 TRANSITION PROGRAM: IN JULY 2016, CNF'S FIRST PERR REVIEWED PUBLICATION WAS RELEASED "THE NEUROLOGIST'S ROLE IN TRANSITIONING YOUNG ADULTS TO THE ADULT HEALTHCARE SYSTEM: A CONSENSUS STATEMENT". ADDITOINALLY, TRANSITION PROJECT ADVISORY COMMITTEE (TPAC) WORK CONTINUES IN IMPLEMENTING THE CONSENSUS STATEMENT'S FINDINGS IN THE AREAS OF YOUTH/FAMILY EDUCATION, CLINICAL TOOLS, AND QUALITY IMPROVEMENT. A NEW WEB PORTAL WAS DEVELOPED FOR YOUTH AND FAMILIES, SIX NEW CLINICAL TOOLS AND A SURVEY TO IDENTIFY CURRENT TRANSITION SERVICES WITHIN THE NEUROLOGY COMMUNITY WAS DRAFTED THIS PAST YEAR. 734923 1 1 0 0 0 0 0 0 0 1 1 0 0 1 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 14 0 0 0 0 0 0 0 1 1 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 MN KY X X AMERICAN ACADEMY OF NEUROLOGY 6129286002 201 CHICAGO AVE MINNEAPOLIS MN 55415 DR ANN TILTON PRESIDENT 1.00 X X 0 0 0 DR WILLIAM TRESCHER PRESIDENT, TERM ENDED 10/3/17 1.00 X X 0 0 0 DR AMY WALDMAN TREASURER 1.00 X X 0 0 0 DR SCOTT POMEROY SECRETARY 1.00 X X 0 0 0 DR SHAFALI SPURLING JESTE SECRETARY, TERM ENDED 10/3/17 1.00 X X 0 0 0 DR STEPHEN ASHWAL DIRECTOR 1.00 X 0 0 0 JULIE GILBERT DIRECTOR 1.00 X 0 0 0 DR SHAUN HUSSAIN DIRECTOR 1.00 X 0 0 0 JOHN HUTCHINS DIRECTOR 1.00 X 0 0 0 DR THOMAS LANGAN DIRECTOR 1.00 X 0 0 0 ROGER LARSON DIRECTOR 1.00 X 0 0 0 DR KENNETH MACK DIRECTOR 1.00 X 0 0 0 DR JONATHAN MINK DIRECTOR 1.00 X 0 0 0 STEPHEN PETERS DIRECTOR 1.00 X 0 0 0 DR W DONALD SHIELDS HONORARY DIRECTOR OF BOD 1.00 X 0 0 0 SANDRA CUSHNER WEINSTEIN DIRECTOR 1.00 X 0 0 0 SUE YUDOVIN DIRECTOR 1.00 X 0 0 0 DR MARY ZUPANC DIRECTOR 1.00 X 0 0 0 AMY BRIN MILLER DIRECTOR, NON-VOTING, EXECUTIVE DIRECTOR 40.00 X 138079 0 34123 138079 0 34123 1 0 1 0 0 840999 840999 MEMBERSHIP DUES 900099 242502 242502 242502 17224 17224 REGISTRATION FEES 900099 5850 5850 MISCELLANEOUS REVENUE 900099 200 200 6050 1106775 242502 0 23274 X 285230 285230 2000 2000 3500 3500 172202 71335 62606 38261 183419 91917 80035 11467 504 233 203 68 27964 13961 12158 1845 42235 19512 17044 5679 25719 11882 10379 3458 149068 115878 22891 10299 31385 1375 30010 31245 20990 9760 495 78106 55637 20662 1807 21049 11725 7813 1511 5098 5098 6373 6373 FOOD & BEVERAGE 45399 29493 10260 5646 MEMBERSHIP DUES 2237 224 495 1518 MISCELLANEOUS 512 31 481 1113245 734923 296268 82054 613326 1056687 1174598 684318 2515 534 15294 12745 7647 2549 118008 130442 1916094 1874530 60508 107141 366492 297682 15000 102083 442000 506906 X -163826 -136065 1537920 1403689 100000 100000 1474094 1367624 1916094 1874530 X -6470 -100000 X 0 1 X 1 0 X 973418 1191713 491002 1307084 740999 4704216 973418 1191713 491002 1307084 740999 4704216 3011185 1693031 34 382 310 3897 17224 21847 1002 2001 2000 6050 11053 4737116 809167 0.35740 0.31090 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS REVENUE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 116649 17224 3431 130442 118282 3897 5530 116649 117972 310 118282 117590 382 117972 0.00000 0.76660 0.23340 1 0 15294 12745 2549 2549 INVESTMENT FUNDS HELD BY OTHERS 130442 130442 X 1006775 0 1006775 100000 100000 1106775 1113245 0 1113245 0 1113245 PART V, LINE 4: IN 2010, THE SOCIETY OF NEURODEVELOPMENTAL DISABILITIES (NDD) DISSOLVED; AND THEREBY, TRANSFERRED REMAINING ASSETS TO THE CNF. THESE FUNDS ARE INTENDED TO ENDOW AN ANNUAL EDUCATIONAL SCHOLARSHIP FOR A MEDICAL STUDENT INTERESTED IN THE FIELD OF CHILD NEUROLOGY; WITH PRIORITY GIVEN TO AN APPLICANT FOCUSED ON NEURO DEVELOPMENTAL DISABILITIES. THE INITIAL AWARD IS TO BE $3,500. THE AMOUNT OR THE NUMBER OF AWARDS MAY BE ADJUSTED BASED ON ENDOWMENT VALUE AND AS APPROVED BY THE BOARD OF CNF. PART X, LINE 2: THE FOUNDATION IS ORGANIZED AND OPERATES ON A NOT-FOR-PROFIT BASIS AND ITS TAX EXEMPT STATUS HAS BEEN RECOGNIZED BY THE INTERNAL REVENUE SERVICE UNDER SECTION 501(C)(3). THE FOUNDATION IS CLASSIFIED AS AN ORGANIZATION WHICH IS NOT PRIVATE FOUNDATIONS UNDER THE INTERNAL REVENUE CODE AND CHARITABLE CONTRIBUTIONS BY DONORS ARE TAX DEDUCTIBLE. THE FOUNDATION IS SUBJECT TO UNRELATED BUSINESS INCOME TAXES UNDER THE INTERNAL REVENUE CODE FOR FEDERAL AND STATE TAX PURPOSES. THE FOUNDATION HAS ADOPTED THE PROVISIONS OF FASB ASC 740-10-25, WHICH REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE FOUNDATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. THE FOUNDATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AUTHORITIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: CHANGE IN TEMPORARILY RESTRICTED PLEDGE 100,000. 1 CHILD NEUROLOGY SOCIETY 1000 WEST COUNTY RD E STE 290 ST PAUL MN 551268096 237359775 501(C)(3) 32000 N/A 2017 UNRESTRICTED GRANT SYMPOSIUM VI & DONATION TO CNS - PHILIP DODGE FUND NORTHWESTERN UNIV LURIES CHILDREN'S HOSPITAL 225 E CHICAGO AVE BOX 51 CHICAGO IL 60611 362170833 501(C)(3) 100000 N/A 2017 SHIELDS MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST WACC 720 BOSTON MA 02114 042697983 100000 N/A 2017 PERF ASSOCIATION FOR CHILD NEURO NURSES 4106 BUTTERFIELD DR GREENSBORO NC 27405 412005231 501(C)(3) 29080 N/A CHILD NEUROLOGY PATIENT EDUCATION FACT SHEETS 3 1 PART I, LINE 2: SINCE 2001, THE CHILD NEUROLOGY FOUNDATION HAS ATTRACTED PREMIER YOUNG INVESTIGATORS FOR ITS AWARDS. WE PUBLICIZE THE AWARD TO REQUEST CANDIDATES WITH THE AMERICAN ACADEMY OF NEUROLOGY; PROFESSORS OF CHILD NEUROLOGY; CHILD NEUROLOGY SOCIETY; AND THE AMERICAN ACADEMY OF PEDIATRICS. APPLICATIONS REVIEWED VIA A DEFINED METHODOLOGY, INCLUDING A PANEL OF EXPERT RESEARCHERS WITHIN THE CHILD NEUROLOGY COMMUNITY. UPON GRANT AWARD, RECEIPIENTS SIGN A CONTRACT WITH CNF WHICH OUTLINES EXPECTATIONS FOR REPORTING DURING AND AT THE CONCLUSION OF THE GRANT AWARD. CNF MANAGES THE EXECUTION OF THE GRANT ADMINSTRATION AND REPORTING THROUGHOUT THE GRANT DURATION. CHILD NEUROLOGIST RESEARCHER APPLICANTS ARE ASKED TO SUBMIT A LETTER OF APPLICATION. THESE LETTERS ARE RANKED BY A COMMITTEE OF WELL-RESPECTED CHILD NEUROLOGISTS. (MEMBERS AVOID CONFLICT OF INTEREST BY RECUSING THEMSELVES). TOP CONTENDERS ARE INVITED TO SUBMIT FULL APPLICATIONS. CNF USES A HYBRID OF THE NIH RESEARCH APPLICATION. THE COMMITTEE THEN RANKS AND SUBMITS THE TOP APPLICANT TO THE CNF BOARD OF DIRECTORS FOR CONFIRMATION. OUTSIDE DONORS ARE NOT INVOLVED IN THE SELECTION OF THE AWARDEE OR ANY GUIDELINES REGARDING THE USE OF RESEARCH FUNDS. GRANT AWARD CHECKS ARE NEVER MADE PAYABLE TO THE INDIVIDUAL RESEARCHER. RATHER, CHECKS ARE MADE PAYABLE TO THE INSTITUTIONS FOR WHICH THEY EITHER WORK OR GO TO SCHOOL. REPORTS ARE REQUIRED OF THE RESEARCHER AT THE MIDPOINT OF THEIR RESEARCH IN THE FORM OF PROGRESS REPORTS AND AT THE END TO SHOW THE RESULTS OF THEIR RESEARCH. IN THE CASE OF SCHOLARSHIP RECIPIENTS THE SAME IS TRUE. CHECKS ARE MADE PAYABLE TO THEIR INSTITUTION AND THEIR REPORTS ARE DUE AT THE END OF THEIR RESEARCH. ADDITIONALLY STARTIN IN 2016, CNF PROVIDED GRANTS TO SUPPORT ORGANIZATIONS' EFFORTS IN INCREASING INFANTILE SPASMS AWARENESS. TO BE ELGIBLE FOR AN AWARD, AN ORGANIZATION NEEDS TO BE A MEMBER OF INFANTILE SPASMS ACTION NETWORK, AND COMPLETE THE GRANT APPLICATION. IF ALL CRITERIA ON APPLICATION WAS MET, THEN THE ORGANIZATION WAS CUT A CHECK. EACH ORGANIZATION AWARDED WAS REQUIRED TO SUBMIT A RECONCILIATION REPORT 90-DAYS AFTER THE COMPLETION OF THEIR AWARENESS BUILDING ACTIVITY CONCLUDED. X X 0 0 0 0 0 0 0 0 0 AMY BRIN MILLER DIRECTOR, NON-VOTING, EXECUTIVE DIRE 128079 0 10000 0 0 0 14084 0 20039 0 172202 0 0 0 FORM 990, PART III, LINE 2 CNF LAUNCHED THE FAMILY SUPPORT & EMPOWERMENT PROGRAM (FSEP) IN 2017. THIS PROGRAMS PROVIDES VIRTUAL PEER SUPPORT TO CAREGIVERS SEEKING EMOTIONAL SUPPORT AND RESOURCE INFORMATION. IN 2017, FSEP SERVED OVER 300 FAMILIES IN 43 STATES AND 40 COUNTRIES. FORM 990, PART VI, SECTION A, LINE 1 THE BOARD OF DIRECTORS MAY ESTABLISH OR TERMINATE STANDING, SPECIAL, OR AD HOC COMMITTEES OF THE FOUNDATION AS THE BOARD DETERMINES NECESSARY. UNLESS OTHERWISE DESCRIBED IN THESE BYLAWS, THE PRESIDENT SHALL APPOINT AND MAY REMOVE THE MEMBERS OF EACH STANDING, SPECIAL, OR AD HOC COMMITTEE. THE EXECUTIVE COMMITTEE SHALL INCLUDE THE PRESIDENT, PRESIDENT-ELECT, IMMEDIATE PAST-PRESIDENT, SECRETARY, TREASURER, AND NO MORE THAN THREE OTHER MEMBERS OF THE BOARD AS APPOINTED BY THE PRESIDENT. THE PRESIDENT OF THE BOARD SHALL BE THE CHAIR OF THE EXECUTIVE COMMITTEE. MEETINGS MAY BE CONDUCTED BY GROUP MEETINGS, CONFERENCE CALL, OR OTHER ELECTRONIC MEANS OF COMMUNICATION. BETWEEN MEETINGS OF THE BOARD, THE BOARD'S POWER IS DELEGATED TO THE EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE SHALL REPORT ITS ACTIVITY TO THE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE CEO UNDERTOOK EXTENSIVE REVIEW OF THE DRAFT FORM 990 PRIOR TO PRESENTING TO THE FINANCE COMMITTEE FOR THEIR REVIEW. THE FINAL FORM 990 IS PRESENTED TO THE BOARD OF DIRECTORS FOR THEIR REVIEW AND APPROVAL PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE FOUNDATION HAS A CONFLICT OF INTEREST POLICY COVERING ALL BOARD MEMBERS. BOARD MEMBERS COMPLETE A POLICY FORM ON AN ANNUAL BASIS WHICH IS MONITORED AND REVIEWED BY BOARD OFFICERS AFTER SUBMISSION. SHOULD A CONFLICT EXIST, THE BOARD WOULD DETERMINE THE APPROPRIATE ACTION INCLUDING OMISSION FROM VOTING ON ANY RELATED MATTERS AND DOCUMENT IN THE MEETING MINUTES. FORM 990, PART VI, SECTION B, LINE 15A IN 2017, THE FOUNDATION'S EXECUTIVE DIRECTOR WAS LEASED TO THE FOUNDATION THROUGH A CONTRACTUAL RELATIONSHIP WITH THE AMERICAN ACADEMY OF NEUROLOGY. THE FOUNDATION'S EXECUTIVE COMMITTEE IS RESPONSIBLE FOR HIRING AND SETTING THE COMPENSATION OF THE EXECUTIVE DIRECTOR. THE COMMITTEE EMPLOYS PROCEDURES (USE OF COMPENSATION SURVEYS AND BOARD APPROVAL) AND LAST SET COMPENSATION IN 2017. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION DOES NOT MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 29,836. MANAGEMENT AND GENERAL EXPENSES 22,891. FUNDRAISING EXPENSES 10,299. TOTAL EXPENSES 63,026. INFANTILE SPASMS AWARENESS CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 32,925. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 32,925. CHILD ADULT TRANSITION PROGRAM: PROGRAM SERVICE EXPENSES 32,355. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 32,355. OPS SUPPORT: PROGRAM SERVICE EXPENSES 20,762. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 20,762. FORM 990, PART XI, LINE 9: CHANGE IN TEMPORARILY RESTRICTED PLEDGE -100,000.