2018-10-02T15:09:07-05:00 2017-12-31 KPMG LLP 1676 INTERNATIONAL DRIVE McLean VA 22102 990 2017-01-01 131930701 CYSTIC FIBROSIS FOUNDATION % PRESTON W CAMPBELL MD CYST 3019514422 4550 MONTGOMERY AVENUE Suite 1100N BETHESDA MD 20814 PRESTON W CAMPBELL MD PRESIDENT & CEO 3019514422 2018-10-01 true JG WHITE P01498698 7032868000 2018-10-01 2017 2022-09-23 18:48:47Z PRESTON W CAMPBELL MD 4550 MONTGOMERY AVE STE 1100N BETHESDA MD 20814 1393954611 false X WWW.CFF.ORG X 1955 DE THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 17 16 760 92000 -1415836 -1532275 117148751 110650273 2246282 3971424 64555425 149520920 8578517 11339404 192528975 275482021 198127696 179923805 0 0 58875323 68025837 133446 288543 24702883 42514066 44528505 299650531 292766690 -107121556 -17284669 3919394927 4401077858 187239749 206891793 3732155178 4194186065 X THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 207277936 177988410 5206040 MEDICAL PROGRAMS SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLDS LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 120 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. BREAKTHROUGH TREATMENTS HAVE ADDED YEARS TO THE LIVES OF PEOPLE WITH CYSTIC FIBROSIS. TODAY THE MEDIAN SURVIVAL AGE IS OVER 40. THIS IS A DRAMATIC IMPROVEMENT FROM THE 1950S, WHEN A CHILD WITH CF RARELY LIVED LONG ENOUGH TO ATTEND ELEMENTARY SCHOOL. THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE DIFFICULT CONSEQUENCES OF THE DISEASE FROM SUPPORTING SPECIALIZED, QUALITY CF CARE TO PROVIDING INFORMATION AND SUPPORT TO HELP PEOPLE WITH CF ACCESS THAT CARE. THE FOUNDATIONS PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 29,800 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS. MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 738 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 426 GRANTS TOTALING $32.1 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 29,800 PATIENTS. 17822831 1935395 COMMUNITY SERVICES THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM, AND EMPOWER INDIVIDUALS WITH CF AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING CF. APPROXIMATELY 29,800 PEOPLE WITH CF WERE SERVED IN 2017, INCLUDING APPROXIMATELY 880 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUALS CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2017, SKILLED CASE MANAGERS ADDRESSED MORE THAN 5,000 CASES FOR PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2017, NEARLY 550 ADULTS WITH CF JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, INCLUDING BREATHECON, CF MINICON: TRANSPLANT, AND CF MINICON: YOUNG ADULT TRANSITIONS, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE. 16900416 PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2017, THERE WERE MORE THAN EIGHT PUBLICATIONS AND 30 VIDEOS/SERIES PRODUCED AND MADE AVAILABLE FOR PEOPLE WITH CF, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2017, OVER 1,984,433 UNIQUE VISITORS CAME TO THE CF FOUNDATIONS WEBSITE. NEW CONTENT ON CFF.ORG IN 2017 INCLUDED THE LAUNCH OF NINE NEW SECTIONS AND 126 BLOG POSTS. 242001183 true true false true false false false false false false true true false false true true false true false false true true false true true true false true true true false false false false false false false false true false false false true true true true false false true 1426 3 true 760 true true true false false false false true true true 1 false false true false X 17 16 false false false false false false false true true false false true true true true true true true true false AL AK AR CA CT FL GA HI IL IN KS KY MD MA MI MN MS NH NJ NM NY OK OR PA RI SC TN UT VA WA WV WI X X PRESTON W CAMPBELL MD 3019514422 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 X RICHARD L DANDURAND TRUSTEE 3.0 0.0 X 0 0 0 LOUIS A DEFALCO VICE CHAIR 5.0 0.0 X 0 0 0 RICHARD J GRAY ESQ VICE CHAIR 5.0 0.0 X 0 0 0 CAROLE B GRIEGO MD TRUSTEE 3.0 3.0 X 0 0 0 SUSAN L HOOK TRUSTEE 3.0 0.0 X 0 0 0 CATHERINE C MCLOUD CHAIR 8.0 3.0 X 0 0 0 CHAD T MOORE TRUSTEE 3.0 0.0 X 0 0 0 DAVID A MOUNT TREASURER 3.0 0.0 X 0 0 0 ROBERT H NIEHAUS VICE CHAIR 5.0 0.0 X 0 0 0 ERIC R OLSON PHD TRUSTEE 3.0 3.0 X 0 0 0 TERESA L ELDER TRUSTEE (AS OF 5/18/2017) 3.0 0.0 X 0 0 0 STEVEN SHAK MD TRUSTEE 3.0 3.0 X 0 0 0 CHARLES J THAYER TRUSTEE (THROUGH 5/17/2017) 3.0 0.0 X 0 0 0 THEODORE J TORPHY PHD TRUSTEE 3.0 5.0 X 0 0 0 AMY S WEINBERG TRUSTEE (THROUGH 5/17/2017) 3.0 0.0 X 0 0 0 JOHN S WEINBERG TRUSTEE (AS OF 5/18/2017) 3.0 0.0 X 0 0 0 PAUL W WHETSELL EXECUTIVE VICE CHAIRMAN 5.0 0.0 X 0 0 0 KC BRYAN WHITE TRUSTEE 3.0 0.0 X 0 0 0 PRESTON CAMPBELL MD PRESIDENT & CEO 37.0 18.0 X X 805765 396810 207207 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 50.0 5.0 X 663211 0 226013 VERA H TWIGG EXECUTIVE VP & CFO 50.0 5.0 X 524706 0 127750 JACK MAHLER MD CHIEF INVESTMENT OFFICER 55.0 0.0 X 1197052 0 152338 BRUCE MARSHALL MD SENIOR VP, CLINICAL AFFAIRS 45.0 10.0 X 430358 101381 32540 WILLIAM SKACH MD SENIOR VP, RESEARCH AFFAIRS 8.0 47.0 X 74361 421375 67421 DRUCY S BOROWITZ MD SENIOR VP, COMMUNITY AFFAIRS 55.0 0.0 X 470366 0 32312 TIMOTHY A WAIRE JR CHIEF INFORMATION OFFICER 55.0 0.0 X 341523 0 65090 GLEN GOLDMARK SENIOR VP OF HUMAN RESOURCES 55.0 0.0 X 355185 0 54938 ALBERT FARO MD SR DIRECTOR, CLINICAL AFFAIRS 55.0 0.0 X 319590 0 61736 MARYBETH MCMAHON PHD CHIEF OF STAFF 55.0 0.0 X 332209 0 52917 ROBERT J BEALL PHD FORMER CEO/CURRENT CONSULTANT 10.0 0.0 X 383094 55949 0 C RICHARD MATTINGLY FORMER COO 0.0 0.0 X 197010 0 0 6094430 975515 1080262 134 true true false NTC MAZZUCA CONTRACTING INC 10907 GUILFORD RD STE A ANNAPOLIS JUNCTION MD 20701 GENERAL CONTRACTING 2818532 CELERITY IT LLC 8401 GREENSBORO DR SUITE 500 MCLEAN VA 22102 IT CONSULTING 2054243 SUFIAN PASSAMANO 712 MAIN STREET SUITE 2130 HOUSTON TX 77002 PATIENT ASSISTANCE 1950500 BARES CAPITAL MANAGEMENT INC 12600 HILL COUNTRY BLVDSUITE R-230 AUSTIN TX 78738 INVESTMENT MGMT 1669042 GARDNER RUSSO GARDNER LLC 223 E CHESTNUT ST LANCASTER PA 17602 INVESTMENT MGMT 1665599 71 788902 84047514 25813857 10517381 110650273 SCIENTIFIC CONFERENCE 611600 3971424 3971424 3971424 58068866 -1415836 59484702 0 9617853 9617853 0 0 0 1174435480 20859117 1096128551 7713992 78306929 13145125 91452054 91452054 14552162 84047514 14552162 152043 77885 74158 0 74158 0 0 0 REFUNDED OR CANCELLED GRANTS 900099 1234616 1234616 CLAIM PROCEEDS 900099 412777 412777 1647393 275482021 5206040 -1415836 161041544 177688641 177688641 48527 48527 2186637 2186637 0 4394102 2443584 837511 1113007 580104 442227 59201 78676 50275582 27958528 9582469 12734585 3214679 1787701 612714 814264 6143522 3416447 1170949 1556126 3417848 1880798 560986 976064 0 363175 259733 86923 16519 285760 285760 663815 663815 288543 288543 9017639 9017639 4841694 3898075 677742 265877 23486 10099 2818 10569 4717234 2380323 296598 2040313 7125429 5159294 683182 1282953 0 4293486 2275623 642999 1374864 1833941 1252485 168788 412668 0 5471376 4706605 162058 602713 0 0 2086005 1369642 220775 495588 798720 532825 178336 87559 MEDICAL QUALITY IMPROVEMENT 828070 828070 TRAINING 956137 481879 137580 336678 OTHER 1222538 329625 677596 215317 292766690 242001183 26062624 24702883 X 2288492 581964 1706528 98774 36212 94935899 136933644 7734842 7687519 6655865 4147509 0 0 0 0 0 0 272744 330993 1819362 2660134 15976659 6646620 4828406 9330039 2266485881 1921918665 1529304556 2317776911 0 0 0 0 7258598 256232 3919394927 4401077858 20050844 27505186 72415061 75687961 4358270 5081024 0 0 0 0 0 0 0 0 0 0 90415574 98617622 187239749 206891793 X 3720457947 4181431067 7954458 8657764 3742773 4097234 3732155178 4194186065 3919394927 4401077858 X -17284669 483673912 -4358356 X false true X true false X 305963877 3312085535 122210533 117148751 110650273 3968058969 0 0 305963877 3312085535 122210533 117148751 110650273 3968058969 0 3968058969 17054431 54160127 75041033 64638761 67686719 278581071 0 14927254 15655168 16333174 14060761 15116982 76093339 4322733379 14876997 0.91795 0.93134 X SCHEDULE A, PART II - OTHER INCOME THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false true 63959 true 31849 false true 1703101 false true 11460 1810369 false LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES. 5658482 1366119 4292363 10318177 5280501 5037676 9330039 FIXED INCOME INDEX COMMINGLED 130952699 F PUBLIC EQUITY COMMINGLED 1494197079 F OTHER PUBLIC EQUITY BASED 99856362 F HEDGED STRATEGIES 436127209 F PVT EQTY & OTHR ILLIQUID FUNDS 152546327 F PERPETUAL TRUSTS 4097235 F 2317776911 0 INTERCOMPANY PAYABLES 98617622 98617622 X SCHEDULE D, PART X FIN 48 FOOTNOTE THE FOUNDATION AND CFFT ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2017 AND 2016. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE TAX CUTS AND JOBS ACT (THE TAX ACT) WAS SIGNED INTO LAW ON DECEMBER 22, 2017. THE TAX ACT INCLUDES SEVERAL CHANGES RELEVANT TO TAX-EXEMPT ORGANIZATIONS, PRIMARILY RELATED TO UNRELATED BUSINESS INCOME, NET OPERATING LOSSES, CERTAIN NEW EXCISE TAXES, AND CHANGES AFFECTING THE DEDUCTIBILITY OF CERTAIN EXPENSES. MANAGEMENT HAS DETERMINED THAT THE NEW LAW WILL NOT HAVE A SIGNIFICANT IMPACT ON THE FOUNDATIONS FINANCIAL STATEMENTS. true NORTH AMERICA GRANTMAKING NONE 755200 EUROPE GRANTMAKING NONE 1245287 MIDDLE EAST AND NORTH AFRICA GRANTMAKING NONE 186150 CENTRAL AMERICA/CARIBBEAN INVESTMENTS 757769000 EAST ASIA AND THE PACIFIC INVESTMENTS 6089000 EUROPE INVESTMENTS 151400000 NORTH AMERICA INVESTMENTS 5497000 922941637 922941637 Europe (Including Iceland and Greenland) PILOT STUDY 54000 WIRE Europe (Including Iceland and Greenland) PILOT STUDY 108000 WIRE Europe (Including Iceland and Greenland) PILOT STUDY 54500 WIRE Europe (Including Iceland and Greenland) PILOT STUDY 54000 WIRE Europe (Including Iceland and Greenland) PILOT STUDY 53999 WIRE Europe (Including Iceland and Greenland) QUALITY IMPROVEMENT 15321 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 107990 WIRE Europe (Including Iceland and Greenland) RESEARCH 149477 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Middle East and North Africa QUALITY IMPROVEMENT 186150 WIRE North America PILOT STUDY 53978 CHECK North America PILOT STUDY 51990 CHECK North America PILOT STUDY 53892 CHECK North America PILOT STUDY 49825 CHECK North America RESEARCH 107379 CHECK North America RESEARCH 108000 CHECK North America RESEARCH 108000 CHECK North America RESEARCH 125000 CHECK North America RESEARCH 95516 CHECK 24 0 true true true true true false PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT TO THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO MIDDLE EAST CYSTIC FIBROSIS ASSOCIATION IN TURKEY. FOREIGN FORMS THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS. X X X X X X true LAUTMAN MASKA NEILL COMPAN MAIL COUNSEL false 7735399 212000 7523399 TURNKEY PROMOTIONS EVENT COUNSEL false 39927665 76543 39851122 47663064 288543 47374521 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY SKI 2634402 1299210 1335192 695547 321908 10406 307331 ATLANTA WALK 2358767 2274084 84683 12868 27670 19981 24164 985 93606507 80474220 13132287 21171 611807 5624131 3898222 442200 2534756 98599676 84047514 14552162 21171 624675 6347348 4240111 452606 2866251 14552162 152043 77885 false 152043 77885 77885 74158 CA IL MI MN MT NH OH TX true false false false 1.00000 THE ORGANIZATION 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 false false PROFESSIONAL FUNDRAISING SERVICES SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL EFFORTS DURING 2017. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 FOR THE ENTIRE YEAR OF SERVICES. LAUTMAN MASKA NEILL & COMPANY ALSO CONSULTED ON TWO INDIVIDUAL MAILINGS FOR $10,000 PER MAILING OR $20,000 TOTAL. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH TURNKEY PROMOTIONS TO CONSULT ON ITS PEER TO PEER FUNDRAISING EVENTS DURING 2017. THE EXPENSE FOR THE PROJECT WAS $76,543. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED TURNKEY PROMOTIONS FOR PRIZE FULFILLMENT IN 2017. TURNKEY PROMOTIONS DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM EVENT ACTIVITIES WITH WHICH TURNKEY PROMOTIONS ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. SCHEDULE G, PART III ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. ANY VOLUNTEER INVOLVEMENT IN SUCH ACTIVITIES WAS INSIGNIFICANT. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE. true Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 03755 020222111 501c(3) 41142 ADULT CARE Trustees of Dartmouth College 11 Rope Ferry Road 6210 DEPT 4656 / REF 413407 Hanover NH 03755 020222111 501c(3) 162000 PILOT STUDY Children's Hospital & Medical Center Foundation 8401 W Dodge Rd Suite 120 Omaha NE 68114 476105603 501c(3) 45607 ADULT CARE Trustees of Dartmouth College 11 Rope Ferry Road 6210 RESEARCH AND SPONSORED PROGRAMS Hanover NH 03755 020222111 501c(3) 2883905 QUALITY IMPROVEMENT Trustees of Dartmouth College 11 Rope Ferry Road 6210 B 5 JESSUP HALL Hanover NH 03755 020222111 501c(3) 586049 RESEARCH Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 03755 020222111 501c(3) 520000 RESEARCH CENTER Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 03755 020222111 501c(3) 67800 RESEARCH STUDY The University of Vermont and State Agricultural C 85 So Prospect Street Burlington VT 05405 030179440 501c(3) 121360 CF CARE CENTER The University of Vermont and State Agricultural C 85 So Prospect Street 310 JESSE HALL Burlington VT 05405 030179440 501c(3) 54000 PILOT STUDY Harvard Medical School 200 Longwood Avenue Boston MA 02115 042103580 501c(3) 107482 RESEARCH Harvard Medical School 200 Longwood Avenue Boston MA 02115 042103580 501c(3) 65450 RESEARCH STUDY The General Hospital Corporation ( Massachusetts G PO Box 414876 Boston MA 02114 042697983 501c(3) 275252 CF CARE CENTER The General Hospital Corporation ( Massachusetts G PO Box 414876 Boston MA 02114 042697983 501c(3) 211584 RESEARCH The General Hospital Corporation ( Massachusetts G PO Box 414876 Boston MA 02114 042697983 501c(3) 67800 RESEARCH STUDY The General Hospital Corporation ( Massachusetts G PO Box 414876 ONE SHIELDS AVENUE Boston MA 02114 042697983 501c(3) 227500 TRAINING Children's Hospital Corporation (Boston Children's 300 Longwood Ave 0690 SW BANCROFT STREET Boston MA 02115 042774441 501c(3) 47041 ADULT CARE Children's Hospital Corporation (Boston Children's 300 Longwood Ave 1601 NW 12TH AVENUE Boston MA 02115 042774441 501c(3) 459630 CF CARE CENTER Children's Hospital Corporation (Boston Children's 300 Longwood Ave PO BOX 414876 Boston MA 02115 042774441 501c(3) 108000 RESEARCH Children's Hospital Corporation (Boston Children's 300 Longwood Ave BR305 Boston MA 02115 042774441 501c(3) 127500 TRAINING Rhode Island Hospital 593 Eddy Street Providence RI 02903 050258954 501c(3) 76765 ADULT CARE Rhode Island Hospital 593 Eddy Street Providence RI 02903 050258954 501c(3) 166531 CF CARE CENTER Yale University 47 College Street New Haven CT 06520 060646973 501c(3) 284390 CF CARE CENTER Yale University 47 College Street New Haven CT 06520 060646973 501c(3) 54000 PILOT STUDY Yale University 47 College Street New Haven CT 06520 060646973 501c(3) 449000 RESEARCH Yale University 47 College Street New Haven CT 06520 060646973 501c(3) 63100 RESEARCH STUDY New York University School of Medicine 550 First Avenue New York NY 10016 135562308 501c(3) 155802 CF CARE CENTER New York University School of Medicine 550 First Avenue New York NY 10016 135562308 501c(3) 53575 PILOT STUDY The Trustees of Columbia University in the City of 351 Engineering Terrace New York NY 10027 135598093 501c(3) 32400 ADULT CARE The Trustees of Columbia University in the City of 351 Engineering Terrace New York NY 10027 135598093 501c(3) 273550 CF CARE CENTER The Trustees of Columbia University in the City of 351 Engineering Terrace OFFICE OF SPONSORED PROGRAMS New York NY 10027 135598093 501c(3) 53557 PILOT STUDY The Trustees of Columbia University in the City of 351 Engineering Terrace New York NY 10027 135598093 501c(3) 63100 RESEARCH STUDY The Trustees of Columbia University in the City of 351 Engineering Terrace OFFICE OF SPONSORED RESEARCH New York NY 10027 135598093 501c(3) 61250 TRAINING University of Rochester 1325 Mt Hope Ave Rochester NY 14642 160743209 501c(3) 32400 ADULT CARE University of Rochester 1325 Mt Hope Ave Rochester NY 14642 160743209 501c(3) 259930 CF CARE CENTER Wake Forest University Health Sciences Medical Center Blvd WinstonSalem NC 27157 223849199 501c(3) 124490 CF CARE CENTER Wake Forest University Health Sciences Medical Center Blvd WinstonSalem NC 27157 223849199 501c(3) 54000 PILOT STUDY Advocate Charitable Foundation 3075 Highland PKWY Downers Grove IL 60515 363297360 501c(3) 176869 CF CARE CENTER Albany Medical College Elsmere A-107 CAMPUS BOX 1034 Albany NY 12208 141338310 501c(3) 64400 CF CARE CENTER The Children's Hospital of Philadelphia 3516 Civic Ctr Blvd Philadelphia PA 19104 231352166 501c(3) 308932 CF CARE CENTER All Children's Hospital PO Box 31020 St Petersburg FL 33731 590683252 501c(3) 223167 CF CARE CENTER Ann and Robert H Lurie Children's Hospital of Chi 2300 Childrens Plaza Chicago IL 60614 362170833 501c(3) 219536 CF CARE CENTER Arizona Board of Regents University of Arizona 888 N Euclid Room 510 MAIL CODE 7828 Tucson AZ 85722 742652689 IRC 115 235460 CF CARE CENTER Arkansas Children's Hospital Research Institute I 800 Marshall Street Little Rock AR 72202 710694931 501c(3) 109460 CF CARE CENTER Atlantic Health System 100 Madison Avenue 888 N EUCLID ROOM 510 Morristown NJ 07962 521958352 501c(3) 115284 CF CARE CENTER Augusta University Research Institute Inc 1120 15th Street CJ3301 Augusta GA 30912 581418202 501c(3) 255356 CF CARE CENTER Baylor College of Medicine PO Box 1 Houston TX 77212 741613878 501c(3) 459916 CF CARE CENTER Baylor Scott & White Health 2401 S 31st St Temple TX 76508 463131350 501c(3) 40930 CF CARE CENTER Baystate Medical Center (95-196) 759 Chestnut Street 160 WATER STREET 24TH FLOOR Springfield MA 01199 042790311 501c(3) 56370 CF CARE CENTER Beth Israel Medical Center 160 Water St 24th Fl New York NY 10038 135564934 501c(3) 210580 CF CARE CENTER Billings Clinic 2800 10th Avenue North Billings MT 59107 810231784 501c(3) 76070 CF CARE CENTER The Children's Hospital of Philadelphia 3516 Civic Ctr Blvd Philadelphia PA 19104 231352166 501c(3) 108000 PILOT STUDY Board of Trustees of Southern Illinois University PO Box 19636 Springfield IL 62794 376005961 501c(3) 16548 CF CARE CENTER The Children's Hospital of Philadelphia 3516 Civic Ctr Blvd Philadelphia PA 19104 231352166 501c(3) 65450 RESEARCH STUDY California Pacific Medical Center Research Institu 2200 Webster Street San Francisco CA 94115 940562680 501c(3) 35294 CF CARE CENTER CAMC Health Education and Research Institute PO Box 765 SUITE 260 Charleston WV 25323 550753754 501c(3) 68800 CF CARE CENTER Carle Foundation Hospital 611 W Park Street Urbana IL 61801 371119538 501c(3) 42420 CF CARE CENTER Carolinas Healthcare Foundation 208 East Boulevard Charlotte NC 28203 566060481 501c(3) 55100 CF CARE CENTER Children's Health Care 2525 Chicago Ave SO Minneapolis MN 55404 411754276 501c(3) 141020 CF CARE CENTER Children's Healthcare of Atlanta 1001 Johnson Ferry Road Atlanta GA 30342 582367819 501c(3) 205710 CF CARE CENTER Children's Hospital Central California 9300 Valley Chldns Place Madera CA 93638 941294954 501c(3) 133950 CF CARE CENTER The Children's Hospital of Philadelphia 3516 Civic Ct Blvd Philadelphia PA 19104 231352166 501c(3) 127500 TRAINING Trustees of the University of Pennsylvania 133 South 36th St Philadelphia PA 19104 231352685 501c(3) 269210 CF CARE CENTER Children's Hospital Medical Center Akron One Perkins Square Akron OH 44308 340714357 501c(3) 257280 CF CARE CENTER Children's Hospital of Michigan 3663 Woodward AveSte 200 Detroit MI 48201 381357994 501c(3) 95460 CF CARE CENTER Trustees of the University of Pennsylvania 133 South 36th St Philadelphia PA 19104 231352685 501c(3) 108000 RESEARCH Children's Hospital of Pittsburgh 3705 Fifth Avenue Pittsburgh PA 15213 250402510 501c(3) 324150 CF CARE CENTER Children's Hospital Los Angeles 4650 Sunset Blvd Los Angeles CA 90027 951690977 501c(3) 198680 CF CARE CENTER Children's Lung Specialists 3838 Meadows Lane Las Vegas NV 89107 880271963 501c(3) 131720 CF CARE CENTER Children's Medical Center One Childrens Plaza Dayton OH 45404 310672132 501c(3) 240951 CF CARE CENTER Children's Mercy Hospital 2401 Gillham Road Kansas City MO 64108 440605373 501c(3) 207072 CF CARE CENTER Children's National Medical Center 111 Michigan Ave NW Washington DC 20010 521640403 501c(3) 254897 CF CARE CENTER Christiana Care Health Services Inc PO Box 2653 Wilmington DE 19805 510103684 501c(3) 31570 CF CARE CENTER Christus Santa Rosa Healthcare 333 North Santa Rosa SUITE 104 San Antonio TX 78207 741109665 501c(3) 37270 CF CARE CENTER Pennsylvania State University College of Medicine Hershey PA 17033 246000376 IRC 115 185850 CF CARE CENTER Connecticut Children's Medical Center 282 Washington Street SUITE 501 Hartford CT 06106 060646755 501c(3) 115648 CF CARE CENTER Cook Children's Medical Center CF Center 801 Seventh Avenue Ft Worth TX 76104 752051646 501c(3) 218210 CF CARE CENTER Daughters of Caring Health Services of Austin PO Box 1 Houston TX 77212 741109643 501c(3) 287375 CF CARE CENTER Drexel University College of Medicine St Christ 3201 Arch StSte 420 Philadelphia PA 19104 231352630 501c(3) 238531 CF CARE CENTER Driscoll Children's Hospital Corpus Christi TX 78411 Corpus Christi TX 78411 742577746 501c(3) 34900 CF CARE CENTER Pennsylvania State University College of Medicine Hershey PA 17033 246000376 IRC 115 107506 RESEARCH East Tennessee Children's Hospital Association I 2100 Clinch Ave 310 Knoxville TN 37916 626002604 501c(3) 210750 CF CARE CENTER Eastern Maine Medical Center 417 State St Suite 305 Bangor ME 04401 010211501 501c(3) 50220 CF CARE CENTER Eastern Virginia Medical School 601 Childrens Lane 1600 SW ARCHER RD SUITE D2-15 Norfolk VA 23507 540506321 501c(3) 40925 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 32228 ADULT CARE Erlanger Health System 975 East Third Street Chattanooga TN 37403 626000101 501c(3) 49660 CF CARE CENTER Geisinger Medical Center 100 N Academy Drive SUITE 50 Danville PA 17822 236291113 501c(3) 167794 CF CARE CENTER Good Samaritan Hospital 1000 Montauk Highway MOB 203 New York NY 11795 111888924 501c(3) 27500 CF CARE CENTER Greenville Hospital System 701 Grove Road CYSTIC FIBROSIS CLINIC Greenville SC 29605 576007863 501c(3) 67690 CF CARE CENTER Gundersen Lutheran Medical Foundation 1900 South Avenue 901 45TH STREET La Crosse WI 54601 391249705 501c(3) 30640 CF CARE CENTER Hartford Hospital (Central Connecticut Cystic Fibr 80 Seymour Street Hartford CT 06102 060646668 501c(3) 115766 CF CARE CENTER Henry M Jackson Foundation for the advancement of 1404 Rockville Pike Rockville MD 20852 521317896 501c(3) 38505 CF CARE CENTER Inova Health Care Services 8110 Gatehouse Rd Falls Church VA 22042 540620889 501c(3) 28500 CF CARE CENTER Iowa Health Foundation (Blank Children's CF Center 1440 Ingersoll Avenue Des Moines IA 50309 421467682 501c(3) 73680 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 110160 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall SUITE E-110 Pittsburgh PA 15260 250965591 501c(3) 54000 PILOT STUDY Kaleida Health 219 Bryant Street Buffalo NY 14209 161533232 501c(3) 149940 CF CARE CENTER Landon Pediatric Foundation 3291 Loma Vista Road Ventura CA 93003 931097216 501c(3) 37880 CF CARE CENTER Lee Memorial Health System Foundation Inc (LMHS 16451 HealthPark Commons Ft Myers FL 33908 650645343 501c(3) 37000 CF CARE CENTER Lehigh Valley Hospital 2545 Schoenersville Rd Bethlehem PA 18017 231689692 501c(3) 69298 CF CARE CENTER Loma Linda University 11175 E Campus Street Loma Linda CA 92354 953522679 501c(3) 68410 CF CARE CENTER Long Island Jewish Medical Center 972 Brushhollow Road 3333 BURNET AVENUE Westbury NY 11590 112241326 501c(3) 211760 CF CARE CENTER Louisiana State University Health Sciences Center 642 CSRB 533 Bolivar New Orleans LA 70112 726087770 501c(3) 114540 CF CARE CENTER Loyola University of Chicago 2160 S First Avenue Maywood IL 60153 361408475 501c(3) 28660 CF CARE CENTER Maine Medical Center 22 Bramhall Street RESEARCH AND SPONSORED PROGRAMS Portland ME 04102 010238552 501c(3) 151431 CF CARE CENTER Marshfield Clinic Research Foundation 1000 North Oak Avenue Marshfield WI 54449 390452970 501c(3) 83744 CF CARE CENTER Mary Bridge Children's Foundation 311 South L St Mailstop Tacoma WA 98405 943030039 501c(3) 59090 CF CARE CENTER Mayo Clinic Rochester 200 First Street SW Rochester MN 55905 416011702 501c(3) 95860 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 375000 RESEARCH Memorial Medical Center Foundation 2801 Atlantic Ave Long Beach CA 90801 956105984 501c(3) 163120 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 500000 RESEARCH CENTER Michigan State University 301 Admin Bldg East Lansing MI 48824 386005984 501c(3) 93657 CF CARE CENTER Mission Healthcare Foundation Inc 980 Hendersonville Rd Asheville NC 28803 561881331 501c(3) 24350 CF CARE CENTER Monmouth Medical Center Foundation 300 Second Avenue Long Branch NJ 07740 222456079 501c(3) 171730 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall PLUMMER 5 Pittsburgh PA 15260 250965591 501c(3) 63100 RESEARCH STUDY University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 61250 TRAINING Children's Hospital Medical Center (Cincinnati Chi 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 197210 CF CARE CENTER Children's Hospital Medical Center (Cincinnati Chi 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 54000 PILOT STUDY Children's Hospital Medical Center (Cincinnati Chi 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 470000 RESEARCH CENTER Children's Hospital Medical Center (Cincinnati Chi 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 128550 RESEARCH STUDY Children's Hospital Medical Center (Cincinnati Chi 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 61250 TRAINING Orlando Health Foundation 3160 Southgate Com Blvd Orlando FL 32806 592244943 501c(3) 80200 CF CARE CENTER OSF Saint Francis Medical Center 530 NE Glen Oak Avenue SUITE 102 Peoria IL 61637 370662569 501c(3) 100860 CF CARE CENTER The Ohio State University 1960 Kenny Road Columbus OH 43210 316025986 IRC 115 54000 PILOT STUDY Phoenix Children's Hospital 1300 North 12th Street Phoenix AZ 85006 860422559 501c(3) 301011 CF CARE CENTER Providence Health & Services Washington 3200 Providence Drive PO Box 196 PO BOX 19636 Anchorage AK 99519 920016429 501c(3) 66153 CF CARE CENTER Providence Physician Service 101 W 8th Ave Spokane WA 99204 510216586 C CORP 165930 CF CARE CENTER Rady Children's Hospital Foundation - San Diego 3020 Childrens Way San Diego CA 92123 330170626 501c(3) 110773 CF CARE CENTER The Ohio State University 1960 Kenny Road 310 JESSE HALL Columbus OH 43210 316025986 IRC 115 208000 RESEARCH Renown Health Foundation 1155 Mill St Z-5 Reno NV 89502 942872749 501c(3) 41170 CF CARE CENTER The Ohio State University 1960 Kenny Road Columbus OH 43210 316025986 IRC 115 191527 RESEARCH STUDY Rush University Medical Center St Luke's Medica 1725 West Harrison Chicago IL 60612 362174823 501c(3) 167552 CF CARE CENTER The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43260 316056230 501c(3) 32400 ADULT CARE Saint Barnabas Medical Center Peds Pulmonary Div Livingston NJ 07039 221494440 501c(3) 46810 CF CARE CENTER Saint Joseph Regional Medical Center 611 East Cedar Street Mishawaka IN 46545 351568821 501c(3) 47610 CF CARE CENTER Saint Joseph's Hospital and Medical Center 703 Main Street Paterson NJ 07503 221487602 501c(3) 40240 CF CARE CENTER Sanford Children's Specialty Clinic 1305 W 18th Street Sioux Falls SD 57117 460447693 501c(3) 121480 CF CARE CENTER Sanford Medical Center Fargo 801 North Broadway Fargo ND 58122 450226909 501c(3) 29960 CF CARE CENTER Santa Barbara Cottage Hospital 2405 De La Vina St Santa Barbara CA 93105 951644629 501c(3) 35890 CF CARE CENTER Seattle Children's Hospital Foundation 6901 Sand Point Way NE Seattle WA 98105 910564748 501c(3) 211490 CF CARE CENTER South Broward Hospital District Cystic Fibrosis Clinic Hollywood FL 33321 596014973 501c(3) 187380 CF CARE CENTER Spectrum Health Foundation 100 Michigan St NE Grand Rapids MI 49503 382752328 501c(3) 327322 CF CARE CENTER St Alexius Medical Center PO Box 5510 MAIL STOP 6591 Bismarck ND 58506 450226711 501c(3) 66570 CF CARE CENTER St Louis University 3500 Lindell Blvd St Louis MO 63103 430654872 501c(3) 231045 CF CARE CENTER St Luke's Regional Medical Center 100 East Idaho Suite 200 SUITE 200 Boise ID 83712 820161600 501c(3) 144330 CF CARE CENTER St Vincent Hospital of the Hospital Sisters of th 835 S VanBuren St Green Bay WI 54301 390817529 501c(3) 51600 CF CARE CENTER SUNY Upstate Medical University College of Medicin P O Box 9 Albany NY 12201 141368361 501c(3) 478752 CF CARE CENTER Sutter Medical Center Sacramento 5609 J Street Sacramento CA 95819 941156621 501c(3) 62550 CF CARE CENTER Texas Tech University Health Sciences Center 3601 4th Street Lubbock TX 79430 752668014 IRC 115 39690 CF CARE CENTER The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43260 316056230 501c(3) 283720 CF CARE CENTER The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43260 316056230 501c(3) 54000 PILOT STUDY The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43260 316056230 501c(3) 200000 RESEARCH CENTER The Hitchcock Foundation One Medical Center Drive Lebanon NH 03756 020222139 501c(3) 199985 CF CARE CENTER The Research Institute at Nationwide Children's Ho 700 Childrens Drive Columbus OH 43260 316056230 501c(3) 68750 TRAINING Cleveland Clinic Foundation 9500 Euclid Ave Cleveland OH 44195 340714585 501c(3) 28500 CF CARE CENTER Cleveland Clinic Foundation 9500 Euclid Ave Cleveland OH 44195 340714585 501c(3) 104898 RESEARCH Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 32400 ADULT CARE The Regents of the University of California Los A 10920 Wilshire Blvd Los Angeles CA 90024 946006143 501c(3) 34770 CF CARE CENTER Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 108000 PILOT STUDY Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 448348 RESEARCH Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 923133 RESEARCH CENTER Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 73550 RESEARCH STUDY Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501c(3) 86800 TRAINING The Tampa General Hospital Foundation PO Box 1289 1601 NW 12TH AVENUE Tampa FL 33601 237354477 501c(3) 129510 CF CARE CENTER University Hospitals of Cleveland Rainbow Babies 2074 Abingdon Road 32-2210 Cleveland OH 44106 341567805 501c(3) 80935 ADULT CARE University Hospitals of Cleveland Rainbow Babies 2074 Abingdon Road Cleveland OH 44106 341567805 501c(3) 218150 CF CARE CENTER The University of Chicago 5801 S Ellis Avenue Chicago IL 60637 362177139 501c(3) 239338 CF CARE CENTER Vanderbilt University Medical Center 1161 21st Avenue South Nashville TN 37232 352528741 501c(3) 258170 CF CARE CENTER Vanderbilt University Medical Center 1161 21st Avenue South Nashville TN 37232 352528741 501c(3) 130000 RESEARCH Toledo Children's Hospital 2142 N Cove Blvd Toledo OH 43606 344428256 501c(3) 196925 CF CARE CENTER Trustees of Indiana University PO Box 66057 Bloomington IN 46266 356001673 501c(3) 464766 CF CARE CENTER Trustees of Indiana University PO Box 66057 Bloomington IN 46266 356001673 501c(3) 99499 QUALITY IMPROVEMENT Tufts Medical Center 800 Washington St Boston MA 02111 043400617 501c(3) 23010 CF CARE CENTER Tulane University Medical School 6401 Freret St SUITE 305 New Orleans LA 70118 720423889 501c(3) 317847 CF CARE CENTER Trustees of Indiana University PO Box 66057 Bloomington IN 46266 356001673 501c(3) 188750 TRAINING University of Arkansas for Medical Sciences 4301 West Markham St Little Rock AR 72205 716046242 IRC 115 106400 CF CARE CENTER University of Cincinnati Physicians Company 231 Albert Sabin Way Cincinnati OH 45267 311405915 IRC 115 136956 CF CARE CENTER Northwestern University 750 N Lake Shore Drive Chicago IL 60611 362167817 501c(3) 50515 ADULT CARE Northwestern University 750 N Lake Shore Drive Chicago IL 60611 362167817 501c(3) 181078 CF CARE CENTER Northwestern University 750 N Lake Shore Drive Chicago IL 60611 362167817 501c(3) 107174 RESEARCH University of Kentucky Research Foundation 740 South Limestone Lexington KY 40536 616033693 501c(3) 195660 CF CARE CENTER The Regents of the University of Michigan 3003 South State St Ann Arbor MI 48109 386006309 501c(3) 564296 CF CARE CENTER University of Massachusetts Medical Center 55 Lake Avenue Worcester MA 10655 043167352 IRC 115 172090 CF CARE CENTER The Regents of the University of Michigan 3003 South State St Ann Arbor MI 48109 386006309 501c(3) 32400 QUALITY IMPROVEMENT University of Mississippi Medical Center 2500 North State Street Jackson MS 39216 646008520 501c(3) 122400 CF CARE CENTER The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee WI 53226 390806261 501c(3) 39492 ADULT CARE University of New Mexico Health Sciences Center Health Sci Svc Bldg Albuquerque NM 87131 856000642 IRC 115 125720 CF CARE CENTER The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee WI 53226 390806261 501c(3) 397805 CF CARE CENTER Board of Regents of the University of Wisconsin Sy 750 University Avenue Madison WI 53706 396006492 IRC 115 18429 ADULT CARE Board of Regents of the University of Wisconsin Sy 750 University Avenue OFFICE OF SPONSORED PROGRAMS Madison WI 53706 396006492 IRC 115 282207 CF CARE CENTER University of South Carolina Research Foundation 901 Sumter Street Columbia SC 29208 570967350 501c(3) 68150 CF CARE CENTER University of South Florida 17 Davis Boulevard Tampa FL 33606 593102112 IRC 115 42310 CF CARE CENTER University of Southern California 1540 Alcazar Street Los Angeles CA 90033 951642394 501c(3) 231938 CF CARE CENTER University of Tennessee 62 S Dunlap OFFICE OF SPONSORED RESEARCH Memphis TN 38163 626001636 IRC 115 136930 CF CARE CENTER University of Tennessee Medical Center 1940 Alcoa Hwy Knoxville TN 37920 311626179 501c(3) 151150 CF CARE CENTER University of Texas Health Center at Tyler 11937 US Hwy 271 Tyler TX 75708 756001354 IRC 115 170801 CF CARE CENTER Board of Regents of the University of Wisconsin Sy 750 University Avenue Madison WI 53706 396006492 IRC 115 26584 QUALITY IMPROVEMENT Board of Regents of the University of Wisconsin Sy 750 University Avenue Madison WI 53706 396006492 IRC 115 66250 TRAINING University of Vermont Medical Center IncFletche PO Box 1870 Burlington VT 05402 030219309 501c(3) 161674 CF CARE CENTER The Regents of the University of Minnesota 200 Oak St SE 740 SOUTH LIMESTONE Minneapolis MN 55455 416007513 IRC 115 180224 ADULT CARE University Psychiatric Practice Inc (SUNY Buffal 462 Grider St Buffalo NY 14215 161426208 501c(3) 49368 CF CARE CENTER The Regents of the University of Minnesota 200 Oak St SE MSB 60048 Minneapolis MN 55455 416007513 IRC 115 629270 CF CARE CENTER The Regents of the University of Minnesota 200 Oak St SE Minneapolis MN 55455 416007513 IRC 115 108000 RESEARCH The Regents of the University of Minnesota 200 Oak St SE PO BOX 66057 Minneapolis MN 55455 416007513 IRC 115 65450 RESEARCH STUDY Via Christi Hospital Wichita Inc 707 N Emporia SUITE 405 Wichita KS 67214 481172106 501c(3) 106120 CF CARE CENTER The Regents of the University of Minnesota 200 Oak St SE Minneapolis MN 55455 416007513 IRC 115 68750 TRAINING University of Iowa B 5 Jessup Hall Iowa City IA 52242 426004813 IRC 115 43043 ADULT CARE University of Iowa B 5 Jessup Hall 200 OAK ST SE Iowa City IA 52242 426004813 IRC 115 212370 CF CARE CENTER Wayne State University Research Sponsored Pgm Detroit MI 48201 386028429 501c(3) 156950 CF CARE CENTER University of Iowa B 5 Jessup Hall Iowa City IA 52242 426004813 IRC 115 108000 PILOT STUDY Western Michigan University School of Medicine 1000 Oakland Drive Kalamazoo MI 49008 454135256 501c(3) 66360 CF CARE CENTER University of Iowa B 5 Jessup Hall Iowa City IA 52242 426004813 IRC 115 323900 RESEARCH Breathe Bravely 305 W 29th Street RUBLOFF 7TH FLOOR Sioux Falls SD 57105 475334258 501c(3) 9575 COMMUNITY IMPACT CF Society Inc 4118-14th Avenue Brooklyn NY 11219 471569448 501c(3) 10000 COMMUNITY IMPACT Cody Dieruf Benefit Foundation PO Box 6044 Bozeman MT 59771 204498266 501c(3) 8000 COMMUNITY IMPACT Kid Logistics 470 Arundel Drive Brandon MS 39047 813019912 501c(3) 8870 COMMUNITY IMPACT Meghan's Light Inc 71 Homer St Feeding Hills MA 01030 475429549 501c(3) 10000 COMMUNITY IMPACT Miles for Cystic Fibrosis Inc PO Box 2984 7703 FLOYD CURL DRIVE Tucker GA 30085 264020016 501c(3) 10000 COMMUNITY IMPACT Project CF Spouse 170 Davis Court F428 FITZSIMONS BUILDING 500 Hiram GA 30141 813803502 501c(3) 9000 COMMUNITY IMPACT Rock CF Foundation 2990 West Grand Boulevard Detroit MI 48202 134358351 501c(3) 10000 COMMUNITY IMPACT Cystic Fibrosis Foundation Therapeutics Inc 4550 Montgomery Ave Bethesda MD 20814 912059167 501c(3) 115564401 GENERAL SUPPORT Healthwell Foundation PO Box 4133 1540 ALCAZAR STREET Gaithersburg MD 20885 200413676 501c(3) 1850000 PATIENT ASSISTANCE University of Iowa B 5 Jessup Hall PO BOX 1428 Iowa City IA 52242 426004813 IRC 115 600000 RESEARCH CENTER University of Iowa B 5 Jessup Hall 9500 GILMAN DRIVE DEPT 0934 Iowa City IA 52242 426004813 IRC 115 63100 RESEARCH STUDY Eastern Virginia Medical School 601 Childrens Lane Norfolk VA 23507 546055378 501c(3) 54000 PILOT STUDY Washington University 700 Rosedale Ave St Louis MO 63112 430653611 501c(3) 85796 ADULT CARE Washington University 700 Rosedale Ave St Louis MO 63112 430653611 501c(3) 327282 CF CARE CENTER Washington University 700 Rosedale Ave St Louis MO 63112 430653611 501c(3) 68750 TRAINING Northeastern University 360 Huntington Ave Boston MA 02115 041679980 501c(3) 54000 PILOT STUDY The Curators of the University of Missouri 310 Jesse Hall Columbia MO 65211 436003859 IRC 115 220060 CF CARE CENTER Oregon State University 312 Kerr Admin Bldg Corvallis OR 97331 611730890 IRC 115 50000 PILOT STUDY The Curators of the University of Missouri 310 Jesse Hall SUITE M21 Columbia MO 65211 436003859 IRC 115 54000 PILOT STUDY The Curators of the University of Missouri 310 Jesse Hall Columbia MO 65211 436003859 IRC 115 108000 RESEARCH Rutgers The State University of New Jersey 58 Bevier Road Piscataway NJ 08854 462354111 IRC 115 41142 ADULT CARE Rutgers The State University of New Jersey 58 Bevier Road Piscataway NJ 08854 462354111 IRC 115 257766 CF CARE CENTER University of Nebraska Medical Center 985100 Nebraska Medical Ctr Omaha NE 68198 470049123 501c(3) 288440 CF CARE CENTER University of Nebraska Medical Center 985100 Nebraska Medical Ctr Omaha NE 68198 470049123 501c(3) 53020 PILOT STUDY University of Kansas Medical Center Research Insti 3901 Rainbow Blvd Kansas City KS 66103 481108830 501c(3) 46440 ADULT CARE University of Kansas Medical Center Research Insti 3901 Rainbow Blvd Kansas City KS 66103 481108830 501c(3) 304923 CF CARE CENTER The Johns Hopkins University 600 N Wolfe Street Baltimore MD 21205 520595110 501c(3) 77559 ADULT CARE The Johns Hopkins University 600 N Wolfe Street Baltimore MD 21205 520595110 501c(3) 514483 CF CARE CENTER The Johns Hopkins University 600 N Wolfe Street Baltimore MD 21205 520595110 501c(3) 54000 PILOT STUDY Trustees of Boston University 881 Commonwealth Ave Boston MA 02115 042103547 501c(3) 54000 PILOT STUDY The Johns Hopkins University 600 N Wolfe Street Baltimore MD 21205 520595110 501c(3) 427169 RESEARCH University of Georgia Research Foundation INC De 232 Epps Bridge Rd Athens GA 30606 581353149 501c(3) 54000 PILOT STUDY The University of Maryland College Park 3112 Lee Building College Park MD 20742 526002033 IRC 115 54000 PILOT STUDY The University of Maryland College Park 3112 Lee Building B 5 JESSUP HALL College Park MD 20742 526002033 IRC 115 216000 RESEARCH Virginia Commonwealth University Box 2506 - VCU Station 310 JESSE HALL Richmond VA 23284 546001758 IRC 115 45736 ADULT CARE University of Notre Dame du Lac 731 Grace Hall Notre Dame IN 46556 350868188 501c(3) 53906 PILOT STUDY Virginia Commonwealth University Box 2506 - VCU Station S-151F Richmond VA 23284 546001758 IRC 115 273070 CF CARE CENTER Virginia Commonwealth University Box 2506 - VCU Station 1601 NW 12TH AVENUE Richmond VA 23284 546001758 IRC 115 100000 RESEARCH Virginia Commonwealth University Box 2506 - VCU Station Richmond VA 23284 546001758 IRC 115 64968 TRAINING The Rector and Visitors of the University of Virgi PO Box 400195 405 LAKE HALL Charlottesville VA 22904 546001796 501c(3) 40483 ADULT CARE The Rector and Visitors of the University of Virgi PO Box 400195 Charlottesville VA 22904 546001796 501c(3) 349160 CF CARE CENTER West Virginia University Research Corporation PO Box 6001 Morgantown WV 26506 550665758 501c(3) 182567 CF CARE CENTER West Virginia University Research Corporation PO Box 6001 Morgantown WV 26506 550665758 501c(3) 54000 PILOT STUDY Duke University Box 104025 Durham NC 27710 560532129 501c(3) 40986 ADULT CARE Duke University Box 104025 PO BOX 6001 Durham NC 27710 560532129 501c(3) 212563 CF CARE CENTER The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 37301 ADULT CARE The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 491780 CF CARE CENTER The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 486000 PILOT STUDY The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 157936 QUALITY IMPROVEMENT Board of Trustees of the University of Illinois 809 S Marshfield Ave Chicago IL 60612 376000511 501c(3) 122139 RESEARCH Brigham and Women's Hospital Boston 10 Vining Boston MA 02115 042312909 501c(3) 80685 RESEARCH The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 681562 RESEARCH Children's Hospital & Research Center at Oakland 747 52nd Street F428 FITZSIMONS BUILDING 500 Oakland CA 94609 940382330 501c(3) 108000 RESEARCH The University of North Carolina at Chapel Hill NC State Treasurer 10920 WILSHIRE BLVD SUITE 200 Chapel Hill NC 27599 566001393 501c(3) 600000 RESEARCH CENTER The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 65364 RESEARCH STUDY Cold Spring Habror Laboratory 1 Bungtown Cold Spring Harbor NY 11724 112013303 501c(3) 107428 RESEARCH The University of North Carolina at Chapel Hill NC State Treasurer Chapel Hill NC 27599 566001393 501c(3) 218044 TRAINING Georgia Tech Research Corporation PO Box 100117 Atlanta GA 30384 580603146 501c(3) 105200 RESEARCH Medical University of South Carolina PO Box 997 Charleston SC 29402 576000722 501c(3) 32400 ADULT CARE National Disease Research Interchange 8 Penn Ctr 15th Fl Philadelphia PA 19103 232213205 501c(3) 320000 RESEARCH Medical University of South Carolina PO Box 997 0690 SW BANCROFT STREET Charleston SC 29402 576000722 501c(3) 193180 CF CARE CENTER Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501c(3) 78329 ADULT CARE Organ Alliance Inc 344 W 23rd St 1A New York NY 10011 460806598 501c(3) 185020 RESEARCH Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501c(3) 401084 CF CARE CENTER Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501c(3) 53700 PILOT STUDY Emory University 1599 Clifton Rd NE OFFICE OF SPONSORED RESEARCH Atlanta GA 30322 580566256 501c(3) 556561 RESEARCH Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501c(3) 462333 RESEARCH CENTER Emory University 1599 Clifton Rd NE MSB 60048 Atlanta GA 30322 580566256 501c(3) 126200 RESEARCH STUDY Emory University 1599 Clifton Rd NE Atlanta GA 30322 580566256 501c(3) 66251 TRAINING University of Miami 1601 NW 12th Avenue Miami FL 33136 590624458 501c(3) 70483 ADULT CARE University of Miami 1601 NW 12th Avenue Miami FL 33136 590624458 501c(3) 212430 CF CARE CENTER The Scripps Research Institute 10666 N Torrey Pines Rd LA Jolla CA 92037 330435954 501c(3) 108000 RESEARCH University of Miami 1601 NW 12th Avenue Miami FL 33136 590624458 501c(3) 108000 RESEARCH Nemours Children's Health System 10140 Ctn Parkway N Jacksonville FL 32256 590634433 501c(3) 340660 CF CARE CENTER University of Alabama in Huntsville 301 Sparkman Dr SW Huntsville AL 35899 630520830 IRC 115 125000 RESEARCH Nicklaus Children's Hospital 3100 SW 60 Court ATTN DEBORAH ELAM Miami FL 33155 590638499 501c(3) 78070 CF CARE CENTER University of Florida 1600 SW Archer Rd Gainesville FL 32610 596002052 IRC 115 82617 ADULT CARE University of Florida 1600 SW Archer Rd Gainesville FL 32610 596002052 IRC 115 372833 CF CARE CENTER University of Florida 1600 SW Archer Rd Gainesville FL 32610 596002052 IRC 115 35029 QUALITY IMPROVEMENT University of South Alabama Admin Bldg 362 Mobile AL 36688 630477348 501c(3) 108000 RESEARCH University of Louisville Research Foundation Inc Office of Grants Mgt Louisville KY 40292 611029626 501c(3) 163590 CF CARE CENTER University of Louisville Research Foundation Inc Office of Grants Mgt Louisville KY 40292 611029626 501c(3) 53609 PILOT STUDY The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 35294 636005396 501c(3) 431239 CF CARE CENTER The University of Alabama at Birmingham 1530 3rd Ave S THT422 Birmingham AL 35294 636005396 501c(3) 216000 PILOT STUDY The University of Alabama at Birmingham 1530 3rd Ave S THT422 310 JESSE HALL Birmingham AL 35294 636005396 501c(3) 448480 RESEARCH The University of Alabama at Birmingham 1530 3rd Ave S THT422 PO BOX 414876 Birmingham AL 35294 636005396 501c(3) 525000 RESEARCH CENTER University of Oklahoma Health Sciences Center PO Box 26901 Oklahoma City OK 73190 736017987 IRC 115 58906 ADULT CARE University of Oklahoma Health Sciences Center PO Box 26901 Oklahoma City OK 73190 736017987 IRC 115 289680 CF CARE CENTER University of Texas Health Science Center at San A 7703 Floyd Curl Drive Mail Code 78 San Antonio TX 78229 741586031 IRC 115 79454 ADULT CARE University of Texas Health Science Center at San A 7703 Floyd Curl Drive Mail Code 78 200 OAK ST SE San Antonio TX 78229 741586031 IRC 115 195146 CF CARE CENTER National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 38983 ADULT CARE National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 260920 CF CARE CENTER National Jewish Medical and Research Center 1400 Jackson Street OFFICE OF SPONSORED RESEARCH Denver CO 80206 742044647 501c(3) 108000 PILOT STUDY National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 324000 RESEARCH National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 525000 RESEARCH CENTER National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 65450 RESEARCH STUDY The University of Texas at Austin P O Box 7726 Austin TX 78713 746000203 IRC 115 54000 PILOT STUDY California Institute of Technology 1200 E CA Blvd PASADENA CA 91125 951643307 501c(3) 204450 RESEARCH STUDY The University of Texas at Austin P O Box 7726 Austin TX 78713 746000203 IRC 115 106777 RESEARCH The University of Texas at Austin P O Box 7726 SPONSORED PROGRAMS ACCOUNTING DEPT Austin TX 78713 746000203 IRC 115 130900 RESEARCH STUDY UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd 1600 SW ARCHER RD SUITE D2-15 Dallas TX 75390 756002868 IRC 115 435875 CF CARE CENTER UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd B 5 JESSUP HALL Dallas TX 75390 756002868 IRC 115 108000 RESEARCH UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas TX 75390 756002868 IRC 115 54566 RESEARCH STUDY UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd 1601 NW 12TH AVENUE Dallas TX 75390 756002868 IRC 115 130000 TRAINING Regents of the University of Colorado at Denver F428 Fitzsimons Bldg 500 Aurora CO 80045 846000555 501c(3) 45014 ADULT CARE Regents of the University of Colorado at Denver F428 Fitzsimons Bldg 500 Aurora CO 80045 846000555 501c(3) 377230 CF CARE CENTER Regents of the University of Colorado at Denver F428 Fitzsimons Bldg 500 Aurora CO 80045 846000555 501c(3) 117274 QUALITY IMPROVEMENT Regents of the University of Colorado at Denver F428 Fitzsimons Bldg 500 Aurora CO 80045 846000555 501c(3) 255000 TRAINING University of Utah 406 Park Bldg Salt Lake City UT 84112 876000525 501c(3) 32400 ADULT CARE University of Utah 406 Park Bldg Salt Lake City UT 84112 876000525 501c(3) 354070 CF CARE CENTER University of Washington 4333 Brooklyn Ave NE Seattle WA 98105 916001537 IRC 115 257980 CF CARE CENTER University of Washington 4333 Brooklyn Ave NE Seattle WA 98105 916001537 IRC 115 217093 PILOT STUDY University of Washington 4333 Brooklyn Ave NE Seattle WA 98105 916001537 IRC 115 558226 RESEARCH University of Washington 4333 Brooklyn Av NE Seattle WA 98105 916001537 IRC 115 600000 RESEARCH CENTER University of Washington 4333 Brooklyn Ave NE Seattle WA 98105 916001537 IRC 115 191650 RESEARCH STUDY Oregon Health & Science University 0690 SW Bancroft Street S-151F Portland OR 97239 931176109 501c(3) 32400 ADULT CARE Oregon Health & Science University 0690 SW Bancroft Street Portland OR 97239 931176109 501c(3) 390048 CF CARE CENTER Oregon Health & Science University 0690 SW Bancroft Street Portland OR 97239 931176109 501c(3) 54000 PILOT STUDY Kaiser Permanente Center for Health Research 3800 N Interstate Ave Portland OR 97227 941105628 501c(3) 312060 CF CARE CENTER Board of Trustees of the Leland Stanford Junior Un 651 Serra Street Stanford CA 94305 941156365 501c(3) 395334 CF CARE CENTER Board of Trustees of the Leland Stanford Junior Un 651 Serra Street Stanford CA 94305 941156365 501c(3) 415984 RESEARCH The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 363410 CF CARE CENTER The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 54000 PILOT STUDY The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 108000 RESEARCH The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 430000 RESEARCH CENTER The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 128550 RESEARCH STUDY The Regents of the University of California San F 3333 California St San Francisco CA 94143 946036493 501c(3) 391250 TRAINING The Regents of the University of California Davis 1200 Dutton Hall Davis CA 95616 946036494 501c(3) 46440 ADULT CARE The Regents of the University of California Davis 1200 Dutton Hall Davis CA 95616 946036494 501c(3) 196175 CF CARE CENTER Children's Hospital of Orange County PO Box 5700 Orange CA 92613 952321786 501c(3) 32400 ADULT CARE Children's Hospital of Orange County PO Box 5700 Orange CA 92613 952321786 501c(3) 127974 CF CARE CENTER The Regents of the University of California San D 9500 Gilman Drive La Jolla CA 92093 956006144 501c(3) 52547 ADULT CARE The Regents of the University of California San D 9500 Gilman Drive La Jolla CA 92093 956006144 501c(3) 318580 CF CARE CENTER The Regents of the University of California San D 9500 Gilman Drive La Jolla CA 92093 956006144 501c(3) 108000 RESEARCH Asthma and Allergy Specialists PA 411 Billings Rd Charlotte NC 28211 561913043 C CORP 59200 CF CARE CENTER Atlantic Health System 100 Madison Avenue ATTN DEBORAH ELAM Morristown NJ 07962 521958352 501c(3) 41922 ADULT CARE Boston Children's Health Physicians LLP 40 Sunshine Cottage Rd Valhalla NY 10595 133956599 LLP 156770 CF CARE CENTER Boston Children's Health Physicians LLP 40 Sunshine Cottage Rd Valhalla NY 10595 133956599 LLP 54000 CF CARE CENTER Central Florida Pulmonary Group 326 North Mills Avenue Orlando FL 32803 591760017 C CORP 99420 CF CARE CENTER Central Florida Pulmonary Group 326 North Mills Avenue 3333 CALIFORNIA STREET SUITE 315 Orlando FL 32803 591760017 C CORP 49950 CF CARE CENTER Children's Specialty Group PLLC 811 Redgate Ave Norfolk VA 23507 541871633 LLC 99369 CF CARE CENTER Fairfax Neonatal Associates PC 2730-B Prosperity Avenue Fairfax VA 22031 541110106 C CORP 61260 CF CARE CENTER LifeUnit LLC 841 E Fayette St SUITE D3300 MCN Syracuse NY 13210 828741475 LLC 99626 RESEARCH Lutheran Hospital of Indiana 7950 West Jefferson Blvd FT Wayne IN 46804 351963748 C CORP 55950 CF CARE CENTER North Suburban Pulmonary Research and Education 8780 W Gold Suite 102 3333 BURNET AVENUE Niles IL 60714 364393617 C CORP 43030 CF CARE CENTER Tenet St Mary's Inc Cystic Fibrosis Center PO Box 24620 West Palm Beach FL 33407 752932830 C CORP 62330 CF CARE CENTER Tenet St Mary's Inc Cystic Fibrosis Center PO Box 24620 West Palm Beach FL 33407 752932830 C CORP 39960 CF CARE CENTER Tenet St Mary's Inc Cystic Fibrosis Center PO Box 24620 West Palm Beach FL 33407 752932830 C CORP 108000 CF CARE CENTER 204 9 fellowships 8 48527 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. SCHEDULE I, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY. SCHEDULE I, PART III FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. X X X X X X true true false false false false false true false PRESTON CAMPBELL MD PRESIDENT & CEO 369858 186037 266400 131212 169507 79561 131074 51107 25026 0 961865 447917 132835 65426 JACK MAHLER MD CHIEF INVESTMENT OFFICER 542149 0 650000 0 4903 0 127312 0 25026 0 1349390 0 0 0 MARC S GINSKY EXECUTIVE VP, COO & SECRETARY 467890 0 174227 0 21094 0 190903 0 35110 0 889224 0 68247 0 VERA H TWIGG EXECUTIVE VP & CFO 328670 0 178036 0 18000 0 92640 0 35110 0 652456 0 41058 0 ROBERT J BEALL PHD FORMER CEO/CURRENT CONSULTANT 269500 0 70350 34650 43244 21299 0 0 0 0 383094 55949 28879 14224 C RICHARD MATTINGLY FORMER COO 0 0 0 0 197010 0 0 0 0 0 197010 0 72855 0 DRUCY S BOROWITZ MD SENIOR VP, COMMUNITY AFFAIRS 375062 0 89579 0 5725 0 32312 0 0 0 502678 0 0 0 TIMOTHY A WAIRE JR CHIEF INFORMATION OFFICER 275487 0 65077 0 959 0 32312 0 32778 0 406613 0 0 0 GLEN GOLDMARK SENIOR VP OF HUMAN RESOURCES 276817 0 71627 0 6741 0 32312 0 22626 0 410123 0 0 0 ALBERT FARO MD SR DIRECTOR, CLINICAL AFFAIRS 296937 0 21113 0 1540 0 27312 0 34424 0 381326 0 0 0 MARYBETH MCMAHON PHD CHIEF OF STAFF 264894 0 64710 0 2605 0 32312 0 20605 0 385126 0 0 0 BRUCE MARSHALL MD SENIOR VP, CLINICAL AFFAIRS 335833 79113 89144 21000 5381 1268 26151 6161 185 43 456694 107585 0 0 WILLIAM SKACH MD SENIOR VP, RESEARCH AFFAIRS 58183 329703 15227 86284 951 5388 4847 27465 5266 29843 84474 478683 0 0 PART I, LINE 4A SEVERANCE PAYMENTS: A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 9, BELOW. PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN: CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 7 SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. PART II CYSTIC FIBROSIS FOUNDATION. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $369,858; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $128,875, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $67,175, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,825, VESTED SERP ACCOUNT (8) - $148,334; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $103,762; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,173, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,253; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $132,835. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $186,037; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $63,476, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $33,086, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, VESTED SERP ACCOUNT (8) - $73,060; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $51,107; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $65,426. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $467,890; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $81,980, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $68,247, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $24,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $3,094, SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $136,717, SERP (4) - $26,874; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $68,247. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $328,670; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $84,478, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,058, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $52,500; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $57,391, SERP (4) - $7,937; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $41,058. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $542,149; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $650,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,903; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, SERP (4) - $100,000; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,174, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,252. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $269,500; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $43,244; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $28,879. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $21,299 (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $14,224. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $92,255; SEVERANCE PAY (9) - $104,755; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $72,855. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2017 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($18,000 FOR 2017). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2017 (I.E., WITH RESPECT TO THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/17, 12/31/18 AND 12/31/19 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/16 WAS PAID IN 2017, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN PART II, CONTINUED 2016, 2015 AND 2014 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2017 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. CAMPBELL RECEIVED CONTRIBUTIONS FROM 2016-2017. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (9) AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THIS AMOUNT, WHICH RELATES TO (1) A PORTION OF THE AMOUNT THAT WOULD HAVE BEEN PAID TO HIM UNDER THE ORGANIZATION'S LONG TERM INCENTIVE COMPENSATION PLAN HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION THROUGH 12/31/16 AND (2) THE LONG TERM INCENTIVE PLAN TREATMENT AWARD (DESCRIBED IN FOOTNOTE 10, BELOW) THAT WOULD HAVE BEEN PAID TO HIM HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION TROUGH 12/31/18. THE LONG TERM INCENTIVE COMPENSATION PLAN AMOUNT RELATED TO A PORTION OF THE THREE-YEAR PERFORMANCE PERIOD (I.E., THE PORTION OF THE 2014-2016 PERFORMANCE PERIOD DURING WHICH THE EXECUTIVE WAS EMPLOYED BY THE ORGANIZATION), AND WAS SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (NOTE THAT AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR THE APPLICABLE YEARS. THE PREVIOUSLY REPORTED AMOUNT IS REFLECTED IN COLUMN F OF THIS FORM 990.) THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. (10) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS THE EMPLOYEE IS AN OFFICER AND HIS/HER TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN TERMINATES ON DECEMBER 31, 2018. X 63 33360 NET CASH RECEIPTS X 150 1076018 NET CASH RECEIPTS X TANGIBLE AND SERVICE AUCTION ITEMS 23124 9193003 NET CASH RECEIPTS X MORTGAGE RECEIVABLE 1 215000 SALES PRICE 1 false true true THIRD PARTY SELLER SCHEDULE M, PART I, LINE 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATIONS ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED. CONFLICT OF INTEREST MONITORING PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. DISCLOSURES PROVIDED ARE REPORTED TO THE GOVERNANCE COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2017 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY. DETERMINING COMPENSATION PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVES TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2016, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015. PART VI, SECTION C, LINE 19 PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATIONS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2017. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2017. FORM 990, PART X, LINE 27 UNRESTRICTED NET ASSETS BOARD DESIGNATED THE FOUNDATIONS UNRESTRICTED NET ASSETS TOTALED $4,181,431,067 AS OF DECEMBER 31, 2017. OF THIS AMOUNT, THE FOUNDATIONS BOARD OF TRUSTEES HAS DESIGNATED $3,300,000,000 TO BE SPENT IN SUPPORT OF THE MISSION OF THE FOUNDATION OVER THE LONG TERM. FORM 990, PART XI, LINE 9 OTHER CHANGES IN NET ASSETS PROVISION FOR LEASE COMMITMENTS...............................-4,358,356 Cystic Fibrosis Patient Assistance Fdn 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 900350985 PATIENT ASST DE 0 0 CFF CYSTIC FIBROSIS FOUNDATION THERAPEUTICS 4550 MONTGOMERY AVE SUITE 1100N BETHESDA MD 20814 912059167 RESEARCH MD 501(C)(3) 12A CFF false false true false false false false false false false false false false false true true false false false false CYSTIC FIBROSIS FOUNDATION THERAPEUTICS b 115564401 FMV CYSTIC FIBROSIS FOUNDATION THERAPEUTICS n 1181050 COST CYSTIC FIBROSIS FOUNDATION THERAPEUTICS o 3700317 COST