2018-05-15T13:14:56-05:00 2017-12-31 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2017-01-01 132298956 CHILDREN'S TUMOR FOUNDATION CHIL 2123446633 120 WALL STREET NEW YORK NY 100053904 ANNETTE BAKKER PHD PRESIDENT/CSO 2123446633 2018-05-15 1 ROBERT LYONS CPA P00227472 2125038800 2017 2022-09-23 18:48:47Z ANNETTE BAKKER PHD 120 WALL STREET NEW YORK NY 100053904 14869884 0 X WWW.CTF.ORG X 1978 NY THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 20 20 38 1000 0 0 15471546 10817315 0 0 110093 103153 41162 491993 15622801 11412461 4416029 4567848 0 0 4614556 4181224 0 0 1400435 5747415 3889001 14778000 12638073 844801 -1225612 13804303 12134437 2339491 1435291 11464812 10699146 X OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF. 0 0 8203865 4291756 RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. 2102529 276091 PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE, NF WALK, AND RACING 4 RESEARCH, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. 10306394 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 41 0 38 1 0 0 0 0 0 1 1 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 NY AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X ANNETTE BAKKER PHD 2123446633 120 WALL STREET NEW YORK NY 100053904 RICHARD A HORVITZ CHAIRPERSON 1.00 X X 0 0 0 TRACY GALLOWAY VICE CHAIRPERSON 1.00 X X 0 0 0 RANDALL STANICKY TREASURER 1.00 X X 0 0 0 GABRIEL GROISMAN SECRETARY 1.00 X X 0 0 0 LINDA H MARTIN CHAIR EMERITUS 1.00 X X 0 0 0 DANIEL ALTMAN DIRECTOR 1.00 X 0 0 0 ROBERT BRAININ DIRECTOR 1.00 X 0 0 0 WILLIAM BROOKS DIRECTOR 1.00 X 0 0 0 DANIEL GILBERT DIRECTOR 1.00 X 0 0 0 JOHN GOLFINOS MD DIRECTOR 1.00 X 0 0 0 BRENDAN HANRAHAN PHD DIRECTOR (FORMER) 1.00 X 0 0 0 MATTHEW HAY DIRECTOR 1.00 X 0 0 0 CHAD LEATHERS DIRECTOR 1.00 X 0 0 0 JOHN MCCARTHY DIRECTOR 1.00 X 0 0 0 STEVEN L MCKENZIE DIRECTOR 1.00 X 0 0 0 LAURA PERFETTI DIRECTOR 1.00 X 0 0 0 MICHAEL PETERSON DIRECTOR 1.00 X 0 0 0 KENNETH RUDD DIRECTOR 1.00 X 0 0 0 RICHARD SOLL PHD DIRECTOR 1.00 X 0 0 0 STUART MATCH SUNA DIRECTOR 1.00 X 0 0 0 RACHEL B TIVEN DIRECTOR 1.00 X 0 0 0 KARL THOMSON DIRECTOR (FORMER) 1.00 X 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC OFFICER 40.00 X 316458 0 29969 REID HOROVITZ COO/CFO 40.00 X 233583 0 28909 SARAH BOURNE DIRECTOR OF FINANCE 40.00 X 97318 0 4606 SALVATORE LAROSA VP OF RESEARCH & DEVELOPMENT 40.00 X 187600 0 20360 MELISSA SOSA-LONGO VP OF MAJOR GIFTS 40.00 X 173860 0 1006 SIMON VUKELJ VP OF MARKETING & COMMUNICATIONS 40.00 X 153473 0 19479 1162292 0 104329 5 0 1 0 SQUIRE PATTON BOGGS 2550 MAIN ST NW WASHINGTON DC 20037 LOBBYING/ADVOCACY 270000 HF PRINTING SOLUTIONS 555 EIGHTH AVENUE NEW YORK NY 10018 PRINTING 181509 KOSTOPULOS DREAM FOUNDATION 4180 EMIGRATION CYN SALT LAKE CITY UT 84108 NF CAMP 111500 3 65156 2139232 8612927 27564 10817315 104412 104412 2994731 2995990 -1259 -1259 -1259 461433 2139232 461433 0 MISC. INCOME 999999 491993 491993 491993 11412461 0 0 595146 4418012 4418012 149836 149836 710610 515427 94045 101138 2775322 1894838 308874 571610 94088 59767 15540 18781 362498 232806 59691 70001 238706 155168 38210 45328 270000 270000 539685 393687 76852 69146 14687 12292 400 1995 216884 136318 42736 37830 321134 239411 54482 27241 191606 153810 11719 26077 686568 446062 37952 202554 118523 65188 35557 17778 21043 11574 6230 3239 FOOD AND BEVERAGE 390726 333933 15393 41400 PRINTING AND PUBS. 284997 225733 15029 44235 DUES AND OTHER FEES 236185 147293 55660 33232 POSTAGE AND SHIPPING 199158 145850 25209 28099 397805 299389 37665 60751 12638073 10306394 931244 1400435 5848486 2750298 1098672 638417 178135 168232 524984 391862 246171 133122 6353823 8365352 62500 62500 16516 16516 13804303 12134437 318011 303481 1814959 930007 206521 201803 2339491 1435291 X 6673287 5989161 4791525 4709985 11464812 10699146 13804303 12134437 X -1225612 461946 -2000 X X 0 1 X 1 0 X 12171729 15370815 14360173 15404494 10867315 68174526 12171729 15370815 14360173 15404494 10867315 68174526 2784497 65390029 65814 144296 66963 110210 104412 491695 229554 42610 56252 41162 491993 861571 69527792 0.94050 0.94310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 270000 0 0 270000 0 175889 141128 34761 67673 61192 6481 281422 189542 91880 133122 DEFERRED RENT 6003 ASSETS HELD IN TRUST 195800 201803 X 11954825 461946 80418 542364 11412461 0 11412461 12720491 80418 2000 82418 12638073 0 12638073 PART X, LINE 2: THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2017, IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. PART XII, LINE 2D - OTHER ADJUSTMENTS: LOSS ON UNCOLLECTIBLE ACCOUNTS 2,000. 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH GRANTS 149836 0 0 0 0 0 0 149836 0 149836 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH-SYNODOS 110040 WIRE N/A N/A EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH-SYNODOS 19629 WIRE N/A N/A 2 0 0 0 0 0 0 0 DETROIT GALA 1988326 1621398 366928 366928 NEW YORK CITY GALA 612339 517834 94505 94505 2600665 2139232 461433 461433 461433 0 1 BRIGHAM AND WOMEN'S HOSPITAL PO BOX 3149 BOSTON MA 02241 042312909 501(C)(3) 188100 RESEARCH - YIA, NFTC & CONTRACT AWARD CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE ML 4006 CINCINNATI OH 45229 310833936 501(C)(3) 164594 RESEARCH - NFTC, SYNODOS & DDA, PATIENT SUPPORT - CLINIC NETWORK INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501(C)(3) 256698 RESEARCH - NFTC & SYNODOS JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD N4327-B BALTIMORE MD 21211 520595110 501(C)(3) 119735 RESEARCH - CONTRACT AWARD & DDA, PATIENT SUPPORT - CLINIC NETWORK MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 041564655 501(C)(3) 464974 RESEARCH - CLINICAL TRAIL AWARD, SYNODOS, YIA, CONTRACT AWARD & DDA, PATIENT SUPPORT - CLINIC NETWORK SAGE BIONETWORKS 1100 FAIRVIEW AVE N SEATTLE WA 98109 264489946 501(C)(3) 75000 RESEARCH - CONTRACT AWARD SANFORD RESEARCH 2301 EAST 60TH STREET NORTH SIOUX FALLS SD 57104 460450378 501(C)(3) 155272 RESEARCH - CONTRACT AWARD & SYNODOS THE CHILDRENS HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 376636 RESEARCH - SYNODOS, PATIENT SUPPORT - CLINIC NETWORK REGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY 2195 HEARST AVENUE ROOM 120 MC 1104 1104 BERKELEY CA 94720 946002123 501(C)(3) 152694 RESEARCH - SYNODOS THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK (COLUMBIA) 615 WEST 131ST STREET 4TH FLR NEW YORK NY 10027 135598093 501(C)(3) 437020 RESEARCH - CONTRACT AWARD THE UNIVERSITY OF IOWA 200 HAWKINS DR W134 GH IOWA CITY IA 52242 420796760 501(C)(3) 219363 RESEARCH - SYNODOS THE UNIVERSITY OF MINNESOTA PO BOX 1450 NW 5957 MINNEAPOLIS MN 55489 416007513 501(C)(3) 507133 RESEARCH - SYNODOS THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 115 MASON FARM RD CB 7250 CHAPEL HILL NC 27599 566001393 501(C)(3) 87512 RESEARCH - YIA UNIVERSITY OF CENTRAL FLORIDA 12201 RESEARCH PARKWAY SUITE 501 ORLANDO FL 32826 592924021 501(C)(3) 167379 RESEARCH - YIA & CONTRACT AWARD UNIVERSITY OF FLORIDA TRUSTEES 123 TIGERT HALL GANIEVILLE FL 32611 596002052 501(C)(3) 51395 RESEARCH - CONTRACT AWARD WASHINGTON UNIVERSITY 700 ROSEDALE AVE BOX 1034 SAINT LOUIS MO 63112 430653611 501(C)(3) 141883 RESEARCH - SYNODOS CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 501(C)(3) 101000 RESEARCH - CLINICAL TRAIL AWARD MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES ST BOSTON MA 02114 042103591 501(C)(3) 6726 RESEARCH - SYNODOS UNIVERSITY OF UTAH DIVISION OF MEDICAL GENETICS 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 501(C)(3) 79134 RESEARCH - CLINICAL TRAIL AWARD, PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL CORPORATION 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)(3) 156000 RESEARCH - CLINICAL TRAIL AWARD, PATIENT SUPPORT - CLINIC NETWORK NATIONAWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DR COLUMBUS OH 43205 311036372 501(C)(3) 248419 RESEARCH - SYNODOS UNIVERSITY OF WISCONSIN MADISON 21 N PARK STREET SUITE 6401 MADISON WI 53715 161202122 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK MAYO CLINIC 13400 E SHEA BLVD SCOTTSDALE AZ 85259 860800150 501(C)(3) 11000 PATIENT SUPPORT - CLINIC NETWORK REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES 10920 WILSHIRE BLVD STE 620 LOS ANGELES CA 90024 956006143 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK FLORIDA HOSPITAL FOR CHILDREN 601 E ROLLINS STREET ORLANDO FL 32803 592602507 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK MOFFITT CANCER CENTER GENETICS MKC 12902 USF MAGNOLIA DRIVE TAMPA FL 33612 593238636 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK NICKLAUS CHILDREN'S HOSPITAL 3100 SW 62ND AVE MIAMI FL 33155 590638499 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK NYU LANGONE HOSPITALS 550 FIRST AVENUE NEW YORK NY 10016 133971298 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CLEVELAND CLINIC FOUNDATION 6801 BRECKSVILLE ROAD NO RK1-85 INDEPENDENCE OH 44131 912153073 501(C)(3) 5100 PATIENT SUPPORT - CLINIC NETWORK UT SOUTHWESTERN 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK CHILDRENS HOSPITAL OF WISCONSIN PO BOX 1997 MILWAUKEE WI 53201 390812532 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK 31 0 X X X 0 0 0 0 0 0 0 0 0 ANNETTE BAKKER PHD PRESIDENT/CHIEF SCIENTIFIC OFFICER 316458 0 0 0 0 0 0 0 29969 0 346427 0 0 0 REID HOROVITZ COO/CFO 233583 0 0 0 0 0 0 0 28909 0 262492 0 0 0 SALVATORE LAROSA VP OF RESEARCH & DEVELOPMENT 187600 0 0 0 0 0 0 0 20360 0 207960 0 0 0 MELISSA SOSA-LONGO VP OF MAJOR GIFTS 173860 0 0 0 0 0 0 0 1006 0 174866 0 0 0 SIMON VUKELJ VP OF MARKETING & COMMUNICATIONS 153473 0 0 0 0 0 0 0 19479 0 172952 0 0 0 X 10 27564 FMV 0 1 0 FORM 990, PART VI, SECTION B, LINE 11B THE COMPLETE FORM 990 IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. FORM 990, PART XI, LINE 9: LOSS ON UNCOLLECTIBLE ACCOUNTS -2,000. FORM 990, PART XII, LINE 2C THE CHILDREN'S TUMOR FOUNDATION HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.