2018-05-15T08:33:10-05:00 2017-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2017-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 STEVE GALLUCCI CFO 6179249997 2018-05-14 1 JOHN BUCKLEY CPA P00830631 5083669100 2018-05-14 2017 2022-09-23 18:48:47Z STEVE GALLUCCI 55 CHAPEL STREET NO 200 NEWTON MA 02458 10274717 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 18 18 40 43000 0 0 9735788 10249779 0 0 21054 19702 -1687747 -701622 8069095 9567859 2301482 2673405 0 0 2828614 3048965 0 0 1339471 2115448 2813912 7245544 8536282 823551 1031577 2335945 3243078 2168681 2040617 167264 1202461 X NATIONAL BRAIN TUMOR SOCIETY IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.WE HAVE A RIGOROUS AND THOUGHTFUL AGENDA, INTEGRATING RESEARCH AND PUBLIC POLICY TO BRIDGE CRITICAL GAPS. STARTING WITH DISCOVERY SCIENCE, TO CLINICAL TRIAL DESIGN AND THE DEVELOPMENT OF NEW THERAPIES, THERE ARE MANY OPPORTUNITIES TO MAKE IMPROVEMENTS AND SPEED THE MOMENTUM OF NEW FINDINGS. IT'S TIME TO BUILD ON PROGRESS AND TRANSFORM TOMORROW, TODAY. 0 0 5622241 2626368 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS. 498782 47037 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 592955 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 6713978 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 37 0 1 40 1 0 0 0 0 0 1 1 0 0 0 0 X 18 18 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA AZ X X STEVE GALLUCCI CHIEF FINANCIAL OFFICER 6179249997 55 CHAPEL STREET NEWTON MA 02458 AUTUMN MCDONALD BOARD MEMBER 1.00 X 0 0 0 CARRIE TREADWELL BOARD MEMBER 1.00 X 0 0 0 MICHAEL NATHANSON CHAIR 5.00 X X 0 0 0 ERIC B WISNIA BOARD MEMBER 1.00 X 0 0 0 SARAH DURHAM VICE CHAIR 2.00 X X 0 0 0 PATRICK CONNELLY CLERK 1.00 X X 0 0 0 JOHN FRISHKOPF TREASURER 1.00 X X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 1.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 1.00 X 0 0 0 DAVID BROWN BOARD MEMBER 1.00 X 0 0 0 DAVID DONABEDIAN BOARD MEMBER 1.00 X 0 0 0 ERIC OLSON PHD BOARD MEMBER 1.00 X 0 0 0 EVANTHIA GALANIS BOARD MEMBER 1.00 X 0 0 0 LIZ SALMI BOARD MEMBER 1.00 X 0 0 0 ROB BURGER BOARD MEMBER 1.00 X 0 0 0 ROB CORRAO BOARD MEMBER 1.00 X 0 0 0 SALO ZELERMYER BOARD MEMBER 1.00 X 0 0 0 TOM ROLOFF BOARD MEMBER 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 206723 0 16749 SAMANTHA MASTERSON FORMER CHIEF ADVANCEMENT OFFICER 40.00 X 127467 0 2566 WENDI NANCE INTERIM CHIEF ADVANCEMENT OFFICER 40.00 X 148053 0 5843 STEVE DROWN FORMER DIRECTOR OF FINANCE 40.00 X 124290 0 11327 STEVE GALLUCCI CFO 40.00 X 17424 0 364 CRAIG STRENGER NATIONAL DIRECTOR OF FIELD 40.00 X 130352 0 15900 MICHAEL ANTONELLIS DIRECTOR OF MARKEITNG COMM 40.00 X 117664 0 3322 871973 0 56071 6 0 1 0 0 20093 6544326 3685360 6601 10249779 17938 17938 7000 5236 1764 1764 1764 0 6544326 701622 -701622 -701622 9567859 0 0 -681920 2573405 2573405 100000 100000 708357 353710 68368 286279 1852874 1307703 61690 483481 58101 38035 2534 17532 250480 163028 7732 79720 179153 115398 8011 55744 30559 28649 1526 384 42434 42434 2000 2000 592031 432881 70145 89005 186651 186000 651 79363 47290 10752 21321 298877 241273 38246 19358 245998 172283 28606 45109 291369 198197 41997 51175 13439 6720 6719 21249 8923 11615 711 SPECIAL EVENTS 788009 619632 168377 TRAINING & RECRUITING 101079 82212 2093 16774 PLEDGE DEFAULTS 65125 65125 DUES AND SUBSCRIPTIONS 42060 38039 171 3850 13669 600 13069 8536282 6713978 482833 1339471 1405475 2407896 378428 173377 84306 203481 964164 942763 24434 21401 398801 401713 44501 35210 2335945 3243078 483859 391019 1599374 1640000 85448 9598 2168681 2040617 X -534380 597136 404990 308671 296654 296654 167264 1202461 2335945 3243078 1031577 3620 0 X X 0 1 X 1 0 X 9293204 9387870 8730063 7735788 10249779 45396704 9293204 9387870 8730063 7735788 10249779 45396704 45396704 114572 55033 42956 22788 17938 253287 45649991 0.99450 0.99170 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 137761 137761 8398521 8536282 576814 144204 0 0 699860 591145 545584 576814 2413403 3620105 102177 86536 132046 137761 458520 174965 101199 136396 144204 556764 835146 312104 3344 315448 306397 5707 312104 305010 1387 306397 300399 4611 305010 298412 1987 300399 0.94040 0.05960 0 0 136109 133827 2282 198505 195967 2538 629550 612969 16581 21401 X 10430091 3620 158990 701622 864232 9565859 2000 2000 9567859 9394894 158990 701622 860612 8534282 2000 2000 8536282 PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2017 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE SOCIETY'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2017. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. 1 NORTH AMERICA 0 0 PROGRAM SERVICES GRANTS 50000 EUROPE 0 0 PROGRAM SERVICES GRANTS 50000 0 0 0 0 0 0 100000 0 100000 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 50000 WIRE TRANSFER NORTH AMERICA RESEARCH 50000 WIRE TRANSFER 2 0 0 0 0 0 0 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. WALK - RACE FOR HOPE -DC 1012517 1012517 72794 WALK - RACE FOR HOPE - PHIL 881521 881521 72794 29 4217592 4217592 556034 6111630 6111630 701622 701622 -701622 1 CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 561640402 501 (C) 3 73242 RESEARCH WASHINGTON UNIVERSITY 660 S EUCLID AVE ST LOUIS MO 63110 430653611 501 (C) 3 75000 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CENTER PO BOX 4390 HOUSTON TX 77030 746001118 501 (C) 3 525000 RESEARCH LUDWIG INST FOR CANCER RSEARCH 666 THIRD AVE 28TH FL NEW YORK NY 10017 237121131 501 (C) 3 1025000 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 633 THIRD AVE 28TH FL NEW YORK NY 10017 131924236 501 (C) 3 525000 RESEARCH ST JUDES CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MEMPHIS TN 38105 620646012 501 (C) 3 100000 RESEARCH UC SAN FRANSISCO 3333 CALIFORNIA STREET STE 315 SAN FRANCISCO CA 94143 946036493 501 (C) 3 50000 RESEARCH DUKE UNIVERSITY 201 TRENT DRIVE BAKER HOUSE DURHAM NC 27708 560532129 501 (C) 3 25000 RESEARCH JOHN WAYNE CANCER INSTITUTE 220 SANTA MONICA BLVD SANTA MONICA CA 90404 954291515 501 (C) 3 25000 RESEARCH MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501 (C) 3 25000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET SUITE 305 PHILADELPHIA PA 19104 231352685 501 (C) 3 25000 RESEARCH DANA- FARBER CANCER INST 450 BROOKLINE AVE BOSTON MA 02215 042263040 501 (C) 3 25000 RESEARCH 12 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 1 0 0 0 0 0 0 0 0 DAVID ARONS CEO 206723 0 0 0 0 0 6577 0 10172 0 223472 0 0 0 WENDI NANCE INTERIM CHIEF ADVANCEMENT OFFICER 148053 0 0 0 0 0 4131 0 1712 0 153896 0 0 0 PART I, LINE 4A STEPHEN DROWN, FORMER DIRECTOR OF FINANCE, RECEIVED A SEVERANCE PAYMENT OF $18,100 DURING 2017. FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC