2018-07-12T16:18:16-04:00 2017-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2017-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER PRESIDENT 9198096779 2018-07-12 true KENDALL TYSON P01261689 9196621001 2018-07-12 2017 2022-09-23 18:48:47Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 2076272 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 11 10 11 75 0 4144568 2013420 15044 4345 439 3685 54822 4160051 2076272 751345 1343996 0 667319 880506 0 510740 930341 695133 2349005 2919635 1811046 -843363 5309118 4843261 1230964 1408278 4078154 3434983 X THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 1881386 1343996 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS. 325417 4345 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES. OTHER PROGRAM SERVICE ACCOMPLISHMENTS 2206803 true true false false false false false false false false true false false false false false true false false false true true false false false false false true false false false false false false false false false true true false false false false false false false false true 3 0 true 11 true false false false false false false false false false false false false X 11 10 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER PRESIDENT 60.00 X X 119636 0 12527 JOEL BECKMAN VICE CHAIR 8.00 X 0 0 0 PAULA SONG DIRECTOR 3.00 X 0 0 0 ANDY SCHOELKOPF CHAIR 15.00 X 0 0 0 KERRY SHAD SECRETARY 4.00 X 0 0 0 DAVID SANDAK DIRECTOR 2.00 X 0 0 0 DAVID DREWRY DIRECTOR 2.00 X 0 0 0 CHRISTY SHAFFER DIRECTOR 2.00 X 0 0 0 INGEMAR LANEVI TREASURER 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 SHREYAS PATEL DIRECTOR 2.00 X 0 0 0 119636 12527 1 false false false 2013420 42601 2013420 COMMUNITY CONFERENCE 4345 4345 4345 3685 3685 OTHER REVENUE 54822 54822 54822 2076272 54822 8030 883746 883746 460250 460250 132164 76315 17625 38224 597376 344555 79255 173566 95128 55517 13308 26303 55838 31489 8167 16182 6724 6724 12568 140 12367 61 190150 100044 15969 74137 37539 9093 9697 18749 44442 17081 4853 22508 178440 78679 16327 83434 32614 12536 3581 16497 54908 27831 8588 18489 5726 3469 745 1512 13474 7434 5082 958 BIOREPOSITORY 87798 87798 EVENTS 23052 3128 6528 13396 CONTRACT RESEARCH 7698 7698 2919635 2206803 202092 510740 2769921 1828573 460995 343035 1951840 2431372 84970 176155 28393 37935 43284 20070 10534 23214 2465 2977 5309118 4843261 85823 117401 1145141 1279067 11810 1230964 1408278 X 1605907 1347949 2472247 2087034 4078154 3434983 5309118 4843261 -843363 200192 X false true X true false X 1609663 2011406 1915121 4144568 2013420 11694178 1609663 2011406 1915121 4144568 2013420 11694178 5303735 6390443 622 513 711 439 3685 5970 15044 4345 19389 11719537 54822 0.54530 0.56350 X PART II, LINE 10 OTHER INCOME 19,389 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4463 1295 3168 38821 18775 20046 23214 2381273 159631 145370 305001 2076272 2076272 3024444 159631 -54822 104809 2919635 2919635 SCHEDULE D, PAGE 4, PART XI, LINE 2D GAIN ON FOREIGN CURRENCY TRANSACATION 200,192 RECLASS OF NEGATIVE GRANT EXPENSE -54,822 SCHEDULE D, PAGE 4, PART XII, LINE 2D RECLASS OF NEGATIVE GRANT EXPENSE -54,822 SCHEDULE D, PAGE 4, PART XIII PART X - FIN 48 FOOTNOTE THE ORGANIZATION EVALUATES ITS UNCERTAIN TAX POSITIONS USING THE PROVISIONS OF ASC 740-10-25, RECOGNITION OF A TAX POSITION. ACCORDINGLY, THE ORGANIZATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE ORGANIZATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT, WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS, WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT BELIEVES THERE ARE NO SUCH POSITIONS AS OF DECEMBER 31, 2017. true EUROPE GRANTS RESEARCH 460250 460250 460250 RESEARCH 75000 WIRE TRANSFER RESEARCH 350000 WIRE TRANSFER RESEARCH 31750 WIRE TRANSFER 3 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 460,250 0 SCHEDULE F, PAGE 5, PART V 50,000 WAS AWARDED TO DR. KEVIN MELLERT AND DR. PETER MOLLER AT THE UNIVERSITY OF ULM IN GERMANY TO BE USED FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 15,000 WAS AWARDED AS AN UNRESTRICTED PRIZE TO BE USED BY DR. KEVIN MELLERT AND DR. PETER MOLLER AT THE UNIVERSITY OF ULM IN GERMANY TO BE USED FOR SCIENTIFIC AND EDUCATIONAL PURPOSES. 10,000 WAS ALSO AWARDED TO THE UNIVERSITY OF ULM TO BE USED FOR CHORDOMA PEDIATRIC CELL LINE DEVELOPMENT. 31,750 WAS AWARDED TO ISG ASSOCIAZIONE DI VOLONTARIATO TO SUPPORT CHORDOMA CLINICAL RESEARCH MEETINGS IN MILAN, ITALY. 350,000 WAS AWARDED TO DR. ADRIENNE FLANAGAN AT THE UNIVERSITY COLLEGE OF LONDON CANCER INSTITUTE TO BE USED FOR A STUDY OF CHORDOMA FOCUSING ON HOW THE EPIGENETIC LANDSCAPE CAN BE TARGETED FOR DEVELOPMENT OF NEW THERAPIES. 3,500 WAS AWARDED TO THE INSTITUTE NAZIONALE DEI TUMORI; HOWEVER, SINCE THE GRANT AMOUNT FALLS BELOW THE REPORTING THRESHOLD, THIS GRANT IS NOT REPORTED ON SCHEDULE F, PART II. true BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PAZA HOUSTON TX 77030 208423943 501C3 165000 RESEARCH GRANT MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 208423943 501C3 137500 RESEARCH GRANT START 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 208313687 200612 RESEARCH GRANT MASSACHUSETTS GEN HOSPITAL 185 CAMBRIDGE ST BOSTON MA 02114 041564655 501C3 200431 RESEARCH GRANT THE BROAD INSTITUTE 415 MAIN STREET CAMBRIDGE MA 02142 263428781 501C3 71140 RESEARCH GRANT VALA SCIENCES 6370 NANCY RIDGE DRIVE 106 SAN DIEGO CA 92121 200906350 21500 RESEARCH GRANT JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501C3 58881 RESEARCH GRANT AMERICAN TYPE CULTURE COLLECTION ATCC PO BOX 1549 MANASSAS VA 20108 530196548 501C3 28682 RESEARCH GRANT 6 SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. ANDREW SCHOELKOPF BOARD DIRECTOR 1500 CONTRIBUTION false CHRISTY SHAFFER BOARD DIRECTOR 5000 CONTRIBUTION false JOSH SOMMER OFFICER 1317 CONTRIBUTION false JOEL BECKMAN BOARD DIRECTOR 1002500 CONTRIBUTION false KERRY SHAD BOARD DIRECTOR 2868 CONTRIBUTION false DAVID SANDAK BOARD DIRECTOR 1000 CONTRIBUTION false STEVEN MANDEL BOARD DIRECTOR 9181 CONTRIBUTION false DAVID DREWRY BOARD DIRECTOR 250 CONTRIBUTION false INGEMAR LANEVI BOARD DIRECTOR 300 CONTRIBUTION false SMITH ANDERSON LLP BOARD DIRECTOR 56208 IN-KIND LEGAL SVCS false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. KERRY SHAD, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 1,023,917. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY. X 1 8017 FMV X TECH SOLUTIONS 1 34584 FMV false true false FORM 990, PAGE 2, PART III, LINE 4D OTHER PROGRAM SERVICE ACCOMPLISHMENTS FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 GAIN ON FOREIGN CURRENCY TRANSACATION 200,192 RECLASS OF NEGATIVE GRANT EXPENSE -54,822 RECLASS OF NEGATIVE GRANT EXPENSE 54,822 TOTAL 200,192