2018-05-15T19:59:37-05:00 2017-06-30 260004395 HALT BUZAS & POWELL LTD 1199 N FAIRFAX ST 10TH FLOOR ALEXANDRIA VA 22314 990 2016-07-01 201048322 COPD FOUNDATION INC COPD 8667312673 3300 PONCE DE LEON BLVD CORAL GABLES FL 33134 CORINNE COSTA-DAVIS CEO 8667312673 2018-05-15 1 STEVEN HALT P01083643 7038361350 2018-05-15 2016 2022-09-23 18:48:47Z CORINNE COSTA-DAVIS 3300 PONCE DE LEON BLVD CORAL GABLES FL 33134 11612488 0 X WWW.COPDFOUNDATION.ORG X X 2004 FL THE COPD FOUNDATION'S MISSION IS TO PREVENT AND CURE CHRONIC OBSTRUCTIVE PULMONARY DISEASE AND TO IMPROVE THE LIVES OF ALL PEOPLE AFFECTED BY COPD 16 16 22 25 290350 0 7484148 10312702 514491 313207 109918 148421 70290 -66425 8178847 10707905 470439 281030 0 0 2187921 2321912 72600 135600 1031109 5373970 5834349 8104930 8572891 73917 2135014 8127771 9197961 3402671 2355579 4725100 6842382 X THE COPD FOUNDATION WAS ESTABLISHED TO SPEED INNOVATIONS WHICH WILL MAKE TREATMENTS MORE EFFECTIVE AND AFFORDABLE, UNDERTAKE INITIATIVES THAT RESULT IN EXPANDED SERVICES FOR COPD PATIENTS, AND IMPROVE THE LIVES OF PATIENTS WITH COPD THROUGH EDUCATION AND RESEARCH THAT WILL LEAD TO PREVENTION AND SOMEDAY A CURE FOR THE DISEASE. 0 0 1694027 THE COPD RESEARCH REGISTRY IS A CONFIDENTIAL DATABASE OF OVER 2,200 INDIVIDUALS WITH COPD OR AT RISK OF DEVELOPING COPD WHO HAVE CONSENTED TO BE CONTACTED FOR PARTICIPATION IN RESEARCH. THE REGISTRY IS A GREAT SOURCE TO FACILITATE RESEARCH SINCE POTENTIAL STUDY CANDIDATES HAVE ALREADY BEEN IDENTIFIED WHO ARE WILLING TO PARTICIPATE IN COPD RESEARCH. THE GOAL IS TO HELP FACILITATE RESEARCH BY CREATING THIS RESOURCE. THE BRONCHIECTASIS RESEARCH REGISTRY IS A CONSOLIDATED DATABASE OF 1,974 INDIVIDUALS WITH NON-CF BRONCHIECTASIS AND/OR NONTUBERCULOSIS MYCOBRACTERIA (NTM). THE GOAL OF THE BRONCHIECTASIS REGISTRY IS TO SUPPORT COLLABORATIVE RESEARCH AND ASSIST IN THE PLANNING OF MULTI-CENTER CLINICAL TRIALS FOR THE TREATMENT OF NON-CF BRONCHIECTASIS, A PROGRESSIVE, NON-CURABLE LUNG DISEASE WHICH AFFLICTS THOUSANDS OF PATIENTS, AND NTM. THE DATA IN THE REGISTRY IS COLLECTED BY A CONSORTIUM OF PHYSICIANS FROM 14 ACADEMIC MEDICAL CENTERS ACROSS THE U.S. THE REGISTRY'S DATA COORDINATING CENTER IS LOCATED AT THE UNIVERSITY OF NORTH CAROLINA, CHAPEL HILL. 1586509 THE COPD FOUNDATION, IN COLLABORATION WITH THE CONCERT AND COPDGENE RESEARCH NETWORKS WILL DEVELOP AND HOST THE COPD FOUNDATION PATIENT-POWERED RESEARCH NETWORK (PPRN). THE COLLABORATION BRINGS TOGETHER A PATIENT-DEVELOPED-AND-GOVERNED PATIENT EDUCATION, ADVOCACY, AND SUPPORT GROUP WITH THE RESEARCH EXPERTISE OF TWO FEDERALLY FUNDED RESEARCH NETWORKS TO ESTABLISH THE COPD FOUNDATION PPRN. THE COPD FOUNDATION PPRN WILL ENROLL 100,000 PEOPLE WITH COPD INTO A REGISTRY WITH A SCALABLE DATA HUB FOR THE SOLE PURPOSE OF SUPPORTING PATIENT-DRIVEN, PATIENT-CENTERED OUTCOMES RESEARCH. ENROLLED PATIENTS WILL REPRESENT THE SPECTRUM OF COPD DISEASE SEVERITY - MOST WITH MULTIPLE MORBIDITIES, ACROSS DIVERSE GEOGRAPHIC REGIONS, BROAD AGE AND SOCIO-ECONOMIC RANGES, BOTH GENDERS, AND ALL RACIAL AND ETHNIC GROUPS. 1131179 37000 THE COPD BIOMARKERS QUALIFICATION CONSORTIUM'S MISSION IS TO IMPLEMENT THE QUALIFICATION OF PUBLIC DOMAIN BIOMARKERS THAT ASSIST IN THE DEVELOPMENT AND REGISTRATION OF TREATMENTS FOR COPD WITH THE FDA. THE CURRENT MEMBERS OF THE CONSORTIUM ARE ACTIVELY WORKING WITH SEVERAL ACADEMIC CENTERS, THE NHLBI AND THE COPD FOUNDATION TO IDENTIFY AND PUBLISH KEY BIOMARKERS. 2623545 244030 22857 OTHER PROGRAMS, WHICH INCLUDE COPD360, EDUCATIONAL PROGRAMS, PUBLICATIONS, PUBLIC POLICY, GENE STUDY AND INFORMATION LINE. 2623545 244030 22857 7035260 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 1 0 0 0 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 1 1 0 0 0 1 27 0 1 22 1 1 1 0 0 0 0 1 1 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 FL KS OK NC IL WV AL WI TN UT CA CO HI KY MD MN MS NH NY OH OR PA SC VA CT WA MI AR NJ NM RI DC AK ND MA SC X X THE ORGANIZATION 8667312673 3300 PONCE DE LEON BLVD CORAL GABLES FL 33134 BYRON M THOMASHOW MD CHAIR, BOARD 2.00 X X 0 0 0 WAYNE E WITHERS JR VICE-CHAIR 2.00 X X 0 0 0 DONALD GRAY TREASURER/SECRETARY 2.00 X X 0 0 0 JAMES D CRAPO MD DIRECTOR 2.00 X 0 0 0 GRACE ANNE DORNEY KOPPEL ESQ DIRECTOR 2.00 X 0 0 0 SAM P GIORDANO RRT DIRECTOR 2.00 X 0 0 0 ROBERT WISE MD DIRECTOR 2.00 X 0 0 0 RICHARD CASABURI PHD MD DIRECTOR 2.00 X 0 0 0 STEW COGAN ESQ DIRECTOR 2.00 X 0 0 0 MICHAEL P MAYER DIRECTOR 2.00 X 0 0 0 GERARD M TURINO MD DIRECTOR 2.00 X 0 0 0 EDNA SHATTUCK DIRECTOR 2.00 X 0 0 0 LEONARD FROMER MD DIRECTOR 2.00 X 0 0 0 BILL MAYNE DIRECTOR 2.00 X 0 0 0 JEAN WRIGHT MD MBA DIRECTOR 2.00 X 0 0 0 LAWRENCE STERN DIRECTOR 2.00 X 0 0 0 CRAIG L KEPHART CHIEF EXECUTIVE OFFICER 40.00 X 197460 0 17782 SARA D LATHAM EXECUTIVE VICE PRESIDENT 40.00 X 123162 0 24461 RANDEL H PLANT EXECUTIVE VICE PRESIDENT 40.00 X 112203 0 13540 DEBORAH A MCGOWAN EXECUTIVE VICE PRESIDENT 40.00 X 130829 0 18630 KEVIN MORAN EXECUTIVE VICE PRESIDENT 40.00 X 127538 0 25627 ELISHA MALANGA EXECUTIVE VICE PRESIDENT 40.00 X 125839 0 25815 817031 0 125855 6 0 1 0 VCC SYSTEMS INC 2785 CRYSTAL COURT MIAMI FL 33133 CALL CENTER CONTRACTOR 703042 IMI SOFTWARE INC 206-09 LORI DRIVE BAYSIDE NY 11360 WEB SOLUTIONS 302095 SCHEDULINGCOM 655 CAMPBELL TECHNOLOGY PARKWAY SU LOS GATOS CA 95008 PATIENT PLATFORM 287003 INC RESEARCH UK LIMITED 3 BELL LANE LEWES UK BN7 1JU RESEARCH 262893 DEBORA D MERRILL 3461 PICKERTOWN ROAD CHALFONT PA 18914 CONTRACTOR 255840 5 288812 10023890 10312702 PUBLICATION INCOME 511120 290350 290350 CONFERENCE REVENUES 900099 22857 22857 313207 87269 87269 856410 500 795121 637 61289 -137 61152 61152 42400 288812 108825 -66425 -66425 10707905 22857 290350 81996 X 108150 108150 172880 172880 238229 154382 24156 59691 1668131 1081011 170810 416310 24762 16046 2357 6359 247963 160683 23635 63645 142827 98262 8734 35831 7500 2773 3665 1062 88030 80475 7185 370 53010 22696 22774 7540 135600 135600 18255 18255 2222244 2158428 21996 41820 81980 81980 130238 68221 13607 48410 829828 775302 34502 20024 142166 92694 14578 34894 377836 229559 71589 76688 102073 84889 15275 1909 4256 4256 10163 10163 BIOMARKERS QUALIFICATIO 937221 937221 INFORMATION LINE/CALL C 601339 527109 7905 66325 PRINTING AND PUBLICATIO 121313 112928 969 7416 POSTAGE AND SHIPPING 62614 52950 4084 5580 44283 16621 26027 1635 8572891 7035260 506522 1031109 2070146 1659268 693607 645501 2131462 4056220 88424 133086 77724 58917 8518 18807 2885614 2435079 250000 250000 8127771 9197961 730905 1189636 2671766 915943 250000 3402671 2355579 X -899589 -798105 5624689 7640487 4725100 6842382 8127771 9197961 2135014 -17732 0 X X 0 1 X 1 0 X 7060957 6724124 9038542 7484148 10023890 40331661 7060957 6724124 9038542 7484148 10023890 40331661 20201298 20130363 71635 66868 60108 75278 22857 296746 40628407 0.49550 0.40000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 77724 58917 18807 18807 X 10799135 -17732 108962 91230 10707905 0 10707905 8681853 108962 108962 8572891 0 8572891 PART X, LINE 2: COPD FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. ACCORDINGLY, THE FINANCIAL STATEMENTS DO NOT INCLUDE AN INCOME TAX PROVISION,EXCEPT FOR CERTAIN TAXABLE TRANSACTIONS. DURING THE YEARS ENDED JUNE 30, 2017 AND 2016, COPD FOUNDATION DID NOT HAVE TAXABLE TRANSACTIONS. THE FOUNDATION ADOPTED THE PROVISIONS OF FINANCIAL ACCOUNTING STANDARDS BOARD ("FASB") ACCOUNTING STANDARD CODIFICATION ("ASC") NO. 740 INCOME TAXES. UNDER ASC 740, THE FOUNDATION MUST RECOGNIZE THE TAX BENEFIT ASSOCIATED WITH TAX POSITIONS TAKEN FOR TAX RETURN PURPOSES WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL BE SUSTAINED. THE ADOPTION OF ASC 740 HAD NO IMPACT ON THE FOUNDATION 'S CONSOLIDATED FINANCIAL STATEMENTS. MANAGEMENT OF THE FOUNDATION DOES NOT BELIEVE THERE ARE ANY MATERIAL UNCERTAIN TAX POSITIONS AND ACCORDINGLY HAS NOT RECOGNIZED ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. THE FOUNDATION HAS FILED FOR AND RECEIVED INCOME TAX EXEMPTIONS IN THE JURISDICTIONS WHERE IT IS REQUIRED TO DO SO. ADDITIONALLY, THE FOUNDATION HAS FILED INTERNAL REVENUE SERVICE FORM 990 TAX RETURNS AS REQUIRED AND ALL OTHER APPLICABLE RETURNS IN THOSE JURISDICTIONS WHERE IT IS REQUIRED. THE FOUNDATION BELIEVES THAT IT IS NO LONGER SUBJECT TO U.S. FEDERAL, STATE AND LOCAL, OR NON-U.S. INCOME TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS BEFORE 2014. HOWEVER, THE FOUNDATION IS STILL OPEN TO EXAMINATION BY TAXING AUTHORITIES FROM FISCAL YEAR 2014 FORWARD. FOR THE YEAR ENDED JUNE 30, 2017 AND 2016, THERE WAS NO INTEREST OR TAX PENALTIES RECORDED OR INCLUDED IN THE STATEMENTS OF ACTIVITIES AND CHANGES IN NET ASSETS. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 108,825. LOSS ON DISPOSAL OF FIXED ASSETS 137. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 108,825. LOSS ON DISPOSAL OF FIXED ASSETS 137. 0 0 0 0 0 0 0 0 0 0 EUROPE RESEARCH 60147 WIRE EAST ASIA AND THE PACIFIC RESEARCH 112733 WIRE 2 0 0 0 0 0 0 X X X X X X 1 CK ADAMS CONSULTING 225 GOLFVIEW CLUB DRIVE NEWNAN GA 30263 CORPORATE SOLICITATION 0 116000 135600 116000 116000 135600 116000 AK AL AR AZ CA CO CT DC FL GA HI IA IL IN KS KY LA MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN TX UT VA WA WI WV ANNUAL AWARDS RECEPTION 331212 288812 42400 16124 53208 1650 37843 331212 288812 42400 16124 53208 1650 37843 108825 -66425 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE COPD CORPORATE PARTNER PROGRAM IS AN ANNUAL PROGRAM THAT BRINGS TOGETHER INDUSTRIAL PARTNERS WITH AN INTEREST IN COPD TO HELP PROMOTE BETTER COMMUNICATION AND TRANSPARENCY WITHIN THE COPD COMMUNITY. THE GOAL OF THE CORPORATE PARTNER PROGRAM IS TO SHARE IDEAS AND BEST PRACTICES TO IMPROVE PATIENT CARE, AND LIVES OF LOVED ONES THAT DEAL WITH COPD. 1 GEORGETOWN UNIVERSITY 3800 RESERVOIR ROAD NW WASHINGTON DC 20057 530196603 501(C)(3) 7450 RESEARCH UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 19104 231352685 501(C)(3) 6000 RESEARCH UNIVERSITY OF NORTH CAROLINA 104 AIRPORT DRIVE SUITE 2200 CHAPEL HILL NC 27599 566001393 501(C)(3) 39150 RESEARCH UNIVERSITY OF TEXAS PO BOX 250 AUSTIN TX 78767 741587488 501(C)(3) 7300 RESEARCH UNIVERSITY OF PITTSBURGH PARK PLAZA 128 NORTH CRAIG STREET PITTSBURGH PA 15260 250965591 501(C)(3) 37000 RESEARCH 5 PART I, LINE 2: THE FOUNDATION HAS A MEDICAL AND SCIENTIFIC ADVISORY COMMITTEE CONSISTING OF 12 MEMBERS AND A STAFF MEMBER ASSIGNED TO THE COMMITTEE. THE MEMBERSHIP OF THE COMMITTEE CONSISTS OF PRIMARILY MEDICAL DOCTORS WHO ARE COPD EXPERTS AND RESEARCHERS. THE COMMITTEE REVIEWS GRANT APPLICATIONS FOR QUALITY AND APPLICABILITY OF RESEARCH FUNDS. ON A QUARTERLY BASIS, ALL GRANTS ARE PEER-REVIEWED FOR PROGRESS BEFORE SUBSEQUENT PAYMENTS ARE MADE TO THE GRANT RECIPIENTS. THE PEER-REVIEWERS ARE RESEARCHERS WHO HAVE EXPERTISE IN THE FIELD OF STUDY. FINAL RESEARCH REPORTS ARE PEER-REVIEWED BEFORE FINAL GRANT PAYMENTS ARE MADE. X 0 0 0 0 0 0 0 0 0 CRAIG L KEPHART CHIEF EXECUTIVE OFFICER 197460 0 0 0 0 0 0 0 17782 0 215242 0 0 0 KEVIN MORAN EXECUTIVE VICE PRESIDENT 127538 0 0 0 0 0 0 0 25627 0 153165 0 0 0 ELISHA MALANGA EXECUTIVE VICE PRESIDENT 125839 0 0 0 0 0 0 0 25815 0 151654 0 0 0 VCC SYSTEMS INC CALL CENTER CONTRACTOR 612137 PAYMENTS FOR SERVICES RENDERED 0 PART IV, LINE 1 COPD FOUNDATION, INC. UTILIZES THE SERVICES OF VCC SYSTEMS, INC. TO PROVIDE CONTACT CENTER TELEPHONE COUNSELING SERVICES BY COPD PATIENTS OR CAREGIVERS FOR THE COPD FOUNDATION'S INFORMATION LINE PROGRAM. DURING THE PERIOD VOVERED BY THIS RETURN, CASH PAYMENTS TO VCC SYSTEMS FOR THESE SERVICES TOTALED $612,137. LINDA J. WALSH, PRESIDENT AND CEO OF VCC SYSTEMS IS THE DAUGHTER OF JOHN W. WALSH, THE COPD FOUNDATION'S FOUNDER AND FORMER PRESIDENT. FORM 990, PART VI, SECTION B, LINE 11B AFTER PREPARATION AND REVIEW BY THE CFO AND CONTROLLER, THE DRAFT FORM 990 IS CIRCULATED TO MEMBERS OF MANAGEMENT FOR REVIEW AND COMMENT. THE FORM 990 IS THEN PROVIDED TO THE FOUNDATION'S BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C AT EACH BOARD MEETING THE CONFLICT OF INTEREST POLICY IS READ BEFORE THE CONDUCT OF ANY OTHER ITEM. WRITTEN CONFLICT OF INTEREST STATEMENTS ARE OBTAINED FROM ALL OFFICERS, BOARD MEMBERS, COMMITTEE MEMBERS AND STAFF ANNUALLY. FAILURE TO FILE THE STATEMENT WILL RESULT IN THE PERSON BEING REMOVED FROM SERVICE ON ANY COMMITTEE. FORM 990, PART VI, SECTION B, LINE 15 SALARIES FOR COPD FOUNDATION MANAGEMENT ARE DETERMINED BY ANNUAL SURVEYS OF COMPARABLE NOT-FOR-PROFIT ORGANIZATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE WEBSITE WWW.COPDFOUNDATION.ORG INCLUDES THE POSTING OF FINANCIAL STATEMENTS, THE FORM 990, THE ANNUAL REPORT, AND A CORPORATE RELATIONS REPORT. OTHER DOCUMENTS AND THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 859,491. MANAGEMENT AND GENERAL EXPENSES 839. FUNDRAISING EXPENSES 35,687. TOTAL EXPENSES 896,017. HR SERVICES: PROGRAM SERVICE EXPENSES 16,006. MANAGEMENT AND GENERAL EXPENSES 21,157. FUNDRAISING EXPENSES 6,133. TOTAL EXPENSES 43,296. RESEARCH: PROGRAM SERVICE EXPENSES 1,282,931. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 1,282,931. FORM 990, PART XII, LINE 2C: THERE WERE NO CHANGES FROM PRIOR YEAR. RESPIRATORY LOGISTICS INC 3300 PONCE DE LEON BLVD CORAL GABLES FL 33134 271116064 LOGISTICS DE COPD FOUNDATION C 1.00000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0