2018-11-14T16:15:40-06:00 2018-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX ST SUITE 400 ALEXANDRIA VA 22314 990 2017-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 3015304420 2018-11-13 1 ANDREW E YOUNG CPA P01203950 7035351200 75.145.91.221 2018-11-13 11:23:16 ES P A44F4EDCC5BD18483EAB4C87CC9C67751CB744C3 98BEB87AF9C813362675C02C4BDBF00F5A649C66 2017 2019-02-21 02:37:17Z X STEVEN TAYLOR 10701 PARKRIDGE BLVD NO 170 RESTON VA 20191 2380493 0 X WWW.SJOGRENS.ORG X 1983 NY THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 18 18 13 425 65236 0 1848890 1844508 450715 464210 24128 28128 -55627 -18639 2268106 2318207 145500 175500 0 0 1190401 1246838 0 0 261049 833904 889213 2169805 2311551 98301 6656 679709 953133 325192 586984 354517 366149 X THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 0 0 395219 175500 RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S. SEVEN GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING 2018. 231168 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 516337 0 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO HEALTHCARE PROFESSIONALS. 809102 375820 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS, CONFERENCES AND MEETINGS RELATED TO TOPICS RELEVANT TO THOSE WITH SJOGREN'S, AS WELL AS VARIOUS INDUSTRY AND MEMBERSHIP PROJECTS AND SERVICES FOR THOSE WITH SJOGREN'S OR ENTITIES PROVIDING SUPPORT TO THOSE INDIVIDUALS. 809102 375820 1951826 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 13 1 1 1 0 0 0 0 0 0 0 0 0 X 18 18 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CO FL IL MD MN MS NH NY OH OR PA SC TN UT VA WA WV X X SJOGREN'S SYNDROME FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 STEPHEN COHEN OD CHAIRMAN 2.00 X X 0 0 0 JANET E CHURCH CHAIR-ELECT 2.00 X X 0 0 0 TRICIA GOODING SECRETARY 2.00 X X 0 0 0 KATHY L SIVILS PHD TREASURER 2.00 X X 0 0 0 ESEN K AKPEK MD DIRECTOR 2.00 X 0 0 0 JACK FARICELLI DIRECTOR 2.00 X 0 0 0 PATRICIA HURLEY MSC DIRECTOR 2.00 X 0 0 0 CATHY INGELS DIRECTOR 2.00 X 0 0 0 CHADWICK JOHR MD DIRECTOR 2.00 X 0 0 0 THERESA LAWRENCE FORD MD DIRECTOR 2.00 X 0 0 0 SCOTT LIEBERMAN MD DIRECTOR 2.00 X 0 0 0 CYNTHIA LOPYNSKI DIRECTOR 2.00 X 0 0 0 MONICA MCGILL ED D DIRECTOR 2.00 X 0 0 0 JASON NICHOLS OD PHD DIRECTOR 2.00 X 0 0 0 TIMOTHY NIEWOLD MD FACR DIRECTOR 2.00 X 0 0 0 THOMAS D SUTTON DIRECTOR 2.00 X 0 0 0 MICHELLE WALLACE DIRECTOR 2.00 X 0 0 0 AVA WU DDS DIRECTOR 2.00 X 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 40.00 X 284232 0 27628 SHERIESE DEFRUSCIO VICE PRESIDENT OF MARKETING 40.00 X 117452 0 20392 KATHERINE HAMMITT VICE PRESIDENT OF MEDICAL & SCIENTIFIC AFFAIRS 40.00 X 114408 0 26773 516092 0 74793 3 0 1 0 0 268618 1575890 16527 1844508 MEMBERSHIP DUES 541900 234007 234007 CONFERENCE 541900 164967 113167 51800 ADVERTISING 541800 65236 65236 464210 22481 22481 1651 1651 8889 1280 1962 7609 -1962 5647 5647 0 268618 48936 -48936 -48936 36754 10108 26646 26646 MISCELLANEOUS INCOME 541900 2000 2000 2000 2318207 375820 65236 32643 175500 175500 333536 284140 14109 35287 730099 621971 30883 77245 13445 11454 568 1423 103996 88596 4397 11003 65762 56023 2781 6958 26443 26443 4652 4652 59944 56267 1145 2532 22772 19401 962 2409 119481 101786 5054 12641 99732 99732 1099 1099 18742 15967 792 1983 7504 6392 318 794 AWARENESS ACTIVITIES 107006 87371 19635 PRINTING, DUPLICATING, 97865 69946 742 27177 POSTAGE AND DELIVERY 91745 73752 1415 16578 FOOD AND BEVERAGE 81426 81155 271 150802 102373 3045 45384 2311551 1951826 98676 261049 32242 187307 115234 5243 68065 153814 4311 4030 24176 2826 272862 84069 9044 188793 419778 402171 6859 8949 679709 953133 33656 27883 151250 190000 138981 142958 1305 226143 325192 586984 X 354517 366149 354517 366149 679709 953133 6656 4976 0 X X 0 1 X 1 0 X 1273958 1391279 1795342 1848890 1844508 8153977 478681 457086 471117 339777 383928 2130589 1752639 1848365 2266459 2188667 2228436 10284566 634019 747325 1158942 1170405 1172598 4883289 0 634019 747325 1158942 1170405 1172598 4883289 5401277 11395 21569 19865 16012 22481 91322 11395 21569 19865 16012 22481 91322 1557 14456 3328 7701 2000 29042 1765591 1884390 2289652 2212380 2252917 10404930 0.51910 0.53990 0.00880 0.00860 X 166103 11198 154905 106759 72871 33888 188793 DEFERRED RENT 54758 CAPITAL LEASE PAYABLE 16480 DEFERRED TENANT ALLOWANCE 154905 226143 X 2330601 4976 4976 2325625 4652 -12070 -7418 2318207 2318969 12070 12070 2306899 4652 4652 2311551 PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -10,108. RECLASSIFICATION OF LOSS ON DISPOSAL -1,962. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 10,108. RECLASSIFICATION OF LOSS ON DISPOSAL 1,962. WALKABOUTS AND SIPS EVENTS 255418 255418 48936 PARTNER PROGRAMS 13200 13200 268618 268618 48936 48936 -48936 1 JOHNS HOPKINS UNIVERSITY ROSS BLDG 659 720 RUTHLAND AVENUE BALTIMORE MD 21205 520595110 SECTION 501(C)(3) 35000 FMV N/A RESEARCH GRANT UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL 5323 HARRY HINES BLVD DALLAS TX 75390 726002868 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT BASCOM PALMER EYE INSTITUTE 900 NW 17TH STREET MIAMI FL 33136 590624458 N/A 25000 FMV N/A RESEARCH GRANT UCONN HEALTH RECONSTRUCTIVE SCIENCES 263 FARMINGTON AVENUE FARMINGTON CT 06030 521725543 SECTION 501(C)(3) 15000 FMV N/A RESEARCH GRANT UNIVERSITY OF MISSOURI 115 BUSINESS LOOP 70W MIZZOU NORTH ROOM 501 COLUMBIA MO 65211 436003859 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT LOYOLA UNIVERSITY 2160 S FIRST AVE CTRE BUILDING ROOM 225 MAYWOOD IL 60153 361408475 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT UNIVERSITY OF UTAH SCHOOL OF DENTISTRY 383 COLOROW DRIVE LAB 208/OFFICE 296/BOX 13 SALT LAKE CITY UT 84108 876000525 SECTION 501(C)(3) 25000 FMV N/A RESEARCH GRANT 6 1 PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR CHIEF EXECUTIVE OFFICER 197500 0 86732 0 0 0 5925 0 21703 0 311860 0 0 0 FORM 990, PART VI, SECTION A, LINE 4 THE FOUNDATION MADE A CHANGE TO ITS BYLAWS DURING THE FISCAL YEAR. THE CHANGE RELATED TO LANGUAGE REGARDING MEETINGS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS.