2018-11-14T15:45:27-06:00 2018-06-30 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS RD STE 1500 RALEIGH NC 27609 990 2017-07-01 520856660 EPILEPSY FOUNDATION OF AMERICA EPIL 8003321000 8301 PROFESSIONAL PLACE NO 200 LANDOVER MD 20785 PHILIP M GATTONE PRESIDENT AND CEO 8003321000 2018-11-14 1 JOHN HUSKINS P01081531 9197196400 2018-11-14 66.77.128.118 2018-11-14 16:45:06 ES P A0CA9D4D5717DD47044926BD82AAD8286CB64ED9 0300F7440FFCAFEE97AE10E69CBFFC829D088163 2017 2019-02-21 02:37:17Z PHILIP M GATTONE 8301 PROFESSIONAL PLACE NO 200 LANDOVER MD 20785 25849704 0 X WWW.EPILEPSY.COM X 1967 DE WE IMPROVE AND SAVE LIVES THROUGH COMMUNITY SERVICES, EDUCATION, ACCESS TO CARE, AND RESEARCH. 18 17 82 100 0 0 14248744 22945371 895518 935979 1430294 293310 -597421 -578320 15977135 23596340 1164446 912179 0 0 6095137 7360734 302644 205895 1948932 7648969 8832070 15211196 17310878 765939 6285462 14871807 21501992 1614576 1918701 13257231 19583291 X TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. 0 0 8011636 47806 390002 ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES AND COMMUNITIES - THE EPILEPSY FOUNDATION IS ON THE FRONT LINES HELPING ENSURE ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURES - AND THEIR FAMILIES AND COMMUNITIES - RECEIVE THE BEST POSSIBLE SERVICES AND CARE. WE DEVELOP NATIONWIDE PROGRAMS AVAILABLE THROUGH OUR NETWORK OF OVER 50 LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND INDEPENDENT ADULTS ON IMPROVING THEIR QUALITY OF LIFE. WE ALSO HAVE PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. OUR PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS, IMPROVE ACCESS TO HEALTH CARE, FOSTER BIOMEDICAL INNOVATION AND SAFEGUARD DISABILITY RIGHTS. THE FOUNDATION ALSO SUPPORTS PEOPLE WITH EPILEPSY THROUGH OUR INFORMATION AND REFERRAL LINE, AVAILABLE THROUGH AN 800 SERVICE AND ONLINE. THIS SERVICE PROVIDES RESOURCES AND INFORMATION 24/7/365. THE FOUNDATION'S GOAL IS TO ENSURE THAT ALL PEOPLE AFFECTED BY EPILEPSY AND SEIZURES HAVE IMMEDIATE ACCESS TO APPROPRIATE SERVICES AND CARE. 3380264 67315 EDUCATION AND AWARENESS -THE EPILEPSY FOUNDATION LEADS THE FIGHT TO END EPILEPSY BY CREATING AWARENESS THROUGH NATIONAL MEDIA OUTREACH WITH TRADITIONAL & DIGITAL CHANNELS, INCLUDING EPILEPSY.COM AND ENDEPILEPSY.ORG. WE RAISE AWARENESS OF SEIZURE RECOGNITION AND FIRST AID, EMPHASIZING THE IMPORTANCE OF EARLY AND PROPER DIAGNOSIS, WHEN TO SEEK SPECIALTY CARE, AND PURSUIT OF WELLNESS AND BEST QUALITY OF LIFE. WE EDUCATE THROUGH ENGAGEMENT WITH MEDIA SOURCES, PARTNERSHIPS WITH PROFESSIONAL AND GOVERNMENT ORGANIZATIONS, AND THROUGH OUR DIRECT MAIL PROGRAM WHICH SERVES THE DUAL PURPOSE OF RAISING FUNDS FOR THE ORGANIZATION AND INCREASING AWARENESS OF OUR CAUSE. AS A RESULT, IN ACCORDANCE WITH THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) GUIDELINES, WE ALLOCATE A PORTION OF OUR DIRECT MAIL COSTS TO PROGRAM SERVICES. PUBLIC EDUCATIONAL PROGRAMS ARE ALSO DISSEMINATED THROUGH OUR LOCAL EPILEPSY FOUNDATIONS AROUND THE NATION, INCLUDING OUTREACH PROGRAMS TO SCHOOLS, EMPLOYERS, FIRST RESPONDERS AND OTHER FRONT-LINE COMMUNITY GROUPS WHO ENGAGE WITH PEOPLE LIVING WITH EPILEPSY. SPECIAL EDUCATIONAL PROGRAMS FOCUS ON PROFESSIONAL EDUCATION, ESPECIALLY AROUND IMPROVING DOCTOR/PATIENT COMMUNICATION ON THE CHALLENGES OF LIVING WITH EPILEPSY, INCLUDING AWARENESS, SAFETY, AND PREVENTION OF SUDDEN UNEXPECTED DEATH IN EPILEPSY (SUDEP). 3069304 864373 478662 RESEARCH, INNOVATION, AND NEW THERAPIES - BRINGING INNOVATIVE NEW THERAPIES IN A TIMEFRAME THAT MATTERS IS A DRIVING FORCE AND KEY STRATEGIC PRIORITY FOR THE FOUNDATION. THROUGH THE EPILEPSY THERAPY PROJECT, WE ACCELERATE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSY, AND ADDRESS GAPS IN THE RESEARCH, AND COMMERCIALIZATION CONTINUUM. THE FOUNDATION'S EPILEPSY LEARNING HEALTHCARE SYSTEM PILOT NETWORK DRIVES QUALITY IMPROVEMENT AND HEALTH SERVICES RESEARCH TO IMPROVE OUTCOMES FOR PEOPLE WITH EPILEPSY. OTHER KEY INITIATIVES INCLUDE RESEARCH TO ERADICATE SUDEP, EXPANDED PATIENT REGISTRIES FOR COMMON AND RARE FORMS OF EPILEPSY IN THE HUMAN EPILEPSY PROJECT AND THE RARE EPILEPSY NETWORK, SUPPORT FOR PROMISING AND MERITORIOUS RESEARCH GRANT AND FELLOWSHIP APPLICATIONS TO NEW INVESTIGATORS TO ATTRACT THE BEST AND THE BRIGHTEST TO EPILEPSY RESEARCH AND CLINICAL SERVICE, AND A CAMPAIGN TO SUPPORT THE EPILEPSY INNOVATION INSTITUTE (EI2), AN INNOVATION INCUBATOR SUPPORTING EARLY DEVELOPMENT PROJECTS TO FUNNEL NEW IDEAS INTO THE PIPELINE. 14461204 1 1 0 1 0 0 0 0 0 1 1 0 0 1 0 1 0 1 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 1 48 0 1 82 1 0 0 0 0 1 1 0 0 0 0 1 0 X 18 17 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AR AL CA CT FL GA HI IL KS KY LA MD MA ME MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X X DIANE RUBINSTEIN 3019183702 8301 PROFESSIONAL PLACE NO 200 LANDOVER MD 20785 ROBERT W SMITH CHAIR 1.00 0.10 X X 0 0 0 WARREN LAMMERT IMMEDIATE PAST CHAIR 1.00 0.10 X X 0 0 0 ROGER HELDMAN TREASURER 1.00 0.10 X X 0 0 0 MAY J LIANG SECRETARY 1.00 0.10 X X 0 0 0 JOYCE BENDER DIRECTOR (TO APR '18) 1.00 0.10 X 0 0 0 BRADLEY BOYER DIRECTOR 1.00 0.10 X 0 0 0 TONY COELHO DIRECTOR 1.00 0.10 X 0 0 0 FRANK FISCHER DIRECTOR 1.00 0.10 X 0 0 0 BROOKE GORDON DIRECTOR 1.00 0.10 X 0 0 0 RICK HARRISON DIRECTOR 1.00 0.10 X 0 0 0 CYNTHIA HUDSON DIRECTOR 1.00 0.10 X 0 0 0 GARRY MENZEL DIRECTOR 1.00 0.10 X 0 0 0 DANIEL MOORE DIRECTOR 1.00 0.10 X 0 0 0 GEOFFREY POPE DIRECTOR 1.00 0.10 X 0 0 0 STEVEN SCHACHTER DIRECTOR 1.00 0.10 X 0 0 0 HOWARD R SOULE DIRECTOR 1.00 0.10 X 0 0 0 DARLA TEMPLETON DIRECTOR 1.00 0.10 X 0 0 0 STEVE WULCHIN DIRECTOR 1.00 0.10 X 0 0 0 PHILIP GATTONE PRESIDENT/CEO 35.00 0.10 X X 260269 0 43511 ELLEN K HOBBY CHIEF OPERATING OFFICER/VP 35.00 0.10 X 187371 0 22584 ANGELA M OSTROM CHIEF LEGAL OFFICER/VP PUB (TO MAR '18) 35.00 0.10 X 170629 0 37445 MARY VANEEDA BENNETT CHIEF DEVELOPMENT OFFICER (TO MAR '18) 35.00 0.10 X 220168 0 34306 BRANDY E FUREMAN VP RESEARCH 35.00 0.10 X 192284 0 36663 STEVEN OWENS VP PROGRAMS 35.00 0.10 X 155734 0 13507 ALEXANDRA K FINUCANE SENIOR ADVISOR 35.00 0.10 X 143267 0 32994 KENNETH A LOWENBERG VP COMMUNICATIONS 35.00 0.10 X 142552 0 18756 JONATHAN E SCHEINMAN SR DIRECTOR OF COMMUNITY D 35.00 0.10 X 134540 0 35776 DIANE E RUBINSTEIN VP FINANCE & ADMINISTRATION 35.00 0.10 X 132718 0 34883 VICKI KOPPLIN CHAPTERS 35.00 0.10 X 126880 0 10148 1866412 0 320573 14 0 1 0 LEADDOG MARKETING GROUP 440 9TH AVENUE 17TH FL NEW YORK NY 10001 MARKETING 563500 CBS TELEVISION STUDIOS 1700 BROADWAY NEW YORK NY 10019 MARKETING 297967 RESEARCH TRIANGLE INSTITUTE 3040 CORNWALLIS RD RESEARCH TRIANGLE PARK NC 27709 SUBCONTRACTOR 229296 MINDSHIFT 309 WAVERLEY OAKS RD WALTHAM CA 02452 IT SUPPORT 186844 RESOURCE ONEWORLDWIDE PRINTING & DISTRI 2900 E APACHE ST TULSA OK 74110 DIRECT MAIL 162000 11 2136321 3291311 17517739 2727044 22945371 PCORI CONTRACTS 900099 478662 478662 AFFILIATE FEES 900099 390002 390002 OTHER PROGRAM REVENUE 900099 67315 67315 935979 220796 220796 7704 7704 1101039 1028525 72514 72514 72514 14607 2136321 680503 -665896 -665896 555030 544336 10694 10694 69178 69178 69178 23596340 946673 0 -295704 X 741441 741441 34738 34738 136000 136000 1334469 1075233 103221 156015 4866391 3920394 379215 566782 260220 209921 19037 31262 465633 375630 34064 55939 434021 350128 31752 52141 43818 38164 1160 4494 53266 46393 1410 5463 205895 205895 3632666 3343249 101640 187777 1214298 843626 34468 336204 487959 339006 13851 135102 577212 470127 27432 79653 1310529 1217161 14418 78950 968600 968600 256019 213015 13943 29061 123871 107887 3280 12704 DUES & SUBSCRIPTIONS 26077 13597 2966 9514 137755 16894 118885 1976 17310878 14461204 900742 1948932 X 795870 561830 0 234040 551427 1894167 173909 3209876 2099588 2022836 22678 25182 513608 312110 5434628 4752083 493142 682545 7186746 7563808 30600 253155 3800109 5538313 14871807 21501992 863780 1227971 731713 590318 19083 100412 1614576 1918701 X 7011128 7369868 1773278 5863878 4472825 6349545 13257231 19583291 14871807 21501992 X 6285462 97598 -57000 X 0 1 X 1 1 1 X 17745071 12995210 14630365 14248744 22945371 82564761 17745071 12995210 14630365 14248744 22945371 82564761 1549432 81015329 165951 141400 145730 172031 228500 853612 925765 79370 46728 17296 69178 1138337 84556710 12037659 0.95810 0.95880 X 24768 197984 222752 17088126 17310878 1000000 250000 0 0 815845 854308 910560 1000000 3580713 5371070 279882 261333 308149 222752 1072116 203961 213577 227640 250000 895178 1342767 19540 27942 34346 24768 106596 4472825 1840433 51025 14738 6349545 4290756 280461 98392 4472825 4473090 67914 -231086 19162 4290756 4584406 38059 149375 4473090 4301136 50000 379801 146531 4584406 1.00000 0 0 174726 144366 30360 5259902 4607717 652185 682545 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 5152979 DUE FROM AFFILIATES 125266 BENEFICIAL INTEREST IN ASSETS HELD BY A COMMUNITY FOUNDATION 29964 DEFERRED RENT 230104 5538313 X 24053254 97598 359316 456914 23596340 0 23596340 17727194 359316 57000 416316 17310878 0 17310878 PART V, LINE 4: THE ENDOWMENT FUNDS INCLUDE BOTH ENDOWMENT FUNDS AND PERPETUAL FUNDS HELD BY OUTSIDE INVESTMENT COMPANIES INCOME IS EITHER FOR THE UNRESTRICTED USE OF THE FOUNDATION OR RESEARCH. PART X, LINE 2: FOR THE YEARS ENDED JUNE 30, 2018 AND 2017, THE EPILEPSY FOUNDATION AND THE EPILEPSY RESEARCH FOUNDATION HAVE DOCUMENTED THEIR CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XII, LINE 2D - OTHER ADJUSTMENTS: BAD DEBT 57,000. 1 EAST ASIA & THE PACIFIC 0 0 GRANT TO RECIPIENT LOCATED IN REGION. 130000 EUROPE 0 0 GRANT TO RECIPIENT LOCATED IN REGION. 6000 0 0 0 0 0 0 136000 0 136000 EAST ASIA & THE PACIFIC NEW THERAPY GRANT 130000 WIRE TRANSFER EUROPE SHARK TANK AWARD 6000 WIRE TRANSFER 0 2 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. X X X X X X 1 RESOURCE ONE 2900 E APACHE STREET TULSA OK 74110 FUNDRAISING CONSULTANT 0 1196962 81000 1115962 CREATIVE DIRECT RESPONSE INC 16900 SCIENCE DR BOWIE MD 20715 FUNDRAISING CONSULTANT 0 535791 53325 482466 INFOCISION 325 SPRINGSIDE DRIVE AKRON OH 44333 FUNDRAISING CONSULTANT 0 29847 11570 18277 BURTON STRATEGIES 2920 NEILSON WAY SUITE 501 SANTA MONICA CA 90405 FUNDRAISING CONSULTANT 0 0 60000 -60000 1762600 205895 1556705 AL AK AR CA CO CT DC FL GA HI IL KS KY LA MD MA ME MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SC TN NV UT VA WA WV WI WALK 1122771 1122771 283689 AVE 329890 329890 113086 12 698267 683660 14607 3000 18078 262650 2150928 2136321 14607 3000 18078 659425 680503 -665896 1 ZETO INC 1226 CHIAPAS TERRACE SAN JOSE CA 95126 472104946 200000 NEW THERAPY GRANT AMERICAN EPILEPSY SOCIETY 135 S LASALLE STREET SUITE 2850 CHICAGO IL 60603 046112600 501(C)(3) 180000 RESEARCH GRANTS ADVANCED SCANNERS 9505 TEA ROSE TRL AUSTIN TX 78748 822588088 151000 SHARK TANK AWARD INNOCENTIVE INC 265 WINTER ST 2ND FL WALTHAM MA 02451 203437526 65000 SUDEP AWARD SBC MEDSIM LLC 1906 S SHERBOURNE DR LOS ANGELES CA 90034 824670702 51000 SHARK TANK AWARD AMERICAN BRAIN FOUNDATION 201 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55415 411717098 501(C)(3) 43333 CLINICAL RESEARCH TRAINING FELLOWSHIP GORDON RESEARCH CONFERENCES 512 LIBERTY LN WEST KINGSTON RI 02892 260150662 501(C)(3) 15040 CONFERENCE SPONSORSHIP CENTER FOR COURAGEOUS KIDS 1501 BURNLEY RD SCOTTSVILLE KY 42164 201789905 501(C)(3) 7500 CAMP SCHOLARSHIPS CORTICOMETRICS LLC 6 ADMIRALS WAY NO 4 CHELSEA MA 02150 455507852 6000 SHARK TANK AWARD 4 5 PIPELINE GRANTS 2 12000 PENRY ASSISTANCE FUND 39 9440 POND ASSISTANCE FUND 9 8958 PATIENT ASSISTANCE FUND 6 4340 PART I, LINE 2: THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. X X 0 0 0 0 0 0 0 0 0 PHILIP GATTONE PRESIDENT/CEO 260269 0 0 0 0 0 18603 0 24908 0 303780 0 0 0 ELLEN K HOBBY CHIEF OPERATING OFFICER/VP 187371 0 0 0 0 0 13496 0 9088 0 209955 0 0 0 ANGELA M OSTROM CHIEF LEGAL OFFICER/VP PUB (TO MAR ' 170629 0 0 0 0 0 12537 0 24908 0 208074 0 0 0 MARY VANEEDA BENNETT CHIEF DEVELOPMENT OFFICER (TO MAR '1 220168 0 0 0 0 0 15400 0 18906 0 254474 0 0 0 BRANDY E FUREMAN VP RESEARCH 192284 0 0 0 0 0 10675 0 25988 0 228947 0 0 0 STEVEN OWENS VP PROGRAMS 155734 0 0 0 0 0 4596 0 8911 0 169241 0 0 0 ALEXANDRA K FINUCANE SENIOR ADVISOR 143267 0 0 0 0 0 9994 0 23000 0 176261 0 0 0 KENNETH A LOWENBERG VP COMMUNICATIONS 142552 0 0 0 0 0 10112 0 8644 0 161308 0 0 0 JONATHAN E SCHEINMAN SR DIRECTOR OF COMMUNITY D 134540 0 0 0 0 0 10069 0 25707 0 170316 0 0 0 DIANE E RUBINSTEIN VP FINANCE & ADMINISTRATION 132718 0 0 0 0 0 9836 0 25047 0 167601 0 0 0 X 539488 FMV X 99 38354 FMV X 10 178197 FMV X 1 1799433 FMV X MERGER: RECEIVABLES 1 116543 FMV X MERGER: MISCELLANEOUS 1 55029 FMV 0 0 1 1 PART I, COLUMN (B): THE AMOUNTS IN COLUMN (B) REPRESENT THE NUMBER OF CONTRIBUTIONS THE ORGANIZATION RECEIVED DURING THE YEAR. PART I, LINE 32B: A SEPARATE COMPANY COLLECTS AND SELLS CARS THAT ARE DONATED TO THE ORGANIZATION THIS ORGANIZATION THEN REMITS THE FUNDS RECEIVED FROM THE SALE OF THESE VEHICLES TO EFA. DONATED CLOTHING AND HOUSEHOLD ITEMS ARE PROCESSED THROUGH A THIRD PARTY WHICH REMITS THE FUNDS TO THE ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND AN ELECTRONIC COPY OF THE DRAFT FORM 990 WAS SENT TO ALL BOARD MEMBERS BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C THE EPILEPSY FOUNDATION HAS A CONFLICT OF INTEREST POLICY AS PART OF ITS CODE OF ETHICS THAT IS SHARED WITH ALL VOLUNTEERS, BOARD, EMPLOYEES AND AFFILIATES. BOARD MEMBERS AND STAFF ANNUALLY COMPLETE A WRITIEN CONFLICT OF INTEREST DISCLOSURE STATEMENT, WHICH IS KEPT ON FILE AT FOUNDATION HEADQUARTERS. FOUNDATION POLICY REQUIRES ANYONE WITH A CONFLICT OF INTEREST TO REVEAL THE CONFLICT DURING ANY DISCUSSIONS, DECISIONS, OR ACTIONS THAT TAKE PLACE IN WHICH A CONFLICT MAY ARISE, AND TO RECUSE HIM OR HERSELF FROM THE DECISION MAKING OR ACTION TAKEN. THE EXECUTIVE COMMITIEE MAINTAINS AND REVIEWS THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS FROM BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THE EPILEPSY FOUNDATION'S EXECUTIVE COMMITIEE SETS COMPENSATION FOR THE PRESIDENT & CEO OF THE FOUNDATION AND REVIEWS AND APPROVES ALL COMPENSATION FOR VICE PRESIDENTS (KEY EMPLOYEES). THE CEO IS HIRED AND COMPENSATION TERMS ARE SET BY CONTRACT WHICH HAS BEEN DEVELOPED BY THE EXECUTIVE COMMITTEE OF THE BOARD. THE EXECUTIVE COMMITIEE IS MADE UP OF EPILEPSY FOUNDATION OFFICERS AND BOARD MEMBERS, ALL WHO ARE VOLUNTEERS, AND INCLUDES THE CEO AS A NONVOTING MEMBER ONLY DURING THE PROCESS FOR CONTRACT DETERMINATION, THE CEO IS RECUSED FROM ALL MEETLNGS OF THE EXECUTIVE COMMITIEE THAT CONCERN HIS CONTRACT TERMS. THE CHAIR OF THE FOUNDATION NEGOTIATES THE TERMS OF THE CONTRACT WITH THE CEO UNDER THE DIRECTION AND WITH APPROVAL OF TERMS ESTABLISHED BY THE EXECUTIVE COMMITIEE OF THE BOARD. IN ORDER TO DETERMINE AN APPROPRIATE SALARY AND COMPENSATION, THE EXECUTIVE COMMITIEE REVIEWS COMPARABLE DATA FROM THE WASHINGTON, DC METRO AREA FOR THE CEO POSITION, AS WELL AS DATA FROM THE NATIONAL HEALTH COUNCIL ON COMPENSATION OF CEOS FOR COMPARABLY SIZED AND SIMILARLY SITUATED NONPROFIT ENTITIES. SOURCES REVIEWED AT LAST CONTRACT NEGOTIATION FOR THE CEO INCLUDED THE NATIONAL HEALTH COUNCIL SURVEY DATA, THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES SURVEY FOR THE WASHINGTON, DC METRO AREA, DATA FROM THE AMERICAN RESEARCH COMPANY'S GENERAL SURVEY, AND HEALTH AND DISEASE SEGMENT FOR ALL GEOGRAPHY, FOR THE DC METRO AREA. BASED UPON THIS DATA, A SALARY RANGE IS DERERMINED FOR THE CEO POSITION. MINUTES OF THE EXECUTIVE COMMITIEE DELIBERATIONS AND ACTION CONCERNING COMPENSATION ARE KEPT AT THE FOUNDATION'S HEADQUARTERS OFFICE. IN ADDITION, THE SIGNED CONTRACT SETIING SALARY AND COMPENSATION AND ALL TERMS OF EMPLOYMENT FOR CEO ARE MAINTAINED IN THE FOUNDATION'S HEADQUARTERS. RECORDS DOCUMENTATION OF THE DATA SOURCES, THE COMPARATIVE EVALUATIONS MADE, AND THE RESULTS OF THE EXECUTIVE COMMITIEE DELIBERATIONS, AND MINUTES OF MEETLNGS DURING EXECUTIVE SESSION ARE ALSO INCLUDED IN THESE FILES. ANNUAL REVIEW OF CEO PERFORMANCE IS DONE BY THE EXECUTIVE COMMITIEE IN EXECUTIVE SESSION (WITHOUT THE CEO BEING PRESENT), WITH A FORMAL WRITIEN REVIEW REQUIRED. THIS PERFORMANCE REVIEW SERVES AS THE BASIS FOR AN ANNUAL BONUS FOR THE CEO, IF ANY, WITHIN THE TERMS OF THE CEO CONTRACT. THE LAST COMPENSATION REVIEW TOOK PLACE IN DECEMBER 2016. THE CEO IS RESPONSIBLE FOR HIRING AND COMPENSATION OF ALL EMPLOYEES OF THE FOUNDATION, INCLUDING KEY EMPLOYEES (VICE PRESIDENTS). NO KEY EMPLOYEE OTHER THAN THE CEO PARTICIPATES IN THE EXECUTIVE COMMITIEES COMPENSATION REVIEW OF THE VICE PRESIDENTS (KEY EMPLOYEES) OF THE FOUNDATION, AND THE CEO IS ASKED TO RECUSE HIMSELF DURING THE EXECUTIVE SESSION MEETLNG. DOCUMENTATION OF THE MATERIALS REVIEWED AND DISCUSSION IS MAINTAINED BY CHAIR OF EXECUTIVE COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 THE EPILEPSY FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CONSULTANTS: PROGRAM SERVICE EXPENSES 1,666,730. MANAGEMENT AND GENERAL EXPENSES 50,671. FUNDRAISING EXPENSES 93,614. TOTAL EXPENSES 1,811,015. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 1,676,519. MANAGEMENT AND GENERAL EXPENSES 50,969. FUNDRAISING EXPENSES 94,163. TOTAL EXPENSES 1,821,651. FORM 990, PART XI, LINE 9: BAD DEBT -57,000. EPILEPSY FOUNDATION OF AMERICA (UTAH) LLC 8301 PROFESSIONAL PLACE LANDOVER MD 20785 OVERCOME CHALLENGES CREATED BY EPIEPSY DE EPILEPSY FOUNDATION OF AMERICA EPILEPSY FOUNDATION OF AMERICA (OKLAHOMA) LLC 8301 PROFESSIONAL PLACE LANDOVER MD 20785 OVERCOME CHALLENGES CREATED BY EPIEPSY DE EPILEPSY FOUNDATION OF AMERICA EPILEPSY RESEARCH FOUNDATION 8301 PROFESSIONAL PLACE LANDOVER MD 20785 562369930 RESEARCH MD 501(C)(3) LINE 11, TYPE I EPILEPSY FOUNDATION OF AMERICA 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0