2018-12-17T12:50:27-06:00 2018-06-30 930900579 MCDONALD JACOBS PC 520 SW YAMHILL ST STE 500 PORTLAND OR 97204 990 2017-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 RANDY BERANEK PRESIDENT/CEO 5032447404 2018-12-12 1 SANG AHN P00540880 5032270581 50.204.228.78 2018-12-12 17:12:39 PS P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 74491F6242E16BD51F1AF62EF83EA0F361E95DED 2017 2019-02-21 02:37:17Z RANDY BERANEK 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 17259063 0 X WWW.PSORIASIS.ORG X 1968 OR TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. 15 15 85 11483 722984 1669 13602330 13408527 610080 753742 522279 520104 -233285 -159762 14501404 14522611 2589414 2381798 0 0 5669243 6072178 25135 24805 1851644 4382580 4859707 12666372 13338488 1835032 1184123 9454231 10616789 2686484 2918675 6767747 7698114 X THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. 0 0 4712162 2369484 21101 RESEARCH AND PROFESSIONAL EDUCATIONDIRECTLY SUPPORTING 20 RESEARCH PROJECTS AND EMERGING RESEARCHERS THROUGH RESEARCH GRANTS. AWARDED 9 MEDICAL RESEARCH FELLOWSHIPS DESIGNED TO INCREASE THE NUMBER OF PHYSICIAN RESEARCHERS INVESTIGATING PSORIATIC DISEASES, LEADING TO MORE DISCOVERIES, BETTER TREATMENTS AND ULTIMATELY, A CURE. AWARDED 16 SUMMER STUDENT RESEARCH GRANTS. MORE THAN 19 MILLION HAS BEEN COMMITTED TO RESEARCH SINCE OUR INCEPTION.HOSTED PROFESSIONAL EDUCATION FOR MEDICAL PROFESSIONALS, DERMATOLOGY RESIDENTS AND RHEUMATOLOGY FELLOWS TO LEARN ABOUT THE LATEST ADVANCEMENTS IN TREATMENTS AND THE MANAGEMENT OF PSORIATIC DISEASE. HOSTED 22 EARLY CAREER RESEARCHERS AT A SCIENTIFIC SYMPOSIUM.PROMOTED PATIENT INVOLVEMENT IN RESEARCH STUDIES AND CLINICAL TRIALS.CONTINUE TO MAINTAIN THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, AIDING IN THE SEARCH FOR SPECIFIC GENES THAT CAUSE PSORIASIS AND PSORIATIC ARTHRITIS. HOST AN ON-LINE COMMUNITY CALLED CITIZEN PSCIENTIST TO CONNECT PATIENTS WITH RESEARCH AND ESTABLISHED INFRASTRUCTURE FOR A NATIONWIDE RESEARCH AMBASSADORS PROGRAM.PUBLISHED THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, A PEER-REVIEWED MEDICAL JOURNAL TO PROVIDE RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.LEAD DISCUSSIONS WITH HEALTH POLICY AND REGULATORY GROUPS TO IMPROVE HEALTH OUTCOMES MEASURES AND REMOVE BARRIERS TO CARE. 1244667 ADVOCACYTHE FOUNDATION'S ADVOCACY PRIORITIES ARE FOCUSED ON STRATEGIES THAT PROMOTE FEDERAL RESEARCH EFFORTS AND ENSURE INDIVIDUALS LIVING WITH PSORIATIC DISEASES HAVE FAIR AND AFFORDABLE ACCESS TO NEEDED TREATMENTS. HARNESSING THE COLLECTIVE EFFORTS OF TENS OF THOUSANDS OF ADVOCATES, THE PSORIASIS FOUNDATION WORKED THROUGH ADVOCACY EFFORTS AT THE STATE AND FEDERAL LEVEL: TO MAKE INSURANCE FAIR AND AFFORDABLE AND HELP IMPROVE COVERAGE FOR PEOPLE WITH PSORIATIC DISEASE, HELP SET PUBLIC HEALTH POLICY FOR PSORIASIS AND PSORIATIC ARTHRITIS THROUGH THE FINDINGS FROM DATA COLLECTION AT THE CENTERS FOR DISEASE CONTROL (CDC), WORKED TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, AND INCREASE FEDERAL FUNDING FOR PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH IN ORDER TO FIND BETTER TREATMENTS AND A CURE. 4654057 12314 9657 EDUCATION, OUTREACH AND PATIENT SERVICESPUBLISHED THE LATEST INFORMATION ON PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, RESEARCH AND HEALTHY LIVING FOR 168,000 READERS OF PSORIASIS ADVANCE MAGAZINE, THE ONLY MAGAZINE DEDICATED TO HELPING READERS LIVE WITH PSORIATIC DISEASE.ASSISTED 10,637 PATIENTS THROUGH THE PATIENT NAVIGATION CENTER, WHICH PROVIDES PERSONALIZED AND ONGOING SUPPORT TO PEOPLE AFFECTED BY PSORIATIC DISEASE THROUGH DISEASE AND TREATMENT INFORMATION, HELP FINDING SPECIALISTS AND GUIDANCE ON AFFORDABLE ACCESS TO TREATMENT.PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR 4.9 MILLION UNIQUE VISITORS.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 154,000 SUBSCRIBERS.BROADCASTED 15 PATIENT EDUCATIONAL WEBINARS WITH A TOTAL OF 1,391 LIVE ATTENDEES AND MORE THAN 2,300 ENDURING VIEWS IN 2018PROVIDED PERSONAL PEER SUPPORT TO 215 NEW PARTICIPANTS IN THE PSORIASIS ONE TO ONE PROGRAM.HOSTED 11 MORE THAN SKIN DEEP AND 6 BE JOINT SMART EDUCATIONAL EVENTS ATTRACTING MORE THAN 400 PARTICIPANTS. ENGAGED 4,593 VOLUNTEERS THROUGH NON-FUNDRAISING PROGRAMS AND EVENTS. 10610886 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 77 0 85 1 1 1 0 0 0 0 1 1 0 0 0 1 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 PETE REDDING CHAIR 1.00 X X 0 0 0 CHIP NEWTON CHAIR-ELECT 1.00 X X 0 0 0 CAROL OSTROW VICE-CHAIR 1.00 X X 0 0 0 TERRI THEISEN TREASURER 1.00 X X 0 0 0 RON GRAU SECRETARY 1.00 X X 0 0 0 STEVE BISHKOFF DIRECTOR 1.00 X 0 0 0 MATTHEW KISELICA DIRECTOR 1.00 X 0 0 0 BEN LOCKSHIN MD DIRECTOR 1.00 X 0 0 0 EYAL OFIR DIRECTOR 1.00 X 0 0 0 ABBY VAN VORHEES MD DIRECTOR 1.00 X 0 0 0 NATE PAUL DIRECTOR 1.00 X 0 0 0 PETE MILLER DIRECTOR 1.00 X 0 0 0 JASON LICHTEN MD DIRECTOR 1.00 X 0 0 0 RICK SEIDEN DIRECTOR 1.00 X 0 0 0 MARK OBERMAN DIRECTOR 1.00 X 0 0 0 RANDY BERANEK PRESIDENT/CEO 40.00 X 332830 0 27911 LEAH HOWARD CHIEF OPERATING OFFICER 40.00 X 166152 0 13781 EMILY BOYD CHIEF REVENUE OFFICER 40.00 X 148826 0 16190 BRIDGET HART DIRECTOR OF MAJOR GIFTS 40.00 X 139509 0 31805 SALLY NORBY VP TRAINING & ORG DEVELOPMENT 40.00 X 131876 0 20236 BETTE DRAKE VP FINANCE & OPERATIONS 40.00 X 119758 0 15102 JOHN OGDEN DIRECTOR OF MARKETING & COMMUNICATIONS 40.00 X 113518 0 14840 1152469 0 139865 9 0 1 0 CONVERO 835 SHARON DRIVE SUITE 200 CLEVELAND OH 44145 PUBLICATION DEVELOPMENT AND DISTRIBUTION 213180 FAEGRE BAKER DANIELS LLP 1050 K STREET NW WASHINGTON DC 20001 CONSULTING 205718 LITHTEX PRINTING SOLUTIONS 6770 NW CENTURY BLVD HILLSBORO OR 97124 PRINTING 108329 3 113418 47905 2045943 11201261 1017312 13408527 ADVERTISING INCOME 541800 722984 722984 CONFERENCE REGISTRATION 611710 21101 21101 CONSULTING 532000 9657 9657 753742 89858 89858 3002064 2571818 430246 430246 430246 0 2045943 164634 -164634 -164634 4872 0 4872 4872 14522611 35630 722984 355470 1961798 1961798 420000 420000 770989 583139 49699 138151 4151865 3140272 267634 743959 170597 129031 10997 30569 591004 447007 38097 105900 387723 293255 24993 69475 90682 80225 6186 4271 20434 20434 256580 256580 24805 24805 38597 38597 1267763 1132014 86634 49115 24681 24222 459 874343 528218 126159 219966 370109 333370 17978 18761 630771 485352 83976 61443 705560 646324 30675 28561 47613 36009 3061 8543 32319 24442 2078 5799 SPECIAL EVENTS 295296 295296 DUES AND SUBSCRIPTIONS 87472 63157 8538 15777 BAD DEBT 58815 58815 MISCELLANEOUS 34433 8463 11 25959 24239 18008 1396 4835 13338488 10610886 875958 1851644 X 598520 299260 0 299260 1936543 2110171 134267 193248 2335480 2564575 138174 377191 20767 12187 362682 135804 698499 603050 138552 95449 4357159 5098000 30607 30164 9454231 10616789 2476745 754857 1901114 12413 209739 250291 2686484 2918675 X 3111739 3753855 3656008 3944259 6767747 7698114 9454231 10616789 1184123 -253756 0 X X 0 1 X 1 0 X 8404896 8705798 9161189 13602330 13408527 53282740 8404896 8705798 9161189 13602330 13408527 53282740 18956921 34325819 84661 84329 76192 62020 89858 397060 53679800 2087026 0.63950 0.63750 X 14589 449616 464205 10984042 11448247 722412 180603 0 0 561791 629898 684683 722412 2598784 3898176 404532 430866 415619 464205 1715222 140448 157475 171171 180603 649697 974546 16786 17322 14388 14589 63085 5576027 1044594 227752 6848373 5335394 240633 5576027 5562686 23940 -51232 200000 5335394 5418985 189359 -45658 5562686 4839410 350615 513960 285000 5418985 1.00000 0 0 19765 15941 3824 653954 576784 77170 24780 10325 14455 95449 DEFERRED RENT 84346 GIFT ANNUITY LIABILITY 35761 DEFERRED COMPENSATION 130184 250291 X 14233758 -253756 3500 -250256 14484014 38597 38597 14522611 13303391 3500 3500 13299891 38597 38597 13338488 PART V, LINE 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO FIVE PERCENT OF PRINCIPAL PER YEAR, AS WELL AS SUBJECT TO APPROVAL. PART X, LINE 2: THE ORGANIZATION FOLLOWS THE PROVISION OF FASB ASC TOPIC OF ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS TOPIC. 1 0 0 0 0 0 0 0 0 0 NORTH AMERICA DISCOVERY GRANT 75000 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) DISCOVERY GRANT 75000 CHECK EAST ASIA AND THE PACIFIC EARLY CAREER RESEARCH GRANT 52500 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) EARLY CAREER RESEARCH GRANT 52500 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) TRANSLATIONAL RESEARCH GRANT 100000 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) FELLOWSHIP 50000 CHECK 0 6 0 0 0 0 0 0 PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE VP OF RESEARCH PROGRAMS OF THE NATIONAL PSORIASIS FOUNDATION. X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 PHONE CAMPAIGN 0 17911 24805 -6894 17911 24805 -6894 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY TEAM NPF 1658843 1658843 44496 42157 15134 CTC GALAS 387100 387100 59347 3500 2045943 2045943 44496 101504 18634 164634 -164634 SCHEDULE G, PART I, LINE 2B, COLUMN (V) EXPENSES ARE SEPARATELY ITEMIZED AND BILLED FROM FUNDRAISING FEES. 1 THE CLEVELAND CLINIC FOUNDATION PO BOX 931531 CLEVELAND OH 44195 340714585 501(C)(3) 100000 BRIDGE GRANT UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE LA JOLLA CA 92093 956006144 501(C)(3) 50000 BRIDGE GRANT MOLECULAR MEDICINE RESEARCH INSTITUTE 428 OAKMEAD PARKWAY SUNNYVALE CA 94085 943254623 501(C)(3) 75000 DISCOVERY GRANT MOUNT SINAI SCHOOL OF MEDICINE BOX 3500 NEW YORK NY 10029 136171197 501(C)(3) 75000 DISCOVERY GRANT UNIVERSITY OF CALIFORNIA DAVIS P O BOX 989062 WEST SACRAMENTO CA 95798 946036494 501(C)(3) 75000 DISCOVERY GRANT ROCKEFELLER UNIVERSITY ALBERT EINSTEIN COLLEGE OF MEDICINE 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)(3) 75000 DISCOVERY GRANT UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET P221 FRANKLIN BUILDING PHILADELPHIA PA 19104 231352685 501(C)(3) 75000 DISCOVERY GRANT UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 75000 DISCOVERY GRANT MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)(3) 52500 EARLY CAREER RESEARCH GRANT NATIONAL INSTITUTES OF HEALTH NIAID 31 CENTER DRIVE BETHESDA MD 20892 520858115 52500 EARLY CAREER RESEARCH GRANT BRIGHAM AND WOMEN'S HOSPITAL - HARVARD MEDICAL SCHOOL PO BOX 3149 BOSTON MA 02241 042312909 501(C)(3) 52500 EARLY CAREER RESEARCH GRANT THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 52500 EARLY CAREER RESEARCH GRANT NATIONAL HEART LUNG AND BLOOD INSTITUTE 31 CENTER DRIVE BETHESDA MD 20892 520858115 100000 NIH-NPF FELLOWSHIP - 2ND YEAR NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE 633 CLARK ROOM 547 EVANSTON IL 60208 362167817 501(C)(3) 75000 PEDIATRIC PSORIASIS CHALLENGE GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (DAVIS) 1 SHIELDS AVENUE DAVIS CA 95618 946036494 100000 TRANSLATIONAL RESEARCH GRANT MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501(C)(3) 100000 TRANSLATIONAL RESEARCH GRANT WASHINGTON UNIVERSITY 700 ROSEDALE AVE ST LOUIS MO 63112 430653611 501(C)(3) 100000 TRANSLATIONAL RESEARCH GRANT THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS 28395 NETWORK PLACE CHICAGO IL 60673 376000511 501(C)(3) 100000 TRANSLATIONAL RESEARCH GRANT REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 S STATE ST ANN ARBOR MI 48109 386006309 501(C)(3) 100000 TRANSLATIONAL RESEARCH GRANT KECK SCHOOL OF MEDICINE OF THE UNIVERSITY OF SOUTHERN CALIFORNIA (USC) 3500 S FIGUEROA STREET LOS ANGELES CA 90089 951642394 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 50000 FELLOWSHIP CASE WESTERN RESERVE UNIVERSITY PO BOX 78000 CLEVELAND OH 44106 341567805 501(C)(3) 50000 FELLOWSHIP BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVENUE BOSTON MA 02215 042103881 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET SUITE 425 BOX 0897 SAN FRANCISCO CA 94103 946036493 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF PITTSBURGH PO BOX 371220 PITTSBURGH PA 15262 250965591 501(C)(3) 50000 FELLOWSHIP UNIVERSITY OF CONNECTICUT HEALTH CENTER 21 SOUTH ROAD 2ND FLOOR FARMINGTON CT 06032 521725543 501(C)(3) 50000 FELLOWSHIP 23 3 PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE SENIOR VP OF RESEARCH PROGRAMS OF THE NATIONAL PSORIASIS FOUNDATION. X X 0 0 0 0 0 0 0 0 0 RANDY BERANEK PRESIDENT/CEO 289766 0 43064 0 0 0 13500 0 14411 0 360741 0 0 0 LEAH HOWARD CHIEF OPERATING OFFICER 159852 0 6300 0 0 0 8308 0 5473 0 179933 0 0 0 EMILY BOYD CHIEF REVENUE OFFICER 143546 0 5280 0 0 0 6704 0 9486 0 165016 0 0 0 BRIDGET HART DIRECTOR OF MAJOR GIFTS 133861 0 5648 0 0 0 7108 0 24697 0 171314 0 0 0 SALLY NORBY VP TRAINING & ORG DEVELOPMENT 126632 0 5244 0 0 0 6615 0 13621 0 152112 0 0 0 X 8 1017187 SALE PRICE 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL DIRECTORS ANUALLY. ALL DIRECTORS AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS ANNUALLY REVEIWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.