2018-11-07T10:19:56-07:00 2018-09-30 990EZ 2017-10-01 300585106 Rothmund-Thomson Syndrome Foundation ROTH 7038023167 4307 Woodward Court Chantilly VA 20151 John Kimmel Chair 7038023167 2018-11-07 68.100.145.166 2017 2019-02-21 02:37:17Z X X www.rtsplace.org X X 33845 X 15834 0 0 0 0 0 0 13895 3946 3821 14020 170 3 167 0 30021 30198 0 0 0 0 214 1947 32359 -2338 51226 75 48963 51226 48963 0 0 0 0 51226 48963 0 0 51226 48963 Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes Provided a funding to Baylor College of Medicine to sponsor continued research on RTS and to fund RTS clinical studies. 0 25000 Provided funding for genetic testing for families who could not afford testing. 0 2500 Represented the foundation at a medical research conference and presented a briefing on how our families cope with RTS. 0 2698 30198 John Kimmel Chair 10 0 0 0 Laurie Sperou Vice-Chair 10 0 0 0 Shelley Sanders Treasurer 5 0 0 0 Ta-Tara Rideau Secretary 5 0 0 0 Emil Zakutny Director 5 0 0 0 Sheila Townsend Directer 5 0 0 0 X 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 CA FL IL MA MD ME MI NH NM NY PA TX VA John Kimmel 4307 Woodward Court Chantilly VA 20151 7038023167 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 10725 8157 11366 10108 15834 56190 0 0 0 0 0 0 10725 8157 11366 10108 15834 56190 56190 0 0 0 0 0 0 0 0 0 0 0 0 200 0 0 200 56390 0 0.99645 0.99606 X Schedule A, Part II, Line 10 We received a credit back from the National Organization for Rare Diseases for overpayment. Form 990-EZ, Part I, Line 16 Normal operating expenses and costs of registering for solicitation in 13 states Form 990-EZ, Part I, Line 20 Miscellaneous credit from over payment to National Organization for Rare Diseases. Form 990-EZ, Part V, Line 34 Articles of incorporation and bylaws were changed to provide board members to serve five, three year terms instead of five two year terms,