2019-08-15T15:45:22-05:00 2018-09-30 042578039 R A HALL & CO LLC CPA'S 183 STATE STREET BOSTON MA 02109 990 2017-10-01 371483975 LUMIND RESEARCH DOWN SYNDROME FOUNDATION LUMI 7818251300 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 HAMPUS HILLERSTROM PRESIDENT/CEO 7818251300 2019-08-12 1 ERIC J HALL P00303080 6177233333 2019-08-14 50.250.42.177 2019-08-14 14:37:59 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 6C9B1A35775087DBDB8A6D25ECA509C7F6C27838 2017 2019-02-21 02:37:17Z X HAMPUS HILLERSTROM 20 BURLINGTON MALL ROAD NO 200 BURLINGTON MA 01803 3772270 0 X LUMINDRDS.ORG X 2003 CA TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. 15 15 7 0 0 0 1698058 3261080 0 0 1241 601 539332 342877 2238631 3604558 1839000 1400500 0 0 550135 659925 0 0 361439 432664 537004 2821799 2597429 -583168 1007129 2225185 3084421 2031445 1883552 193740 1200869 TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME. 0 0 825000 825000 DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 120000 120000 UNIVERISTY OF CONNECTICUT - TRISOMY 21 (T21) IS THE MOST FREQUENT VIABLE ANEUPLOIDY IN HUMANS (1 IN 700 LIVE BIRTHS), AND CAUSES DOWN'S SYNDROME (DS) THROUGH INCREASED GENE DOSAGE FROM CHROMOSOME 21. DS ENCOMPASSES A RANGE OF PHENOTYPES THAT AFFECT ANATOMY, COGNITION, AS WELL AS CARDIOVASCULAR AND ENDOCRINE SYSTEMS. THE MAIN GOAL OF THIS PROJECT IS TO CREATE A DUAL-USE GENETIC RESOURCE FOR ADDRESSING FUNDAMENTAL AND TRANSLATIONAL QUESTIONS IN DOWN SYNDROME RESEARCH. 1095992 455500 OTHER GRANTS AND SUPPORT TO SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 2040992 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 7 1 0 0 0 0 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA MA NY AL AK AZ AR CO CT DC FL GA IL KS KY ME MD MA MI MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X HAMPUS HILLERSTROM PRESIDENT AND C 7818251300 20 BURLINGTON MALL ROAD SUITE 200 BURLINGTON MA 01803 RYAN M HARTMAN MEMBER 5.00 X 0 0 0 BJOERN SPERLING MD BOARD CHAIR 1.00 X 0 0 0 PATRICK KANNAN BOARD MEMBER TREASURER 1.00 X X 0 0 0 MICHAEL J MANNOR PHD BOARD VICE CHAIR 1.00 X 0 0 0 PAUL MURASKO MEMBER 1.00 X 0 0 0 TONY HUNG MEMBER 1.00 X 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 X X 90988 0 7715 HECTOR GUINNESS MEMBER 1.00 X 0 0 0 ANULA JAYASURYA MEMBER 1.00 X 0 0 0 ANTHONY PROVIDENTI MEMBER 1.00 X X 0 0 0 CHRISTOPHER LIS MEMBER 1.00 X 0 0 0 JEFF W STROBEL MEMBER 1.00 X X 0 0 0 CLAUDIA MOREIRA MEMBER 1.00 X 0 0 0 ASSOCIATION DEVELOPMENT SOLUTIONS FUNDRAISING AND CONSULTIN 40.00 X 196245 0 0 MICHAEL M HARPOLD PHD FORMER CHIEF SCIENTIFIC OFFICER 40.00 X 147375 0 0 434608 0 7715 2 1 1 0 0 10444 3250636 3261080 1265 1265 664 -664 -664 -664 509685 167048 342637 342637 OTHER INCOME 900099 240 240 240 3604558 0 0 343478 X 1400500 1400500 544127 401134 68264 74729 7232 5327 916 989 72041 53107 9040 9894 36525 26927 4582 5016 165000 165000 81533 81533 45302 20155 15965 9182 49947 605 2894 46448 24629 20257 2087 2285 5435 4007 682 746 75432 63328 6589 5515 25193 8690 16503 19161 17396 1765 7247 5343 909 995 BANK FEES AND CREDIT CA 12895 7 795 12093 PRINTING 11086 3949 7137 POSTAGE AND SHIPPING 9655 5969 455 3231 STATE FILING FEES 4489 4291 287 -89 2597429 2040992 194998 361439 250829 191627 811138 566218 1123029 2223042 26063 42692 11646 45087 9936 9936 0 0 1136 2651 1344 13104 2225185 3084421 127760 150862 1857750 1634444 33541 50146 12394 48100 2031445 1883552 X -46260 2827 240000 1198042 193740 1200869 2225185 3084421 1007129 0 X X 0 1 X 1 0 X 1510791 1426436 1451150 1420558 1378038 7186973 1510791 1426436 1451150 1420558 1378038 7186973 7186973 1793 306 152 1241 601 4093 976 10 240 1226 7192292 0.99930 0.99910 X 9936 9936 0 0 CREDIT CARD 4898 WAGES AND TAXES PAYABLE 43202 48100 3604558 0 3604558 0 3604558 0 0 0 0 0 HAYES MECHANICAL GOLF 42005 42005 FUNDING FUTURES 196277 196277 85404 19 271403 271403 81644 509685 509685 167048 167048 342637 0 UNIVERSITY OF CALIFORNIA AT SAN DIEGO 9500 GILMAN DRIVE IMG BLDG 1 RM 110 110 LA JOLLA CA 92037 956006144 100000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH UNIVERSITY OF ARIZONA 1503 E UNIVERSITY BLVD TUSCON AZ 85721 742652689 30000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH STANFORD UNIVERSITY GILBERT RM 420A STANFORD CA 94305 941156365 75000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH AC IMMUNE EPFL INNOVATION PARK LAUSANNE SZ 1015 200000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH UNIVERSITY OF CONNECTICUT HEALTH CENTER 263 FARMINGTON AVE FARMINGTON CT 06030 060772160 120000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH KINGS COLLEGE 5-11 LAVINGTON STREET LONDON UK SE1 0NZ 50500 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS 825000 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH X 0 0 0 1 0 0 0 0 0 ASSOCIATION DEVELOPMENT SOLUTIONS FUNDRAISING AND CONSULTIN 196245 0 0 0 0 0 0 0 0 0 196245 0 0 0 MICHAEL M HARPOLD PHD FORMER CHIEF SCIENTIFIC OFFICER 147375 0 0 0 0 0 0 0 0 0 147375 0 0 0 PART I, LINE 3 BOARD OF DIRECTORS APPROVED CEO COMPENSATION IS CONTAINED IN A WRITTEN EMPLOYMENT AGREEMENT PART I, LINE 5 A PORTION OF THE CEO COMPENSATION IS RELATED TO REVENUE GROWTH FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE BOARD AND FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. FORM 990, PART VI, SECTION B, LINE 12C THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.