2019-07-15T19:55:46-04:00 2019-02-28 271328499 Full Potential Accounting PO Box 12241 MILL CREEK WA 98082 990 2018-03-01 861108537 FRIENDS OF FSH RESEARCH FRIE 217 19TH PLACE KIRKLAND WA 98033 TERESA COLELLA PRESIDENT 4258278954 2019-07-15 true Justin Dagna CPA P00612140 2067749192 73.140.151.14 2019-07-15 19:57:02 9164232019196rylftzd 2019-07-15 P ED957CD8B00E2A7E162218E31A58E924BFB44648 ED957CD8B00E2A7E162218E31A58E924BFB44648 2018 2019-02-21 02:37:17Z TERESA COLELLA 722539 false X WWW.FSHFRIENDS.ORG X 2004 WA FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH 20 10 0 65 -663 0 558286 622388 0 935 1424 -17221 -73150 542000 550662 359436 525086 0 29980 0 0 330 17084 11261 406500 536347 135500 14315 762706 735979 41713 671 720993 735308 FRIENDS OF FSH RESEARCH A 501C3 ORGANIZATION IS WORKING TO IMPACT THE LIVES OF THOSE AFFECTED BY FSH MUSCULAR DYSTROPHY BY FINANCIALLY SUPPORTING FSHD RESEARCH 525086 525086 RESEARCH PROJECTS FUNDED DURING THE LAST FISCAL YEAR:FOR COMPLETE AND UP-TO-DATE INFORMATION, PLEASE REFER TO WWW.FSHFRIENDS.ORG.1) UNIVERSITY OF COLORADO - SUJATHA JAGANNATHAN PHD RESEARCHER; DECIPHERING THE ROLE OF ABERRANT PROTEIN SYNTHESIS IN FSHD2) UNIVERSEITY OF MINNESOTA - MICHAEL KYBA RESEARCHER; TRAVEL REIMBURSEMENT FOR CLINICAL STUDY PARTICIPANTS.3)BOSTON UNIVERSITY - SACHIKO HOMMA PHD RESEARCHER; MECHANISMS OF DUX4 INDUCED MUSCLE ATROPHY4) RADBOUD UNIVERSITY MEDICAL CENTER, NETHERLANDS - AREND HEERSCHAP RESEARCHER; INTRAMUSCULAR PATTERN OF FAT INFILTRATION IN FSHD MEASURED BY MRI: TOWARDS IDENTIFICATION OF DISEASE INITIATION AND PROGRESSION AND IMPROVED DIAGNOSIS OF DISEASE SEVERITY5) CHILDRENS RESEARCH INSTITUTE - YI WEN CHEN PHD RESEARCHER; IDENTIFY BIOMARKERS FOR FSHD USING OMICS APPROACHES6) BOSTON CHILDRENS HOSPITAL - ANNA MARIA PAKULA RESEARCHER; UNDERSTANDING THE INITIATION AND PROGRESSION OF FSHD-1 DISEASE BY USE OF THE NOVEL TECHNOLOGY CALLED SINGLE CELL TRANSCRIPTOMICS.7) FRED HUTCHINSON CANCER RESEARCH CENTER - STEPHEN TAPSCOTT PHD AND AMY CAMPBELL, RESEARCHERS; REGULATION AND ACTIVITY OF THE DUX4 TRANSCRIPTION FACTOR8) RESEARCH INSTITUTE AT NATIONSIDE CHILDRENS HOSPITAL - JOCELYN O. EIDAHL, PH.D. RESEARCHER; DEFINING THE ROLE OF POST-TRANSLATIONAL MODIFICATION ON FSHD PROTEIN DUX49) UNIVERSITY OF MINNESOTA - MICHAEL KYBA PHD RESEARCHER; EXPLORING MECHANISMS OF MYOPATHOLOGY IN FSHD10) UNIVERSITY OF MARYLAND - ROBERT BLOCH PH.D, RESEARCHER; A XENOGRAFT MODEL OF FSHD FOR TESTING THERAPEUTICS 1170 PUBLIC EDUCATION AND AWARENESS 526256 true true false false false false false false false false false false false false false false false false false false true false false true false false true false false false false false false false false false false true false false false false false false false false false true 0 0 true 0 true false false false false true true false false false X 20 10 true false false false false false false true true false false true true true true true true false false false WA X X LYNN COLELLA 4258278954 13001 176TH PL NE REDMOND WA 98052 X TERESA COLELLA PRESIDENT 12.00 0.00 X X 0 0 0 SUSAN BRAUN SECRETARY AUCTION TEAM 1.00 0.00 X X 0 0 0 LYNN COLELLA TREASURERBOOKKEEPER 3.00 0.00 X 0 0 0 LYNN FISCHER MEMBER AT LARGE 4.00 0.00 X 0 0 0 RICHARD COLELLA MEMBER AT LARGE 9.00 0.00 X 0 0 0 BRADLEY H BAGSHAW VICE PRESIDENT 3.00 0.00 X X 0 0 0 TAI FUNG TREASURER 1.00 0.00 X X 0 0 0 GEORGE SHAW SECRETARY 8.00 0.00 X X 0 0 0 SCOTT MICHELSON MEMBER AT LARGE 1.00 0.00 X 0 0 0 GREGORY BLOCK MEMBER AT LARGE 1.00 0.00 X 0 0 0 AMANDA RICKARD MEMBER AT LARGE 1.00 0.00 X 0 0 0 PATRICIA GRAHAM MEMBER AT LARGE 1.00 0.00 X 0 0 0 BRIAN COLELLA MEMBER AT LARGE 1.00 0.00 X 0 0 0 DIANA SHAW MEMBER AT LARGE 1.00 0.00 X 0 0 0 PETE COLELLA MEMBER AT LARGE 1.00 0.00 X 0 0 0 CHRIS HAVEN MEMBER AT LARGE 2.00 0.00 X 0 0 0 KARL VOSS MEMBER AT LARGE 1.00 0.00 X 0 0 0 RON CAROZZA MEMBER AT LARGE 0.00 0.00 X 0 0 0 0 0 0 0 false false false 282841 339547 104791 622388 1424 1424 96292 282841 168779 -72487 -72487 2435 3098 -663 -663 550662 0 -663 -71063 470891 470891 54195 54195 915 915 1500 1170 330 112 112 640 640 566 566 MERCHANT SERVICE AND BANK 7572 7572 LICENSES AND PERMITS -44 -44 536347 526256 9761 330 109170 13109 636985 709417 16551 13453 762706 735979 41713 671 41713 671 X 720993 735308 720993 735308 762706 735979 14315 0 X false false false X 616658 631237 557205 659931 718680 3183711 616658 631237 557205 659931 718680 3183711 707286 2476425 384 757 416 935 1424 3916 29 29 3187656 0.77690 0.75300 X EUROPE INCLUDING ICELAND AND GREENLAND RESEARCH STUDY 54195 WIRE TRANSFER 1 1 false false false false false false AUCTION 379133 282841 96292 1008 900 166871 379133 282841 96292 1008 900 166871 168779 -72487 true UNIVERSITY OF COLORADO 1201 LARIMER ST DENVER CO 80204 846000555 1151 92341 RESEARCH STUDIES TRUSTEES OF BOSTON UNIVERSITY 595 COMMONWEATLH AVENUE SUITE 700 BOSTON MA 02215 042103547 501C3 69453 RESEARCH STUDIES UNIVERSITY OF MARYLAND 4100 CHESAPEAKE BUILDING COLLEGE PARK MD 207423135 526002033 1151 50000 RESEARCH STUDIES CHILDRENS RESEARCH INSTITUTE 111 MICHIGAN AVE NW WASHINGTON DC 20010 521654453 501C3 92848 RESEARCH GRANT NATIONWIDE CHILDRENS HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 010782751 501C3 35807 RESEARCH GRANT UNIVERSITY OF MINNESOTA PO BOX 1450 MINNEAPOLIS MN 554855957 416007513 170C1 7500 RESEARCH GRANT BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 501C3 47500 RESEARCH GRANT FRED HUTCHINSON CANCER RESEARCH CEN 1100 FAIRVIEW AVE N PO BOX 19024 SEATTLE WA 98109 237156071 501C3 77246 RESEARCH GRANT X 78 15276 STATED VALUE X 320 STATED VALUE X 25046 STATED VALUE X 64 12584 STATED VALUE X ENTERTAINMENT TICKETS 28 5537 STATED VALUE X TRAVEL 20 2575 STATED OR TAX VALUE X SERVICES 5 TAX VALUE X GIFT CARDS 34 2650 FACE VALUE false false false Officer directors etc family relationship Part VI line 2 TERRY COLELLA AND RICHARD COLELLA ARE RELATED BY MARRIAGE.BILL AND JUDY HERZBERG ARE RELATED BY MARRIAGE.GEORGE SHAW AND LYNN FISCHER ARE RELATED BY MARRIAGE.LYNN COLELLA, PETE COLELLA AND RICK COLELLA ARE SIBLINGS.BRIAN COLELLA IS A CHILD OF TERRY AND RICK COLELLADIANA SHAW AND GEROGE SHAW ARE SIBLINGS. Form 990 governing body review Part VI line 11 FORM 990 IS SUBMITTED TO THE BOARD OF DIRECTORS FOR REVIEW BEFORE FINAL SUBMISSION. Conflict of interest policy compliance Part VI line 12c THE CONFLICT OF INTEREST POLICY IS PROVIDED TO BOARD MEMBERS OR OTHER PERSONNEL WHO MUST REVIEW AND SIGN IT, AND THEY ARE EXPECTED TO REPORT WHEN A POTENTIAL CONFLICT ARISES. Governing documents etc available to public Part VI line 19 ANY GOVERNING DOCUMENT MAY BE MADE AVAILABLE UPON REQUEST. SOME ADDITIONAL DOCUMENTS ARE ALSO MADE AVAILABLE THROUGH THE ORGANIZATIONS WEB SITE.