2019-08-20T10:31:00-05:00 2018-12-31 043027605 SAMET & COMPANY PC 1330 BOYLSTON STREET CHESTNUT HILL MA 024672111 990 2018-01-01 521959601 THE MASTOCYTOSIS SOCIETY INC MAST 5088423080 PO BOX 416 STERLING MA 01564 VALERIE SLEE CHAIR- BOARD OF DIRECTORS 5088423080 2019-07-15 1 PAUL FLANAGAN P01786655 6177311222 173.166.42.113 2019-07-15 17:20:02 ED P FCB54A5FBB175ED9CDB4F2D608591353DADF0E95 A473873B16C4E993810B5C3BE1250DD9DC268C44 2018 2019-02-21 02:37:17Z VALERIE SLEE PO BOX 416 STERLING MA 01564 290149 0 X WWW.TMSFORACURE.ORG X 1994 MD THE MASTOCYTOSIS SOCIETY IS A NONPROFIT ORGANIZATION DEDICATED TO SUPPORTING PATIENTS AFFECTED BY MASTOCYSIS/MAST CELL ACTIVATION DISORDERS AS WELL AS THEIR FAMILIES, CAREGIVERS AND PHYSICIANS THROUGH RESEARCH, EDUCATION AND ADVOCACY 5 5 0 50 0 0 114882 288308 0 0 1125 1841 396 -3157 116403 286992 30000 170000 0 0 0 0 0 0 3883 119872 114979 149872 284979 -33469 2013 301443 339047 406 35997 301037 303050 THE MASTOCYTOSIS SOCEITY IS A NONPROFIT ORGANIZATION DEDICATED TO SUPPORTING PATIENTS AFFECTED BY MASTOCYSIS/MAST CELL ACTIVATION DISORDERS AS WELL AS THEIR FAMILIES, CAREGIVERS AND PHYSICIANS THROUGH RESEARCH, EDUCATION AND ADVOCACY 0 0 245165 170000 THE ANNUAL MEETING BRINGS TOGETHER MEDICAL PROFESSIONALS AND MEMBERS TO LEARN HOW TO DEAL WITH THE MAST CELL ISSUE. IN ADDITION, THE ORGANIZATION HAS REPRESENTATIVES PRESENTING INFORMATION TO PHYSICIANS ATTENDING AAAAI,ACAAI,AAP,AND ASH CONFERENCES. 245165 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 5 0 0 0 0 0 1 1 1 1 1 0 1 1 1 1 1 0 1 1 0 MD CA FL MA NY X VALERIE SLEE 5088423080 PO BOX 416 STERLING MA 01564 X VALERIE SLEE CHAIRPERSON 20.00 X X 0 0 0 JAN HEMPSTEAD VIDE-CHAIR 20.00 X X 0 0 0 ROSEMARIE SHULTZ TREASURER 20.00 X X 0 0 0 GAIL BARBARA SECRETARY 20.00 X X 0 0 0 COURTNEY RABB FUNDRAISING CHAIR 20.00 X X 0 0 0 0 0 0 0 0 0 0 0 12284 276024 288308 1841 1841 0 12284 3157 -3157 -3157 286992 1841 0 -3157 170000 170000 7124 7124 6061 4203 1759 99 7123 2399 3340 1384 5085 4425 660 40511 39778 733 18336 18336 348 348 PUBLICATION 10402 3789 6613 PROFESSIONAL FEES 8935 950 7985 DUES AND SUBSCRIPTIONS 4505 202 1903 2400 BANK CHARGES 3803 3803 2746 1083 1663 284979 245165 35931 3883 301443 302338 36709 301443 339047 406 20997 15000 406 35997 X 0 0 0 0 301037 303050 301037 303050 301443 339047 2013 0 X X 1 X 0 1 0 X 269276 125267 205523 114882 288308 1003256 228 256 914 396 1794 269504 125523 206437 115278 288308 1005050 0 0 0 1005050 229 1125 1841 3195 229 1125 1841 3195 376 34134 34510 270109 159657 206437 116403 290149 1042755 0.96380 0.96330 0.00310 0.00200 X 0 0 0 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) MASTOCYTOSIS RESEARCH 60000 CHECK 1 0 0 0 0 0 0 1 MAYO CLINIC 200 FIRST ST ROCHESTER MN 55905 50000 MASTOCYTOSIS RESEARCH BRIGHAM & WOMENS HOSPITAL 75 FRANCIS ST BOSTON MA 02115 60000 MASTOCYTOSIS RESEARCH 2 2 FORM 990, PART VI THE ORGANIZATION DOES NOT HAVE A CENTRAL OFFICE, THEY HAVE NO EMPLOYEES. IT IS STRICTLY A VOLUNTEER ORGANIZATION. AS SUCH, THE OFFICERS OF THE ORGANIZATION PRIMARILY USE EMAIL TO COMMUNICATE AND CAN BE REACHED VIA EMAIL TMSBOD@TMSFORACURE.ORG FORM 990, PART VI, SECTION A, LINE 7A MEMBERS HAVE THE POWER TO ELECT OR APPOINT ONE OR MORE MEMBERS OF THE GOVERNING BODY FORM 990, PART VI, SECTION A, LINE 7B GOVERNANCE DECISIONS OF THE ORGANIZATION ARE RESERVED TO MEMBERS FORM 990, PART VI, SECTION B, LINE 11B FROM 990 REVIEWED BY MANAGEMENT TEAM FORM 990, PART VI, SECTION B, LINE 12C MANAGEMENT REVIEWS POLICIES AND ENSURE COMPLIANCE BY ALL GOVERNING MEMBERS FORM 990, PART VI, SECTION B, LINE 15 NO COMPENSATION FOR CEO OR EXECUTIVE MEMBERS NO COMPENSATION FOR OTHER OFFICERS FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST FORM 990, PART XII, LINE 2C: FINANCIAL STATEMENTS ARE REVIEWED BY THE TREASURER AND APPROVED BY THE BOD