2019-07-22T16:16:50-05:00 2018-12-31 822363929 HELFERBELL LLC 1101 CONNECTICUT AVE NW SUITE 410 WASHINGTON DC 20036 990 2018-01-01 814459237 HEART VALVE VOICE US HEAR 7039293706 1101 CONNECTICUT AVE NW NO 410 WASHINGTON DC 20036 CHRIS MAY TREASURER 7039293706 2019-07-22 1 ALAN S HELFER P00194206 2026295190 216.59.112.106 2019-07-22 12:57:03 ED P 0AFFB70485EDE12DF6468AD1AF82DFB9D0A2BA2F 0AFFB70485EDE12DF6468AD1AF82DFB9D0A2BA2F 2018 2019-02-21 02:37:17Z X CHRIS MAY 1101 CONNECTICUT AVE NW NO 410 WASHINGTON DC 20036 323405 0 X HTTP://WWW.HEARTVALVEVOICE-US.ORG/ X 2016 DC HEART VALVE VOICE US, A PATIENT ADVOCACY, NONPROFIT ORGANIZATION, PROVIDES PATIENTS WITH A UNITED VOICE TO IMPROVE HEALTH FOR PEOPLE LIVING WITH HEART VALVE DISEASE BY ADVOCATING FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. HEART VALVE VOICE WORKS WITH PEOPLE LIVING WITH HEART VALVE DISEASE, CLINICIANS AND OTHER EXPERTS, AND OTHER PATIENT SERVICE AND ADVOCACY ORGANIZATIONS TO IDENTIFY BARRIERS TO IMPROVING HEALTH FOR PEOPLE LIVING WITH VALVE DISEASE AND ADVOCATES FOR CHANGE TO ENHANCE HEALTH. 3 0 1 0 0 0 353500 323405 0 0 0 0 0 0 353500 323405 0 0 0 0 24855 31355 0 0 0 170044 163288 194899 194643 158601 128762 175923 156728 0 2043 175923 154685 X HEART VALVE VOICE U.S., A PATIENT ADVOCACY, NONPROFIT ORGANIZATION, PROVIDES PATIENTS WITH A UNITED VOICE TO IMPROVE HEALTH FOR PEOPLE LIVING WITH HEART VALVE DISEASE BY ADVOCATING FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. HEART VALVE VOICE WORKS WITH PEOPLE LIVING WITH HEART VALVE DISEASE, CLINICIANS AND OTHER EXPERTS, AND OTHER PATIENT SERVICE AND ADVOCACY ORGANIZATIONS TO IDENTIFY BARRIERS TO IMPROVING HEALTH FOR PEOPLE LIVING WITH VALVE DISEASE AND ADVOCATES FOR CHANGE TO ENHANCE HEALTH. 0 0 125872 250000 HEART VALVE AWARENESS PROGRAM BRINGS AWARENESS TO HEART VALVE DISEASE BY CONVENING PATIENTS, CLINICIANS AND OTHER STAKEHOLDERS TO IDENTIFY CHALLENGES TO THE DETECTION OF HEART VALVE DISEASE AND ALSO APPROPRIATE TREATMENTS. 20000 45935 IMPROVING PATIENT AND CAREGIVER EXPERIENCES PROGRAM: (1) IDENTIFIES AND CONSULTS HEART VALVE DISEASE SURVIVORS (INCLUDING MINORITIES AND CANCER SURVIVORS) AS WELL AS THEIR FAMILY CAREGIVERS ON PATIENT EXPERIENCES/NEEDS; (2) SOLICITS INPUT FROM MEDICAL PROFESSIONALS, PATIENT ADVOCATES, AND ORGANIZATIONS REPRESENTING THESE GROUPS TO EXPLORE THE CURRENT GAPS HINDERING BETTER PATIENT OUTCOMES; AND (3) HOST A JOINT MEETING(S) TO IDENTIFY RESEARCH QUESTIONS THAT MAY BE BENEFICIAL TO PATIENTS AND CAREGIVERS. 145872 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 X 3 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 DC X CHRIS MAY 9857079104 1101 CONNECTICUT AVE NW SUITE 410 WASHINGTON DC 20036 SUSAN STRONG PRESIDENT 2.00 X 6500 0 0 MARILYN SERAFINI EXECUTIVE DIRECTOR 40.00 X X 22846 0 0 SUE PESCHIN SECRETARY 2.00 X X 0 0 0 CHRIS MAY TREASURER 2.00 X X 0 0 0 LISA TATE BOARD MEMBER 2.00 X X 0 0 0 DR OLESEAUN ALI BOARD MEMBER 2.00 X X 0 0 0 DAVID ANDELMAN BOARD MEMBER 2.00 X X 0 0 0 DR CHARLES BOUSTANY BOARD MEMBER 2.00 X X 0 0 0 CANDACE DEMATTEIS BOARD MEMBER 2.00 X X 0 0 0 29346 0 0 0 0 0 0 0 323405 323405 323405 0 0 0 29346 22010 7336 2009 1508 501 85450 64088 21362 650 375 275 25115 18836 6279 9213 6909 2304 14850 11138 3712 24 18 6 20754 15566 5188 3444 2583 861 3788 2841 947 194643 145872 48771 0 175923 156728 175923 156728 0 2043 0 2043 X 175923 154685 175923 154685 175923 156728 128762 -150000 0 X 1 X 1 X 1 0 X 353500 173405 526905 353500 173405 526905 526905 526905 X 0 PAYROLL TAXES 2043 2043 FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S DOCUMENTS ARE AVAILABLE UPON REQUEST THROUGH THE U.S. POSTAL SERVICE.