2025-11-14T21:07:53-06:00 2024-12-31 824812448 PGM LLC 319 Main Street Biddeford ME 04005 990 2024-01-01 475555752 THE CHAMP FOUNDATION CHAM 7278712667 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 JEFFREY REYNOLDS PRESIDENT 7278712667 2025-11-14 1 0 P01200943 2074155714 2024 2025-03-06 01:10:19Z JEFFREY REYNOLDS 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 73758 0 X WWW.THECHAMPFOUNDATION.ORG X 2015 NC The Champ Foundation supports research toward better treatments and a cure for diseases casued by mitochondrial DNA deletions, such as Pearson syndrome. These diseases are rare. For example, there have only been around 100 reported cases of Pearson syndrome. 5 5 0 0 0 0 119379 73275 0 0 1249 483 0 0 120628 73758 306720 104205 0 0 0 0 0 0 0 31597 26127 338317 130332 -217689 -56574 301316 244742 0 0 301316 244742 X In 2024, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and the the Children's HOspital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large scale mtDNA deletion syndromes, like Pearson syndrome. We support patient travel to participate in the Natural History Study. We continued to fund research projects at University College of London and Children's Hospital of Philadelphia. 0 0 127953 104205 In 2023, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large-scale mitochondrial DNA deletions (SLSMDS). We support patient travel to participate in the Natural History Study. We continued to fund research projects at CHOP, University of Cambridge, University of Pittsburgh, and University College of London. We disseminated findings from our registry data through peer reviewed manuscripts and mitochondrial disease conferences. 127953 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 5 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 X JEFFREY REYNOLDS 7278712667 4711 Hope Valley Road 4F PMB 1171 DURHAM NC 27707 X Walker Cole Arledge Board Member 1.00 X 0 0 0 Jeffrey Reynolds President 5.00 X 0 0 0 Elizabeth Reynolds Vice President 10.00 X 0 0 0 Elizabeth Haviland Secretary 1.00 X 0 0 0 Tyler Albright Treasurer 1.00 X 0 0 0 0 0 0 0 0 0 0 0 250 73025 73275 483 483 73758 0 0 483 104205 104205 2379 2379 474 474 2526 2526 5748 5748 Registry costs 15000 15000 130332 127953 2379 0 301316 244742 301316 244742 0 0 X 301316 244742 301316 244742 301316 244742 -56574 0 X 0 0 0 X 186543 187199 473318 119379 73275 1039714 186543 187199 473318 119379 73275 1039714 317825 721889 11 26 247 1249 483 2016 1041730 0.69300 0.70210 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 Children's Hospital of Philadelphia 3401 Civic Center Blvd Philadelphia PA 19104 232237932 501(c)3 9715 0 Research; Natural History Study UCL Gower Street London UK wc1e6bt 94489 0 Research; Natural History Study Part I, Line 2: The Champ Foundation maintains grant letters from other organizations and tracks revenue and expenses by grant. Form 990, Part VI, Section A, line 2 Jeffrey and Elizabeth Reynolds are husband and wife. Form 990, Part VI, Section B, line 11b A copy of the 990 will be provided to the Board of Directors for review prior to being filed. Form 990, Part VI, Section B, line 12c The organization has a written policy in bylaws which outlines the regular monitoring and compliance with conflict of interest policy. Form 990, Part VI, Section C, line 19 Documents available to the public upon request.