2019-05-14T17:26:05-05:00 2018-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2018-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 STEVE GALLUCCI CFO 6179249997 2019-05-14 1 JOHN BUCKLEY CPA P00830631 5083669100 2019-05-14 64.238.141.162 2019-05-14 15:48:12 ED P EB50F006EDAED14DFCBC7281F3A284C13E958DBA 5236C42C5381A7EBBF429827D524655DA1190767 2018 2019-02-21 02:37:17Z STEVE GALLUCCI 55 CHAPEL STREET NO 200 NEWTON MA 02458 11318086 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 15 15 50 45000 0 0 10249779 10973926 0 0 19702 29243 -701622 -969922 9567859 10033247 2673405 2922375 0 0 3048965 3639275 0 0 962778 2813912 2439382 8536282 9001032 1031577 1032215 3243078 3968943 2040617 1734007 1202461 2234936 X NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, AND UNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS, AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 1724050 2922375 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORY HAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THE ADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVE TEAM-SCIENCE INITIATIVES INCLUDING THE DEFEAT GBM RESEARCH COLLABORATIVE AND THE DEFEAT PEDIATRIC BRAIN TUMORS RESEARCH COLLABORATIVE. OUR "DEFEAT" PROGRAMS BRING TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND THE RAPID MOVEMENT OF DISCOVERIES TO BE TRANSLATED INTO POTENTIAL NEW TREATMENTS. IN JUST THREE YEARS DEFEAT GBM DISCOVERED FOUR POTENTIAL NEW TREATMENTS FOR GBM AND HAS SCREENED THOUSANDS OF EXISTING DRUGS FOR POTENTIAL BENEFIT. NBTS IS ALSO FUNDING OUTSTANDING LOW-GRADE BRAIN TUMOR RESEARCH. IT ALSO HOSTS A UNIQUE RESEARCH ROUNDTABLE OF RESEARCH LEADERS COMMITTED TO ELIMINATING THE BARRIERS TO PROGRESS. 584644 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLIC POLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WE ADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERAL INVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 5123175 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPING PATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIME OF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE BY PHONE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER ON OUR WEBSITE AND THROUGH THE REGULAR NBTS CLINICAL TRIALS REPORT. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 7431869 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 37 0 1 50 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 15 15 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X STEVE GALLUCCI CHIEF FINANCIAL OFFICER 6179249997 55 CHAPEL STREET NEWTON MA 02458 AUTUMN MCDONALD BOARD MEMBER 1.00 X 0 0 0 SARAH DURHAM VICE CHAIR 2.00 X X 0 0 0 JOHN FRISHKOPF TREASURER 1.00 X X 0 0 0 CHANDRI NAVARRO BOARD MEMBER 1.00 X 0 0 0 STEPHEN SADLER JD BOARD MEMBER 1.00 X 0 0 0 DAVID BROWN BOARD MEMBER 1.00 X 0 0 0 DAVID DONABEDIAN BOARD MEMBER 1.00 X 0 0 0 ERIC OLSON PHD BOARD MEMBER 1.00 X 0 0 0 EVANTHIA GALANIS BOARD MEMBER 1.00 X 0 0 0 LIZ SALMI BOARD MEMBER 1.00 X 0 0 0 ROB BURGER CLERK 1.00 X 0 0 0 ROB CORRAO BOARD MEMBER 1.00 X 0 0 0 SALO ZELERMYER BOARD MEMBER 1.00 X 0 0 0 TOM ROLOFF BOARD MEMBER 1.00 X 0 0 0 MICHAEL NATHANSON CHAIR 5.00 X X 0 0 0 RYAN LANG BOARD MEMBER 1.00 X 0 0 0 DAVID ARONS CEO 40.00 X 211210 0 20413 STEVE GALLUCCI CFO 40.00 X 128607 0 9774 CRAIG STRENGER DIRECTOR OF FIELD OPERATIONS 40.00 X 117967 0 12422 MICHAEL ANTONELLIS DIRECTOR OF MARKEITNG 40.00 X 125702 0 3322 WENDI NANCE SR. DIRECTOR CORP. & FOUNDATIONS 40.00 X 160768 0 4800 LAUREN HALL CDO 40.00 X 102377 0 2192 NOEL TWIGG SENIOR DIRECTOR OF DEVELOPMENT OPERATIONS 40.00 X 103572 0 5849 950203 0 58772 7 0 1 0 0 7463037 3510889 65251 10973926 28476 28476 20041 19274 767 767 767 295643 7463037 1265565 -969922 -969922 10033247 0 0 -940679 2922375 2922375 370006 289085 37001 43920 2662151 2040607 34050 587494 56132 49103 835 6194 290284 224710 61787 3787 260702 203346 6395 50961 15506 2553 12442 511 55311 55311 2000 2000 587230 493797 60496 32937 299240 248883 15296 35061 142219 88641 23397 30181 294095 260131 2668 31296 233714 23372 186971 23371 278358 196901 39202 42255 11073 9412 554 1107 28075 14650 7398 6027 SPECIAL EVENTS 299027 217826 28566 52635 DONATED GOODS 65251 65251 TRAINING AND RECRUITING 51359 42350 334 8675 DUES AND SUBSCRIPTIONS 45251 38712 204 6335 31673 164 31478 31 9001032 7431869 606385 962778 2407896 3088930 173377 83000 203481 161621 964164 953836 21401 10328 401713 581854 35210 43210 3243078 3968943 391019 454386 1640000 1250000 9598 29621 2040617 1734007 X 597136 980981 308671 764202 296654 489753 1202461 2234936 3243078 3968943 1032215 260 0 X X 0 1 X 1 0 X 9387870 8730063 7735788 10249779 11269569 47373069 9387870 8730063 7735788 10249779 11269569 47373069 47373069 55033 42956 22788 17938 28476 167191 47540260 0.99650 0.99450 X 222954 222954 8712827 8935781 596789 149197 0 0 591145 545584 576814 596789 2310332 3465498 86536 132046 137761 222954 579297 101199 136396 144204 149197 530996 796494 315448 193099 508547 312104 3344 315448 306397 5707 312104 305010 1387 306397 300399 4611 305010 0.96300 0.03700 0 0 136109 136109 0 198505 197770 735 629550 619957 9593 10328 X 11322604 260 25532 1265565 1291357 10031247 2000 2000 10033247 10290129 25532 1265565 1291097 8999032 2000 2000 9001032 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2018 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2018. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. 1,265,565. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. 1,265,565. 1 NORTH AMERICA 0 0 PROGRAM SERVICES GRANTS 75000 EUROPE 0 0 PROGRAM SERVICES GRANTS 75000 0 0 0 0 0 0 150000 0 150000 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 75000 WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES RESEARCH 75000 WIRE TRANSFER 2 0 0 0 0 0 0 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. WALK - RACE FOR HOPE -DC 1091881 1091881 55092 WALK - RACE FOR HOPE - PHIL 964745 964745 127404 29 4527186 4527186 7537 31539 1043993 6583812 6583812 7537 31539 1226489 1265565 -1265565 1 LUDWIG INST FOR CANCER RESEARCH 666 THIRD AVE 28TH FL NEW YORK NY 10017 237121131 501 (C) 3 1025000 RESEARCH GLOBAL COALITION FOR ADAPTIVE RESEARCH 1661 MASSACHUSETTS AVENUE BOX 427 LEXINGTON MA 024209998 821199380 501 (C) 3 750000 RESEARCH MEMORIAL SLOAN KETTERING CANCER CENTER 633 THIRD AVE 28TH FL NEW YORK NY 10017 131924236 501 (C) 3 550000 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CENTER PO BOX 4390 HOUSTON TX 77030 746001118 501 (C) 3 500000 RESEARCH ST JUDE'S CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MEMPHIS TN 38105 620646012 501 (C) 3 150000 RESEARCH UC SAN FRANCISCO 3333 CALIFORNIA STREET STE 315 SAN FRANCISCO CA 94143 946036493 501 (C) 3 100000 RESEARCH UC LOS ANGELES 405 HILGARD AVE BOX 957089 LOS ANGELES CA 90095 956006143 501 (C) 3 90000 RESEARCH 7 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 211210 0 0 0 0 0 6485 0 13928 0 231623 0 0 0 WENDI NANCE SR. DIRECTOR CORP. & FOUNDATIONS 160768 0 0 0 0 0 4800 0 0 0 165568 0 0 0 X OTHER RAFFLE PRIZES 41 53502 FAIR MARKET VALUE X FOOD 12 10649 FAIR MARKET VALUE X GIFT CARDS 8 1100 FAIR MARKET VALUE 0 1 1 PART I, LINE 32B: THE ORGANIZATION RECEIVES DONATED RAFFLE GIFTS, GIFT CARDS AND FOOD AT CERTAIN OF ITS SPECIAL EVENTS. FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 200 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE NATIONAL BRAIN TUMOR SOCIETY INC