2019-10-01T16:03:46-05:00 2019-06-30 320530003 QUIGLEY & MIRON 3550 WILSHIRE BLVD 1660 LOS ANGELES CA 90010 990 2018-07-01 953890767 SPONDYLITIS ASSOCIATION OF AMERICA SPON 8188921616 16360 ROSCOE BLVD NO 100 VAN NUYS CA 91406 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 8188921616 2019-10-01 ARMEN GRIGORIAN P01582463 2136393550 99.88.83.161 2019-10-01 14:02:56 PD P 27FBF125226D956FC3DB72B33BF00386D94CACCB C1988052032BF7E796496D37049D37B62C620639 2018 2020-01-14 16:20:31Z CASSIE SHAFER 16360 ROSCOE BLVD NO 100 VAN NUYS CA 91406 2928682 0 X WWW.SPONDYLITIS.ORG X 1983 CA ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS 11 11 13 115 0 0 2635511 1941665 5375 8517 41534 77928 0 0 2682420 2028110 211316 159994 0 0 833268 1099229 0 0 97371 790643 845837 1835227 2105060 847193 -76950 3559276 3526569 54813 69711 3504463 3456858 X ADVANCING AND DIRECTLY SPONSORING AXIAL SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN AXIAL SPONDYLOARTHRITIS. 0 0 774984 8517 EDUCATION AND AWARENESS - PATIENT CONFERENCES, SEMINARS, AND SUPPORT-THE ORGANIZATION SPONSORED PATIENT EDUCATION AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE LOCATED AT SPONDYLITIS.ORG SERVES MORE THAN 500,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. PATIENT EDUCATION SEMINARS-PATIENT EDUCATION SEMINARS WERE HELD IN CHICAGO AND NEW YORK WITH LIVESTREAMING AVAILABLE AND WEBINARS RECORDED FOR FUTURE USE THROUGH THE WEBSITE. THIS AS LIFE LIVE (TASLL)- DAN REYNOLDS AND NOVARTIS PHARMACEUTICALS HAVE PARTNERED WITH THE ORGANIZATION TO BRING AN INTERACTIVE ONLINE TALK SHOW VIDEO SERIES, THIS AS LIFE LIVE (TASLL), TO LIFE. THE ORGANIZATION PROVIDES GUIDANCE ON THE PROJECT, SUGGESTS INTERVIEWEES, ATTENDS THE VIDEO SHOOTS, AND ENSURES ACCURACY OF SPA INFORMATION RECORDED AND SHARED. A TOTAL OF FIVE EPISODES WERE RELEASED DURING THE YEAR ENDED JUNE 30, 2019 AND A TOTAL OF 16 EPISODES HAVE BEEN RELEASED SINCE THE PROJECT LAUNCHED AT THE BEGINNING OF 2016.LIFE IMPACT SURVEY- A SURVEY WAS CONDUCTED WITH PATIENTS TO IDENTIFY THE PROPORTION OF PATIENTS WITH DELAYED DIAGNOSIS, REASONS, AND TREATMENT.SPONDYLITIS PLUS-MEMBERS OF THE SPONDYLITIS ASSOCIATION OF AMERICA RECEIVE A COPY OF THE ORGANIZATION'S PRINT PUBLICATION SPONDYLITIS PLUS FREE OF CHARGE, ON A QUARTERLY BASIS. MORE THAN 5,000 COPIES ARE DISTRIBUTED QUARTERLY.ESUN- MORE THAN 30,000 PEOPLE ARE SUBSCRIBED TO AND RECEIVE THE ORGANIZATION'S MONTHLY SPONDYLITIS EDUCATION AND AWARENESS E-NEWSLETTER. 288303 AWARENESS AND SUPPORT GROUPS- THE ORGANIZATION'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE UNITED STATES, NUMBERING MORE THAN 43 GROUPS, 65 LEADERS IN 30 STATES WITH MORE THAN 200 MEETINGS HELD THROUGH JUNE 2019. 294158 159994 RESEARCH EARLY CAREER INVESTIGATOR AWARDS (ECI)- ONE ECI AWARD WAS PRESENTED IN FY18-19 FOR $20,000. IT WAS AWARDED TO COLUMBIA UNIVERSITY MEDICAL CENTER:DR. RUNSHENG WANG RECEIVED THE ECI AWARD. DR. WANG IS AN ASSISTANT PROFESSOR OF MEDICINE AT COLUMBIA UNIVERSITY MEDICAL CENTER, A PAST LAWRENCE SHULMAN SCHOLAR AND ALSO A RESEARCH FELLOW AT NIH/NIAMS. EDUCATED AT DUKE UNIVERSITY SCHOOL OF MEDICINE AND PEKING UNION MEDICAL COLLEGE. SINCE 2014, SHE HAS PRESENTED AT MULTIPLE SPARTAN CONFERENCES WITH WORK IN HER INTEREST OF EPIDEMIOLOGY, EARLY DIAGNOSIS AND COMPARATIVE EFFECTIVENESS RESEARCH OF AXSPA. SHE HAS FIRST AUTHOR PAPERS ON AXSPA IN ARTHRITIS & RHEUMATOLOGY, ANNALS OF RHEUMATIC DISEASES AND THE JOURNAL OF RHEUMATOLOGY. TAKING AN EPIDEMIOLOGY APPROACH, SHE HAS STUDIED THE NATURAL HISTORY OF AXIAL SPONDYLOARTHRITIS, AND SHOWED THAT ONLY A SMALL PROPORTION OF PATIENTS WITH NON-RADIOGRAPHIC AXIAL SPA WILL PROGRESS TO ANKYLOSING SPONDYLITIS. SHE ALSO CONDUCTED META-ANALYSIS OF CLINICAL TRIALS TO COMPARE THE EFFECT OF DIFFERENT TNF INHIBITORS, AND COMPARED EFFECT OF DIFFERENT NSAIDS. IN THE FUTURE, SHE WILL CONTINUE HER RESEARCH IN THE EPIDEMIOLOGY AND COMPARATIVE EFFECTIVENESS RESEARCH, TO BETTER UNDERSTAND THE EFFECTIVENESS AND SAFETY OF MEDICATIONS FOR AXIAL SPA IN THE REAL WORLD (RATHER THAN CLINICAL TRIAL SETTING) AND FOR INDIVIDUAL PATIENTS.IN ADDITION TO FUNDING ECI, THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THE ORGANIZATION'S LIMITED RESOURCES. TWO FUNDING REQUESTS WERE APPROVED. FIRST, GOING TO UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSE, SCHOOL OF MEDICINE AND THE SECOND, TO STANFORD UNIVERSITY. - JOHN D. REVEILLE, MD, UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON, SCHOOL OF MEDICINE RECEIVED FUNDING FOR HIS BRIDGE GAP FUNDING REQUEST, "OUTCOME STUDIES IN ANKYLOSING SPONDYLITIS". THE PURPOSE OF THIS PROPOSAL IS TO ENSURE CONTINUED DATA MANAGEMENT AND STATISTICAL SUPPORT OF THE PROJECTS COMING FROM THE PROSPECTIVE STUDY OF OUTCOMES IN ANKYLOSING SPONDYLITIS (PSOAS) COHORT, WHICH WAS INITIALLY FUNDED BY NIH GRANTS R01 AR048465 (2001-2006), AND 1P01-052915 (2006-2011, 2012- 2017).- MARK CULLEN, MD, ALONG WITH INVESTIGATORS DRS WEISMAN, KUO AND KAPLAN, FOUNDATION FOR THE ADVANCEMENT OF MEDICINE RECEIVED FUNDING FOR THEIR GRANT REQUEST, "WORKPLACE ENVIRONMENTAL INFLUENCE AS RISK FOR DEVELOPING ANKYLOSING SPONDYLITIS: A PILOT PROJECT." THEY PROPOSED A CASE CONTROL STUDY TO IDENTIFY PATIENTS WITH AS DIAGNOSED AFTER A CERTAIN DATE AND EXAMINE AND CHARACTERIZE THEIR MAJOR RISK FOR HIGH PHYSICAL EXPOSURES AND COMPARE THEM TO PATIENTS WHO DO NOT HAVE A DIAGNOSIS OF AS (AT THE SAME DATES AS THE AS DIAGNOSIS) FOR THE SAME RISK FACTORS THEREFORE, THE MAIN PREMISE FOR THIS CURRENT STUDY IS IT COULD POSSIBLY RECAPITULATE THE ANIMAL STUDIES IN A HUMAN SITUATION WHERE WE MIGHT BE ABLE TO DEMONSTRATE THAT HEAVY PHYSICAL FORCE WOULD BE A FACTOR FOR BRINGING ABOUT THE ONSET OF AS IN A SUSCEPTIBLE POPULATION. FOR THE STUDY PROPOSED HEREIN THEY HAVE ACCESS TO A DATABASE THAT IS RICH AND WELL-CHARACTERIZED IN TWO ASPECTS OF EPIDEMIOLOGY THAT WOULD BE ESSENTIAL TO ADDRESS THE QUESTION OF THE ROLE OF PHYSICAL FORCE IN THE PRODUCTION OF AS. THEY WILL INVESTIGATE THESE QUESTIONS USING DATA FROM THE ALCOA STUDY. THIS UNIQUE LONGITUDINAL DATABASE IS CURATED BY THE CENTER FOR POPULATION HEALTH AT STANFORD UNIVERSITY.THE ORGANIZATION CONTINUES TO ADVANCE THE BELIEF THAT SUPPORTING RESEARCH WILL LEAD TO AN EVENTUAL CURE. IN THE SHORT-TERM, INSIGHTS GAINED FROM THESE STUDIES SHOULD ALSO EMPOWER AND ENGAGE CLINICIANS AND OTHERS IN THE MEDICAL COMMUNITY WITH OPPORTUNITIES TO CRITICALLY EVALUATE INFORMATION THROUGH, FOR EXAMPLE, PATIENT INTERVIEWS, PHYSICAL EXAMS, AND LABORATORY TESTS, IN ORDER TO FORMULATE A DIAGNOSIS AND DEVISE NEW TREATMENT OPTIONS. 360345 SOCIAL MEDIA- FACEBOOK AND TWITTER REMAIN A SOURCE OF EDUCATION AND AWARENESS WITH THE ORGANIZATION'S CONSTITUENTS. THE ORGANIZATION'S COMMUNITY FORUMS CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY-DIAGNOSED BUT THOSE LIVING WITH THIS DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME. DURING THIS FISCAL YEAR, THE ORGANIZATION HELD TWO TWITTER CHATS AND TWO FACEBOOK LIVE EVENTS.PHYSICIAN EDUCATION-THE ORGANIZATION ATTENDED AND EXHIBITED AT SEVEN PHYSICIAN AND OTHER HEALTH CARE PROVIDER CONFERENCES IN THIS FISCAL YEAR. CONFERENCES INCLUDED:- THE RHEUMATOLOGY NURSES ASSOCIATION'S CONFERENCE, HELD IN AUGUST OF 2018, IN FORT WORTH, TX- THE AMERICA COLLEGE OF RHEUMATOLOGY CONFERENCE, HELD IN OCTOBER OF 2018, IN CHICAGO, IL- THE SPOKANE PAIN CONFERENCE HELD IN NOVEMBER OF 2018, IN SPOKANE, WA- THE PRI-MED CONFERENCE HELD IN DECEMBER OF 2018, IN BOSTON, MA- THE AMERICAN PHYSICAL THERAPY ASSOCIATION CONFERENCE, HELD IN JANUARY OF 2019, IN WASHINGTON, DC.- THE PRI-MED WEST CONFERENCE, HELD IN MAY OF 2019, IN ANAHEIM, CA.- THE PHYSICIAN ASSISTANTS CONFERENCE, HELD IN MAY OF 2019, IN DENVER, CO. MORE THAN 3,000 LEADS FOR ADDITIONAL INFORMATION FROM HEALTHCARE PROVIDERS HAVE BEEN GENERATED FROM THE ORGANIZATION'S ATTENDANCE TO DATE. SPONDYLOARTHRITIS RESEARCH AND TREATMENT NETWORK (SPARTAN)-EACH YEAR, THE ORGANIZATION PARTICIPATES IN THE SPARTAN CONFERENCE. IN MAY 2019, IT WAS HELD IN MADISON, WI. THE CONFERENCE INCLUDED CME TRAINING ON SPONDYLOARTHRITIS, SEVERAL PRESENTATIONS ON THE ROLE AND ADVANCEMENT OF IMAGING IN DIAGNOSIS AND MONITORING DISEASE PROGRESSION. EARLY CAREER INVESTIGATORS PRESENTED ORIGINAL SPONDYLOARTHRITIS RESEARCH. ONE OF THE KEY AREAS ON THE AGENDA WERE BREAKOUT SESSIONS DEVOTED TO DISCUSSIONS ON OUTREACH TO NON-RHEUMATOLOGIST HEALTH CARE PROVIDERS. EUROPEAN CONGRESS OF RHEUMATOLOGY (EULAR)-IN JUNE 2019, THE ORGANIZATION ATTENDED EULAR IN MADRID, SHARING EXHIBIT SPACE WITH THE ANKYLOSING SPONDYLITIS INTERNATIONAL FEDERATION (ASIF). THE ORGANIZATION MET WITH INTERNATIONAL STAKEHOLDERS INCLUDING RESEARCHERS, PATIENT ORGANIZATION REPRESENTATIVES, AND PHARMACEUTICAL COMPANIES THAT SUPPORT THE ORGANIZATION. ACR/SAA/SPARTAN TREATMENT GUIDELINES UPDATE-ACR AND THE ORGANIZATION ARE FUNDING PARTNERS IN THIS UPDATE, WHICH WAS RELEASED ONLINE IN AUGUST 2019. THE ORGANIZATION IDENTIFIED AND RECRUITED TWO PATIENTS TO BE INCLUDED ON THE VOTING PANEL TO REPRESENT THE PATIENT VOICE AND TAKE PART IN THE DECISION-MAKING PROCESS. THE ORGANIZATION REMAINED CLOSELY ENGAGED AND INVOLVED THROUGHOUT THE MEETING PROCESS, AND IS CURRENTLY WORKING ON CREATING A PATIENT FRIENDLY TRANSLATION OF THE COMPLETED UPDATED TREATMENT GUIDELINES. EDUCATIONAL MATERIAL UPDATES-DURING THIS FISCAL YEAR THE ORGANIZATION REVISED, REDESIGNED, AND REPRINTED SEVEN SPA EDUCATIONAL BROCHURES, INCLUDING: INFLAMMATORY VS. MECHANICAL BACK PAIN; IRITIS; ROLE OF EXERCISE IN SPA; JUVENILE SPA; JUST DIAGNOSED; OVERVIEW OF SPA; AXIAL SPA IN WOMEN; AS WELL AS OUR BOOKLET, GUIDE TO LIVING WITH ANKYLOSING SPONDYLITIS. BACK IN ACTION, AGAIN: NEW EXERCISE SERIES PLANNED, PRODUCED, AND DELIVERED TO OUR COMMUNITY-THE ORGANIZATION PRODUCED A NEW EXERCISE SERIES, COMPRISED OF THE FOLLOWING SEGMENTS:- MORNING AND EVENING STRETCH- CARDIO- STRENGTH - YOGA WORLD SPONDYLOARTHRITIS SUMMIT - THE ORGANIZATION PRODUCED AN ONLINE EDUCATIONAL EVENT WITH SIX DIFFERENT TOPICS, BEING BROADCAST OVER THE COURSE OF THREE DAYS. THE PRESENTERS, TOPIC FACILITATORS, AND TOPICS COVERED WERE: - DR. UTA KILTZ AND DON MARKHAM ON "COMPLICATIONS, RELATED CONDITIONS." - ANGELO PAPACHRISTOS, PT, AND ROSE BIGHAM ON "PHYSICAL THERAPY AND EXERCISE: BEST PRACTICES AND NOT-SO-BEST PRACTICES" - DR. ROBERT OVERBAUGH AND ROSE BIGHAM ON "OVERVIEW OF POSSIBLE CAUSES AND A COMPREHENSIVE APPROACH TO PAIN MANAGEMENT" - DR. MARK FISHER AND DON MARKHAM ON "DIET & NUTRITION FOR SPA" - DR. JOHN D. REVEILLE AND ROSE BIGHAM ON "LATEST SPA RESEARCH: UPDATES FROM AROUND THE WORLD"- DR. HILLARY NORTON AND ELIZABETH MAINES, PH.D ON "MEDICATIONS: NAVIGATING MEDICAL MANAGEMENT OF SPAUNIVERSITY PILOT PROGRAM: THINK SPA - ACCELERATING DIAGNOSIS AMONG 18 - 23 YEAR OLD'S. -THE ORGANIZATION PILOTED A HEALTH CARE PROFESSIONAL (HCP) OUTREACH PROGRAM ON A COLLEGE CAMPUS. IN FEBRUARY OF 2019 THE ORGANIZATIONAL HELD AN HCP EDUCATIONAL PROGRAM AT THE HEALTH SERVICES DEPARTMENT AT CAL POLY POMONA UNIVERSITY IN CALIFORNIA GEARED TO HELPING STUDENT CLINIC STAFF BETTER RECOGNIZE SIGNS AND SYMPTOMS OF SPA IN UNDIAGNOSED STUDENTS. A SECOND STAGE OF THE PROGRAM, TAKING PLACE IN THE SPRING OF 2019, FOCUSED ON REACHING THE STUDENT BODY THEMSELVES, AND INVOLVED OUTREACH THROUGH EYE-CATCHING ADS AND POSTS IN THEIR STUDENT PRINT PUBLICATION, ONLINE PUBLICATION, AS WELL AS SOCIAL MEDIA. THE ORGANIZATION CREATED THE CONTENT AND PAID FOR THE PLACEMENT OF THESE ADS AND POSTS. 360345 1717790 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 13 1 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X X CASSIE SHAFER 8188921616 16360 ROSCOE BLVD VAN NUYS CA 91406 ELLEN CARROLL DIRECTOR 1.00 X 0 0 0 CRAIG GIMBEL DIRECTOR 1.00 X 0 0 0 ERIC GOLDSTEIN VICE CHAIR, TREASURER 2.00 X X 0 0 0 DAVID HALLEGUA DIRECTOR 1.00 X 0 0 0 CHARLOTTE K HOWARD SECRETARY 2.00 X X 0 0 0 MARY ANN POLADIAN DIRECTOR 1.00 X 0 0 0 PAULA OLSIEWSKI DIRECTOR 1.00 X 0 0 0 MICHAEL PIANIN BOARD CHAIR 2.00 X X 0 0 0 RANDALL SAPADIN DIRECTOR 1.00 X 0 0 0 JOHN D REVEILLE DIRECTOR 1.00 X 0 0 0 JAMES ROSENBAUM DIRECTOR 1.00 X 0 0 0 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 40.00 X 197776 0 3509 197776 0 3509 1 0 1 0 0 1941665 5490 1941665 PUBLICATION SALES 611710 8517 8517 8517 68076 68076 910424 900572 9852 9852 9852 2028110 8517 0 77928 159994 159994 196914 157532 19691 19691 749197 603838 95796 49563 23759 19120 2904 1735 59166 48112 7175 3879 70193 56856 8423 4914 65127 65127 209064 209064 213141 151508 57007 4626 64822 61022 2200 1600 85241 58241 21800 5200 101762 92463 6476 2823 68679 67039 1640 31611 26611 3300 1700 STATE LICENSING 6390 6390 2105060 1717790 289899 97371 201472 438692 2921894 2592887 65971 131743 12571 9491 59940 45385 9823 14555 254351 271087 87753 62673 5441 5441 3559276 3526569 54813 69711 54813 69711 X 2799272 2793479 705191 663379 3504463 3456858 3559276 3526569 -76950 29345 0 X X 0 1 X 1 0 X 1395463 1334632 1666271 1652738 1941665 7990769 1395463 1334632 1666271 1652738 1941665 7990769 2856797 5133972 15420 24573 25145 35065 68076 168279 8159048 45762 0.62920 0.67580 X SCHEDULE A, PART VI, LIST OF UNUSUAL GRANTS: DESCRIPTION: CONTRIBUTION DATE: 06/30/18 AMOUNT: 982773. DESCRIPTION: BEQUEST DATE: 06/30/15 AMOUNT: 381349. 48446 35225 13221 11494 10160 1334 14555 X 2057455 29345 29345 2028110 0 2028110 2105060 0 2105060 0 2105060 PART X, LINE 2: ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2019. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. 1 UNIVERSITY OF TEXAS HEALTH SCIENCES PO BOX 301418 DALLAS TX 75303 741761309 501(C)(3) 100000 OUTCOME STUDIES IN AS COLUMBIA UNIVERSITY MEDICAL IRVING CENTER 630 W 168 ST PS 3-450 NEW YORK NY 10032 135598093 501(C)(3) 20000 EARLY INVESTIGATOR AWARD (JBRF) STANFORD CENTER FOR POPULATION HEALTH 291 CAMPUS DR 321B STANFORD CA 94305 941156365 501(C)(3) 39994 WORKPLACE ENVIRONMENT AS RISK FOR DEVELOP. AS 3 PART I, LINE 2: RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. X 0 0 0 0 0 0 0 0 0 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 197776 0 0 0 0 0 2856 0 653 0 201285 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE FORM 990, PART XII, LINE 2C THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR.