2025-11-12T15:29:58-06:00 2025-06-30 860683059 BeachFleischman PLLC 1985 E River Road Suite 201 Tucson AZ 85718 990 2024-07-01 770355224 American Fibromyalgia Syndrome Association Inc AMER 5207331570 PO Box 32698 Tucson AZ 857512698 Kristin Thorson President 5207331570 2025-11-11 1 1 Kelly L Meltzer CPA P00633511 5203214600 2025-11-11 2024 2025-03-06 01:10:19Z Kristin Thorson PO Box 32698 Tucson AZ 857512698 51876 0 X www.fibromyalgiafund.org X 1993 CA Fund biomedical research on fibromyalgia and empower patients through education. 4 4 0 4 0 0 114222 21980 0 0 25494 29896 0 0 139716 51876 137080 152707 0 0 0 0 0 0 0 23881 17918 160961 170625 -21245 -118749 991823 873074 0 90000 991823 783074 X The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life. 0 0 152707 152707 With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025. 9029 As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year. 161736 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 4 4 1 0 0 0 0 0 0 1 1 1 0 1 1 1 1 1 1 0 0 0 CA X X Steve Thorson 5209915581 3519 N Sierra Madre Dr Tucson AZ 85749 X Kristin Thorson President 40.00 X X 0 0 0 Steve Thorson Vice President & Secretary 15.00 X X 0 0 0 Jennifer E Randle Chief Financial Officer 0.20 X X 0 0 0 Brent Songer Director 0.20 X 0 0 0 0 0 0 0 0 0 0 0 21980 21980 29896 29896 51876 0 0 29896 152707 152707 130 130 1400 1400 2789 2789 1779 1779 720 720 1764 1764 Website 9029 9029 Licenses and permits 307 307 170625 161736 8889 0 145620 68695 553454 203947 292749 600432 991823 873074 0 90000 0 90000 X 0 0 0 0 991823 783074 991823 783074 991823 873074 X -118749 -90000 X 0 0 0 X 60113 57576 32312 114222 21980 286203 60113 57576 32312 114222 21980 286203 96552 189651 32 32 2487 25494 29896 57941 344144 0.55110 0.54390 X 170625 170625 34125 8531 0 0 1689 1098 32192 34125 69104 103656 422 275 8048 8531 17276 25914 1 United Kingdom/Europe 0 0 Grants to recipients located in region Research on fibromyalgia 152707 0 0 0 0 0 0 152707 0 152707 Europe Investigate the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. 78058 Bank Wire Transfer 0 Europe Examine how neutrophils are different in fibromyalgia and determine if these cells can be used as a biomarker for the disease. 74649 Bank Wire Transfer 0 2 0 0 0 0 0 0 Part I, Line 2: All grant recipients (both principal investigator and institutional grants officer) must sign a "Conditions of Award" which describes mandatory quarterly reporting of progress on projects funded (including financial accounting), beginning at 6 months. The project duration must be specified and if there are any project delays or unexpected problems, AFSA must be notified immediately. In addition, the investigator is expected to submit the data from the study to a peer-reviewed medical journal for publication within 3 months of completing the study. The published study must indicate that AFSA was the source of funding for the project and a copy of the accepted manuscript must be sent to AFSA. Regular communication via email and telephone between AFSA and the principal investigator occurs throughout the study as warranted. Also, a full financial accounting of the study is sent to AFSA upon project completion and any unused funds must be returned. Principal investigators are encouraged to use the data obtained from their AFSA study to apply to larger granting institutions so that they may continue their investigations in the field of fibromyalgia Part I, line 3: Amounts reported at Part I Column (f) represent cash-basis expenditures. Form 990, Part VI, Section A, line 2 Steve and Kristin Thorson are married. Form 990, Part VI, Section B, line 11b Form 990 is prepared by a CPA and a draft return is reviewed by the President and Vice President. Once the President and Vice President approve the draft, a copy is emailed to the entire board prior to filing. Form 990, Part VI, Section B, line 12c The Conflict of Interest (COI) document covers any director, officer, or member of a committee with governing board delegated powers, who has a direct or indirect financial interest in another entity doing business with AFSA. A COI can occur when an officer, director, or trustee's obligation to further AFSA's charitable purpose is at odds with their own financial interests. The interested person has a duty to disclose the potential conflict, which will be discussed at an AFSA board meeting. The COI shall be reviewed and voted on at a board meeting, with the interested party abstaining from the vote. The minutes of the governing board meeting will include the conflict and its resolution. Board members are required to review and sign the COI document each year. Form 990, Part VI, Section B, line 15 AFSA does not pay any compensation, and therefore does not have a process in place for determining compensation. Form 990, Part VI, Section C, line 19 The organization makes its governing documents and financial statements for the past three years available on its website. In addition, they will send this information to anyone upon request. Form 990 is also available online at https://apps.irs.gov/app/eos/ Form 990, Part VII Contact Addresses for Officers, Directors, Etc Jennifer E Randle - 1985 E River Rd, Suite 201, Tucson, AZ 85718. Brent Songer - 7702 N Camino de Maximillian, Tucson, AZ 85704. Form 990, Part XI, line 9: Accrual to Cash Adjustment -90,000.