2025-11-11T11:08:52-06:00 2024-12-31 390974031 WEGNER CPAS LLP 419 N LEE ST ALEXANDRIA VA 223142301 990 2024-01-01 814459237 HEART VALVE VOICE US HEAR 7039293706 100 M ST SE 600 WASHINGTON DC 20003 KARISSA CHARLES EXECUTIVE DIRECTOR 7039293706 2025-11-11 1 1 ADAM KUCZYNSKI CPA P01560606 7035190990 2025-11-10 2024 2025-03-06 01:10:19Z KARISSA CHARLES 100 M ST SE 600 WASHINGTON DC 20003 233521 0 X WWW.HEARTVALVEVOICE-US.ORG X 2016 DC HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. 11 11 0 13 0 0 256261 146621 0 86900 0 0 0 0 256261 233521 0 1000 0 0 55078 0 0 0 44901 177311 233377 232389 234377 23872 -856 151932 139817 13759 2500 138173 137317 HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. 0 0 137804 1000 86900 PATIENT COMMUNITY BUILDING AND AWARENESS: HEART VALVE VOICE BUILT THE MY VALVE MY VOICE PATIENT COMMUNITY AND DEVELOPED RELATED SOCIAL MEDIA, VIDEO, AND OTHER CAMPAIGNS TO ENGAGE PATIENTS AND RAISE AWARENESS OF HEART VALVE DISEASE. THIS WAS FUNDED BY AN EVERY HEARTBEAT MATTERS GRANT FROM THE EDWARDS LIFESCIENCES FOUNDATION.VALVE IN RESEARCH: WITH A EUGENE WASHINGTON ENGAGEMENT AWARD FROM THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE. HEART VALVE VOICE US INITIATED A VIRTUAL TRAINING PROGRAM FOR PATIENTS TO BECOME RESEARCH ADVISORS. 137804 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 1 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 DC X WOODBERRY ASSOCIATES 2029517095 2020 K ST NW SUITE 505 WASHINGTON DC 20006 X DONNETTE SMITH CHAIR 2.00 X X 0 0 0 TERESA WRIGHT-JOHNSON VICE CHAIR 2.00 X X 0 0 0 SUE PESCHIN THRU 624 SECRETARY 2.00 X X 0 0 0 NORM LINSKY THRU 624 TREASURER 2.00 X X 0 0 0 CHRISTINA REKASH DIRECTOR 2.00 X 0 0 0 CHANDRA BRANHAM DIRECTOR 2.00 X 0 0 0 ELIZABETH PERPETUA DNP DIRECTOR 2.00 X 0 0 0 DAVID ANDELMAN DIRECTOR 2.00 X 0 0 0 WAYNE BATCHELOR DIRECTOR 2.00 X 0 0 0 DONALD MAY DIRECTOR 2.00 X 0 0 0 MARK RUSSO MD DIRECTOR 2.00 X 0 0 0 MARILYN SERAFINI DIRECTOR 2.00 X 0 0 0 VINOD THOURANI DIRECTOR 2.00 X 0 0 0 LINDSAY VIDENIEKS EXECUTIVE DIRECTOR (THRU SEP 2024) 2.00 X 0 0 0 KARISSA CHARLES EXECUTIVE DIRECTOR (FROM OCT 2024) 2.00 X 0 0 0 0 0 0 0 0 0 0 WOODBERRY ASSOCIATES 2020 K ST NW SUITE 505 WASHINGTON DC 20006 MANAGEMENT SERVICES 126000 1 146621 146621 SERVICES REVENUE 900099 86900 86900 86900 233521 86900 0 0 X 1000 1000 126000 75600 25200 25200 8700 5220 1740 1740 10000 10000 38047 28620 7778 1649 1946 1141 432 373 3537 2076 785 676 25366 12634 1481 11251 2022 1186 449 387 12386 7176 2614 2596 1968 1154 437 377 3405 1997 756 652 234377 137804 51672 44901 108326 118854 43606 20963 151932 139817 13759 2500 13759 2500 X 138173 137317 138173 137317 151932 139817 -856 0 X 0 1 X 1 0 X 755631 257825 254168 256261 146621 1670506 755631 257825 254168 256261 146621 1670506 929865 740641 1670506 86900 0.44340 0.40090 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 233521 0 233521 0 233521 234377 0 234377 0 234377 FORM 990, PART VI, SECTION A, LINE 3 HVV US HAS DELEGATED MANAGEMENT DUTIES TO WOODBERRY ASSOCIATES. FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S DOCUMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 27,557. MANAGEMENT AND GENERAL EXPENSES 7,376. FUNDRAISING EXPENSES 1,302. TOTAL EXPENSES 36,235. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 1,063. MANAGEMENT AND GENERAL EXPENSES 402. FUNDRAISING EXPENSES 347. TOTAL EXPENSES 1,812.