2025-11-10T15:05:59-06:00 2025-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX STREET SUITE 400 ALEXANDRIA VA 22314 990 2024-07-01 112779073 SJOGREN'S FOUNDATION INC SJOG 3015304420 10701 PARKRIDGE BLVD 170 RESTON VA 20191 JANET CHURCH CHIEF EXECUTIVE OFFICER 3015304420 2025-11-10 1 1 ANDREW E YOUNG CPA P01203950 7035351200 2025-11-10 2024 2025-03-06 01:10:19Z JANET CHURCH 10701 PARKRIDGE BLVD 170 RESTON VA 20191 5382573 0 X WWW.SJOGRENS.ORG X 1983 NY SEE SCHEDULE O FOR DESCRIPTION OF ORGANIZATION'S PRIMARY MISSION. 17 17 16 684 0 0 2964863 4712138 442631 502889 90511 143224 -339 -80665 3497666 5277586 390313 636789 0 0 1699790 1937731 0 0 469255 1084309 1649459 3174412 4223979 323254 1053607 4167805 5240223 1255608 1212835 2912197 4027388 X THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH. 0 0 1227774 636789 THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN JUNE 2025. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF UTAH FOR DEVELOPMENT OF INTERNATIONAL CLASSIFICATION CRITERIA FOR CHILDREN WITH SJOGREN'S DISEASE. THE FOUNDATION PAID THE THIRD PAYMENT TO SUPPORT THE FOUNDATION FOR THE NIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND OTHER AUTOIMMUNE DISEASES, AND THE FIRST PAYMENT OF THE NEW FOUNDATION FOR THE NIH SJOGREN'S BIOMARKERS CONSORTIUM PROJECT TO DISCOVER NEW BIOMARKERS FOR SJOGREN'S TO AID IN IMPROVED DIAGNOSIS AND TREATMENT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGING PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET. 254954 NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 1216516 THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2025 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH THROUGH STATE OF SJOGREN'S AND THE FOUNDATION'S CME PROGRAM AS WELL AS PARTNERING WITH EXTERNAL CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS TO HIGHLIGHT THE IMPORTANCE OF CONTINUED AUTOIMMUNE DISEASE RESEARCH FUNDING, ESPECIALLY FOR SJOGREN'S AND TO HIGHLIGHT THE IMPORTANCE OF SUPPORTING THE OFFICE OF AUTOIMMUNE DISEASE RESEARCH. WE SUCCEEDED IN GETTING A NEW HOUSE RESOLUTION #245 TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED MESSAGING ABOUT THE NEED FOR MORE RESEARCH AND WE HELD OUR FIRST CONGRESSIONAL BRIEFING ON SJOGREN'S. THE FOUNDATION ALSO CONTINUED OUR DIALOG WITH CENTERS FOR MEDICARE AND MEDICAID FOR DENTAL COVERAGE. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. IN JUNE 2025, THE FOUNDATION WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY CONFIRMED BY THE PUBLICATION OF THE INITIATIVE IN A PEER-REVIEWED PUBLICATION NATURE REVIEWS RHEUMATOLOGY. 851838 395510 OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS; PATIENT MEMBERSHIP AND SUPPORT PROGRAMS FOR PEOPLE LIVING WITH SJOGREN'S; HEALTHCARE PROVIDER EDUCATION SUCH AS CREATING CLINICAL PRACTICE GUIDELINES AND ABSTRACTS, PARTNERING WITH EXTERNAL CME PROVIDERS TO CREATE SJOGREN'S COURSES, AND PRESENTING AT PROFESSIONAL CONFERENCES; INDUSTRY SUPPORT AND CO-AUTHORSHIP ON ABSTRACTS TO ENSURE ACCURATE UNDERSTANDING OF SJOGREN'S AND THE NEED FOR EARLY PATIENT INVOLVEMENT IN RESEARCH AND ENCOURAGING FURTHER DEVELOPMENT OF SJOGREN'S THERAPIES FOR ALL PATIENTS. 851838 395510 3551082 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 16 1 0 0 0 0 0 0 0 0 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 CA CO FL IL MD MN MS NH NY OH OR SC VA WI WA X X SJOGREN'S FOUNDATION 3015304420 10701 PARKRIDGE BLVD SUITE 170 RESTON VA 20191 SUSAN BARAJAS CHAIRMAN 2.00 X X 0 0 0 DONALD E THOMAS MD PAST CHAIRMAN 2.00 X X 0 0 0 VIDYA SANKAR DMD MHS TREASURER 2.00 X X 0 0 0 KATIE FORTE SECRETARY 2.00 X X 0 0 0 ALAN BAER MD DIRECTOR, CHAIRMAN OF MSAC 2.00 X 0 0 0 ALLISSA LATHAM DIRECTOR 2.00 X 0 0 0 BRENT P GOODMAN MD DIRECTOR 2.00 X 0 0 0 DANIEL WALLACE MD DIRECTOR 2.00 X 0 0 0 DAVID SCHRADER DIRECTOR 2.00 X 0 0 0 NISHANT GUPTA MD DIRECTOR 2.00 X 0 0 0 ROBYN LAUKIEN DIRECTOR 2.00 X 0 0 0 RUBENSTEIN LISA DIRECTOR 2.00 X 0 0 0 SARA MCCOY MD DIRECTOR 2.00 X 0 0 0 SCOTT LIEBERMAN MD DIRECTOR 2.00 X 0 0 0 TAMMY DOTSON DIRECTOR 2.00 X 0 0 0 TOM IATESTA DIRECTOR 2.00 X 0 0 0 VATINEE BUNYA MD MSCE DIRECTOR 2.00 X 0 0 0 JANET CHURCH PRESIDENT AND CEO 40.00 X 368360 0 0 KATHERINE MORLAND HAMMITT VP OF MEDICAL AND SCIENTIFIC AFFAIRS 40.00 X 189280 0 0 BEN BASLOE VP OF PHILANTHROPY AND OPERATIONS 40.00 X 135085 0 0 LANE DESTRO SR. DIRECTOR, CORPORATE PARTNERSHIPS & STRATEGIC I 40.00 X 125368 0 0 MICHELE CHAMPIGNY VP OF PATIENT SERVICES AND EDUCATION 40.00 X 115761 0 0 MATTHEW MAKARA SENIOR DIRECTOR OF RESEARCH & SCIENTIFIC AFFAIRS 40.00 X 114253 0 0 1048107 0 0 6 0 1 0 IMPACT HEALTH STRATEGIES LLC 621 BRIER ST KENILWORTH IL 60043 CLINICAL PRACTICE GUIDELINES 125575 1 288158 4423980 4712138 CONFERENCE 541900 254806 143056 111750 MEMBERSHIP DUES 541900 244333 244333 NEWSLETTER 541900 3750 3750 502889 143224 143224 3492 3492 0 288158 88528 -88528 -88528 13798 16459 -2661 -2661 MISCELLANEOUS INCOME 900099 7032 7032 7032 5277586 395510 0 169938 636789 636789 556072 454644 36589 64839 1096498 896498 72149 127851 170731 139589 11234 19908 114430 93558 7529 13343 107958 107958 34804 34804 8840 8840 155999 133363 8167 14469 33008 26988 2171 3849 102392 83716 6737 11939 36655 36655 2027 1894 133 37608 30751 2472 4385 11412 9330 751 1331 AWARENESS ACTIVITIES 493629 493629 MISCELLANEOUS 156546 59072 162 97312 TECH, MAINT, REPAIRS 125980 103000 8291 14689 POSTAGE AND DELIVERY 103690 63038 96 40556 238911 180610 3517 54784 4223979 3551082 203642 469255 697030 253748 220026 220214 223294 3213 17109 12193 20159 0 260120 239985 49992 20135 2833654 4600242 9911 0 96630 130478 4167805 5240223 66425 50778 475000 526250 561934 483753 152249 152054 1255608 1212835 X 1911301 2926653 1000896 1100735 2912197 4027388 4167805 5240223 1053607 61584 0 X X 0 1 X 1 0 X 2505185 2391109 2756148 2964863 4712138 15329443 368639 434297 425594 384619 391139 2004288 2873824 2825406 3181742 3349482 5103277 17333731 791081 742203 960014 1050899 1518774 5062971 0 791081 742203 960014 1050899 1518774 5062971 12270760 20326 27789 22161 94369 146716 311361 20326 27789 22161 94369 146716 311361 12486 6768 37718 36894 7032 100898 2906636 2859963 3241621 3480745 5257025 17745990 0.69150 0.65090 0.01750 0.01310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1000896 771783 671944 1100735 1000896 1000896 1000896 1000896 1000896 1000896 1000896 1000896 1.00000 0 0 166103 166033 70 94017 73952 20065 20135 LEASE LIABILITY - OPERATING 135622 LEASE LIABILITY - FINANCE 16432 152054 X 5346789 61584 61584 5285205 8840 -16459 -7619 5277586 4231598 16459 16459 4215139 8840 8840 4223979 PART V, LINE 4: THE FOUNDATION'S ENDOWMENT FUNDS CONSIST OF A BEQUEST THAT WAS RESTRICTED FOR THE PURPOSES OF RESEARCH. PART X, LINE 2: IN ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, ACCOUNTING STANDARDS REQUIRE AN ENTITY TO RECOGNIZE THE FINANCIAL STATEMENT IMPACT OF A TAX POSITION WHEN IT IS MORE-LIKELY-THAN-NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION. MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH THE PROVISIONS OF THIS GUIDANCE. PART XI, LINE 4B - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD -16,459. PART XII, LINE 2D - OTHER ADJUSTMENTS: RECLASSIFICATION OF COSTS OF GOODS SOLD 16,459. WALKS AND SIPS EVENTS 288158 288158 88528 288158 288158 88528 88528 -88528 1 THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 7408 BOELTER HALL BOX 951600 LOS ANGELES CA 90095 956006143 SECTION 501(C)(3) 50000 0 FMV N/A RESEARCH GRANT OKLAHOMA MEDICAL RESEARCH FOUNDATION 825 NE 13TH STREET OKLAHOMA CITY OK 73104 730580274 SECTION 501(C)(3) 50000 0 FMV N/A RESEARCH GRANT MASS GENERAL BRIGHAM 190 LONGWOOD AVE RM 305 BOSTON MA 02115 043230035 SECTION 501(C)(3) 100000 0 FMV N/A RESEARCH GRANT UNIVERSITY OF WISCONSIN-MADISON 600 HIGHLAND AVE H4/6 MADISON WI 53715 396006492 SECTION 501(C)(3) 50000 0 FMV N/A RESEARCH GRANT THE UNIVERSITY OF UTAH 81 MARIO CAPECCHI DRIVE SALT LAKE CITY UT 84113 876000525 SECTION 501(C)(3) 120000 0 FMV N/A RESEARCH GRANT FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH 11400 ROCKVILLE PIKE SUITE 600 NORTH BETHESDA MD 20852 521986675 SECTION 501(C)(3) 200000 0 FMV N/A RESEARCH GRANT 6 0 PART I, LINE 2: THE SJOGREN'S FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S BY OFFERING ANNUAL RESEARCH GRANTS. THERE ARE TWO ANNUAL AWARDS: A HIGH IMPACT GRANT AND A PILOT GRANT. THE FOUNDATION ADDED TWO NEW RESEARCH GRANT POLICIES CALLED DYNAMIC GRANT POLICY AND PARTNER GRANT POLICY, TO ENCOURAGE ADDITIONAL PROPOSALS THAT FALL OUTSIDE OF THE SCOPE OF OUR ANNUAL GRANTS. ALL GRANT OPPORTUNITIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 JANET CHURCH PRESIDENT AND CEO 321800 0 46560 0 0 0 0 0 0 0 368360 0 0 0 KATHERINE MORLAND HAMMITT VP OF MEDICAL AND SCIENTIFIC AFFAIRS 177640 0 11640 0 0 0 0 0 0 0 189280 0 0 0 X 2 59718 FMV 0 1 0 FORM 990, PART I, LINE 1 THE FOUNDATION'S MISSION IS TO PROVIDE EDUCATION AND RESOURCES TO SJOGREN'S PATIENTS AND THEIR LOVED ONES, PROVIDE CREDIBLE RESOURCES/EDUCATION TO HEALTHCARE PROFESSIONALS, SERVE AS THE VOICE OF ALL PATIENTS THROUGH ADVOCACY AND FUND INNOVATIVE RESEARCH. FORM 990, PART VI, SECTION B, LINE 11B BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BY CONTACTING THE MAIN OFFICE. FORM 990, PART XII, LINE 2C THE FOUNDATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR. THE BOARD OF DIRECTORS IS RESPONSIBLE FOR OVERSIGHT OVER THE INDEPENDENT AUDIT AND SELECTION OF THE INDEPENDENT AUDITORS. FORM 990, PART IX, FUNDRAISING THE SJOGREN'S FOUNDATION ALSO UPGRADED AND TRANSITIONED TECHNOLOGY PLATFORMS, DATABASE, AND INTEGRATIONS TO IMPROVE INFRASTRUCTURE AND PREPARE FOR GROWTH OF THE FOUNDATION FOR THE COMING DECADE.