2019-08-30T08:42:42-05:00 2019-01-31 273605969 CBIZ MHM LLC 13577 FEATHER SOUND DR SUITE 400 CLEARWATER FL 337625539 990 2018-02-01 943124732 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AMYO 8136379000 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 RAY CARSON PRESIDENT/CEO 8136379000 2019-08-29 1 STEVEN W GROVE P00090706 7275721400 71.41.95.34 2019-08-29 13:36:08 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 8795436A6D2F947286B80284B86DAF385C7935EA 2018 2019-02-21 02:37:17Z THE ALS ASSOCIATION FLORIDA CHAPTER INC RAY CARSON 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 2376408 0 4119 X ALSAFL.ORG X 1987 FL IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING RESEARCH FUNDS & PARTICIPATING IN ADVOCACY. 13 13 28 700 3447 2447 2579574 2344722 0 0 1468 1333 -28944 -76596 2552098 2269459 539062 436087 0 0 1096377 1147776 0 0 234211 1103733 911391 2739172 2495254 -187074 -225795 1833809 1527857 557000 476843 1276809 1051014 X LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 1 0 1332515 202437 PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,338 PATIENTS. PROGRAMS INCLUDED: 1) SPONSORSHIP OF EIGHT ALS MULTIDISCIPLINARY CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDED BOTH FINANCIAL SUPPORT AND IN-KIND STAFFING SUPPORT; 2) A NETWORK OF TEN CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 19 STATEWIDE LOCATIONS ATTENDED BY 1,951 PEOPLE OVER THE YEAR; (CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 487 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) SURVIVING SPOUSES SOCIAL RENEWAL PROGRAMS; 6) ALS SPECIALTY HOME HEALTH COORDINATION; 7) A VISITING VOLUNTEERS PROGRAM THAT MATCHED 29 PEOPLE LIVING WITH ALS WITH A VOLUNTEER TO ASSIST IN THE HOME WITH NON-MEDICAL NEEDS SUCH AS YARD WORK, HOME CLEANING, AND OTHER HOME PROJECTS; 8) FUNDING FOR 127 MONETARY GRANTS TO PATIENTS THAT PROVIDED 1,142 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 9) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 2 STUDENTS; 10) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE AWARDS LUNCHEON ATTENDED BY 371 CONSTITUENTS; AND 11) SUPPORTED CAMP HLC, A FREE, THREE-DAY RETREAT FOR CHILDREN AND YOUNG ADULTS WHO HAVE OR HAD A LOVED ONE DIAGNOSED WITH ALS, WITH A FINANCIAL SPONSORSHIP. 536583 18255 AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. (CONTINUED ON SCHEDULE O)E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH BOTH MAJOR LEAGUE BASEBALL TEAMS IN FLORIDA, AS WELL AS NUMEROUS MINOR LEAGUE TEAMS, AND HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. 215395 215395 RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS COMMITTED OVER $2 MILLION TO RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF DIFFERENT TYPES OF STUDIES INCLUDING: BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO INFORMS PEOPLE LIVING WITH ALS ABOUT THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. 69422 ADVOCACY:THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIESAPPROPRIATIONS FOR ALS RESEARCH:NATIONAL ALS REGISTRY - PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AND BIOREPOSITORY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THE REGISTRY COLLECTS DATA AND DIRECTS A BIOREPOSITORY FOR PEOPLE LIVING WITH ALS AND COLLABORATES WITH THE CENTERS FOR MEDICARE AND MEDICAID SERVICES, THE VETERAN'S ADMINISTRATION AND THE NATIONAL INSTITUTES OF HEALTH (NIH). IT IS A CRITICAL DRIVER OF THE SEARCH TO FIND TREATMENTS AND A CURE BECAUSE IT CONNECTS RESEARCHERS CONDUCTING CLINICAL TRIALS WITH PEOPLE LIVING WITH ALS IN ADDITION TO FUNDING ITS OWN RESEARCH. DEPARTMENT OF DEFENSE - PROVIDE A $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD). RESEARCH HAS REPEATEDLY DEMONSTRATED THAT MILITARY VETERANS, REGARDLESS OF BRANCH OR ERA OF SERVICE, ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM ALS THAN CIVILIANS. THE ALS RESEARCH PROGRAM (ALSRP), FUNDED AS A PART OF THE CONGRESSIONAL DIRECTED MEDICAL RESEARCH PROGRAM AT DOD, PROVIDES COMPETITIVE GRANTS THAT ARE AN ESSENTIAL COMPONENT OF EFFORTS TO IDENTIFY TREATMENTS AND A CURE FOR ALS. NATIONAL INSTITUTES OF HEALTH - CONTINUE ALS RESEARCH AT THE NATIONAL INSTITUTE FOR NEUROLOGICAL DISORDERS AND STROKE AND OTHER INSTITUTES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). NIH SPENDS APPROXIMATELY $55 MILLION FOR ALS RESEARCH WITHIN THE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE (NINDS) AND FOUR OTHER INSTITUTES.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS. CHAPTER ADVOCACY ACTIVITIESMARCH 2018 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS EVENT IN WASHINGTON, DC AND VISITED TARGETED FLORIDA REPRESENTATIVES.MAY 2018 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE IN WASHINGTON, DC. ADVOCATES MET WITH FLORIDA'S TWO SENATORS AND 27 REPRESENTATIVES IN THEIR WASHINGTON OFFICES.AUGUST 2018 - MET WITH SENATORS AND REPRESENTATIVES IN FLORIDA DISTRICT OFFICES DURING CONGRESSIONAL RECESS. OTHER ADVOCACY ACTIVITIESBOARD OF DIRECTORS COMMITTEE ON ADVOCACY - FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM.JACKSONVILLE REGIONAL COUNCIL - FOCUSED ON FEDERAL, STATE, AND LOCAL ADVOCACY 69422 2153915 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 8 0 1 28 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 FL X X RAY CARSON 8136379000 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 SANDRA TORRES CHAIRMAN 2.00 X 0 0 0 TIM CUMMINGS IMMEDIATE PAST CHAIRMAN 2.00 X 0 0 0 JOHN CANNISTRA VICE CHAIRMAN 2.00 X 0 0 0 GLENN STAMBAUGH TREASURER 2.00 X 0 0 0 SHARON MAYBROOK SECRETARY 2.00 X 0 0 0 WENDY BITNER RODIN TRUSTEE 2.00 X 0 0 0 JO-ANN CLYNCH TRUSTEE 2.00 X 0 0 0 JOHN COLLINS TRUSTEE (3/27/18-1/31/19) 2.00 X 0 0 0 KEVIN CONN TRUSTEE 2.00 X 0 0 0 HAMPTON GRAHAM TRUSTEE 2.00 X 0 0 0 ALECIA JONES BAILEY TRUSTEE 2.00 X 0 0 0 WARREN NELSON TRUSTEE 2.00 X 0 0 0 DEWAYNE STANDIFER TRUSTEE 2.00 X 0 0 0 PHILIP FLYNN III PRESIDENT/CEO (2/1/18-10/17/18) 40.00 X 107246 0 27166 GABBY HARRISON INTERIM EXEC DIR (10/18/18-1/31/19) 40.00 X 75145 0 1334 182391 0 28500 1 0 0 0 UNIVERSITY OF MIAMI 1120 NW 14TH ST MIAMI FL 33136 CLINICAL SERVICES 149122 UNIVERSITY MEDICAL SERVICES ASSOCIATION DEPARTMENT OF NEUROLOGY PO BOX 917 ORLANDO FL 32891 CLINICAL SERVICES 130599 2 1240387 354169 750166 117043 2344722 1414 1414 24480 18047 6433 6433 2447 3986 81 -81 -81 -81 4205 1240387 88821 -84616 -84616 ADVERTISING 541800 1000 1000 587 587 1587 2269459 0 3447 -78710 X 364540 364540 71547 71547 180810 137898 18081 24831 811805 623853 35962 151990 72294 59217 1706 11371 82867 63311 4350 15206 325 65 260 26358 5272 21086 400130 390408 4994 4728 322579 298670 11885 12024 43552 34842 4355 4355 20401 16321 2040 2040 69448 67285 2163 11706 7354 488 3864 7766 6430 559 777 5950 4760 595 595 EXCISE TAX 500 500 2676 2142 267 267 2495254 2153915 107128 234211 X 3978 796 0 3182 77975 62102 952674 727647 224035 173365 3683 3394 1138957 583230 570079 555727 4827 5150 536 472 1833809 1527857 51646 58221 152295 75661 222992 200735 130067 142226 557000 476843 X 1178110 987320 98699 63694 1276809 1051014 1833809 1527857 -225795 0 X X 0 1 X 1 0 X 4410747 2857690 2516946 2579574 2344722 14709679 8440 5355 5845 19640 587 587 4419187 2863045 2522791 2579574 2345309 14729906 23485 48360 28675 53256 80166 233942 0 23485 48360 28675 53256 80166 233942 14495964 1675 2034 1467 4276 16584 26036 7655 63 2847 1808 1933 14306 9330 2097 4314 6084 18517 40342 8731 2952 830 2540 15053 4437248 2868094 2527935 2588198 2363826 14785301 0.98040 0.98470 0.00270 0.00190 X 1 1 0 1 0 1 0 0 1 5215 1 0 0 5215 0 PART II-B, LINE 1: THE CHAPTER'S ADVOCACY EFFORTS INCLUDE BOTH GRASSROOTS AND DIRECT LOBBYING ACTIVITIES. GRASSROOTS ACTIVITY IS CONDUCTED BY VOLUNTEERS, CLIENTS AND/OR OTHER CONSTITUENTS. THE CHAPTER ASKS OTHERS TO MEET WITH LEGISLATORS OR PUSH INFORMATION FOR THEM TO DO SO. THE MAJORITY OF THE ADVOCACY EFFORTS IS GRASSROOTS ON BOTH A STATE AND FEDERAL LEVEL. DIRECT LOBBYING IS CONDUCTED THROUGH DIRECT MEETINGS WITH LEGISLATORS. FOR THE FISCAL YEAR ENDED JANUARY 31, 2019, THE PRESIDENT/CEO, ONE STAFF MEMBER, AND VOLUNTEERS SPENT TWO DAYS IN WASHINGTON, D.C. (APPROXIMATELY 4 HOURS OF DIRECT MEETING TIME EACH DAY). 225000 225000 485609 157628 327981 428348 425602 2746 555727 DUE TO NATIONAL ALS 142226 142226 X 2376327 106868 106868 2269459 0 2269459 2602122 106868 106868 2495254 0 2495254 PART X, LINE 2: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AND ITS AFFILIATED CHAPTERS, INCLUDING THE ASSOCIATION, HAVE BEEN RECOGNIZED COLLECTIVELY BY THE INTERNAL REVENUE SERVICE AS A TAX-EXEMPT ORGANIZATION DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE OF 1986. INCOME EARNED IN FURTHERANCE OF THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION, THROUGH THE COLLECTIVE EXEMPTION DESCRIBED PREVIOUSLY, IS TREATED AS A PUBLICLY SUPPORTED ORGANIZATION, AND NOT AS A PRIVATE FOUNDATION. THE ASSOCIATION HAS ADOPTED THE PROVISIONS OF ASC TOPIC 740, INCOME TAXES, RELATING TO ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND DOES NOT BELIEVE IT HAS ANY MATERIAL INCOME TAX EXPOSURE RELATING TO UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S INCOME TAX FILINGS FOR PERIODS AFTER THE FISCAL YEAR ENDED JANUARY 31, 2015 REMAIN SUBJECT TO EXAMINATION. BEGINNING WITH THE YEAR ENDED JANUARY 31, 2009, THE ASSOCIATION RECEIVED RENT FROM A TENANT, WHICH IS CONSIDERED UNRELATED TAXABLE BUSINESS INCOME. FOR THE YEAR ENDED JANUARY 31, 2019 AND 2018, THIS ACTIVITY GENERATED INCOME TAX EXPENSE OF $500 AND $0, RESPECTIVELY. PART XI, LINE 2D - OTHER ADJUSTMENTS: EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 88,821. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 18,047. PART XII, LINE 2D - OTHER ADJUSTMENTS: EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 88,821. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 18,047. WALK TO DEFEAT ALS EVENTS 1095004 1095004 32246 47130 RIDE TO DEFEAT ALS EVENTS 149588 145383 4205 2430 7015 1244592 1240387 4205 34676 54145 88821 -84616 1 USF FOUNDATION INC 4202 E FOWLER AVE ALC 100 TAMPA FL 33620 590879015 501(C)(3) 27500 0 N/A N/A CENTER SUPPORT THE ALS ASSOCIATION 1275 K STREET NW 250 WASHINGTON DC 20005 133271855 501(C)(3) 129886 0 N/A N/A RESEARCH UNIVERSITY OF MIAMI 1150 NW 14TH ST SUITE 509 MIAMI FL 33136 590624458 501(C)(3) 7500 0 N/A N/A CENTER SUPPORT MAYO CLINIC 4500 SAN PABLO RD JACKSONVILLE FL 32224 593337028 501(C)(3) 7500 0 N/A N/A CENTER SUPPORT THE ALS ASSOCIATION 1275 K STREET NW 250 WASHINGTON DC 20005 133271855 501(C)(3) 192154 0 N/A N/A ADVOCACY, AWARENESS, CARE SERVICES, ETC. 4 0 MEDICAL FUTURES SCHOLARSHIPS 2 5000 0 N/A N/A TRANSPORTATION 21 3071 N/A N/A EQUIPMENT LOAN PROGRAM 261 EQUIPMENT IS NOT VALUED 487 PIECES OF DURABLE MEDICAL EQUIPMENT AND COMMUNICATION DEVICES LOANED. CARE ASSIST GRANTS (SEE PART IV) 131 53672 N/A N/A HURRICANE DISASTER FUND 2 9754 N/A N/A PART I, LINE 2: APPLICANTS APPLY FOR GRANTS ONLINE. THE APPLICATION IS REVIEWED FOR A VARIETY OF FACTORS, INCLUDING BUT NOT LIMITED TO VALIDITY OF NEED, FINANCIAL NEED, OTHER POTENTIAL FUNDING SOURCES, ETC. GRANTS ARE SUBSTANTIATED THROUGH RESPITE CALENDARS, EQUIPMENT INVOICES, AND RECEIPTS. PART III - GRANTS AND OTHER ASSISTANCE TO DOMESTIC INDIVIDUALS: FINANCIAL ASSISTANCE PROGRAMS AID FINANCIALLY STRESSED PEOPLE LIVING WITH ALS AND THEIR FAMILIES WITH EQUIPMENT AND SERVICES. ASSISTANCE IS AVAILABLE FOR RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS OR VAN PURCHASE ASSISTANCE, MEDICAL EQUIPMENT, ASSISTIVE TECHNOLOGY, AND TRANSPORTATION TO AN ALS CERTIFIED CENTER OF EXCELLENCE OR CLINIC AFFILIATED WITH THE ALS ASSOCIATION FLORIDA CHAPTER. WE ALSO OFFER TEMPORARY LOANER EQUIPMENT, INCLUDING SPEECH GENERATING DEVICES, TO FLORIDA RESIDENTS WITH A VERIFIED DIAGNOSIS OF ALS WHO ARE UNINSURED, UNDERINSURED, WHO CANNOT ACCESS THEIR INSURANCE (WHILE IN A NURSING HOME OR HOSPICE) OR WHO ARE WAITING FOR INSURANCE APPROVAL. WE COLLABORATE WITH DURABLE MEDICAL EQUIPMENT (DME) COMPANIES, ACCESSIBLE VAN DEALERS AND MODIFICATION BUSINESSES THAT PROVIDE SERVICES TO PEOPLE WITH ALS AND HAVE SPECIALISTS KNOWLEDGEABLE ABOUT THE PROGRESSIVE EQUIPMENT NEEDS OF PERSONS WITH ALS. X 1 443 FAIR MARKET VALUE X MEDICAL EQUIPMENT 43 116600 FAIR MARKET VALUE 0 0 1 0 FORM 990, PART III, LINE 2 THE VISITING VOLUNTEER PROGRAM MATCHES TRAINED VOLUNTEERS WITH PEOPLE AND THEIR FAMILIES LIVING WITH ALS IN THE HOME TO ASSIST WITH TASKS OF DAILY LIVING, SUCH AS LAUNDRY, GARDENING, AND MEAL PREPARATION. THE PROGRAM WAS PILOTED IN THE TAMPA/ST. PETERSBURG AREA IN SUMMER 2018, AND EXPANDED STATEWIDE THEREAFTER FOLLOWING POSITIVE FEEDBACK THROUGH DATA ACCUMULATION AND PROCESS-STREAMLINING. CURRENTLY, THE CHAPTER HAS 28 ACTIVE VISITING VOLUNTEERS, 18 PROCESSED OR IN PROCESSING BUT UNMATCHED, AND 12 OUTSTANDING CONSTITUENT REQUESTS. FAMILIES AND VOLUNTEERS ARE MONITORED CONTINUALLY FOR SATISFACTION WITH THE PROGRAM. A HARD-DATA SURVEY WILL BE PERFORMED AT THE CLOSE OF EACH YEAR FROM INITIAL DEPLOYMENT. VOLUNTEERS ARE STEWARDED THROUGH OPEN COMMUNICATION AND A REWARDS PROGRAM TIED TO TOTAL HOURS OF VOLUNTEERISM, AS WELL AS ACKNOWLEDGEMENT DURING NATIONAL VOLUNTEER WEEK. FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT REPORT AND FORM 990 IS FIRST REVIEWED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE ACCOUNTANT. ONCE ANY QUESTIONS OR CONCERNS HAVE BEEN ADDRESSED, THE FINANCE COMMITTEE VOTES TO ACCEPT THE AUDIT REPORT AND FORM 990. ONCE THIS IS COMPLETE, BOTH ARE PRESENTED TO THE ENTIRE BOARD OF DIRECTORS FOR VOTE AND APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ARE ASKED TO SIGN A CONFLICT OF INTEREST POLICY ANNUALLY. BOARD MEMBERS WITH A CONFLICT ON ANY VOTING MATTERS RECUSE THEMSELVES FROM THE VOTE. FORM 990, PART VI, SECTION B, LINE 15 THE PROCESS FOR DETERMINING THE PRESIDENT/CEO'S SALARY IS AS FOLLOWS: (1) THE PRESIDENT/CEO'S PERFORMANCE IS REVIEWED BY THE CHAIRMAN AND A WRITTEN EVALUATION IS PROVIDED TO THE PRESIDENT/CEO AND TO THE EXECUTIVE COMMITTEE; (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION, INCLUDING SISTER ALS CHAPTERS, WITH ALLOWANCES MADE FOR DIFFERENCES IN SIZE AND LOCATION; (3) THE EXECUTIVE COMMITTEE MAKES A RECOMMENDATION TO THE BOARD FOR APPROVAL; AND (4) THE BOARD'S CONSIDERATION AND APPROVAL OF THE COMPENSATION IS DOCUMENTED IN THE BOARDS MINUTES. THE PROCESS FOR DETERMINING KEY EMPLOYEE'S SALARY IS AS FOLLOWS: (1) THE EMPLOYEE'S PERFORMANCE IS REVIEWED BY THE PRESIDENT/CEO; AND (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION. FORM 990, PART VI, SECTION C, LINE 19 THE CHAPTER MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G CLINICAL SERVICES: PROGRAM SERVICE EXPENSES 323,389. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 323,389. PAYROLL ADMINISTRATION: PROGRAM SERVICE EXPENSES 18,500. MANAGEMENT AND GENERAL EXPENSES 1,247. FUNDRAISING EXPENSES 4,647. TOTAL EXPENSES 24,394. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 48,519. MANAGEMENT AND GENERAL EXPENSES 3,747. FUNDRAISING EXPENSES 81. TOTAL EXPENSES 52,347. FORM 990, PART XII, LINE 2C: THE FINANCIAL STATEMENT AUDIT AND SELECTION OF THE INDEPENDENT CPA FIRM IS MANAGED BY THE PRESIDENT/CEO AND OVERSEEN BY THE FINANCE COMMITTEE OF THE BOARD. THE CPA FIRM PRESENTS THE AUDIT AND 990 TO THE FINANCE COMMITTEE. THE PRESIDENT/CEO IS EXCUSED FROM PART OF THE MEETING TO ALLOW THE PROCESS TO BE FULLY INDEPENDENT. THE FINANCE COMMITTEE THEN PRESENTS THE AUDIT AND 990 TO THE FULL BOARD. THE CPA FIRM IS CHOSEN FROM THREE (3) INDEPENDENT PROPOSALS WHEN A CHANGE IN FIRM IS MADE. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.