2019-06-03T13:54:46-05:00 2018-12-31 521373858 DELEON & STANG CPAS AND ADVISORS 100 LAKEFOREST BLVD STE 650 GAITHERSBURG MD 208772609 990 2018-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4915 ST ELMO AVENUE BETHESDA MD 20814 ANDREA MADDOX-SMITH CEO 3012159099 2019-05-10 true CLINT LEHMAN CPA P00840525 3019489825 2019-05-29 64.88.174.3 2019-06-03 13:54:46 CD P BDD55A7986D109CB5E443E11A11F827E7B21522D C95FF64131711DF4E2229AC7CA95614972EC0F02 2018 2019-02-21 02:37:17Z ANDREA MADDOX-SMITH 4915 ST ELMO AVE NO 202 BETHESDA MD 20814 3581732 false X WWW.BCAN.ORG X 2005 MD TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 12 12 10 0 2727002 3294248 181120 235897 12094 47483 2102 4104 2922318 3581732 542768 1232509 0 630556 768843 0 208244 930978 1041445 2104302 3042797 818016 538935 4442850 4920806 317412 371854 4125438 4548952 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER, TO ADVANCE BLADDER CANCER RESEARCH, AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. false false 1348753 1228509 RESEARCH - BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS, AND IN 2018 GRANTED THREE AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER RESEARCH INNOVATION AWARD, A 300,000 GRANT AWARDED OVER TWO-YEARS. TO ENCOURAGE GREATER COLLABORATION AMONG BLADDER CANCER RESEARCHERS, BCAN LAUNCHED THE BLADDER CANCER GENOMICS CONSORTIUM (BCGC), A COLLABORATIVE EFFORT BETWEEN BCAN AND MAJOR MEDICAL CENTERS, WITH THE GOAL OF DEVELOPING AN ENRICHED UNDERSTANDING OF THE GENOMIC PROFILE OF BLADDER CANCER TO FACILITATE THE DEVELOPMENT OF NOVEL THERAPEUTICS. THE FIRST RESEARCH PROJECT IS UNDERWAY WHICH FOCUSES ON PATIENTS WITH METASTATIC DISEASE, AN AREA IN GREAT NEED OF IMPROVED TREATMENTS. BCAN HAS INVESTED 2.3 MILLION FROM PRIVATE PHILANTHROPY TO SUPPORT THE STUDY MANAGEMENT, SUPPORT SERVICES, AND GENOMIC SEQUENCING REPORTING - COSTS WHICH ARE OFTEN A BARRIER TO PERSONALIZED CARE FOR PATIENTS. WITH THE LAUNCH OF BCGC, BCAN HAS NOW INVESTED MORE THAN 3 MILLION IN BLADDER CANCER RESEARCH. 298411 EDUCATION AND INFORMATION - BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. NOW IN ITS SECOND PRINTING, BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE WEB PROGRAM THAT ADDRESSES A VARIETY OF ISSUES FROM CLINICAL TRIALS TO LIVING WITH URINARY DIVERSION. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. BCAN CONNECTION, AN INFORMATION AND REFERRAL LINE PROVIDING PRACTICAL RESOURCES FOR THOSE COPING WITH A BLADDER CANCER DIAGNOSIS IS STAFFED BY COMMUNITY VOLUNTEERS. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED PATIENTS WITH SURVIVORS WITH A SIMILAR DIAGNOSIS. 360290 THINK TANK - THE BLADDER CANCER THINK TANK (THINK TANK) IS THE ONLY MEDICAL SYMPOSIUM DEDICATED SOLELY TO BLADDER CANCER. THROUGH COLLABORATION UROLOGISTS, ONCOLOGISTS, SCIENTISTS, AND RESEARCHERS ARE PIONEERING NEW TREATMENT PROTOCOLS, INVESTIGATING GENETIC EXPRESSIONS, AND IMPROVING ACCESS TO QUALITY CARE FOR THOSE LIVING WITH THE DISEASE. THE JOHN QUALE TRAVEL FELLOWSHIP PROGRAM PROVIDES FINANCIAL SUPPORT TO HELP SELECT RESEARCHERS PAY TRAVEL EXPENSES RELATED TO THEIR ATTENDANCE AT THE ANNUAL BLADDER CANCER THINK TANK WHERE THEY HAVE THE OPPORTUNITY TO PRESENT THEIR RESEARCH, NETWORK WITH LEADING BLADDER CANCER RESEARCHERS AND GAIN INSIGHTS FROM THE THINK TANK. EACH YEAR, FOUR 1,700 TRAVEL FELLOWSHIPS ARE AWARDED TO EARLY CAREER PHYSICIANS AND SCIENTISTS. 368221 WALK FOR BLADDER CANCER - THE WALK FOR BLADDER CANCER IS AN AWARENESS INITIATIVE IN MAY THAT UNITES BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2018, THIS COMMUNITY EVENT WAS IN OVER 25 COMMUNITIES ACROSS THE COUNTRY. NATIONAL IN SCOPE, THE WALK TO END BLADDER CANCER REACHED MORE THAN 600,000 THROUGH THE WALK AWARENESS CAMPAIGN. THE EVENT INCLUDES A HEALTH WALK, SURVIVOR RECOGNITION AND EDUCATION ABOUT THE SIGNS AND SYMPTOMS OF BALDDER CANCER. MANY WALK PARTICIPANTS ALSO RAISE FUNDS TO SUPPORT BCAN'S MISSION PROGRAMS. THE WALK FOR BLADDER CANCER IS HELD IN MAY AS PART OF BLADDER CANCER AWARENESS MONTH. ADVOCACY - AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. THROUGH ITS ANNUAL BLADDER CANCER LEADERSHIP SUMMIT, BCAN PROVIDES PARTICIPANTS WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICIES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES. 368221 2375675 true true false true false false false false false false true false false false true true true false false false false false false false false false false false true true false false false false false false false false false false false false false false false false false true 10 0 true 10 true false false false false false false false false false false false false X 12 12 false false false false false false false true true false true true true true true true true true true true false MD IL CA CT FL MA MI MO NJ NY OH PA RI VA WA GA X X X ANDREA MADDOX-SMITH 3012159099 4915 ST ELMO AVE NO 202 BETHESDA MD 20814 GERALD MCNAMARA CHAIRMAN 2.00 X X 0 0 0 ROBERT LEVIN DIRECTOR/TRE 2.00 X X 0 0 0 JARED SHER DIRECTOR/SEC 2.00 X X 0 0 0 DIANE ZIPURSKY QUALE CO-FOUNDER 2.00 X X 0 0 0 MARY GUSHEE DIRECTOR 2.00 X 0 0 0 JAMIE GILLESPIE DIRECTOR 2.00 X 0 0 0 BEVERLY JAMES DIRECTOR 2.00 X 0 0 0 CHERYL TAYLORE LEE DIRECTOR 2.00 X 0 0 0 SETH LERNER DIRECTOR 2.00 X 0 0 0 DAVID PULVER DIRECTOR 2.00 X 0 0 0 NEAL SHORE DIRECTOR 2.00 X 0 0 0 DAVID SHULMAN DIRECTOR 2.00 X 0 0 0 ANDREA MADDOX-SMITH CEO 40.00 X 225435 0 0 225435 1 false true false 3294248 3294248 CONFERENCE INCOME 235897 235897 235897 47483 47483 OTHER REVENUE 900099 4104 4104 4104 3581732 240001 47483 4000 4000 1228509 1228509 225435 147162 40310 37963 457173 298441 81746 76986 37442 24442 6695 6305 48793 31851 8725 8217 31800 20634 5811 5355 81083 59333 13025 8725 118298 39938 76365 1995 127816 55315 54329 18172 78518 4050 67751 6717 74786 48526 13666 12594 108780 62686 43799 2295 218972 213171 5801 5164 3351 943 870 PCORI AWARDS 54184 53292 892 MEDIA PRODUCTION SERVICES 53078 42100 1475 9503 MISCELLANEOUS 18350 6335 11972 43 EQUIPMENT RENTAL & MAINT. 12419 8887 1838 1694 58197 23652 23735 10810 3042797 2375675 458878 208244 3262621 1276342 288660 1003095 871374 432111 16347 20451 30467 30467 2184959 3848 3848 4442850 4920806 58525 47886 150000 194557 96110 120000 12777 9411 317412 371854 X 2483056 3591134 1642382 957818 4125438 4548952 4442850 4920806 538935 -115421 X false true X true false X 1796181 3407347 2459875 2727002 3294248 13684653 1796181 3407347 2459875 2727002 3294248 13684653 720284 12964369 251 403 654 11094 46483 57577 13742884 423223 0.94340 0.91450 X false false false false false false true 25000 false false 25000 false SCHEDULE C, PART II-B, LINE 1 THE LOBBYIST COORDINATED THE MEETINGS AND MESSAGING FOR OUR ANNUAL HILL DAY TO SUPPORT BLADDER CANCER AWARENESS MONTH. HE LED A TRAINING FOR OUR PATIENT ADVOCATES WHO JOINED US FROM AROUND THE COUNTRY FOR THIS DAY ON THE HILL. 30467 30467 DEFERRED LEASE BENEFIT 9411 9411 X 3581732 3581732 3581732 3042797 3042797 3042797 SCHEDULE D, PAGE 3, PART X BCAN COMPLIES WITHE THE PROVISIONS OF THE FINANCIAL ACCOUNTING STANDARDS BOARD CODIFICATION TOPIC, ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. BCAN IS GENERALLY EXEMPT FROM FEDERAL INCOME TAX UNDER THE PROVISIONS OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. INCOME WHICH IS NOT REALTED TO EXEMPT PURPOSES, LESS APPLICABLE DEDUCTIONS, IS SUBJECT TO FEDERAL AND STATE INCOME TAXES. FOR THE YEARS ENDED DECEMBER 31, 2018 AND 2017, NO UNRECOGNIZED TAX BENEFIT OR LIABILITY EXISTS. AT DECEMBER 31, 2018, TAX YEARS 2015 THROUGH 2017 REMAIN SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES. false RESEARCH 7 1228509 SCHEDULE I, PAGE 1, PART I, LINE 2 FOR A 24 MONTH GRANT PERIOD: THE RECIPIENTS ARE REQUIRED TO SUBMIT AN ANNUAL WRITTEN SUMMARIES TO BCAN DOCUMENTING THE PROGRESS MADE IN CONNECTION WITH THE GRANT. X X X false false false false false false false false false ANDREA MADDOX-SMITH CEO 225435 225435 FORM 990, PAGE 2, PART III, LINE 4A RESEARCH - BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. RECOGNIZING THE OVERWHELMING NEED FOR RESEARCH FUNDING, BCAN HAS ENGAGED A NEW GENERATION OF RESEARCHERS WITH THE YOUNG INVESTIGATOR RESEARCH AWARDS, AND IN 2018 GRANTED THREE AWARDS. IN ADDITION, BCAN SUPPORTS EXCEPTIONALLY NOVEL AND CREATIVE PROJECTS WITH GREAT POTENTIAL TO PRODUCE BREAKTHROUGHS IN THE MANAGEMENT OF BLADDER CANCER THROUGH ITS BLADDER CANCER RESEARCH INNOVATION AWARD, A 300,000 GRANT AWARDED OVER TWO-YEARS. TO ENCOURAGE GREATER COLLABORATION AMONG BLADDER CANCER RESEARCHERS, BCAN LAUNCHED THE BLADDER CANCER GENOMICS CONSORTIUM (BCGC), A COLLABORATIVE EFFORT BETWEEN BCAN AND MAJOR MEDICAL CENTERS, WITH THE GOAL OF DEVELOPING AN ENRICHED UNDERSTANDING OF THE GENOMIC PROFILE OF BLADDER CANCER TO FACILITATE THE DEVELOPMENT OF NOVEL THERAPEUTICS. THE FIRST RESEARCH PROJECT IS UNDERWAY WHICH FOCUSES ON PATIENTS WITH METASTATIC DISEASE, AN AREA IN GREAT NEED OF IMPROVED TREATMENTS. BCAN HAS INVESTED 2.3 MILLION FROM PRIVATE PHILANTHROPY TO SUPPORT THE STUDY MANAGEMENT, SUPPORT SERVICES, AND GENOMIC SEQUENCING REPORTING - COSTS WHICH ARE OFTEN A BARRIER TO PERSONALIZED CARE FOR PATIENTS. WITH THE LAUNCH OF BCGC, BCAN HAS NOW INVESTED MORE THAN 3 MILLION IN BLADDER CANCER RESEARCH. FORM 990, PAGE 2, PART III, LINE 4B EDUCATION AND INFORMATION - BCAN HOSTS A VARIETY OF EDUCATIONAL PROGRAMS AND PUBLISHES PRINTED MATERIALS TO EDUCATE THOSE COPING WITH A BLADDER CANCER DIAGNOSIS. NOW IN ITS SECOND PRINTING, BCAN'S COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," HAS BEEN PROVIDED TO THOUSANDS OF SURVIVORS, CAREGIVERS, UROLOGY PRACTICES, AND CANCER CENTERS ACROSS THE UNITED STATES. THE PATIENT INSIGHT WEBINAR SERIES IS AN INTERACTIVE WEB PROGRAM THAT ADDRESSES A VARIETY OF ISSUES FROM CLINICAL TRIALS TO LIVING WITH URINARY DIVERSION. THE WEBINARS FEATURE TOP EXPERTS IN THEIR FIELD AND ADDRESS PATIENT CONCERNS IN AN EASY FORMAT. BCAN CONNECTION, AN INFORMATION AND REFERRAL LINE PROVIDING PRACTICAL RESOURCES FOR THOSE COPING WITH A BLADDER CANCER DIAGNOSIS IS STAFFED BY COMMUNITY VOLUNTEERS. THE SURVIVOR 2 SURVIVOR PROGRAM CONNECTS NEWLY DIAGNOSED PATIENTS WITH SURVIVORS WITH A SIMILAR DIAGNOSIS. FORM 990, PAGE 2, PART III, LINE 4D WALK FOR BLADDER CANCER - THE WALK FOR BLADDER CANCER IS AN AWARENESS INITIATIVE IN MAY THAT UNITES BLADDER CANCER SURVIVORS, LOVED ONES, AND THE MEDICAL COMMUNITY TO PROMOTE RECOGNITION AND UNDERSTANDING OF THE DISEASE. IN 2018, THIS COMMUNITY EVENT WAS IN OVER 25 COMMUNITIES ACROSS THE COUNTRY. NATIONAL IN SCOPE, THE WALK TO END BLADDER CANCER REACHED MORE THAN 600,000 THROUGH THE WALK AWARENESS CAMPAIGN. THE EVENT INCLUDES A HEALTH WALK, SURVIVOR RECOGNITION AND EDUCATION ABOUT THE SIGNS AND SYMPTOMS OF BALDDER CANCER. MANY WALK PARTICIPANTS ALSO RAISE FUNDS TO SUPPORT BCAN'S MISSION PROGRAMS. THE WALK FOR BLADDER CANCER IS HELD IN MAY AS PART OF BLADDER CANCER AWARENESS MONTH. ADVOCACY - AS THE VOICE FOR THE PATIENT COMMUNITY, BCAN PARTICIPATES IN COALITIONS AND WORKS WITH OTHER MEMBERSHIP GROUPS TO WEIGH IN ON POLICY ISSUES THAT DIRECTLY IMPACT THOSE LIVING WITH BLADDER CANCER. THROUGH ITS ANNUAL BLADDER CANCER LEADERSHIP SUMMIT, BCAN PROVIDES PARTICIPANTS WITH THE OPPORTUNITY TO BUILD CONNECTIONS, IDENTIFY BLADDER CANCER STATE AND NATIONAL LEGISLATIVE ISSUES OF IMPORTANCE, AND LEARN BEST PRACTICIES FOR RAISING AWARENESS OF BLADDER CANCER WITHIN COMMUNITIES. FORM 990, PAGE 6, PART VI, LINE 11B PRIOR TO FILING, THE FORM 990 IS REVIEWED BY MANAGEMENT AND THE TREASURER OF THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. FORM 990, PAGE 6, PART VI, LINE 15A TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTORS SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 15B BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PAGE 6, PART VI, LINE 17 VIRGINIA, WASHINGTON, GEORGIA FORM 990, PAGE 6, PART VI, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG