2019-05-15T10:34:52-05:00 2016-12-31 042523269 DeJordy Dugre Croteau & Co PC 727 Grattan Street Chicopee MA 01020 990 2016-01-01 452284811 Li Fraumeni Syndrome Association Inc LIFR 7742660503 PO Box 6458 Holliston MA 01746 Jennifer Perry President 7742660503 2019-05-15 1 Joseph Croteau Jr CPA P00001558 4135360666 2019-05-03 66.189.135.178 2019-05-15 11:34:35 ED P 86E9932BC6106CC8C7177878CF0C31525FFAE154 8C7D9C83157F8044108E2F20EFA535CC2169DF9A 2016 2019-02-21 02:37:17Z Jennifer Perry 196 Fletcher Circle Chicopee MA 01020 734506 0 X http://www.lfsassociation.org X 2011 MA Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 10 10 0 0 52 0 54857 704624 12457 29830 0 52 0 0 67314 734506 36450 127600 0 0 0 0 0 0 21562 27638 161823 64088 289423 3226 445083 73307 518390 0 0 73307 518390 X Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 0 0 66132 In 2016, LFSA organized and financially supported the third annual LFSA Conference in Ohio wherein lending researchers, providers, genetic counselors, patients and their families from all over the world shared LFSA experiences and information on the most recent LFSA cancer research, screening protocols, potential treatments, and survivorship issues. The LFSA provided patient travel scholarships for those who could otherwise not afford to attend and funded conference events and materials. 100000 100000 In 2016, the LFSA provided funding for early cancer detection surveillance and screening for 17 LFS children, as well as continued funding for the landmark LFS patient family tracking database and for groundbreaking cancer research conducted at the University of Utah utilizing the p53 genes of elephants. 27600 27600 In 2016, the LFSA was able to provide additional camper scholarships for more children to attend summer camp and for additional families with cancer to attend family weekends at camps that specialize in children with cancer and other serious life-threatening diseases. 193732 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 MA X Michele Giovenelli 6176337188 1789 Great pong Rd North Andover MA 01845 X Jennifer Perry President/Co- Founder 20.00 X 0 0 0 Susan Faulkner Vice President 40.00 X 0 0 0 John Berkeley Co-Founder 5.00 X 0 0 0 Robert Lufkin Scientific & Medical Advisor/Co-Founder 10.00 X 0 0 0 Debra Soprano Marketing Chair/Co-Founder 20.00 X 0 0 0 Dunyelle Rosen Legal Advisor 5.00 X 0 0 0 Holly Fraumeni Chief Executive Assistant to the President 20.00 X 0 0 0 Charlie Newcomb Board of Director 5.00 X 0 0 0 Michele Giovenelli Treasurer 5.00 X 0 0 0 0 0 0 0 0 0 0 0 704624 704624 Fudraising 813219 29830 29830 29830 52 52 734506 29830 52 0 127600 127600 7179 7179 11357 11357 22312 22312 18477 18477 1100 1100 28434 17805 10629 48327 48327 123 123 Fundraising Expenses 21562 21562 Credit Card Processing 1429 1429 Shipping 674 674 Meals 508 508 341 341 289423 193732 74129 21562 72589 117743 400052 862 267 718 595 73307 518390 0 0 X 0 0 0 0 73307 518390 73307 518390 73307 518390 445083 0 X 0 0 0 X 1026 40663 156553 54857 704623 957722 1026 40663 156553 54857 704623 957722 957722 957722 59972 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 862 267 595 595 0 Huntsman Cancer Institute - University of Utah 500 S HUNTSMAN WAY SALT LAKE CITY UT 84108 870541293 100000 SUPPLEMENTAL FUNDING IN ORIGINAL LSFA GRANT EXPLORING P53 THERAPY AND PREVENTION Dana Farber Cancer Institute 450 BROOKLINE AVE BOSTON MA 02215 042263040 20000 CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP Hole in the Wall Gang Fund Inc 555 LONG WHARF DR NEW HAVEN CT 06511 061157655 5500 CAMPER SCHOLARSHIP FOR CHILDREN TO ATTEND SUMMER CAMP 3 3 Form 990, Part VI, Section B, line 11b Upon Request Form 990, Part VI, Section C, line 19 Upon Request