2019-11-15T10:09:40-06:00 2018-12-31 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2018-01-01 136193105 Crohn's & Colitis Foundation Inc % RONALD GOLDSMAN VP FINANCE CROH 8009322423 733 Third Avenue Suite 510 New York NY 10017 RONALD GOLDSMAN VP OF FINANCE 2126843440 2019-11-15 true Scott Thompsett P00741490 2125990100 2019-11-14 65.229.27.130 26377520193195000008 2019-11-15 P 7D14034AF515942D2ABE7F7E27EA16D2649DB046 EC04472C4354A73BB82F112BB2A1FD4DB47A0F07 2018 2020-03-31 21:24:44Z Michael Osso President 733 Third Avenue new york NY 10017 85055511 false X www.crohnscolitisfoundation.org X 1967 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 26 26 415 5372 0 131061 71431094 67009903 647385 4834276 2284263 778119 1477404 1264933 75840146 73887231 29169694 24952189 0 0 27163542 29781678 480127 456679 4718891 18851041 18458329 75664404 73648875 175742 238356 46776925 46583088 36200067 37528315 10576858 9054773 X FOR FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). true false 28451589 24952189 4330414 SINCE ITS INCEPTION, THE FOUNDATION HAS BEEN FIRMLY COMMITTED TO FUNDING RESEARCH THAT HAS THE POTENTIAL TO CHANGE THE LIVES OF PEOPLE WITH IBD. -COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). THERE ARE TWO MAIN RESEARCH CATEGORIES. BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT IS THE UNDERLYING CAUSE OF CROHN'S AND Ulcerative COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? ALTHOUGH BASIC RESEARCH IS COMPLEX AND CAN BE DIFFICULT FOR LAYPERSONS TO UNDERSTAND, THESE STUDIES WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH DETERMINES WHICH MEDICAL AND SURGICAL OPTIONS WORK BEST FOR PATIENTS. - THE FOUNDATION BRINGS TOGETHER PATIENTS, CAREGIVERS AND THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL), TO DESIGN EDUCATION PROGRAMS AND SET THE RESEARCH AGENDA. - THE FOUNDATION INVESTS IN HUMAN RESOURCES: IT TAKES 10 YEARS TO "BUILD" A FULL-FLEDGED, SENIOR INVESTIGATOR. TO MAKE SURE THAT THE MOST TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, THE FOUNDATION PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM THE FOUNDATION EARLY IN THEIR CAREERS. - THE FOUNDATION SETS THE RESEARCH AGENDA: THE FOUNDATION BRINGS TOGETHER THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL) TO DEVELOP AND UPDATE OUR STRATEGIC PLAN FOR RESEARCH "CHALLENGES IN IBD RESEARCH". 30608111 0 503862 THE FOUNDATION PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN 3 MILLION IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS (TAKE CHARGE, UNDER THE MICROSCOPE), BOOKS, AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. THE FOUNDATION ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. REVENUES REPORTED AS PROGRAM SERVICE REVENUE OF $284,995 REPRESENTS CAMP REGISTRATION FEES FOR WORKSHOPS/CAMP PROGRAMS RUN FOR CHILDREN AND FAMILIES AFFECTED BY EITHER CROHN'S DISEASE OR COLITIS. THE FOUNDATION SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 300 SUPPORT GROUPS ANNUALLY, SUMMER CAMPS FOR CHILDREN WITH IBD, AND A RANGE OF EDUCATIONAL AND TRAINING PROGRAMS FOR LOCAL COMMUNITIES. READ MORE ABOUT THE FOUNDATION'S CHAPTERS ON ITS WEBSITE OR VIEW ITS WEBCASTS. 59059700 true true false true false false false false false false true false false false true true true false false false true true false true true true false true false true false false false false false false false false true false false false false false false false false true 419 0 true 415 true true true false false false false true true false false false false false false X 26 26 true false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN VP FINANCE 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Michael Osso Prsident/CEO(non-voting) 35.0 0.0 X X 443197 0 87295 Donald Burke Treasurer (THRU 03/2018) 1.0 0.0 X X 0 0 0 Scott Snapper MD NSAC Chair (thru 03/2018) 1.0 0.0 X X 0 0 0 Vance Gibbs ESQ Chairman (Thru 03/2018) 1.0 0.0 X X 0 0 0 Andrew Stern Secretary 1.0 0.0 X X 0 0 0 Alessandro DiNello Trustee 1.0 0.0 X 0 0 0 Alex Funderburg Trustee 1.0 0.0 X 0 0 0 Amber Backhaus Trustee 1.0 0.0 X 0 0 0 Rep Ander Crenshaw Trustee 1.0 0.0 X 0 0 0 Bishop Walter Scott Thomas Trustee (Thru 03/2018) 1.0 0.0 X 0 0 0 Brent Polk MD as of 032018 Trustee/NSAC Chair 1.0 0.0 X 0 0 0 Christopher Collette Trustee 1.0 0.0 X 0 0 0 Cindi Roth Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 David Rubin MD Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 David Levenson Trustee (Thru 03/2018) 1.0 0.0 X 0 0 0 Donald Kortz Trustee 1.0 0.0 X 0 0 0 Eric Stone Trustee 1.0 0.0 X 0 0 0 Frank Russomano Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 Jason Burr Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 Jennifer O'Neill Trustee 1.0 0.0 X 0 0 0 Jodi Yellen Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 Joe Monk Trustee (As of 03/2018) 1.0 0.0 X 0 0 0 Joel Rosh MD Trustee 1.0 0.0 X 0 0 0 John Crosson Chairman (as of 03/2018) 1.0 0.0 X X 0 0 0 Joseph Nemmers Trustee (Thru 03/2018) 1.0 0.0 X 0 0 0 Marcy Beth Nanus Trustee 1.0 0.0 X 0 0 0 Maria Oliva-Hemker MD Trustee 1.0 0.0 X 0 0 0 Mark Murray PhD Trustee 1.0 0.0 X 0 0 0 Matt Leavitt Trustee (Thru 03/2018) 1.0 0.0 X 0 0 0 Michele Kissous-Hunt Trustee 1.0 0.0 X 0 0 0 Noel Brown Trustee 1.0 0.0 X 0 0 0 Paula Hilbert Trustee 1.0 0.0 X 0 0 0 Robert Van Pulley Treasurer (as of 03/2018) 1.0 0.0 X X 0 0 0 Shelby Modell Co-Founder/Trustee 1.0 0.0 X 0 0 0 Robert Territo CFO/COO 35.0 0.0 X 275557 0 15174 Sheri Markus-Kennell SVP, Business Development 35.0 0.0 X 188022 0 16372 Caren Heller Chief Science Officer 35.0 0.0 X 369988 0 13750 Michael Elkow Chief Field Officer 35.0 0.0 X 249570 0 22879 Marie Granieri CMO (Thru 04/2018) 35.0 0.0 X 171064 0 4570 Allison Coffey Chief Development Officer 35.0 0.0 X 190736 0 11102 Rohit Suri Chief Technology officer 35.0 0.0 X 238136 0 9952 Kimberly Frederick-Snapper Regional Director 35.0 0.0 X 191236 0 11037 Jennifer Fagerstrom VP, Chapter Growth and Develop 35.0 0.0 X 186167 0 16833 Kristin Kaplan VP, Special Events 35.0 0.0 X 176471 0 18464 Robert Bryan VP, Chapter Growth and Develop 35.0 0.0 X 167854 0 7444 Jack Matarasso VP Digital Marketing 35.0 0.0 X 166614 0 7012 3014612 0 241884 47 false true false Deloitte Consulting LLP 4022 belle drive HERMINTAGE TN 37076 IBD Plexus 1412558 Blackbaud PO Box 930256 ATLANTA GA 311930256 DONOR DATABASE 1195412 International Business Machines Cor north castle drive ARMONK NY 10504 IBD Plexus 1074578 CHARITY DYNAMICS LLC 4031 GUADALUPE ST AUSTIN TX 78751 MARKETING 700523 BLUE WOLF GROUP LLC 11 E 26th St 21st FL NEW YORK NY 10010 IBD Plexus 605000 25 1355181 28695625 418583 36540514 522455 67009903 EDUCATION & CAMP REGISTRATION FEES 900099 503862 503862 IBD PLEXUS DATABASE ACCESS FEES 900099 4330414 4330414 4834276 302943 302943 0 312439 312439 0 0 0 4027139 3551963 475176 475176 475176 7371177 28965625 7567289 -196112 -196112 245140 49028 196112 196112 0 0 0 VEHICLE DONATION PROGRAM 900099 57422 57422 CLUBS AND ORGANIZATIONS 900099 2298 2298 MISCELLANEOUS INCOME 900099 892774 892774 952494 73887231 4834276 2043052 23469053 23469053 0 1483136 1483136 0 2257365 1552115 477136 228114 0 20919189 14383577 4421658 2113954 875982 602306 185155 88521 3969240 2729163 838972 401105 1759902 1210070 371988 177844 0 179995 46659 129878 3458 112091 91198 14135 6758 395930 395930 456679 456679 0 7024213 6935301 28960 59952 746217 465345 190024 90848 776264 490924 193046 92294 1707956 1024805 607209 75942 0 1889316 1175884 482671 230761 2053893 1322832 494598 236463 0 728608 728608 0 0 655211 435249 148815 71147 357435 228670 87116 41649 GRANTS REFUNDED/RESCINDED -1176002 -1176002 PUBLICATIONS 873459 549937 218878 104644 MISCELLANEOUS 2133743 1310870 584115 238758 73648875 59059700 9870284 4718891 0 0 14927797 12585946 8530763 10120199 0 0 0 0 0 0 0 0 573074 598670 1177935 3337082 6660665 4620753 1921269 2039912 17091594 16317981 1051151 911857 0 0 0 0 1503342 671441 46776925 46583088 2883755 5219133 30500567 27522249 2193135 4167778 0 0 0 0 0 0 0 0 0 0 622610 619155 36200067 37528315 X -150068 -2111482 10726926 11166255 0 0 10576858 9054773 46776925 46583088 X 238356 -1568469 -191972 X false true X true false X 60902280 65605925 68702957 71431094 67009903 333652159 0 0 60902280 65605925 68702957 71431094 67009903 333652159 45532361 288119798 625821 650124 718756 685976 615382 3296059 48092 0 295805 0 0 343897 7546390 6677304 6852687 7441563 8568811 37086755 374378870 8101011 0.76959 0.76036 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false true false false true 249058 false true 146872 395930 false Schedule C, Part II-B, Line 1(i) iN 2018, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES of professional consultants to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED DURING THE CALENDAR YEAR 2018, FOR WHICH EXPENSES INCURRED WERE $108,348. EXPENDITURES OF $108,348 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $108,348 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING). The Foundation engages in state-based advocacy campaigns ensuring the needs of patients are being addressed through legislation that targets the cost of health care and access and ensures access to care and treatment with the ultimate goal of improving the quality of life for our patients. Total payments made in Calendar Year 2018 were $121,809. 476504 256229 220275 2718281 1824552 893729 3465880 2539972 925908 2039912 0 REINSURANCE CONTRACTS 240848 DEFERRED RENT 378307 619155 X 80455394 -1568469 8140353 -3721 6568163 73887231 73887231 81977479 8140353 188251 8328604 73648875 73648875 Reconciliation of Revenue Part XI, Line 2d Changes in Charitable Remainder Trusts: $(3,721) RECONCILIATION OF EXPENSES PART XII, LINE 2D Uncollectible Pledges: $188,251 Income Taxes Part X The Foundation is a not-for-profit voluntary health organization exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the "Code") and has been classified as a publicly supported charitable organization under Section 509(a)(1) of the Code and qualifies for the maximum charitable contribution deduction by donors. Contributions to the Foundation are tax deductible within the limitations prescribed by the Code. The Foundation is also exempt from state and local taxes under similar statutes. Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. true Europe (Including Iceland and Greenland) 0 0 Grantmaking research 1057069 North America 0 0 Grantmaking research 332123 Middle East and North Africa 0 0 Grantmaking research 47627 East Asia and the Pacific 0 0 Grantmaking rsearch 46317 0 0 0 0 1483136 1483136 Europe (Including Iceland and Greenland) Broad Foundation 32500 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 115571 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 92800 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 51120 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 144413 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 28941 BANK WIRE 0 North America Research 82500 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 39941 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 22352 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 30113 BANK WIRE 0 Europe (Including Iceland and Greenland) Research 163000 BANK WIRE 0 Europe (Including Iceland and Greenland) Senior Research Award 48957 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 27954 BANK WIRE 0 Middle East Broad Foundation 47627 BANK WIRE 0 North America Senior Research Award 86873 BANK WIRE 0 North America Senior Research Award 162751 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 30360 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 31750 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 55000 BANK WIRE 0 East Asia and the Pacific Broad Foundation 46317 BANK WIRE 0 Europe (Including Iceland and Greenland) Broad Foundation 142300 BANK WIRE 0 21 false false false false false false Grants Part I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X X X true chapman cubine and hussey 2000 15th St Ste 550 Arlington VA 22201 direct mail false 4347657 454988 3892668 4347657 454988 3892668 AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS NE NH NJ NY NC ND OH OK OR PA RI SC TN TX UT VT VA WA WV WI WY TAKE STEPS 10821853 9261431 1560422 694028 21501 844893 TEAm CHALLENGE 5957577 4695907 1261670 354321 907349 125 19287372 14738287 4549085 3352249 36023 1356925 36066802 28695625 7371177 4400598 57524 3109167 7567289 -196112 245140 49028 false 245140 49028 49028 196112 AR CA CT FL GA IL IN MA MI MN NJ NY NC OH PA TX WA true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - GAMING ACTIVITIES The Crohn's & Colitis Foundation, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only twenty-six chapters held raffles in seventeen states: Arkansas, California, Connecticut, Florida, Georgia, Illinois, Indiana, Massachusetts, Michigan, Minnesota, New Jersey, New York, North Carolina, Ohio, Pennsylvania, Texas, Washington. true ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVE ALBANY NY 12208 141338310 501(c)(3) 58250 0 Research ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVE BRONX NY 10461 131624225 501(c)(3) 35000 0 Research BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM 320 HOSTON TX 77030 741613878 501(c)(3) 137500 0 Research BAYLOR RESEARCH INSTITUTE 3310 LIVE OAK SUITE 501 DALLAS TX 75204 751921898 501(c)(3) 82231 0 Research BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVE BOSTON MA 02215 042103881 501(c)(3) 137873 0 Research BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 21 N PARK ST STE 6401 MADISON WI 53715 396006492 501(c)(3) 81670 0 Research BRIGHAM AND WOMEN'S HOSPITAL 75 FRANCIS ST BOSTON MA 02115 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0 Research STONY BROOK UNIVERSITY 3100 cathedral-lrng PITTSBURGH PA 15260 141368361 501(c)(3) 90000 0 Research SUNY UPSTATE MEDICAL UNIVERSITY 750 E ADAMS ST SYRACUSE NY 13210 146013200 501(c)(3) 10932 0 Research TEMPLE UNIVERSITY 1852 N 10TH ST PHILADELPHIA PA 19122 231365971 501(c)(3) 172578 0 Research THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND 800 EAST COMMERCE RD HARAHAN LA 70123 720423889 501(c)(3) 12441 0 Research THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLONOI 809 S MARSHFIELD AVE CHICAGO IL 60612 376000511 501(c)(3) 57915 0 Research THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 042312909 501(c)(3) 182985 0 Research THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER PHILADELPHIA PA 19104 231352166 501(c)(3) 251167 0 Research THE NASPGHAN FOUNDATION 714 N BETHLEHEM PIKE AMBER PA 19002 760585072 501(c)(3) 37500 0 Research THE PENNSYLVANIA STATE UNIVERSITY 227 W BEAVER AVE STATE COLLEGE PA 16801 246000376 501(c)(3) 14785 0 Research THE 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Research 80 Grants Part I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X true true false false false false false true false Michael Osso Prsident/CEO(non-voting) 403197 0 40000 0 0 0 82250 0 5045 0 530492 0 0 0 Robert Territo CFO/COO 264213 0 11344 0 0 0 14580 0 594 0 290731 0 0 0 Sheri Markus-Kennell SVP, Business Development 188022 0 0 0 0 0 11372 0 5000 0 204394 0 0 0 Caren Heller Chief Science Officer 350377 0 19611 0 0 0 13750 0 0 0 383738 0 0 0 Michael Elkow Chief Field Officer 238886 0 10684 0 0 0 12381 0 10498 0 272449 0 0 0 Marie Granieri CMO (Thru 04/2018) 74806 0 0 0 96258 0 4472 0 98 0 175634 0 0 0 Allison Coffey Chief Development Officer 185486 0 5250 0 0 0 11102 0 0 0 201838 0 0 0 Rohit Suri Chief Technology officer 238136 0 0 0 0 0 1250 0 8702 0 248088 0 0 0 Kimberly Frederick-Snapper Regional Director 184116 0 7120 0 0 0 11037 0 0 0 202273 0 0 0 Jennifer Fagerstrom VP, Chapter Growth and Develop 181573 0 4594 0 0 0 8679 0 8154 0 203000 0 0 0 Kristin Kaplan VP, Special Events 169605 0 6866 0 0 0 10603 0 7861 0 194935 0 0 0 Robert Bryan VP, Chapter Growth and Develop 167854 0 0 0 0 0 7444 0 0 0 175298 0 0 0 Jack Matarasso VP Digital Marketing 166614 0 0 0 0 0 7012 0 0 0 173626 0 0 0 COMPENSATION SCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATION, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION WILL COMMISSION ITS NEXT STUDY IN 2020. Part I, Line 4A Marie Granieri, Chief Marketing Officer, received severance totaling $96,258, which is reported on Schedule J, Part II, Column (B) (III). Part I, Line 4B The Foundation instituted a Section 457(f) nonqualified deferred compensation plan for the benefit of the President/CEO, Michael Osso, in 2018. The agreement allows for annual contributions to be made based on meeting pre-determined objectives. In 2018, the Foundation credited $50,000 to the President/CEO which has been reflected in Schedule J, Part II, Column C. No amount was actually paid to the CEO during the year under this agreement, as the terms of the agreement have not yet been satisfied. Incentive Program Schedule J, Part I, Line 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals. X 82 522455 Market Price false true true Form 990, Part III, Line 2 On October 2, 2017, the Foundation launched IBD Plexus, a first-of-its-kind information exchange platform housing data from thousands of patients participating in four of the Foundation's cohort groups - IBD Qorus, RISK pediatric, SPARC IBD, and IBD Partners. Patients have contributed millions of data points, which are now accessible from a single location. IBD Plexus allows investigators to more rapidly access key information for research purposes. After completion of a written proposal, individual members of the program receive access to biosamples and raw data. THE PLATFORM IS EXPECTED TO CUT YEARS OFF THE RESEARCH PROCESS AND WILL DRAMATICALLY ACCELERATE THE PACE OF SCIENTIFIC INVESTIGATION. Although the IBD Plexus program commenced in 2017, it became a significant programmatic activity in 2018. Relationships PART VI, SECTION A, LINE 2 Board member Scott Snapper, who completed his term on the board in March, 2018, and highly compensated employee Kimberly Frederick-Snapper have a family relationship. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the audit committee for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with THE FOUNDATION. THE FOUNDATION monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic location, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. The Foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation THE FOUNDATION pays to its employees with compensation paid to employees of other not for profit organizations of similar size. Availability of documents to the public part vi, section C, line 19 The foundation makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.CROHNSCOLITISFOUNDATION.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation ("THE FOUNDATION") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to THE FOUNDATION nor does THE FOUNDATION have ownership rights to them. In 2018, THE FOUNDATION received $57,422 in revenues from this program. Additionally, THE FOUNDATION receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of THE FOUNDATION's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, THE FOUNDATION has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2018, contributed services and airtime amounted to $8,140,353. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts: ($3,721) Uncollectible Pledges: ($188,251) TOTAL TO PART XI, LINE 9: ($191,972)