2019-11-15T08:35:13-06:00 2018-12-31 042523269 DeJordy Dugre Croteau & Co PC 727 Grattan Street Chicopee MA 01020 990 2018-01-01 452284811 Li Fraumeni Syndrome Association Inc LIFR 7742660503 PO Box 6458 Holliston MA 01746 Jennifer Perry President 7742660503 2019-11-14 1 Joseph Croteau Jr CPA P00001558 4135360666 2019-11-14 66.189.135.178 2019-11-14 13:19:46 ES P 61C1619D0D58C96C048E85DB421857CEF4C534BA 61C1619D0D58C96C048E85DB421857CEF4C534BA 2018 2020-03-31 21:24:44Z Jennifer Perry 196 Fletcher Circle Chicopee MA 01020 309495 0 X http://www.lfsassociation.org X 2011 MA Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 11 11 0 0 42 0 202514 309453 0 0 185 42 0 0 202699 309495 0 0 0 0 0 0 0 0 19795 371102 636063 371102 636063 -168403 -326568 355109 28541 0 0 355109 28541 X Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. 0 0 157276 80000 In 2018, LFSA organized and financially supported the fourth international LFSA Conference in Toronto, Canada wherein lending researchers, providers, genetic counselors, patients and their families from all over the world shared LFSA experiences and information on the most recent LFSA cancer research, screening protocols, potential treatments, and survivorship issues. The LFSA provided patient travel scholarships for those who could otherwise not afford to attend and funded conference events and materials. 6688 In 2018, LSFA opened 2 new international LFSA chapters. These chapters were created with a medical professional and a patient/key volunteer to bring the LFSA structure of support, education, and programs that are uniquely designed and developed for their specific country and culture. LFSA designed web landing pages on their main site for each chapter that is deisgn to represent their patrient community in their country. 7912 Education and awareness campaign which inluded 6 trade shows, Rare Disease week in Washington DC where LFSA spoke with many legislators, and international and national family conferences that were attended and LFSA spoke at. 171876 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 MA X Michele Giovenelli 6176337188 1789 Great Pond Rd North Andover MA 01845 X Jennifer Perry President/Co- Founder 25.00 X 0 0 0 Holly Fraumeni Vice President 25.00 X 0 0 0 Charlie Newcomb Secretary 1.00 X 0 0 0 Michele Giovenelli Treasurer 2.00 X 0 0 0 0 0 0 0 0 0 0 0 309453 39347 309453 42 42 309495 0 42 0 X 195699 157276 38423 206732 206732 2589 2589 165913 165913 9866 7912 1954 123 123 WEBSITE EXPENSE 20421 6688 13733 Fundraising Expenses 19795 19795 Shipping 4687 4687 PRINTING AND BROCHURE F 4139 4139 6099 6099 636063 171876 444392 19795 129401 22170 225236 6022 862 513 472 349 355109 28541 0 0 X 0 0 0 0 355109 28541 355109 28541 355109 28541 -326568 0 X 0 0 0 X 156553 54857 704623 202514 270106 1388653 156553 54857 704623 202514 270106 1388653 1388653 1388653 59972 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 862 513 349 349 X Services 1 39347 Per Invoice received 0 0 0 Form 990, Part VI, Section B, line 11b Upon Request Form 990, Part VI, Section C, line 19 Upon Request Form 990, Part IX, line 11g Grant Writing Consultant: Program service expenses 0. Management and general expenses 38,423. Fundraising expenses 0. Total expenses 38,423. Patient Grants and Scholarships: Program service expenses 157,276. Management and general expenses 0. Fundraising expenses 0. Total expenses 157,276.