2019-11-15T14:15:36-06:00 2018-12-31 870343246 SQUIRE & COMPANY PC 215 S STATE ST STE 850 SALT LAKE CITY UT 841112380 990 2018-01-01 455354811 CROWDCARE FOUNDATION CROW 8019491034 3315 MAYFLOWER AVE SUITE 2 LEHI UT 84043 JENNIFER AHLSTROM PRESIDENT 8019491034 2019-11-14 true GREGORY O HYDE P00641196 8015330409 2019-11-15 97.75.179.98 2019-11-15 14:15:36 CS P BCDF9C35DC89E9A228DAE9B4952E3ACF2277F812 C6140072BAE2C05826AA10858ED55CD74A222806 2018 2020-03-31 21:24:44Z X JENNIFER AHLSTROM 3315 MAYFLOWER DR 1 LEHI UT 84043 1322775 false X WWW.CROWDCARE.ORG X 2012 DE A PATIENT-CENTERED APPROACH TO HEALTHCARE INNOVATION FOR RARE CANCERS AND ORPHAN DISEASES. 6 5 9 4 0 982751 1231200 0 0 -61012 -88746 921739 1142454 80568 348441 0 30349 171109 0 14464 341999 977684 452916 1497234 468823 -354780 674440 326963 7918 15221 666522 311742 X A PATIENT-CENTERED APPROACH TO HEALTHCARE INNOVATION FOR RARE CANCERS AND ORPHAN DISEASES. false false 681195 148441 PATIENT ADVOCACY (PSA): WITH A PATIENT'S PERSPECTIVE, THE CROWDCARE FOUNDATION SOLVES COMMON PROBLEMS FOR PATIENTS WITH ORPHAN DISEASE USING PRACTICAL AND SIMPLE SOLUTIONS. THE MYELOMA CROWD (WWW.MYELOMACROWD.ORG) AND ALS CROWD (ALSCROWD.ORG) WEBSITES OFFER AGGREGATED INFORMATION AND THE LATEST NEWS AND INFORMATION FOR EACH DISEASE COMMUNITY. ADDITIONALLY WE PROVIDE ONLINE SUPPORT GROUPS FOR EACH COMMUNITY FOR PATIENTS TO SHARE CRITICAL INFORMATION ABOUT THEIR DISEASE. 219515 200000 SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWDCARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING TWO IMMUNOTHERAPY PROJECTS: DR. HERMANN EINSELE AND DR. MICHAEL HUDECEK AT THE UNIVERSITY OF WURZBURG AND DR. IVAN BORRELLO AT JOHNS HOPKINS. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. 524578 DATA SOLUTIONS (DS): THE MYELOMA CROWD LAUNCHED THE HEALTHTREE DATA SOLUTIONS INITIATIVE AS A DECISION TREE SUPPORT TOOL FOR PATIENTS. THIS INITIATIVE WILL SERVE AS BOTH A PATIENT EDUCATION AND RESEARCH TOOL. TODAY THERE ARE A WIDE VARIETY OF AVAILABLE TREATMENT OPTIONS FOR MYELOMA PATIENTS. KNOWING HOW TO BEST STAGE AND TIME THESE OPTIONS IS BOTH AN ART AND SCIENCE. WITH INPUT FROM TOP MYELOMA EXPERTS, THE POSSIBLE TREATMENT COMBINATIONS WILL BE IDENTIFIED AND PRESENTED TO PATIENTS. AS THEY USE THE TOOL, IMPORTANT PATIENT DATA WILL BE GATHERED, HELPING RESEARCHERS IDENTIFY NEW OPPORTUNITIES FOR CLINICAL TRIALS AND BEST PRACTICES. 1425288 true true false false false false false false false false true false false false false false false false false false false true false false true false false true false false false false false false false false false false true false false false false false false false false true 9 0 9 true false false false false false true false false false false false false false false false X 6 5 false false false false false false false true true false false true true true true false false false false false X JENNIFER AHLSTROM 8019491034 3315 MAYFLOWER AVE SUITE 2 LEHI UT 84043 SETH CHRISTENSEN BOARD MEMBER 8.00 X 0 0 0 OWEN LEGARE BOARD MEMBER 2.00 X 0 0 0 ANNE DRENNAN BOARD MEMBER 2.00 X 0 0 0 ADAM BLUM BOARD MEMBER 2.00 X 0 0 0 ALLYSE SHUMWAY SECRETARY TR 30.00 X 44000 0 0 JENNIFER AHLSTROM PRESIDENT 60.00 X 0 0 0 44000 false false false X 288371 942829 26475 1231200 91575 288371 180321 -88746 1142454 X 248441 248441 100000 100000 44000 32692 11308 127072 127072 37 37 1388 1388 5101 5101 905309 885140 20169 124 124 22295 10334 11961 12026 12026 12247 9128 3119 4701 4701 MCRI 9413 9413 NEWSLETTER 2944 2944 LIABILITY INSURANCE 2136 2136 1497234 1425288 57482 14464 669241 308909 27241 9187 5199 18054 674440 326963 7918 15221 7918 15221 X 666522 311742 666522 311742 674440 326963 -354780 X false false false X 94515 218003 636693 982751 1231200 3163162 94515 218003 636693 982751 1231200 3163162 1824811 1338351 3163162 98965 0.42310 0.62710 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4263 4080 183 22978 5107 17871 18054 EUROPE IMMUNOTHERAPY PROJ. 100000 WIRE TRANSFER 1 false false false false false false BURGUNDY BALL 147020 120295 26725 15919 900 30421 SWING FOR THE C 122559 66224 56335 4750 25637 424 44583 4 110367 101852 8515 2049 1890 2304 51444 379946 288371 91575 4750 2049 27527 18647 900 126448 180321 -88746 true OHIO STATE UNIVERSITY 660 ACKERMAN RD 6TH FLOOR COLUMBUS OH 43218 316025986 501C3 22503 MYELOMA RESEARCH OHIO STATE UNIVERSITY 660 ACKERMAN RD 6TH FLOOR COLUMBUS OH 43218 316025986 501C3 125938 MYELOMA RESEARCH OHIO STATE UNIVERSITY 660 ACKERMAN RD 6TH FLOOR COLUMBUS OH 43218 316025986 501C3 50000 MYELOMA RESEARCH MEMORIAL SLOAN KETTERING 1275 YORK AVENUE NEW YORK NY 10065 131924236 501C3 50000 MYELOMA RESEARCH 2 X 500 700 FAIR MARKET VALUE X GIFT CARDS 3 150 FAIR MARKET VALUE X CYCLING SUPPLIE 125 2250 FAIR MARKET VALUE X AUCTION ITEMS 37 23375 FAIR MARKET VALUE false false false FORM 990, PAGE 2, PART III, LINE 4B SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWDCARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING TWO IMMUNOTHERAPY PROJECTS: DR. HERMANN EINSELE AND DR. MICHAEL HUDECEK AT THE UNIVERSITY OF WURZBURG AND DR. IVAN BORRELLO AT JOHNS HOPKINS. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF THE RETURN IS PROVIDED TO BOARD MEMBERS VIA EMAIL. FORM 990, PAGE 6, PART VI, LINE 12C COVERED ANNUALLY VIA BOARD MEETINGS. FORM 990, PAGE 6, PART VI, LINE 19 CROWDCARE FOUNDATION HAS NOT MADE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, OR FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC. FORM 990, PART VIII PART VIII, LINE 8C - THE NET LOSS FROM FUNDRAISING EVENTS ON LINE 8C DOES NOT REFLECT THE CONTRIBUTION REVENUE PORTION OF THE ORGANIZATION'S FUNDRAISER RECEIPTS. THE CONTRIBUTION PORTION IS REPORTED ON LINE 1C AND SHOWN ON LINE 8A. TO SHOW THE TRUE ECONOMIC BENEFIT OF THE FUNDRAISERS CONDUCTED BY THE ORGANIZATION, THE CONTRIBUTION PORTION REVENUE IS INCLUDED IN THE GROSS RECEIPTS BELOW: GROSS RECEIPTS FROM ALL EVENTS 353,471 FAIR MARKET VALUE OF IN-KIND CONTRIBUTIONS 26,475 LESS: CASH EXPENSES OF EVENTS (153,846) NET ECONOMIC BENEFIT FROM FUNDRAISERS 226,100 FORM 990, PART IX, LINE 11G ASH 8,804 0 0 COMPUTERS 0 5,536 0 HEALTH TREE (DS) 396,278 0 0 MUSCLES FOR MYELOMA 374 0 0 MYELOMA COACH 34,242 0 0 MYELOMA CROWD MEETUPS (PSA) 108,359 0 0 MYELOMA CROWD RADIO (PSA) 19,391 0 0 MYELOMA CROWD RADIO (SCT) 19,391 0 0 MYELOMA CROWD ROUNDTABLES 185,329 0 0 MYELOMA CROWD WEBSITE DEVELOP 112,972 0 0 OUTSIDE CONTRACT SERVICES 0 14,633 0 TOTAL 885,140 20,169 0