2019-10-23T14:11:33-05:00 2018-12-31 521855942 TATE AND TRYON 2021 L STREET NW SUITE 400 WASHINGTON DC 20036 990 2018-01-01 811030889 PULMONARY HYPERTENSION CARE CENTERS INC PULM 3015653004 801 ROEDER ROAD NO 1000 SILVER SPRING MD 20910 BRAD A WONG PRESIDENT & CEO 3015653004 2019-10-23 1 R MICHAEL SORRELLS P00001737 2022932200 108.48.150.90 2019-10-23 14:11:30 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 0A779249EE4AB03D4EBCA877230ED83790B34DB8 2018 2020-01-14 16:20:31Z BRAD A WONG 801 ROEDER ROAD NO 1000 SILVER SPRING MD 20910 583483 0 X WWW.PHASSOCIATION.ORG/PHCARECENTERS/ X 2015 MD THE CORPORATION IS ORGANIZED AND SHALL BE OPERATED EXCLUSIVELY FOR THE BENEFIT OF, TO PERFORM THE FUNCTIONS OF, OR TO CARRY OUT THE PURPOSES OF PULMONARY HYPERTENSION ASSOCIATION, INC. ("PHA"). 9 9 0 34 0 0 506595 329483 168350 254000 0 0 103283 0 778228 583483 0 0 0 0 132659 184717 0 0 0 326307 370924 458966 555641 319262 27842 395904 420435 49085 45774 346819 374661 X THE CORPORATION IS ORGANIZED AND SHALL BE OPERATED EXCLUSIVELY FOR THE BENEFIT OF, TO PERFORM THE FUNCTIONS OF, OR TO CARRY OUT THE PURPOSES OF PULMONARY HYPERTENSION ASSOCIATION, INC. ("PHA"). 0 0 286363 PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR LEARNING MORE ABOUT RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSION-PAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSION-CTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. OVER TIME, PHAR WILL HELP RESEARCHERS EVALUATE TRENDS AND PRACTICE PATTERNS TO DETERMINE WHICH TREATMENTS WORK BEST. AT THE END OF 2018, THERE WERE 39 CENTERS PARTICIPATING AND 760 PATIENTS ENROLLED IN PHAR. 174198 254000 PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO PROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2018, THERE WERE 62 ACCREDITED CENTERS THAT COVERED AN ESTIMATED 13,600 PATIENTS NATIONWIDE. 460561 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 X 9 9 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MD X X T CHRISTOPHER FORBERG VICE PRESIDENT OF FINANCE 3015653004 801 ROEDER ROAD NO 1000 SILVER SPRING MD 20910 ANTON LAHNSTON SEC/TREAS(TO 10/18),CHAIR(BEG 10/18) 3.00 0.00 X X 0 0 0 JOEL WIRTH CHAIR-ELECT (BEG 10/18) 3.00 0.00 X X 0 0 0 WILLIAM HOFF TREASURER (BEG 10/18) 3.00 0.00 X X 0 0 0 ELIZABETH MIKLOS DIR. (TO 10/18), SEC (BEG 10/18) 3.00 0.00 X X 0 0 0 COLLEEN BRUNETTI DIRECTOR (BEG 10/18) 3.00 0.00 X 0 0 0 RICHARD CHANNICK VICE-CHAIR (THRU 10/18) 3.00 0.00 X X 0 0 0 KAREN FAGAN DIRECTOR (BEG 10/18) 3.00 0.00 X 0 0 0 WELDON GILBERTSON CHAIR (THRU 10/18) 3.00 0.00 X X 0 0 0 SALLY MADDOX DIRECTOR 3.00 0.00 X 0 0 0 ROGER TOWLE DIRECTOR (BEG 10/18) 3.00 0.00 X 0 0 0 DELPHINE YUNG DIRECTOR (BEG 10/18) 3.00 0.00 X 0 0 0 BRAD A WONG PRESIDENT & CEO 3.00 37.00 X 0 244898 14595 TORGRIM FORBERG VICE PRESIDENT OF FINANCE 3.00 37.00 X 0 136015 4106 0 380913 18701 0 0 1 0 UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DRIVE CHICAGO IL 60693 PROGRAM MANAGEMENT SERVICES 169167 1 9968 319515 329483 ACCREDITATION INCOME 900099 254000 254000 254000 583483 254000 0 0 X 158464 158464 3031 3031 23222 23222 95080 95080 247850 247850 2820 2820 9297 9297 12026 12026 2027 2027 DESIGN & PRINTING 1324 1324 LICENSES & REGISTRATION 500 500 555641 460561 95080 0 13124 40435 340000 380000 1179 0 41601 0 395904 420435 49085 45774 49085 45774 X 20275 62161 326544 312500 346819 374661 395904 420435 27842 0 X X 0 1 X 1 0 X X 1 PULMONARY HYPERTENSION ASSOCIATION INC 650880021 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 583483 0 583483 0 583483 555641 0 555641 0 555641 0 0 0 0 0 0 0 0 0 BRAD A WONG PRESIDENT & CEO 0 244898 0 0 0 0 0 7765 0 9425 0 262088 0 0 FORM 990, PART VI, SECTION A, LINE 4 THE PHCC, INC. BOARD OF DIRECTORS APPROVED THE FOLLOWING CHANGES TO ITS BYLAWS ON 8/18/18: ***NUMBER OF DIRECTORS***: THE CORPORATION SHALL HAVE AT LEAST (3) VOTING DIRECTORS, AND NOT MORE THAN (11) VOTING DIRECTORS AS DETERMINED BY THE BOARD. A MAJORITY OF THE ENTIRE BOARD OF DIRECTORS MAY ALTER THE NUMBER OF DIRECTORS SET BY THESE BYLAWS, BUT THE ACTION MAY NOT AFFECT THE TENURE OF ANY DIRECTOR. THE NUMBER OF DIRECTORS SHALL NOT INCLUDE EX-OFFICIO MEMBERS OF THE BOARD. ***COMPOSITION AND TERM OF OFFICE***: ALL DIRECTORS SHALL BE APPOINTED BY PHA USING PROCEDURES CONSISTENT WITH THE PROCEDURES USED TO NOMINATE/ELECT MEMBERS OF THE PHA BOARD OF TRUSTEES. (A) THE DIRECTORS SHALL CONSIST OF THE FOLLOWING INDIVIDUALS: (I) THE MEMBERS OF THE EXECUTIVE COMMITTEE OF PHA; (II) ONE (1) INDIVIDUAL THAT IS NOT A MEMBER OF THE PHA BOARD OF TRUSTEES OR AN EMPLOYEE OF PHA OR AN EMPLOYEE OF PHCC, OR ANY OTHER INDIVIDUAL HAVING A RELATIONSHIP WHICH, IN THE OPINION OF THE PHA BOARD OF TRUSTEES, WOULD INTERFERE WITH THE EXCERCISE OF INDEPENDENT JUDGEMENT IN CARRYING OUT THE RESPONSIBILITIES OF A DIRECTOR; (III) UP TO TWO (2) OTHER INDIVIDUALS WHO MAY OR MAY NOT BE MEMBERS OF THE PHA BOARD OF TRUSTEES; AND (IV) THE PRESIDENT/CEO, WHO SHALL BE A NON-VOTING, EX OFFICIO, DIRECTOR. FORM 990, PART VI, SECTION B, LINE 11B WE SET A SPECIAL MEETING (VIA CONFERENCE CALL) FOR OUR AUDIT COMMITTEE TO REVIEW IT WITH THE CPA FIRM THAT CONDUCTS OUR ANNUAL AUDIT AND PREPARES FORM 990. FORM 990, PART VI, SECTION B, LINE 12C DIRECTORS ARE REQUIRED TO SUBMIT A CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION POLICIES ARE SUBJECT TO THE PROCEDURES OF PHA, THE SUPPORTED ORGANIZATION, AS DESCRIBED IN ITS FORM 990. FORM 990, PART VI, SECTION C, LINE 19 OUR FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC ON OUR WEBSITE, THROUGH CHARITY NAVIGATOR, AND BY REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 247,850. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 247,850. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. PULMONARY HYPERTENSION ASSOCIATION INC 801 ROEDER ROAD SUITE 1000 SILVER SPRING MD 20910 650880021 NON-PROFT ORGANIZATION FL 501(C)(3) LINE 10 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 1 0 0 0 0