2019-11-14T11:58:46-06:00 2018-12-31 362239746 SASSETTI LLC 6611 NORTH AVENUE OAK PARK IL 60302 990 2018-01-01 272523450 USHER III INITIATIVE INC USHE 3128962509 191 N WACKER DRIVE NO 1790 CHICAGO IL 60606 CYNTHIA ELDEN PRESIDENT 3128962509 2019-11-14 1 JEFF SCHROEDER P01245303 7083861433 2019-11-13 173.15.34.189 2019-11-14 11:42:01 CS P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 4BD8B080C63AFF479F8002C959B23E85A162128F 2018 2020-03-31 21:24:44Z CYNTHIA ELDEN 191 N WACKER DRIVE NO 1790 CHICAGO IL 60606 770845 0 X WWW.USHERIII.ORG X 2010 IL TO IDENTIFY THERAPIES, TREATMENTS AND A CURE FOR USHER SYNDROME TYPE III. 6 6 0 0 0 0 331406 770845 0 0 0 0 0 0 331406 770845 161743 75000 0 0 0 0 0 0 1008 539770 492152 701513 567152 -370107 203693 477453 675782 67264 61900 410189 613882 TO ACHIEVE ITS GOAL OF DEVELOPING A TREATMENT TO SLOW OR REVERSE THE VISION LOSS ASSOCIATED WITH USHER III, THE INITIATIVE HAS PURSUED AN APPROACH THAT FOCUSES ON SMALL MOLECULE CHAPERONE THERAPY. 0 0 75000 75000 RESEARCH GRANT TO CASE WESTERN RESERVE DEDICATED TO FINDING DRUGS THAT WILL PREVENT THE BREAKDOWN OF DEFECTIVE CLARIN-1 PROTEIN. ONGOING FOCUS IS ON UNDERSTANDING THE MECHANISM OF ACTION OF THE INITIATIVE'S LEAD COMPOUND 413538 OTHER PROGRAM EXPENSES INCLUDING OVERSIGHT OF RESEARCH AND PATENT REGISTRATION. 488538 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 6 6 1 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 0 0 0 0 IL X THE ORGANIZATION 3128962509 191 N WACKER DRIVE NO 1790 CHICAGO IL 60606 X CYNTHIA ELDEN PRESIDENT 6.00 X X 0 0 0 MARK ACKERMANN DIRECTOR 1.00 X 0 0 0 DR SAMIR PATEL DIRECTOR 1.00 X 0 0 0 DR PAUL STERNBERG DIRECTOR 1.00 X 0 0 0 FRANK MEYER DIRECTOR 1.00 X 0 0 0 THERESE STOCH SECRETARY/TREASURER 2.00 X 0 0 0 0 0 0 0 0 0 0 COOLEY LLP 3175 HANOVER STREET PALO ALTO CA 943041130 LEGAL SERVICES 211618 1 770845 770845 770845 0 0 0 X 75000 75000 258045 193534 64511 9200 9200 218503 218103 400 40 20 20 MISCELLANEOUS 2800 2800 TELEPHONE 1881 1881 CREDIT CARD FEES 1008 1008 REGISTRATION FEES 675 675 567152 488538 77606 1008 477453 675782 477453 675782 67264 61900 67264 61900 X 410189 613882 410189 613882 477453 675782 203693 0 X X 0 1 X 0 0 X 1223999 375155 314844 331406 770845 3016249 1223999 375155 314844 331406 770845 3016249 1746200 1270049 3016249 0.42110 0.32290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 782903 12058 12058 770845 0 770845 579210 12058 12058 567152 0 567152 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 PROGRAM SERVICES MEDICAL RESEARCH 134703 0 0 0 0 0 0 134703 0 134703 0 0 0 0 0 0 1 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF MEDICINE CLEVELAND OH 441064919 341018992 509(A)(1) 75000 TO SUPPORT OPERATIONS THROUGH RESEARCH PART I, LINE 2: TO MONITOR THE USE OF GRANTS, THE ORGANIZATION REQUIRES REGULAR PROGRESS REPORTS AND REGULAR FINANCIAL STATEMENTS TO MANAGEMENT. ANY RECIPIENT FOUND TO BE EITHER USING FUNDS INAPPROPRIATELY OR MAKING INSUFFICIENT PROGRESS IS PROHIBITED FROM RECEIVING FUTURE FUNDS UNTIL CORRECTIVE ACTIONS ARE TAKEN. FORM 990, PART VI, SECTION A, LINE 2 RICHARD ELDEN IS THE FATHER OF CYNTHIA ELDEN. FORM 990, PART VI, SECTION A, LINE 6 THE ORGANIZATION HAS MEMBERS. MEMBERS ARE GAIL ELDEN, CINDY ELDEN, AND TOM ELDEN. FORM 990, PART VI, SECTION A, LINE 7A MEMBERS HAVE THE POWER TO ELECT THE GOVERNING BOARD, AND THE POWER TO REMOVE DIRECTORS. FORM 990, PART VI, SECTION A, LINE 7B ANY AMENDMENTS TO THE BYLAWS MUST BE APPROVED BY BOTH THE MEMBERS AND DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE TREASURER. A COPY IS PROVIDED TO ALL BOARD MEMBERS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C TO ENSURE THE ORGANIZATION OPERATES IN A MANNER CONSISTENT WITH ITS CHARITABLE PURPOSE AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX EXEMPT STATUS, PERIODIC REVIEWS SHALL BE CONDUCTED TO DETERMINE WHETHER 1.) COMPENSATION AGREEMENTS AND BENEFITS ARE REASONABLE, AND 2.) WHETHER PARTNERSHIPS, JOINT VENTURES AND ARRANGEMENTS WITH MANAGEMENT ORGANIZATIONS CONFORM TO THE ORGANIZATION'S WRITTEN POLICIES, ARE PROPERLY RECORDED, FORM 990, PART VI, SECTION C, LINE 18 COPIES OF FORMS 990 AND 1023 ARE AVAILABLE UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER: PROGRAM SERVICE EXPENSES 1,600. MANAGEMENT AND GENERAL EXPENSES 400. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,000. MEDICAL RESEARCH: PROGRAM SERVICE EXPENSES 216,503. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 216,503. FORM 990, PART XII, LINE 2C THERE WAS NO CHANGE IN THE OVERSIGHT PROCESS FOR THE AUDIT FROM THE PREVIOUS FISCAL YEAR.