2019-10-17T09:26:57-05:00 2018-12-31 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS ROAD SUITE 1500 RALEIGH NC 27609 990 2018-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 BETH LEWIN DEAN CHIEF EXECUTIVE OFFICER 3122551801 2019-10-17 1 J CALVIN MARKS P01226973 9197196400 34.206.232.202 2019-10-17 09:26:53 ED P 8E36BE0352D28B6D711E1AB8CC9134318D2E646C 9C238F1B6484ABD2E08FB3ED1A4A2692AD2A909B 2018 2020-03-31 21:24:44Z BETH LEWIN DEAN 430 W ERIE NO 210 CHICAGO IL 60654 8707174 0 X WWW.CUREEPILEPSY.ORG X 1998 IL TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 9 9 18 370 0 471 4103518 7555195 0 0 184570 82998 -150858 -187331 4137230 7450862 1839338 3205929 0 0 1717905 1149320 0 0 826344 991994 1613764 4549237 5969013 -412007 1481849 6635801 6395235 2622628 1104241 4013173 5290994 THE MISSION OF CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 0 0 4140755 3205929 SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $60 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO POST-TRAUMATIC EPILEPSY, ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES. CURE FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TO DATE HAS AWARDED MORE THAN 230 CUTTING-EDGE PROJECTS IN 15 COUNTRIES AROUND THE WORLD. 794021 CURE SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES, DRIVING AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY THROUGH THE FRONTIERS IN RESEARCH SEMINAR SERIES, WEBINARS, DAY OF SCIENCE EDUCATIONAL EVENTS AND THE "SEIZING LIFE PODCAST SERIES. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. 4934776 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 20 0 1 18 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 9 9 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AR AZ CA CO CT DE DC FL GA HI ID IL IN IA KS KY MD MA MI MS MO MT NE NH NJ NM NY NC OH OK OR PA RI SC SD TN TX UT VT VA WV WI WY X X BETH LEWIN DEAN 3122551801 430 W ERIE NO 210 CHICAGO IL 60654 SUSAN AXELROD FOUNDING CHAIR (TO SEP '18) 1.00 X X 0 0 0 ANN BENSCHOTER CHAIR 1.00 X X 0 0 0 BLAKE CUNNEEN TREASURER 1.00 X X 0 0 0 PAUL HELDMAN SECRETARY 1.00 X X 0 0 0 SHARON O'KEEFE IMMEDIATE PAST CHAIR (TO SEP '18) 1.00 X X 0 0 0 MIKE AXELROD DIRECTOR (FROM SEP '18) 1.00 X 0 0 0 KELLY CERVANTES DIRECTOR 1.00 X 0 0 0 SCOTT COPELAND DIRECTOR (TO SEP '18) 1.00 X 0 0 0 LISA COTTON DIRECTOR (FROM SEP '18) 1.00 X 0 0 0 LYNN FLEISHER DIRECTOR (TO SEP '18) 1.00 X 0 0 0 MARILYNN KELLY GARDNER DIRECTOR (FROM JUN '18) 1.00 X 0 0 0 CELIA HUBER DIRECTOR 1.00 X 0 0 0 SCOTT LEISHER DIRECTOR (TO SEP '18) 1.00 X 0 0 0 STACEY PIGOTT DIRECTOR 1.00 X 0 0 0 KATHLEEN CARR CHIEF EXECUTIVE OFFICER (TO APR '18) 37.50 X 133237 0 6701 ROBIN HARDING INTERIM COO (FROM APR '18) 37.50 X 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 37.50 X 310523 0 14964 MEGHAN JORGENSEN DIRECTOR OF DEVELOPMENT 37.50 X 100058 0 2089 MICHAEL ORGAN INTERIM DIRECTOR OF MARKETING 37.50 X 124597 0 0 668415 0 23754 4 0 1 0 CHICAGO SIGNITURE SERVICES 600 E GRAND AVE CHICAGO IL 60611 EVENT SERVICES 154879 RAFANELLI EVENTS MANAGEMENT INC 867 BOYLSTON ST BOSTON MA 02116 EVENT SERVICES 146391 2 1882841 2564383 3107971 41055 7555195 71470 71470 911009 899481 11528 11528 11528 169500 1882841 356831 -187331 -187331 7450862 0 0 -104333 3152389 3152389 53540 53540 567571 373067 53447 141057 435500 286966 39948 108586 7639 4736 1146 1757 54596 33850 8189 12557 84014 65085 8332 10597 94500 72294 8766 13440 21402 16373 1985 3044 256036 195873 23748 36415 7123 7123 126767 78595 19016 29156 237983 206321 12498 19164 89368 55408 13405 20555 148392 138730 3809 5853 496729 135667 1089 359973 18923 11733 2838 4352 12269 7607 1840 2822 EEF 45000 45000 DUES & SUBSCRIPTIONS 24036 14903 3605 5528 LICENSES & FEES 16348 10132 2454 3762 18888 14384 1778 2726 5969013 4934776 207893 826344 528645 803783 543538 826967 1060000 936008 33592 0 24983 42089 164711 85725 96867 78986 4329514 3696308 18662 11094 6635801 6395235 57773 115448 2076533 712099 488322 276694 2622628 1104241 X 2254956 4204477 1758217 1086517 4013173 5290994 6635801 6395235 X 1481849 -274899 70871 X 0 1 X 1 0 X 5533358 5734565 4560949 4103518 7555195 27487585 5533358 5734565 4560949 4103518 7555195 27487585 553779 26933806 181509 182661 157025 182025 71470 774690 8099 8099 28270374 905500 0.95270 0.92040 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5555660 5555660 427783 106946 0 0 495953 453521 377462 427783 1754719 2632079 123988 113380 94366 106946 438680 658020 70127 18009 52118 94584 67716 26868 78986 7249814 -274899 196875 235280 157256 7092558 358304 358304 7450862 5971993 196875 219458 416333 5555660 413353 413353 5969013 PART XI, LINE 2D - OTHER ADJUSTMENTS: RETURN GRANTS 235,280. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS 358,304. PART XII, LINE 2D - OTHER ADJUSTMENTS: BAD DEBT 219,458. PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURN GRANTS 55,049. SPECIAL EVENTS 358,304. 1 EUROPE 0 0 PROGRAM SERVICES; GRANTS TO RECIPIENTS IN REGION CONFERENCES 8000 EAST ASIA & THE PACIFIC 0 0 GRANTS TO RECIPIENTS IN REGION 48450 0 0 0 0 0 0 56450 0 56450 E. ASIA & THE PACIFIC RESEARCH GRANT 48540 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. CHICAGO GALA BENEFIT 2052341 1882841 169500 6970 73948 154878 15000 106035 2052341 1882841 169500 6970 73948 154878 15000 106035 356831 -187331 1 VIRGINIA TECH 902 PRICES FORK RD STE 4400 BLACKSBURG VA 24060 540721690 501(C)(3) 1261389 RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 041564655 501(C)(3) 593963 RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST STE 305 PHILADELPHIA PA 19104 231352685 501(C)(3) 349508 RESEARCH GRANT UNIVERSITY OF FLORIDA PO BOX 113125 GAINSVILLE FL 32611 596002052 115 322389 RESEARCH GRANT COLUMBIA UNIVERSITY PO BOX 28789 NEW YORK CITY NY 10087 135598093 501(C)(3) 302051 RESEARCH GRANT ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI 1 GUSTAVE L LEVY PLACE NEW YORK CITY NY 10029 136171197 501(C)(3) 102500 RESEARCH GRANT UNIVERSITY OF CALIFORNIA 10889 WILSHIRE BOULEVARD STE 700 LOS ANGELES CA 90024 956006143 501(C)(3) 100000 RESEARCH GRANT STANFORD UNIVERSITY 485 BROADWAY 3RD FLOOR REDWOOD CITY CA 94063 941156365 501(C)(3) 100000 RESEARCH GRANT 8 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X X 1 0 0 0 0 0 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 286523 0 24000 0 0 0 6547 0 8417 0 325487 0 0 0 PART I, LINE 4A KATHLEEN CARR SEVERANCE $62,500 X 4 41055 FMV 0 0 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS RECEIVED, RATHER THAN THE NUMBER OF STOCK SHARES RECEIVED, ARE BEING REPORTED FOR SCHEDULE M PURPOSES. FORM 990, PART VI, SECTION A, LINE 4 THE BYLWAS WERE AMENDED TO ALLOW FOR THE DISSOLUTION OF CERTAIN ADVISORY COMMITTEES, BUT RETAIN THE BOARD'S ABILITY TO CREATE ADVISORY COMMITTEES AS IT DEEMS NECESSARY. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. FORM 990, PART XI, LINE 9: BAD DEBTS -219,458. RETURN GRANTS 290,329.