2019-11-13T08:29:32-06:00 2018-12-31 510229493 BARBACANE THORNTON & COMPANY LLP 200 SPRINGER BLDG 3411 SILVERSIDE RD WILMINGTON DE 198104866 990 2018-01-01 383569922 NEPHCURE KIDNEY INTERNATIONAL NEPH 8666374287 150 SOUTH WARNER ROAD NO 402 KING OF PRUSSIA PA 19406 IRVING SMOKLER PRESIDENT 8666374287 2019-11-13 JEFFREY A KOWALCZYK CPA P01563311 3024788940 2019-11-04 75.151.151.153 2019-11-13 08:29:29 ES P 74AF30CAD2CEF7B1FA0808C1E6213A30F36E8CF6 2F9D8CC8807C9E7AA23E4831C7588FA39CED831B 2018 2020-03-31 21:24:44Z IRVING SMOKLER 150 SOUTH WARNER ROAD NO 402 KING OF PRUSSIA PA 19406 4328968 0 X WWW.NEPHCURE.ORG X 2000 MI NEPHCURE KIDNEY INTERNATIONAL IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORTING RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE OF FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME. THE ORGANIZATION IS COMMITTED TO IMPROVING TREATMENT AND FINDING A CURE FOR THIS DISEASE. 20 20 0 600 0 0 3086446 3570654 10655 0 0 0 0 3099 3097101 3573753 1901896 339997 0 0 941027 1339480 0 0 274559 973026 1172554 3815949 2852031 -718848 721722 1515784 1783055 846726 392275 669058 1390780 X NEPHCURE KIDNEY INTERNATIONAL IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORTING RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE OF FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME. THE ORGANIZATION IS COMMITTED TO IMPROVING TREATMENT AND FINDING A CURE FOR THIS DISEASE. 0 0 1265088 339997 RESEARCH - NEPHCURE KIDNEY INTERNATIONAL IS COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL, AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE OF THIS RESEARCH IS TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTS 1111335 HEALTH AND EDUCATION - NEPHCURE KIDNEY INTERNATIONAL FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENTS/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. NEPHCURE KIDNEY INTERNATIONAL ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES. 1235 NEPHCURE ACCELERATING CURES INSTITUTE - NEPHCURE KIDNEY INTERNATIONAL OPERATES THE NEPHCURE ACCELERATING CURES INSTITUTE, WHICH WAS FOUNDED IN 2015 TO FOSTER ADVANCED RESEARCH IN NEPHROTIC SYNDROME, FSGS, AND RELATED DISEASES. THE NEPHCURE ACCELERATING CURES INSTITUTE CEASED OPERATIONS IN 2018. 2377658 1 1 0 1 0 1 0 0 0 0 1 0 0 0 0 1 0 1 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0 1 CA 0 0 0 1 1 0 0 0 0 0 0 X 20 20 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 AL AK AZ AR CA CO CT FL GA KS KY IL LA ME MD MA MI MN MS MO NH NJ NM NY NC OK OH OR PA RI SC TN UT VA WV WA WI X THE ORGANIZATION 8666374287 150 SOUTH WARNER ROAD NO 402 KING OF PRUSSIA PA 19406 IRVING SMOKLER PRESIDENT 5.00 X X 0 0 0 RON COHEN VICE PRESIDENT 1.00 X X 0 0 0 ANDREW SILVERMAN TREASURER 3.00 X X 0 0 0 MICHAEL LEVINE VICE PRESIDENT 10.00 X X 0 0 0 CAROL SMOKLER SECRETARY 1.00 X X 0 0 0 ELAINE KAMIL CO-MEDICAL DIRECTOR 1.00 X 0 0 0 DAVID KERSHAW CO-MEDICAL DIRECTOR 1.00 X 0 0 0 WILLIAM SMOYER CO-MEDICAL DIRECTOR 1.00 X 0 0 0 KATHLEEN BRODERICK MEMBER 5.00 X 0 0 0 MARK WINWARD MEMBER 4.00 X 0 0 0 JIM DUQUETTE MEMBER 2.00 X 0 0 0 JENNIFER GEISSER MEMBER 1.00 X 0 0 0 SCOTT GOLDSTEIN MEMBER 1.00 X 0 0 0 STEPHEN HOLLOMON MEMBER 1.00 X 0 0 0 SARRETTA MCDONOUGH MEMBER 2.00 X 0 0 0 JOHN ROY MEMBER 2.00 X 0 0 0 JOSHUA ROY MEMBER 1.00 X 0 0 0 MANU VARMA MEMBER 1.00 X 0 0 0 CHRIS WHITNEY MEMBER 1.00 X 0 0 0 JOSH TARNOFF CEO 40.00 X 222787 0 29663 222787 0 29663 1 0 1 0 0 1800980 1769674 3570654 755215 1800980 755215 0 MISCELLANOUS REVENUE 900099 3099 3099 3099 3573753 0 0 3099 339997 339997 252450 212037 2526 37887 974567 818556 9751 146260 33870 28552 332 4986 78593 66018 786 11789 20398 14989 2883 2526 53499 37130 8724 7645 202860 151245 27509 24106 21471 21471 220361 111067 95945 13349 71217 60534 3561 7122 111718 91608 3352 16758 317631 314455 3176 107497 107497 13366 13366 10071 10071 13200 13200 9265 2502 4632 2131 2852031 2377658 199814 274559 666876 1502106 776744 229910 24703 13649 60676 43286 27461 17390 20000 20000 1515784 1783055 274189 96894 20522 552015 295381 846726 392275 X 432543 1322624 236515 68156 669058 1390780 1515784 1783055 721722 0 X 0 1 X 1 0 X 2763493 1136478 2555382 3086446 3570654 13112453 2763493 1136478 2555382 3086446 3570654 13112453 13112453 1671 316 1621 3608 390625 390625 13506686 75655 0.97080 0.92870 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 0 0 1 16487 0 0 16487 0 1 40000 1 0 60676 43286 17390 17390 X 3903695 329942 329942 3573753 0 3573753 3181973 329942 329942 2852031 0 2852031 PART X, LINE 2: NEPHCURE KIDNEY INTERNATIONAL IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ORGANIZATION'S TAX-EXEMPT PURPOSE MAY BE SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PRESCRIBE RULES FOR THE RECOGNITION, MEASUREMENT, CLASSIFICATION, AND DISCLOSURE IN THE FINANCIAL STATEMENTS OF UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE ORGANIZATION'S TAX RETURNS. MANAGEMENT HAS DETERMINED THAT THE ORGANIZATION DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS OR ASSOCIATED UNRECOGNIZED BENEFITS THAT MATERIALLY IMPACT THE FINANCIAL STATEMENTS OR RELATED DISCLOSURES. SINCE TAX MATTERS ARE SUBJECT TO SOME DEGREE OF UNCERTAINTY, THERE CAN BE NO ASSURANCE THAT THE ORGANIZATION'S TAX RETURNS WILL NOT BE CHALLENGED BY THE TAXING AUTHORITIES AND THAT THE ORGANIZATION WILL NOT BE SUBJECT TO ADDITIONAL TAX, PENALTIES, AND INTEREST AS A RESULT OF SUCH CHALLENGE. COUNTDOWN TO A CURE 1238087 895490 342597 342597 WALKS 552331 530243 22088 22088 4 765777 375247 390530 390530 2556195 1800980 755215 755215 755215 0 1 ARBOR RESEARCH COLLABORATIVE FOR HEALTH 340 EAST HURON STREET SUITE 300 ANN ARBOR MI 48104 383289521 52130 RESEARCH GRANT MALLINCKRODT PHARMACEUTICALS 675 JAMES S MCDONNELL BOULEVARD HAZELWOOD MO 63042 364679061 50000 PROGRAMS GRANT RETROPHIN INC 12255 EL CAMINO REAL SUITE 250 SAN DIEGO CA 92130 262383102 195000 PROGRAMS GRANT PFIZER INC 235 EAST 42ND STREET NEW YORK NY 10017 135315170 10000 CONFERENCE GRANT AURINIA PHARMACEUTICALS 500 WEST OFFICE CENTER DRIVE SUITE 400 FORT WASHINGTON PA 19034 5000 CONFERENCE GRANT X X 0 0 0 0 0 0 0 0 0 JOSH TARNOFF CEO 222787 0 0 0 0 0 6684 0 22979 0 252450 0 0 0 IRVING SMOKLER BOARD MEMBER OPERATIONS SUPPORT X 725000 295381 0 1 1 295381 FORM 990, PART VI, SECTION A, LINE 2 TWO BOARD MEMBERS ARE RELATED BY MARRIAGE FORM 990, PART VI, SECTION B, LINE 11B A FINAL COPY OF FORM 990 IS PROVIDED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REVIEWS COMPLETED CONFLICT OF INTEREST QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 990 AVAILABLE UPON REQUEST.