2020-08-03T09:02:01-05:00 2019-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2019-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER PRESIDENT 9198096779 2020-08-01 true SUSAN DEAN P01281194 9196621001 2020-08-01 12.105.62.70 2020-08-03 09:02:01 CD P 6E82F61C0CDFB8B3BF9A80A1DF2875C7F9690D7D 871E0C94F70976A4E9FE63D04D026D4F1CDD97AD 2019 2021-01-29 14:40:06Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 5395696 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 12 11 11 124 0 2350245 5151081 11150 2512 1988 -19166 57806 21231 2421189 5155658 699940 2298076 0 930791 873401 46000 36000 465151 662150 729744 2338881 3937221 82308 1218437 4518951 7176227 1032256 2472648 3486695 4703579 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 2745250 2343076 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS. 314597 2512 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES. 3059847 true true false false false false false false false false true false false true false true true false false false false false false true false false false true false true false false false false false false false true true false false false false false false false false true 15 0 true 11 true false false false false false true true false false false false false false X 12 11 false false true false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 JOAN LEVY DIRECTOR OF 40.00 X 168919 0 21625 JOSH SOMMER PRESIDENT 60.00 X X 92141 0 8389 JOHN THERIEN DIRECTOR 2.00 X 0 0 0 STEVEN GOLICK DIRECTOR 2.00 X 0 0 0 JOEL BECKMAN VICE CHAIR 10.00 X 0 0 0 CHRISTOPHER HEERY DIRECTOR 2.00 X 0 0 0 INGEMAR LANEVI TREASURER 2.00 X 0 0 0 ED LES DIRECTOR 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 DAVID SANDAK CHAIR 4.00 X 0 0 0 ANDY SCHOELKOPF DIRECTOR 2.00 X 0 0 0 CHRISTY SHAFFER DIRECTOR 2.00 X 0 0 0 JULIE SONG SECRETARY 2.00 X 0 0 0 261060 30014 1 false true false 5151081 36690 5151081 COMMUNITY CONFERENCE 2512 2512 2512 1049 1049 219823 240038 -20215 -20215 -20215 OTHER REVENUE 21231 21231 21231 5155658 1016 3561 2298076 2298076 291074 163408 46315 81351 460560 258557 73284 128719 69578 39061 11071 19446 52189 29299 8304 14586 13218 4668 1988 6562 36000 36000 131800 88365 18473 24962 23904 8454 3186 12264 49419 22582 4489 22348 158230 54970 59232 44028 33225 15182 3018 15025 70602 38900 9817 21885 5539 5539 18029 9284 6701 2044 BAD DEBT EXPENSE 160000 160000 EVENTS 52219 15482 806 35931 LANGUAGE TRANSLATION SERV 13559 13559 3937221 3059847 412223 465151 2056355 3531358 185825 261026 2144523 2701029 85806 11782 24136 20989 44977 28361 19329 16616 2977 633427 4518951 7176227 180424 135144 844782 2335214 7050 2290 1032256 2472648 X 1516964 2034561 1969731 2669018 3486695 4703579 4518951 7176227 X 1218437 -1553 X false true X true false X 1915121 4144568 2013420 2350245 5151081 15574435 1915121 4144568 2013420 2350245 5151081 15574435 5762745 9811690 711 439 3685 4180 1049 10064 15044 4345 11150 2512 33051 15617550 134283 0.62820 0.60880 X PART II, LINE 10 CONFERENCE REGISTRATION FEES 33,051 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4463 3958 505 40514 24403 16111 16616 UNDEPOSITED FUNDS 630450 SECURITY DEPOSIT 2977 633427 X 5261324 128450 -22784 105666 5155658 5155658 4044440 128450 -21231 107219 3937221 3937221 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2019 OR 2018. SCHEDULE D, PAGE 4, PART XI, LINE 2D LOSS ON CURRENCY TRANSLATION -1,553 RECLASS NEGATIVE GRANT EXPENSE -21,231 SCHEDULE D, PAGE 4, PART XII, LINE 2D RECLASS NEGATIVE GRANT EXPENSE -21,231 X X X X X true ZANELLA 112 HELLER PARKWAY NEWARK NJ 07104 CONSULTING false 36000 -36000 36000 -36000 AK AR AZ CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV SCHEDULE G, PAGE 1, PART I, LINE 2B, COLUMN (V) ZANELLA CONSULTING AGREEMENT WITH ZANELLA SCHEDULE G, PART IV THE AGREEMENT LISTS THE CONSULTING SERVICES TO BE PERFORMED AND PROVIDES SEPARATELY FOR THE REIMBURSEMENT OF TRAVEL EXPENSES IF THE CONSULTANT TRAVELS ON BEHALF OF THE FOUNDATION. true CHILDREN'S HOSPITAL OF PHILADELPHIA CHOP 3615 CIVIC CENTER BOULEVARD PHILADELPHIA PA 19104 231352166 501C3 32398 RESEARCH GRANT JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501C3 21523 RESEARCH GRANT START 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 208313687 268406 RESEARCH GRANT THE BROAD INSTITUTE INC 415 MAIN STREET CAMBRIDGE MA 02142 263428781 501C3 300000 RESEARCH GRANT VALA SCIENCES 6370 NANCY RIDGE DRIVE 106 SAN DIEGO CA 92121 200906350 5150 RESEARCH GRANT JOHN WAYNE CANCER INSTITUTE AUXIL 2200 SANTA MONICA BLVD SANTA MONICA CA 90404 953987691 501C3 140000 RESEARCH GRANT UNIVERSITY OF NC AT CHAPEL HILL 120 MASON FARM ROAD CHAPEL HILL NC 27519 566001393 501C3 1438875 RESEARCH GRANT DANA-FARBER CANCER INSTITUTE INC 450 BROOKLINE AVE BOSTON MA 02215 042263040 501C3 80000 RESEARCH GRANT 6 2 SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X X false false false false false false false true false JOAN LEVY DIRECTOR OF RESEARCH 158919 10000 21625 190544 SCHEDULE J, PAGE 1, PART I, LINE 7 BONUS CONTINGENT ON ACCOMPLISHMENT OF PRE-DEFINED GOALS UNIQUE TO POSITION, PAYABLE AT THE SOLE DISCRETION OF THE FOUNDATION, AND DEPENDENT UPON THE FINANCIAL POSITION OF THE FOUNDATION. SMITH ANDERSON LLP BOARD DIRECTOR 19374 IN-KIND LEGAL SVCS false STEVEN MANDEL BOARD DIRECTOR 3492 CONTRIBUTION false INGEMAR LANEVI BOARD DIRECTOR 563 CONTRIBUTION false JULIE SONG BOARD DIRECTOR 4050 CONTRIBUTION false JOEL BECKMAN BOARD DIRECTOR 503000 CONTRIBUTION false PAUL FELDMAN BOARD DIRECTOR 10000 CONTRIBUTION false EDWARD LES BOARD DIRECTOR 500 CONTRIBUTION false DAVID SANDAK BOARD DIRECTOR 1500 CONTRIBUTION false ANDREW SCHOELKOPF BOARD DIRECTOR 521 CONTRIBUTION false CHRISTY SHAFFER BOARD DIRECTOR 10000 CONTRIBUTION false JOSH SOMMER BOARD DIRECTOR 1200 CONTRIBUTION false JOHN THERIEN BOARD DIRECTOR 1000 CONTRIBUTION false ANDREW SCHOELKOPF BOARD DIRECTOR 57500 PLEDGE RECEIVABLE false JOEL BECKMAN BOARD DIRECTOR 250000 PLEDGE RECEIVABLE false INGEMAR LANEVI BOARD DIRECTOR 1500 PLEDGE RECEIVABLE false STEVEN MANDEL BOARD DIRECTOR 8500 PLEDGE RECEIVABLE false SCHEDULE L, PART IV JOSH SOMMER 1,200 BOARD DIRECTOR CONTRIBUTION JOHN THERIEN 1,000 BOARD DIRECTOR CONTRIBUTION ANDREW SCHOELKOPF 57,500 BOARD DIRECTOR PLEDGE RECEIVABLE JOEL BECKMAN 250,000 BOARD DIRECTOR PLEDGE RECEIVABLE INGEMAR LANEVI 1,500 BOARD DIRECTOR PLEDGE RECEIVABLE STEVEN MANDEL 8,500 BOARD DIRECTOR PLEDGE RECEIVABLE SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. THE FOUNDATIONS' BOARD MEMBERS AND FORMER BOARD MEMBERS PROVIDED CONTRIBUTIONS TOTALING 535,826. THE FUNDS ARE TREATED THE SAME AS A PLEDGE OR CONTRIBUTION FROM AN UNRELATED OR UNINTERESTED PARTY. SOME OF THESE CONTRIBUTIONS ARE CURRENTLY PLEDGE RECEIVABLES. X 1 3467 FMV X TECH SOLUTIONS 1 33223 FMV false true false FORM 990, PAGE 6, PART VI, LINE 4 THE ORGANIZATION'S BYLAWS WERE UPDATED AND ADOPTED BY THE BOARD OF DIRECTORS ON APRIL 12, 2019. FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION ANNUALLY SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. . FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, DISCLOSURE EXPLANATION, ARTICLES OF INCORPORATION, BY-LAWS, POLICIES AND PROCEDURES MANUAL, CONFLICT OF INTEREST POLICY AND OTHER GOVERNING POLICIES, ANNUAL AUDITS AND 990'S ARE ON FILE IN THE FINANCE OFFICE, AVAILABLE ON THE FOUNDATION'S WEBSITE AND AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 LOSS ON CURRENCY TRANSLATION -1,553 RECLASS NEGATIVE GRANT EXPENSE -21,231 RECLASS NEGATIVE GRANT EXPENSE 21,231 TOTAL -1,553