2020-06-19T14:23:53-05:00 2019-12-31 521231901 GORFINE SCHILLER & GARDYN PA 10045 RED RUN BLVD SUITE 250 OWINGS MILLS MD 21117 990 2019-01-01 204950952 EPILEPSY STUDY CONSORTIUM INC C/O STERLING FOUNDATION MANAGEMENT LLC EPIL 7034379720 12030 SUNRISE VALLEY DRIVE NO 450 RESTON VA 20191 JAMES LINTOTT TREASURER 7034379720 2020-06-18 1 MATTHEW Q KEEFER CPA P00852427 4103565900 173.67.46.202 2020-06-18 13:08:49 ED P 44F26ED54B8B8D88B1165040399A7D4552DF7240 B263F04E8ABAD6BDEFA989DF931AEA0A5351E7CC 2019 2020-11-06 18:47:13Z JAMES LINTOTT 12030 SUNRISE VALLEY DRIVE NO 450 RESTON VA 20191 1989035 0 X WWW.EPILEPSYCONSORTIUM.ORG X 2006 VA ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH. 4 3 6 0 0 0 1385351 357500 1028716 1631503 35 32 0 0 2414102 1989035 0 30000 0 0 505745 612108 0 0 0 2732700 2236554 3238445 2878662 -824343 -889627 2526334 1636707 0 0 2526334 1636707 ACCELERATING THE DEVELOPMENT OF NEW THERAPIES IN EPILEPSY TO IMPROVE PATIENT CARE THROUGH RESEARCH. 0 0 675532 15000 872411 MADE AVAILABLE VAST EPILEPSY EXPERTISE WHICH WAS UTILIZED FOR ADVISORY BOARDS AND INDEPENDENT CONSULTING ACTIVITY. PROVIDED STUDY DESIGN CONSULTATION ON A NUMBER OF PROTOCOLS. DEVELOPED AND IMPLEMENTED EDUCATIONAL TOOLS FOR USE IN CLINICAL TRIALS TO ENSURE ENROLLMENT OF APPROPRIATE SUBJECTS. CENTRAL REVIEW OF DOCUMENTATION TO CONFIRM ELIGIBILITY FOR PATIENTS IN CLINICAL TRIALS. 2161645 15000 601264 DEVELOPED SEVERAL PROOF OF PRINCIPLE PROTOCOLS WHICH ARE AVAILABLE TO CLIENTS. IMPLEMENTED THE PREVIOUSLY DESIGNED PROOF OF PRINCIPLE STUDY TO ASSESS PHOTOSENSITIVE EPILEPSY INCLUDING SITE TRAINING. COORDINATED A MULTI-CENTER STUDY (HEP 2) TO ASSESS CLINICAL CHARACTERISTICS AND BIOMARKERS PREDICTIVE OF DISEASE OUTCOME, PROGRESSION, AND TREATMENT RESPONSE IN PARTICIPANTS WITH TREATMENT-RESISTANT FOCAL EPILEPSY. CONTINUING TO FOLLOW SUBJECTS WITH NEWLY DIAGNOSED EPILEPSY IN THE HEP 1 STUDY. 3215 157828 PREPARE AND ORGANIZE MULTINATIONAL SYMPOSIUM ON EPILEPSY TRIAL DESIGN AND IMPLEMENTATION. 2840392 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 1 0 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 1 10 0 1 6 1 0 0 0 0 0 0 0 0 0 0 0 0 X 4 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 VA X STERLING FOUNDATION MGMT LLC 7034379720 12030 SUNRISE VALLEY DRIVE SUITE RESTON VA 20191 JAMES LINTOTT TREASURER 1.00 X X 0 0 0 MICHAEL SPERLING VICE PRESIDENT 1.00 X X 3666 0 0 JACQUELINE FRENCH PRESIDENT 5.00 X X 0 0 0 DENNIS DLUGOS VICE PRESIDENT 1.00 X X 0 0 0 MARYANN BRODIE EXECUTIVE DIRECTOR 40.00 X 171363 0 5141 BREE DIVENTURA CO-EXECUTIVE DIRECTOR 40.00 X 149890 0 4497 TRACY L DE VITO ADMINISTRATIVE-STAFF 40.00 X 121249 0 0 446168 0 9638 3 0 1 0 0 357500 357500 CONSULTING 900099 872411 872411 HUMAN EPILPSY PROJECT 900099 601264 601264 TRIAL DESIGNS 900099 157828 157828 1631503 32 32 1989035 1631503 0 32 30000 30000 180170 180170 383818 383818 4497 4497 2626 2626 40997 40997 3241 3241 25000 25000 147172 147172 106865 106865 237959 237959 33189 33189 MEDICAL STUDY AND RESEA 1406815 1406815 PROGRAM EXPENSE 226856 226856 FACILITIES AND EQUIPMEN 19178 9589 9589 POSTAGE AND PRINTING AN 12484 12064 420 17795 17775 20 2878662 2840392 38270 0 2510992 1621333 15342 15374 2526334 1636707 0 0 X 2526334 1636707 2526334 1636707 2526334 1636707 -889627 0 X 0 0 0 X 608500 1322580 447050 838255 357500 3573885 608500 1322580 447050 838255 357500 3573885 1974376 1599509 2 2 9 35 32 80 3573965 0.44750 0.43400 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, 0 0 PROGRAM SERVICES THESE SITES WERE PAID FOR CLINICAL TRIAL VISITS FOR WORK PERFORMED BASED ON THE PROTOCOL FOR THE HEP PROJECT/STUDY. 40687 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 PROGRAM SERVICES THESE SITES WERE PAID FOR CLINICAL TRIAL VISITS FOR WORK PERFORMED BASED ON THE PROTOCOL FOR THE HEP PROJECT/STUDY. 17238 0 0 0 0 0 0 57925 0 57925 0 0 0 0 0 0 PART III ACCOUNTING METHOD: 1 AMERICAN EPILEPSY SOCIETY 135 SOUTH LASALLE ST STE 2850 CHICAGO IL 60603 046112600 501(C)(3) 30000 GENERAL SUPPORT 1 PART I, LINE 2: THE ORGANIZATION REQUESTS PROGRAM DOCUMENTS, DOES FOLLOW-UP CALLS AND GETS REPORTS BACK X 0 0 0 0 0 0 0 0 0 MARYANN BRODIE EXECUTIVE DIRECTOR 171363 0 0 0 0 0 5141 0 0 0 176504 0 0 0 BREE DIVENTURA CO-EXECUTIVE DIRECTOR 149890 0 0 0 0 0 4497 0 0 0 154387 0 0 0 MICHAEL SPERLING MICHAEL SPERLING IS THE VICE PRESIDENT OF EPILEPSY STUDY CONSORTIUM INC. 3666 CONSULTING SERVICES 0 STERLING FOUNDATION MANAGEMENT LLC JAMES LINTOTT IS THE TREASURER OF ESC AND THE PARTNER OF STERLING FDN MGMT. 25000 CONSULTING SERVICES 0 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS REVIEWED BY AN INDEPENDENT ACCOUNTANT AND SUBSEQUENTLY BY THE BOARD. FORM 990, PART VI, SECTION B, LINE 12C THE EPILEPSY STUDY CONSORTIUM CONDUCTS AN ANNUAL REVIEW OF THE COMPANY POLICY. FORM 990, PART VI, SECTION B, LINE 15 IN DETERMINING THE COMPENSATION, THERE IS A REVIEW OF THE COMPARATIVE SALARIES IN THE NON-PROFIT WORLD AND THEN THE COMPENSATION IS REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 UPON REQUEST.