2020-06-19T08:17:20-05:00 2020-01-31 410746749 CLIFTONLARSONALLEN LLP 901 N GLEBE ROAD SUITE 200 ARLINGTON VA 22203 990 2019-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1300 WILSON BLVD NO 600 ARLINGTON VA 22209 GREGORY MITCHELL CFO & EVP, FINANCE & ADMN. 2024078580 2020-06-19 1 MICHAELA J CROMAR CPA P00895728 5712279500 2020-06-19 71.178.24.152 2020-06-19 08:16:41 ED P 66F718BFCE6F9B3EE8F9C6FC68E8E061BAD4FB8C 87826B80F82B7742AC94E6ED7EC5993094E974B0 2019 2020-11-06 18:47:13Z THE ALS ASSOCIATION CALANEET BALAS 1300 WILSON BLVD NO 600 ARLINGTON VA 22209 40415254 0 4119 X WWW.ALSA.ORG X 1985 DE LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. 25 25 113 25 0 0 29429700 34202008 146365 112947 -2361210 2827122 -149153 -110273 27065702 37031804 17868141 19723207 0 0 8434709 10678002 421000 890893 5954946 8166363 10516401 34890213 41808503 -7824511 -4776699 96316713 98033652 5877998 7837360 90438715 90196292 X THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 18352163 17004492 0 RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS DOMESTICALLY AND INTERNATIONALLY TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS). 10463835 2715915 PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. 4052273 2800 112947 PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2020, THE ASSOCIATION WORKED WITH CONGRESS TO INCREASE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. 32868271 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 90 0 113 1 0 0 0 0 0 1 1 0 0 0 1 0 0 0 X 25 25 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AK AR CO CT DE DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NV NY NC ND OH OK OR PA RI SC TN UT WA WV WI NM X X GREGORY MITCHELL 2024078580 1300 WILSON BLVD NO 600 ARLINGTON VA 22209 CALANEET BALAS PRESIDENT & CEO 37.50 X 358632 0 49063 GREG MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATION 37.50 X 257561 0 35193 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GOVERNANCE 37.50 X 239507 0 36831 NEIL THAKUR EXECUTIVE VP, MISSION STRATEGY 37.50 X 229145 0 39734 TINA ZEFF EXECUTIVE VP, DEVELOPMENT 37.50 X 209419 0 41320 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION 37.50 X 226534 0 18452 KIMBERLY HARDING-MAGINNIS SENIOR VP, CARE SERVICES 37.50 X 194734 0 14825 KATHLEEN SHEEHAN VP, PUBLIC POLICY & ADVOCACY 37.50 X 167838 0 17329 TERESSA HARRIS VP, FINANCE 37.50 X 152058 0 18033 MARY MORGAN ROTH VP, COMMUNICATIONS 37.50 X 156688 0 12804 LYLES EDDINS VP, DEVELOPMENT 37.50 X 156784 0 4751 MONICA SANTA CRUZ VP, HUMAN RESOURCES & TALENT MANAGEMENT 37.50 X 148273 0 4229 SUE GORMAN CHAIR 5.00 X X 0 0 0 MARK STANCIL TREASURER 5.00 X X 0 0 0 CAMERON WARD SECRETARY 4.00 X X 0 0 0 MARK CALMES VICE-CHAIR 4.00 X X 0 0 0 TOM CARROLL TRUSTEE 5.00 X 0 0 0 DON CASEY TRUSTEE 2.00 X 0 0 0 FRED M DEGRANDIS TRUSTEE 2.00 X 0 0 0 MILLIE ARNOLD TRUSTEE 2.00 X 0 0 0 CONNIE HOUSTON TRUSTEE 2.00 X 0 0 0 SCOTT KAUFFMAN TRUSTEE 2.00 X 0 0 0 CHRISTI L KOLARCIK PHD TRUSTEE 2.00 X 0 0 0 JOHN P KRAVE JD TRUSTEE 2.00 X 0 0 0 LOU LIBBY MD TRUSTEE 2.00 X 0 0 0 WARREN NELSON TRUSTEE 2.00 X 0 0 0 STUART OBERMANN TRUSTEE 2.00 X 0 0 0 KEITH A GARY PH D TRUSTEE 2.00 X 0 0 0 JUDY PRATT DMD TRUSTEE 2.00 X 0 0 0 CHARLIE ROBINSON D SC PE TRUSTEE 2.00 X 0 0 0 WENDY J SCHRIBER TRUSTEE 2.00 X 0 0 0 WILLIAM D SOFFEL TRUSTEE 2.00 X 0 0 0 EUGENE BRANDON PHD TRUSTEE 2.00 X 0 0 0 CLIFTON GOOCH MD TRUSTEE 2.00 X 0 0 0 DOUG BUTCHER TRUSTEE 2.00 X 0 0 0 TOBIN M KUCHARSKI TRUSTEE 2.00 X 0 0 0 J THOMAS MAY TRUSTEE 2.00 X 0 0 0 2497173 0 292564 14 0 1 0 SALESFORCE 415 MISSION STREET 3RD FLOOR SAN FRANCISCO CA 95105 CRM SOFTWARE IMPLEMENTATION 1559095 DRUM - U MARKETING LLC 20 WEST 37TH STREET 3RD FLOOR NEW YORK NY 10018 MARKETING CONSULTING SERVICES 890893 ATTAIN LLC 1600 TYSONS BLVD 1400 MCLEAN VA 22102 CRM SOFTWARE IMPLEMENTATION 590980 TURNKEY PROMOTIONS 3310 ROSEDALE AVE RICHMOND VA 23230 MARKETING CONSULTING SERVICES 568000 4 107805 1745425 389492 31959286 426080 34202008 CONFERENCE FEES 900099 112947 112947 112947 2782381 2782381 3260636 3160437 55458 100199 -55458 44741 44741 0 1745425 167555 -167555 -167555 57282 57282 57282 37031804 112947 0 2716849 X 17293495 17293495 54585 54585 2375127 2375127 1934133 993837 689557 250739 7366026 5023334 984085 1358607 328514 249675 18880 59959 351270 231372 66062 53836 698059 454525 123006 120528 56170 7110 49060 46727 46727 890893 890893 181569 181569 5197577 2572003 190497 2435077 413393 373490 1151 38752 324780 218883 57214 48683 778771 511455 82949 184367 1842807 1237608 304355 300844 360900 242376 59605 58919 674048 674048 100883 59842 20960 20081 CREDIT CARD & DATA FEES 270385 104718 83881 81786 TELECOMMUNICATIONS 260858 190788 22755 47315 CHAPTER SUPPORT 7533 2973 4560 41808503 32868271 2985286 5954946 X -1657000 1382000 275000 6371727 2899434 5692587 2185573 5984641 5138931 190949 196562 127444 570021 697793 540127 92060 157666 73672514 79137064 4184791 7748401 96316713 98033652 2070215 4733477 2818427 1142569 15350 989356 1945964 5877998 7837360 X 79882951 79169831 10555764 11026461 90438715 90196292 96316713 98033652 X -4776699 4509451 24825 X 0 1 X 1 0 X 23487328 27407957 23216448 29429700 34202008 137743441 23487328 27407957 23216448 29429700 34202008 137743441 137743441 1466148 2633793 2156702 2641824 2782381 11680848 2042 47788 43647 56636 57282 207395 149631684 547666 0.92050 0.96000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 64007 501597 565604 41242899 41808503 1000000 250000 0 0 1000000 1000000 1000000 1000000 4000000 6000000 529987 466481 453482 565604 2015554 250000 250000 250000 250000 1000000 1500000 33626 15724 13778 64007 127135 6454731 587974 526390 6516315 6516315 -61584 0 6454731 6516315 482577 482577 6516315 6333662 386180 203527 6516315 6516315 -182653 6333662 0.03640 0.96360 0 0 301491 143825 157666 396302 396302 0 157666 CHAPTER RECEIVABLES 2418418 DEPOSITS 48980 CONSTRUCTION IN PROGRESS - SOFTWARE 3783556 CONSTRUCTION IN PROGRESS - LEASEHOLD IMPROVEMENTS 1497447 7748401 ANNUITY PAYMENT LIABILITY 853282 DEFERRED RENT 1092682 1945964 X 81450768 4509451 40066257 24825 44600533 36850235 181569 181569 37031804 81693191 40066257 40066257 41626934 181569 181569 41808503 PART V, LINE 4: EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. PART X, LINE 2: THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2020 AND 2019. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES. PART XI, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 58,591. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -33,766. 1 EUROPE 0 0 GRANTS RESEARCH 1569454 NORTH AMERICA 0 0 GRANTS RESEARCH 400000 SUB-SAHARAN AFRICA 0 0 GRANTS RESEARCH 31576 EAST ASIA & THE PACIFIC 0 0 GRANTS RESEARCH 100000 SOUTH AMERICA 0 0 GRANTS RESEARCH 274097 0 0 0 0 0 0 2375127 0 2375127 EUROPE CLINICAL MANAGEMENT. 50000 CHECK & WIRE TRANSFER EUROPE CLINICAL PILOT TRIAL. 20373 CHECK & WIRE TRANSFER EUROPE DRUG DEVELOPMENT CONTRACT. 406667 CHECK & WIRE TRANSFER EUROPE INVESTIGATOR INITIATED PROGRAM. 99958 CHECK & WIRE TRANSFER EUROPE LOU GEHRIG CHALLENGE ALS. 42391 CHECK & WIRE TRANSFER EUROPE STRATEGIC INITIATIVE. 327858 CHECK & WIRE TRANSFER EUROPE INVESTIGATOR INITIATED MULTI-YEAR. 622207 CHECK & WIRE TRANSFER EAST ASIA & THE PACIFIC INVESTIGATOR INITIATED STARTER. 100000 CHECK & WIRE TRANSFER NORTH AMERICA INVESTIGATOR INITIATED MULTI-YEAR. 350000 CHECK & WIRE TRANSFER NORTH AMERICA POSTDOCTORAL FELLOWSHIP. 50000 CHECK & WIRE TRANSFER SUB-SAHARAN AFRICA INVESTIGATOR INITIATED MULTI-YEAR. 31576 CHECK & WIRE TRANSFER SOUTH AMERICA INVESTIGATOR INITIATED MULTI-YEAR. 25000 CHECK & WIRE TRANSFER SOUTH AMERICA DRUG DEVELOPMENT CONTRACT. 249097 CHECK & WIRE TRANSFER 13 0 0 0 0 0 0 0 PART I, LINE 2: FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT. PART III ACCOUNTING METHOD: X X X X X X X 1 DRUM - U MARKETING LLC 1 E 22ND STREET SUITE 200 LOMBARD IL 60148 FUNDRAISING COUNSEL 0 3572702 890893 2681809 3572702 890893 2681809 CA AL AK AR CO DE DC FL GA HI KS KY LA ME MD MA MI MN MS NH NJ NM NV NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI PORTLAND WALK TO DEFEAT ALS 216980 216980 1651 11616 LOUISVILLE WALK TO DEFEAT ALS 148233 148233 3500 8800 21 1380212 1380212 15097 876 1475 124540 1745425 1745425 20248 876 1475 144956 167555 -167555 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. 1 ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP 200 JEFFERSON AVENUE SE GRAND RAPIDS MI 49503 272491974 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALLEGHANY HEALTH NETWORK ALLEGHENY-SINGER RESEARCH INSTITUTE ATTN DR SANDEEP RANA 30 ISABELLA ST PITTSBURGH PA 15212 251320493 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ALS NEVERSURRENDER FOUNDATION 12669 W WARREN AVE LAKEWOOD CO 80228 474746935 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 -44288 CLINICAL RESEARCH TRAINING FELLOWSHIP AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 53334 CLINICAL SCIENTIST DEVELOPMENT AWARD AMERICAN ACADEMY OF NEUROLOGY INSTITUTE 201 CHICAGO AVENUE MINNEAPOLIS MN 55415 410726167 501(C)3 -18330 TREAT ALS CLINICAL SCIENTIST AMERICAN BRAIN FOUNDATION 201 CHICAGO AVE MINNEAPOLIS MN 554151126 411717098 501(C)3 127500 CLINICAL RESEARCH TRAINING FELLOWSHIP AMERICAN BRAIN FOUNDATION 201 CHICAGO AVE MINNEAPOLIS MN 55401 411717098 501(C)3 56000 CLINICAL SCIENTIST DEVELOPMENT AWARD AMERICAN BRAIN FOUNDATION 201 CHICAGO AVE MINNEAPOLIS MN 554151126 411717098 501(C)3 50000 SHEILA ESSEY AWARD AMYLYX PHARMACEUTICALS INC 210 BROADWAY NO 201 CAMBRIDGE MA 021391902 464600503 501(C)3 50000 LOU GEHRIG CHALLENGE ALS ANELIXIS THERAPEUTICS INC 300 TECHNOLOGY SQUARE 4TH FLOOR CAMBRIDGE MA 021391902 474022454 501(C)3 250000 ALSA INITIATED AQUINNAH PHARMACEUTICALS INC 700 MAIN STCAMBRIDGE MA 02139 CAMBRIDGE MA 021391902 465070024 501(C)3 100000 DRUG DEVELOPMENT CONTRACT BAYLOR COLLEGE OF MEDICINE ALS CLINIC ACCT 2280015201 ATTN CATHERINE PETTINOS 7200 CAMBRIDGE SUITE 9A HOUSTON TX 77030 300791563 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT BLOOM SCIENCE INC 11575 SORRENTO VALLEY ROAD SAN DIEGO CA 92121 824752586 501(C)3 300000 DRUG DEVELOPMENT CONTRACT BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM PO BOX 500 UNIVERSITY OF WISCONSIN MILWAUKEE WI 53201 391805963 501(C)3 100000 CLINICAL MANAGEMENT BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINIOS 1901 S FIRST STREET SUITE A CHAMPAIGN IL 618207406 376000511 501(C)3 50000 INVESTIGATOR INITIATED STARTER BOARDSOURCE 750 9TH ST NW STE 650 WASHINGTON DC 20001 521681375 501(C)3 10628 CHAPTER SUPPORT TRAININGS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH PO BOX 3887 BOSTON MA 022413887 042312909 501(C)3 50000 STRATEGIC INITIATIVE BROWN UNIVERSITY OFFICE OF SPONSORED PROJECTS 164 ANGELL STREET BOX 1929 PROVIDENCE RI 02912 050258809 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR BROWN UNIVERSITY OFFICE SPONSORED PROJECTS PO BOX 1929 PROVIDENCE RI 02912 050258809 501(C)3 100000 MANAGING ALS CEDARS-SINAI MEDICAL CENTER DEPT OF NEUROLOGY ALS PROGRAM 127 S SAN VICENTE BLVD A6600 LOS ANGELES CA 90048 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CLINIC DARTMOUTH-HITCHCOCK CLINIC ASHLEY YOUNG DIR RES FIN 1 MEDICAL CENTER DRIVE LEBANON NH 037560001 222519596 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 WEST THOMAS ROAD PHOENIX AZ 85013 941196203 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 W THOMAS RD PHOENIX AZ 85013 941196203 501(C)3 250000 STRATEGIC INITIATIVE DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR 350 W THOMAS RD PHOENIX AZ 85013 941196203 501(C)3 59900 TREAT ALS DOUBLE TREE BY MANCHESTER DOWNTOWN DOUBLE TREE BY MANCHESTER DOWNTOWN 700 ELM STREET MANCHESTER NH 03101 042752559 501(C)3 6670 PATIENT EDUCATION SYMPOSIUM DUKE UNIVERSITY DUKE UNIVERSITY DEPT OF NEUROLOGY ATTN MEGAN PHILIPS DUMC BOX 2900 DURHAM NC 27710 560532129 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT EMORY UNIVERSITY 1599 CLIFTON ROAD NE 4TH FLOOR ATLANTA GA 30322 580566256 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR EXECUTIVE DEVELOPMENT ASSOCIATES 4 NE 10TH ST 171 OKLAHOMA CITY OK 73104 208359176 501(C)3 5831 CHAPTER SUPPORT TRAININGS FACULTY PHYSICIANS AND SURGEONS OF LLUSM C/O JEFFREY ROSENFELD PHD MD 11370 ANDERSON STREET SUITE B-100 LOMA LINDA CA 92354 330672915 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GENERAL ELECTRIC 1 RESEARCH CIRCLE NISKAYUNA NY 12309 140689340 501(C)3 -14172 LOU GEHRIG CHALLENGE ALS GEORGIA HEALTH SCIENCES FOUNDATION INC DEPT OF NEUROLOGY EMG LAB 1120 15TH STREET BP 4390 AUGUSTA GA 309120004 352310573 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT GNS HEALTHCARE INC 196 BROADWAY CAMBRIDGE MA 021391902 271667187 501(C)3 -93750 STRATEGIC INITIATIVE GW- MFA ALS CLINIC DEPT OF NEUROLOGY 2180 PENNSYLVANIA AVE WASHINGTON DC 20007 522220700 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT HENNEPIN HEALTHCARE FOUNDATION LSB-3 701 PARK AVE MINNEAPOLIS MN 55415 421707837 501(C)3 25000 CERTIFIED 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MA 01805 042704683 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO 433 BOLIVAR STREET 8TH FLOOR NEW ORLEANS LA 70112 720702002 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR LUDWIG INSTITUTE FOR CANCER RESEARCH 8950 VILLA LA JOLLA DR SUITE C135 LA JOLLA CA 92037 237121131 501(C)3 250000 DRUG DEVELOPMENT CONTRACT MASSACHUSETTS GENERAL HOSPITAL - RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 155000 ALSA INITIATED MASSACHUSETTS GENERAL HOSPITAL - RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 98814 CLINICAL MANAGEMENT MASSACHUSETTS GENERAL HOSPITAL - RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 160000 DRUG DEVELOPMENT CONTRACT MASSACHUSETTS GENERAL HOSPITAL - RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 022414876 042697983 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR MASSACHUSETTS GENERAL HOSPITAL - RESEARCH 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593337028 501(C)3 150000 INVESTIGATOR INITIATED MULTI-YEAR MAYO CLINIC JACKSONVILLE DEPARTMENT OF RESEARCH 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 50000 INVESTIGATOR INITIATED STARTER MAYO CLINIC JACKSONVILLE DEPARTMENT OF RESEARCH 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 32500 STRATEGIC INITIATIVE MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 -16061 TREAT ALS MID COAST ATTN CELESTE MOREAU 81 MEDICAL CENTER DRIVE SUITE 2400 BRUNSWICK ME 04101 010215911 501(C)3 5460 MAINE ALS CLINIC GRANT MOUNT SINAI HEALTH SYSTEM MOUNT SINAI HEALTH SYSTEM OFFICE DEVELOPMENT ONE GUSTAVE L LEVY PLAC NEW YORK NY 10029 135564934 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT NICHD/NIH 6710 B ROCKLEDGE DR 1211C 1211C BETHESDA MD 208927970 501(C)3 50000 POST DOCTORAL FELLOWSHIP NATIONAL INSTITUTE OF NEUOLOGICAL DISORDERS AND STROKE ATTN FINANCIAL MGMT 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OR 97201 931176109 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ORIGENT DATA SCIENCES INC 8245 BOONE BLVD SUITE 600 VIENNA VA 22182 383916182 501(C)3 82334 STRATEGIC INITIATIVE PENN STATE HERSHEY MEDICAL CENTER DR ZACHARY SIMMONS DEPT OF NEUROLOGY EC 037 30 HOPE DRIVE HERSHEY PA 17033 246000376 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PISON TECHNOLOGY INC 258 HARVARD STREET STE 312 BROOKLINE MA 02446 813603539 501(C)3 100000 MANAGING ALS PORTLAND VA RESEARCH FOUNDATION PO BOX 5977 PORTLAND OR 97228 943090170 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 022415649 042103580 501(C)3 -194 CLINICAL MANAGEMENT PRESIDENT AND FELLOWS OF HARVARD COLLEGE HARVARD UNIVERSITY OFFICE FOR SPONSORED PROGRAMS 1033 MASSACHUSET CAMBRIDGE MA 02138 042103580 501(C)3 99999 INVESTIGATOR INITIATED STARTER PRESIDENT AND FELLOWS OF HARVARD COLLEGE PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 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REGENTS OF THE UNIVERSITY OF MINNESOTA NW 5957 PO BOX 1450 MINNEAPOLIS MN 554855957 386006309 501(C)3 25659 STRATEGIC INITIATIVE ROCKEFELLER UNIVERSITY ATTN ROBIN MALONEY - ASST TREAS 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)3 50000 INVESTIGATOR INITIATED MULTI-YEAR RUTGERS ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL FOUNDATION 10 PLUM STREET NEW BRUNSWICK NJ 08901 222378007 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SCRIPPS FLORIDA 130 SCRIPPS WAY JUPITER FL 33458 330435954 501(C)3 75000 POST DOCTORAL FELLOWSHIP SPECTRUM HEALTH FOUNDATION 100 MICHIGAN STREET NE MAIL CODE 004 GRAND RAPIDS MI 49503 382752328 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT ST JUDE CHILDREN'S RESEARCH HOSPITAL LYNETTE NELSON SUPERVISOR GRANT AND CONTRACTS MANAGEMENT OFFICE 262 DAN MEMPHIS TN 38105 620646012 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR ST JUDE CHILDREN'S RESEARCH HOSPITAL 262 DANNY THOMAS PLACE MS 509 MEMPHIS TN 38105 620646012 501(C)3 167187 LOU GEHRIG CHALLENGE ALS ST LOUIS UNIVERSITY ALS CENTER 3660 VISTA AVENUE NEUROLOGY CLINIC ROOM 303 ST LOUIS MS 63110 430654872 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT STATE UNIVERSITY OF NEW YORK AT STONY BROOK WEST 5510 MELVILLE LIBRARY STONY BROOK NY 117943362 146013200 501(C)3 100000 MANAGING ALS SUTTER WEST BAY HOSPITAL 2324 SACRAMENTO ST 111 SAN FRANCISCO CA 94115 941156581 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SWEDISH NEUROSCIENCE INSTITUTE PHYSICIAN DIVISON 550 17TH AVE SUITE 400 SEATLE WA 98122 912073120 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT SYRACUSE UNIVERSITY BURSARS OFFICE 102 ARCHBOLD NORTH SYRACUSE UNIVERSITY SYRACUSE NY 13244 150532081 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR TACONIC BIOSCIENCES 273 HOVER AVE GERMANTOWN NY 125265320 141381104 501(C)3 34442 STRATEGIC INITIATIVE TARGET ALS FOUNDATION 1740 BROADWAY 15TH FLOOR NEW YORK NY 10019 810756743 501(C)3 300000 STRATEGIC INITIATIVE THE ALS ASSOCIATION-ALABAMA CHAPTER C/O NANCY COLIN PO BOX 2888 HUNTSVILLE AL 35804 202218566 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-ARIZONA CHAPTER C/O TARYN NORLEY 4643 E THOMAS ROAD SUITE 1 PHONEIX AZ 85018 860727136 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-ARKANSAS CIO 1200 WEST WALNUT SUITE 2406-08 ROGERS AR 72756 204863643 501(C)3 7000 MT PHARM STIPEND THE ALS ASSOCIATION-CENTRAL & SOUTHERN OHIO CHAPTER 1170 OLD HENDERSON RD STE 221 COLUMBUS OH 43220 311235704 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-CONNECTICUT CHAPTER 4 OXFORD ROAD UNIT E4 MILFORD CT 06460 043417472 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-DCMDVA CHAPTER ATTN CHRISTINE KIRKLEY 30 W GUDE DR DR ROCKVILLE MD 20850 501(C)3 7000 MT PHARM STIPEND THE ALS ASSOCIATION-EVERGREEN CHAPTER 6100 SOUTHCENTER BLVD STE 290 SEATTLE WA XXX-XX-XXXX SEATTLE WA 98188 911950869 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-FLORIDA CHAPTER ATTN KIM HANNA 3242 PARKSIDE CENTER CIRCLE TAMPA FL 33619 943124732 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-GEORGIA CHAPTER 5881 GLENRIDGE DRIVE SUITE 200 ATLANTA GA 30328 581943490 501(C)3 10500 ROSALYNN-CARTER INSTITUTE CAREGIVING PROGRAM THE ALS ASSOCIATION-GEORGIA CHAPTER 1955 CLIFF VALLEY WAY SUITE 116 ATLANTA GA 30329 581943490 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-GOLDEN WEST CHAPTER PO BOX 565 AGOURA HILLS CA 913760565 954163338 501(C)3 7000 MT PHARM STIPEND THE ALS ASSOCIATION-GREATER CHICAGO CHAPTER 220 WEST HURON STE 4003 CHICAGO IL 60654 542126575 501(C)3 10500 CARE SERVICE BOOT CAMP EXPANSION INITIATIVE THE ALS ASSOCIATION-GREATER CHICAGO CHAPTER 220 WEST HURON SUITE 4003 CHICAGO IL 60610 542126575 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-GREATER NEW YORK CHAPTER 116 JOHN STREET SUITE 1304 NEW YORK NY 10038 133616680 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-GREATER PHILADELPHIA CHAPTER 321 NORRISTOWN RD SUITE 260 AMBLER PA 19002 232387205 501(C)3 12000 GEISINGER ALS CLINIC TELEHEALTH PROJECT THE ALS ASSOCIATION-GREATER PHILADELPHIA CHAPTER 321 NORRISTOWN RD SUITE 260 AMBLER PA 19002 232387205 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-GREATER SACRAMENTO CHAPTER 5701 SUNRISE BLVD CITRUS HEIGHTS CA 95610 680152992 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-GREATER SAN DIEGO CHAPTER 7920 SILVERTON SUITE E SAN DIEGO CA 921266350 043651272 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-INDIANA CHAPTER 7202 E 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 353029321 501(C)3 12500 CLINIC EXPANSION INITATIVE THE ALS ASSOCIATION-INDIANA CHAPTER 7202 E 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 353029321 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER 11725 INDUSTIPLEX BLVD SUITE 3 BATON ROUGE LA 708095190 201742120 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER C/O LYNN AARONSON 685 CANTON STREET SUITE 103 NORWOOD MA 02062 043085718 501(C)3 100000 ASSISTIVE TECHNOLOGY REGINONAL OUTREACH 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ASSOCIATION-NORTH CAROLINA CHAPTER 1425-113 ROCK QUARRY ROAD RALEIGH NC 27610 561609591 501(C)3 20000 ATRIUM HEALTH TELEMEDICINE PROGRAM THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER 4 N BLOUNT ST 2ND FLOOR RALEIGH NC 27601 561609591 501(C)3 7500 JOE MARTIN'S CHILDREN OUTREACH GRANT - NC 2019 THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER 1425-113 ROCK QUARRY ROAD RALEIGH NC 27610 561609591 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-NORTHERN OHIO CHAPTER 2500 E 22ND STREET SUITE 102 CLEVELAND OH 44115 501(C)3 7000 MTPHARMA STIPEND THE ALS ASSOCIATION-OREGON & SW WASHINGTON CHAPTER 700 NE MULTNOMAH ST SUITE 210 PORTLAND OR 97232 680516066 501(C)3 7000 MT PHARM STIPEND THE ALS ASSOCIATION-RHODE ISLAND CHAPTER GATEWAY PLAZA 1637 WARWICK AVENUE WARWICK RI 028891525 050460482 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER 1201 EAST COLFAX AVE SUITE 202 DENVER CO 80218 841337868 501(C)3 7000 MT PHARMA STIPEND THE ALS ASSOCIATION-ST LOUIS REGIONAL CHAPTER C/O 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CALIFORNIA SAN FRANCISCO 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 946036493 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO UCSF CONTROLLERS OFFICE CONTRACTS AND GRANTS ACCOUNTING BOX 0897 1855 SAN FRANCISCO CA 94143 946039493 501(C)3 50000 INVESTIGATOR INITIATED STARTER THE REGENTS OF THE UNIVERSITY OF MICHIGAN C/O BNY MELLON BOX 223131 PITTSBURGH PA 15251 386006309 501(C)3 50000 CLINICAL MANAGEMENT THE RESEARCH FOUNDATION OF SUNY ATTN RESEARCH ACCOUNTING 750 EAST ADAMS STREET ROOM 209 CAB SYRACUSE NY 13210 141368361 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT THE RESEARCH FOUNDATION OF SUNY 750 EAST ADAMS STREET WEISKOTTEN HALL ROOM 1111D SYRACUSE NY 13210 141368361 501(C)3 50000 INVESTIGATOR INITIATED STARTER THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK SPONSORED PROJECTS FINANCE P O BOX 29789 GENERAL POST OFFOCE NEW YORK NY 10087 135598093 501(C)3 50000 INVESTIGATOR INITIATED STARTER THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK SPONSORED PROJECTS FINANCE P O BOX 29789 GENERAL POST OFFOCE NEW YORK NY 10087 135598093 501(C)3 294671 LOU GEHRIG CHALLENGE ALS THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK SPONSORED PROJECTS FINANCE P O BOX 29789 GENERAL POST OFFOCE NEW YORK NY 10087 135598093 501(C)3 50000 POST DOCTORAL FELLOWSHIP THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK SPONSORED PROJECTS FINANCE P O BOX 29789 GENERAL POST OFFOCE NEW YORK NY 10087 135598093 501(C)3 500000 STRATEGIC INITIATIVE THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR PHILADELPHIA PA 19104 231352685 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 5TH FLOOR PHILADELPHIA PA 19104 231352685 501(C)3 25000 POST DOCTORAL FELLOWSHIP THE UNIVERSITY OF CHICAGO 5841 S MARYLAND AVE DEPT OF NEUROLOGY MC2030 CHICAGO IL 60637 362177139 501(C)3 50000 DRUG DEVELOPMENT CONTRACT THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN ST HOUTON TX 77030 741761309 501(C)3 50000 INVESTIGATOR INITIATED STARTER THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7000 FANNIN ST HOUTON TX 77030 741761309 501(C)3 25000 STRATEGIC INITIATIVE THERA NEUROPHARMA 538 NEWTOWN ROAD BERWYN PA 19312 812014147 501(C)3 50000 INVESTIGATOR INITIATED MULTI-YEAR TRUSTEES OF COLUMBIA UNIVERSITY-CITY OF NEW YORK CU GRANTS CONTRACTS P O BOX 29789 GENERAL POST OFFICE NEW YORK NY 100 NEW YORK NY 10087 135598093 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UC DAVIS MULTIDISCIPLINARY ALS CLINIC ONE SHIELDS AVE DAVIS CA 95616 946036494 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DRIVE MC 0934 SAN DIEGO CA 92039 956006144 501(C)3 50000 INVESTIGATOR INITIATED STARTER UNIVERSITY OF CHICAGO MEDICINE C/O RAYMOND ROSS 5841 S MARYLAND AVE MC 2030 CHICAGO IL 60637 362177139 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 326115500 596002052 501(C)3 89925 CLINICAL MANAGEMENT UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 326115500 596002052 501(C)3 24764 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 326115500 596002052 501(C)3 20000 INVESTIGATOR INITIATED STARTER UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 326115500 596002052 501(C)3 50000 POST DOCTORAL FELLOWSHIP UNIVERSITY OF FLORIDA BOARD OF TRUSTEES 207 GRINTER HALL PO BOX 115500 GAINESVILLE FL 326115500 596002052 501(C)3 75659 STRATEGIC INITIATIVE UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC 1801 W TAYLOR ST SUITE 4E CHICAGO IL 60612 376000511 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF KENTUCKY DEPT OF NEUROLOGY 740 SOUTH LIMESTONE SUITE J425 LEXINGTON KY 405360284 616001218 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MARYLAND BALTIMORE DEPARTMENT OF NEUROLOGY 110 SOUTH PACA ST 3RD FLOOR BALTIMORE MD 21202 526002033 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 50000 DRUG DEVELOPMENT CONTRACT UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 96498 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 25000 POST DOCTORAL FELLOWSHIP UNIVERSITY OF MASSACHUSETTTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 854509 STRATEGIC INITIATIVE UNIVERSITY OF MIAMI DEPT OF NEUROLOGY ALS CENTER FOR EXCELLENCE 1120 NW 14TH STREET MIAMI FL 33136 592579826 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MICHIGAN ALS CLINIC UNIVERSITY OF MICHIGAN ALS CLINIC 1500 E MEDICAL CENTER DRIVE ANN ARBOR MI 48109 386006309 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF MINNESOTA NW 5957 P O BOX 1450 MINNEAPOLIS MN 55485 416007513 501(C)3 67196 CLINICAL MANAGEMENT UNIVERSITY OF MINNESOTA FOUNDATION PO BOX 860266 MINNEAPOLIS MN 554860266 416042488 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL HILL OFFICE OF SPONSORED RESEARCH IN CARE OF BANK OF AMERICA LOCKBOX ATLANTA GA 30384 566001393 501(C)3 25000 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF OREGON C/O SPONSORED PROJECTS SERVICES 5219 UNIVERSITY OF OREGON EUGENE OR 97403 464727800 501(C)3 50000 POST DOCTORAL FELLOWSHIP UNIVERSITY OF PITTSBURGH UNIVERSITY OF PITTSBURGH ATTN 371220 500 ROSS STREET 154-0455 PITTSBURGH PA 152620001 125096559 501(C)3 150000 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF PITTSBURGH OFFICE OF RESEARCH 123 UNIVERSITY PLACE B21 PITTSBURGH PA 15213 125096559 501(C)3 50000 INVESTIGATOR INITIATED STARTER UNIVERSITY OF RHODE ISLAND ATTN SPONSORED COST ACCOUNTING 70 LOWER COLLEGE RD KINGSTON RI 02881 223011455 501(C)3 50000 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER MEDICAL CENTER 601 ELMWOOD AVENUE BOX 673 ROCHESTER NY 14642 160743209 501(C)3 56310 STRATEGIC INITIATIVE UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER ST 3RD FLOOR LOS ANGELES CA 90090 951642394 501(C)3 125000 DRUG DEVELOPMENT CONTRACT UNIVERSITY OF SOUTHERN CALIFORNIA 3720 S FLOWER ST 3RD FLOOR LOS ANGELES CA 90090 951642394 501(C)3 -3217 INVESTIGATOR INITIATED MULTI-YEAR UNIVERSITY OF UTAH 175 N MEDICAL DR E ROOM 5001 SALT LAKE CITY UT 84132 876000525 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF VERMONT MEDICAL CENTER ALS CLINIC 1 SOUTH PROSPECT ST BURLINGTON VT 05401 030219309 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT UNIVERSITY OF VERMONT DEPARTMENT OF NEUROLOGICAL SCIENCES ATTN JOANNE STETSON COLLEGE OF MEDICINE 89 BEAUMONT DR GIVEN C225 BURLINGTON VT 05405 030179440 501(C)3 12500 NNE CHAPTER SUPPORT OF VERMONT CLINICAL & RESEARCH UNIVERSITY OF VIRGINIA DEPT OF NEUROLOGY PO BOX 800394 CHARLOTTESVILLE VA 22908 541124769 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VA CONNECTICUT RESEARCH AND EDUCATION FOUNDATION 950 CAMPBELL AVENUE BLDG 35A ROOM 104 WEST HAVEN CT 06516 202206467 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VA PUGET SOUND HEALTH CARE SYSTEM ATTN VOLUNTARY SERVICE 1660 SOUTH COLUMBIAN WAY SEATTLE WA 98108 741612229 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT VIRGINIA COMMONWEALTH UNIVERSITY GRANTS CONTRACTS ACCOUNTING 800 E LEIGH ST STE 3100 843039 RICHMOND VA 232843039 546001758 501(C)3 25000 INVESTIGATOR INITIATED STARTER VIRGINIA COMMONWEALTH UNIVERSITY GRANTS CONTRACTS ACCOUNTING 800 E LEIGH ST STE 3100 843039 RICHMOND VA 232843039 546001758 501(C)3 25659 STRATEGIC INITIATIVE VIRGINIA MASON MEDICAL CENTER ALS CLINIC NEUROLOGY AND NEUROPHYSIOLOGY 1100 NINTH AVENUE PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)3 25000 CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 24966 ALSA INITIATED WASHINGTON UNIVERSITY IN ST LOUIS 1 BROOKINGS DR CAMPUS BOX 1054 ST LOUIS MO 63130 430653611 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 -193 LOU GEHRIG CHALLENGE ALS WASHINGTON UNIVERSITY IN ST LOUIS CAMPUS BOX 1034 700 ROSEDALE AVENUE AVENUE ST LOUIS MO 63112 430653611 501(C)3 25000 STRATEGIC INITIATIVE WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY RESEARCH ACCT C/O MELISSA PARAY 575 LEXINGTON AVE 9TH FLOOR NEW YORK NY 10022 133376695 501(C)3 250000 DRUG DEVELOPMENT CONTRACT YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS P O BOX 1873 NEW HAVEN CT 06508 060646973 501(C)3 100000 INVESTIGATOR INITIATED MULTI-YEAR YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS P O BOX 1873 NEW HAVEN CT 06508 060646973 501(C)3 49969 STRATEGIC INITIATIVE 230 0 POWER LIFT SEATS 9 16164 FMV POWER LIFT SEATS CARE SERVICES GRANTS 64 38421 PART I, LINE 2: GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. X X X X X X 0 0 0 0 0 0 0 0 0 CALANEET BALAS PRESIDENT & CEO 308632 0 50000 0 0 0 41250 0 7813 0 407695 0 0 0 GREG MITCHELL EXECUTIVE VP, FINANCE & ADMINISTRATI 238594 0 18967 0 0 0 24301 0 10892 0 292754 0 0 0 LANCE SLAUGHTER EXECUTIVE VP, CHAPTER RELATIONS & GO 217313 0 22194 0 0 0 20646 0 16185 0 276338 0 0 0 NEIL THAKUR EXECUTIVE VP, MISSION STRATEGY 204545 0 24600 0 0 0 24750 0 14984 0 268879 0 0 0 TINA ZEFF EXECUTIVE VP, DEVELOPMENT 189419 0 20000 0 0 0 22770 0 18550 0 250739 0 0 0 BRIAN FREDERICK EXECUTIVE VP, COMMUNICATION 202019 0 24515 0 0 0 16915 0 1537 0 244986 0 0 0 KIMBERLY HARDING-MAGINNIS SENIOR VP, CARE SERVICES 194734 0 0 0 0 0 5924 0 8901 0 209559 0 0 0 KATHLEEN SHEEHAN VP, PUBLIC POLICY & ADVOCACY 167838 0 0 0 0 0 5271 0 12058 0 185167 0 0 0 TERESSA HARRIS VP, FINANCE 152058 0 0 0 0 0 3000 0 15033 0 170091 0 0 0 MARY MORGAN ROTH VP, COMMUNICATIONS 156688 0 0 0 0 0 4246 0 8558 0 169492 0 0 0 LYLES EDDINS VP, DEVELOPMENT 156784 0 0 0 0 0 4141 0 610 0 161535 0 0 0 MONICA SANTA CRUZ VP, HUMAN RESOURCES & TALENT MANAGEM 148273 0 0 0 0 0 3000 0 1229 0 152502 0 0 0 PART I, LINE 3 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. X 160 111399 FMV X 36 314681 AVG HIGH/LOW AT DATE 0 0 1 1 PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 1 THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. FORM 990, PART VI, SECTION A, LINE 6 MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT. FORM 990, PART VI, SECTION A, LINE 7A BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOR IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER. FORM 990, PART VI, SECTION B, LINE 11B THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE CFO. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT/CEO, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT/CEO'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF TRUSTEES WITHOUT THE PARTICIPATION OF THE PRESIDENT/CEO. THIS PROCESS TAKES PLACE ANNUALLY. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT/CEO AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. THIS PROCESS TAKES PLACE ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. FORM 990, PART IX, LINE 11G TELECOMMUNICATIONS, PUBLIC POLICY, OTHER CONSULTING: PROGRAM SERVICE EXPENSES 2,572,003. MANAGEMENT AND GENERAL EXPENSES 190,497. FUNDRAISING EXPENSES 803,414. TOTAL EXPENSES 3,565,914. DIRECT MAIL: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,631,663. TOTAL EXPENSES 1,631,663. FORM 990, PART XI, LINE 9: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 58,591. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -33,766.