2020-04-24T10:16:39-05:00 2019-08-31 221732349 WISS & COMPANY LLP 354 EISENHOWER PKWY LIVINGSTON NJ 07039 990 2018-09-01 131962771 AMERICAN PARKINSON DISEASE ASSOC AMER 7189818001 135 PARKINSON AVE STATEN ISLAND NY 10305 LESLIE CHAMBERS PRESIDENT/CEO 7189818001 2020-03-20 1 DIANA MILLER P01597612 9739949400 74.117.224.74 2020-03-20 14:22:54 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 5FD4ECEC8A25837707221597E8D25428D0958C5E 2018 2020-11-06 18:47:13Z LESLIE CHAMBERS 135 PARKINSON AVE STATEN ISLAND NY 10305 14974462 0 X WWW.APDAPARKINSON.ORG X 1961 NY EVERY DAY WE PROVIDE THE SUPPORT, EDUCATION, AND RESEARCH THAT WILL HELP EVERYONE IMPACTED BY PARKINSON'S DISEASE LIVE LIFE TO THE FULLEST. 14 13 42 885 0 0 10380340 11720995 0 0 264191 62511 -280417 -238162 10364114 11545344 2478015 2887141 0 0 3579410 3891470 405078 166126 1747556 4741873 4911271 11204376 11856008 -840262 -310664 12395357 16524435 2094343 3076557 10301014 13447878 X THE AMERICAN PARKINSON DISEASE ASSOCIATION (APDA) IS THE LARGEST GRASSROOTS NETWORK DEDICATED TO FIGHTING PARKINSON'S DISEASE (PD) AND WORKS TIRELESSLY TO ASSIST MORE THAN 1 MILLION AMERICANS WITH PD LIVE LIFE TO THE FULLEST IN THE FACE OF THIS (CONTINUED ON SCHEDULE O) CHRONIC, NEUROLOGICAL DISORDER. FOUNDED IN 1961, APDA HAS RAISED AND INVESTED MORE THAN $185 MILLION TO PROVIDE OUTSTANDING PATIENT SERVICES AND EDUCATIONAL PROGRAMS, ELEVATE PUBLIC AWARENESS ABOUT THE DISEASE, AND SUPPORT RESEARCH DESIGNED TO UNLOCK THE MYSTERIES OF PD AND ULTIMATELY PUT AN END TO THIS DISEASE. 0 0 3884688 PUBLIC AWARENESS - APDA CURRENTLY PROVIDES (ON-LINE AND IN PRINT) MORE THAN 38 FREE EDUCATIONAL PUBLICATIONS, 19 IN ENGLISH AND 11 IN SPANISH, TO ADDRESS MEDICAL AND SOCIAL ASPECTS OF THE DIAGNOSIS, TREATMENT AND CARE OF PARKINSON DISEASE PATIENTS. DISTRIBUTED THROUGH APDA CHAPTERS, I&R CENTERS, AND WITH ITS "800" CALL LINE, APDA ALSO RAISES AWARENESS THROUGH TELEVISION PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGNS ENTITLED "LIVE WITH OPTIMISM AND "LOOK CLOSER" THAT HAVE AIRED NATIONWIDE SINCE 2015. APPROXIMATELY 240,000 NEWSLETTERS ARE MAILED ANNUALLY.CONTRIBUTED SERVICES INCLUDE DONATED MEDIA (TELEVISION AND RADIO BROADCASTING AND OTHER FORMS OF MEDIA, INCLUDING PUBLIC SERVICE ANNOUNCEMENTS) VALUED AT APPROXIMATELY $9,366,367 FOR THE YEAR ENDED AUGUST 31, 2018 AND $13,470,575 FOR THE YEAR ENDED AUGUST 31, 2019. THE FAIR VALUE OF THE DONATED MEDIA IS DETERMINED BASED ON CONSIDERATION OF CASH PAYMENTS TYPICALLY MADE BY BUYERS FOR SIMILAR ADVERTISING AND MEDIA, STANDARD DISCOUNTS GIVEN FOR SIMILARLY PLACED MEDIA, THE MEDIA TYPE AND PLACEMENT AND OTHER CONSIDERATIONS. APDA DOES NOT RECOGNIZE ANY REVENUE OR EXPENSE FROM SERVICES CONTRIBUTED BY VOLUNTEERS BECAUSE IT DOES NOT MEET THE CRITERIA FOR RECOGNITION UNDER FASB ASC 958, NOT-FOR-PROFIT ENTITIES. 2383559 769896 PATIENT SERVICES AND EDUCATIONAL PROGRAMS - APDA AIMS TO SUPPORT EVERY PERSON AND EVERY FAMILY IMPACTED BY PARKINSON'S. THROUGH ITS NATIONWIDE SYSTEM OF CHAPTERS AND INFORMATION & REFERRAL (I&R) CENTERS, APDA UNIQUELY DELIVERS EDUCATION, SUPPORT AND PATIENT SERVICES TO AMERICANS WITH PARKINSON'S AND THEIR FAMILIES EACH DAY. 20 INFORMATION AND REFERRAL CENTERS ARE FUNDED. APDA CONDUCTED 5 NATIONAL PATIENT WEBINARS ON TOPICS THAT ADDRESS THE SYMPTOMS AND TREATMENT OF PARKINSON'S DISEASE AND REACHED OVER 60,000 INDIVIDUALS. THE NATIONAL SUPPORT GROUP PROGRAM "PRESS", PARKINSON'S ROADMAP FOR SUPPORT AND SERVICES, WAS SUCCESSFULLY OFFERED IN TWENTY MARKETS. 2660353 2117245 RESEARCH - APDA PROUDLY INVESTS IN EIGHT CENTERS FOR ADVANCED RESEARCH AND SUPPORTS GRANTS TO FUND THE MOST PROMISING SCIENCE FOCUSED ON DISCOVERING THE CAUSE(S) AND FINDING THE CURE FOR PARKINSON'S DISEASE. SINCE ITS FOUNDING IN 1961, APDA HAS BEEN A FUNDING PARTNER IN MANY OF THE MAJOR PD SCIENTIFIC BREAKTHROUGHS. IN COLLABORATION WITH THE PARKINSON'S FOUNDATION 12 SUMMER FELLOWSHIPS WERE FUNDED. 8928600 1 1 0 0 0 0 0 0 0 1 1 1 0 1 1 1 1 0 0 0 0 0 0 1 1 1 0 1 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 47 0 1 42 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 14 13 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CT FL GA IL IA MA MN MS NE NH NJ NY OH OK RI TN TX UT VT VA WA WI X X CHERYL WEINER 7189818001 135 PARKINSON AVE STATEN ISLAND NY 10305 PATRICK MCDERMOTT CHAIRMAN 1.50 X X 0 0 0 THOMAS K PENETT ESQ 1ST VICE CHAIR 1.50 X X 0 0 0 SALLY ANN ESPOSITO BROWNE SECRETARY 1.50 X X 0 0 0 ELENA MAESTRONE IMPERATO TREASURER 1.50 X X 0 0 0 MARIO J ESPOSITO JR EXECUTIVE COMMITTEE MEMBER 1.50 X X 0 0 0 ELIZABETH BRAUN RN DIRECTOR 0.50 X 0 0 0 ATHOL COCHRANE DIRECTOR 0.50 X 0 0 0 LISA ESPOSITO DVM DIRECTOR 0.50 X 0 0 0 MICHAEL MELNICKE DIRECTOR 0.50 X 0 0 0 DAVID G STANDAERT MD PHD DIRECTOR 0.50 X 0 0 0 DAVID BUTLER DIRECTOR TO 5/2019 0.50 X 0 0 0 DONNA JC FANELLI DNP DIRECTOR 0.50 X 0 0 0 JOEL A MIELE JR DIRECTOR 0.50 X 0 0 0 BERNARD BATTISTA DIRECTOR 0.50 X 0 0 0 LESLIE A CHAMBERS PRESIDENT/CEO 40.00 X 272724 0 60184 STEPHANIE PAUL SR. VP DEVELOPMENT & MARKETING 40.00 X 178787 0 42970 ROBIN KORNHABER SR. VP PROGRAM & SERVICES 40.00 X 149754 0 40486 ELOISE CAGGIANO SR. DEVELOPMENT DIRECTOR 40.00 X 122788 0 19929 PENNY WESTBERRY VP CHAPTER DEV & FIELD OPE 40.00 X 137024 0 39087 REBECCA GILBERT VP & CHIEF SCIENTIFIC OFFICER 30.00 X 126436 0 15464 CHERYL WEINER CONTROLLER 40.00 X 120189 0 24350 1107702 0 242470 9 0 1 0 SOUTHWEST PUBLISHING 4000 SE ADAMS ST TOPEKA KS 666091481 DIRECT MAIL PRINTING AND SHIPPING 1222930 THOMPSON HABIB & DENISON INC 55 OLD BEDFORD RD SUITE 201 LINCOLN MA 01773 DIRECT MAIL CONSULTANTS 442299 AOIC LLC ONE EAST UWCHIAN AVE STE 408 EXTON PA 19341 WEBINAR CONSULTING 222521 INNOVAIRRE COMMUNICATION PO BOX 870 FOREST VA 24551 DIRECT MAIL PRINTING AND SHIPPING 155790 FORWARD PMX AGENCY LLC ONE WORLD TRADE CTR 63RD FL NEW YORK NY 10007 DATA STORAGE, SECURITY AND MAINTENANCE 143254 5 153637 2322443 9244915 1000 11720995 105195 105195 30646 0 30646 30646 30646 2957968 3000652 -42684 -42684 -42684 124472 2322443 428204 -303732 -303732 35186 262 34924 34924 11545344 0 0 -175651 2887141 2887141 554665 399947 91564 63154 2527263 1822308 417201 287754 250334 180506 41325 28503 348633 251385 57552 39696 210575 151837 34762 23976 81836 59009 13509 9318 59000 42543 9740 6717 166126 166126 31842 22926 5413 3503 746060 598608 99640 47812 305377 219903 51770 33704 378296 253268 51965 73063 344844 211139 36327 97378 171550 124462 28494 18594 424896 345366 79068 462 144521 104208 23858 16455 73361 52898 12110 8353 POSTAGE 891921 438349 30328 423244 STATIONERY AND PRINTING 747779 455874 44744 247161 MAILINGS 234704 107237 4767 122700 MAINTENANCE AND REPAIRS 87636 63191 14467 9978 187648 136495 31248 19905 11856008 8928600 1179852 1747556 4531791 5815190 2391899 855246 10261 45037 403053 1138876 373549 339745 3967043 1627702 2458987 2339341 2225817 2445120 0 3545880 12395357 16524435 556422 542608 1252745 2080272 220390 399625 64786 54052 2094343 3076557 X 7672033 7336607 2456037 4665961 172944 1445310 10301014 13447878 12395357 16524435 X -310664 -92795 3675843 -125520 X X 0 1 X 1 0 X 10570856 8569054 11433538 10380340 11720995 52674783 10570856 8569054 11433538 10380340 11720995 52674783 657870 52016913 115609 16828 84744 97991 135841 451013 4786 4786 53130582 0.97900 0.97650 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 172944 123 123 172944 172944 138 138 172944 172944 133 133 172944 172944 132 132 172944 172930 14 132 132 172944 1.00000 0 0 696071 696071 2820627 1313926 1506701 161765 71307 90458 114306 92803 21503 174274 149666 24608 2339341 MUTUAL FUNDS-EQUITIES 2395677 F MUTUAL FUNDS-FIXED INCOME 49443 F 2445120 BENEFICIAL INTEREST IN PERPETUAL TRUST 1272366 BENEFICIAL INTEREST IN REMAINDER TRUSTS 2273514 3545880 CHARITABLE GIFT ANNUITIES PAYABLE 54052 54052 X 25194821 37168 13471575 303994 13812737 11382084 163260 163260 11545344 25723800 13471575 428204 13899779 11824021 31987 31987 11856008 PART X, LINE 2: APDA IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND, THEREFORE, HAS MADE NO PROVISION FOR FEDERAL OR STATE INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. APDA HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509(A)(1) OF THE INTERNAL REVENUE CODE. OTHER SIGNIFICANT TAX POSITIONS INCLUDE ITS DETERMINATION OF WHETHER ANY AMOUNTS ARE SUBJECT TO UNRELATED BUSINESS INCOME TAX ("UBIT"). ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS BEEN DETERMINED THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. THE MOST SIGNIFICANT JURISDICTIONS IN WHICH APDA IS REQUIRED TO FILE TAX RETURNS INCLUDE THE U.S. FEDERAL JURISDICTION AND THE STATE OF NEW YORK, ALTHOUGH APDA FILES IN ALMOST EVERY STATE. APDA IS SUBJECT TO EXAMINATION BY THE FEDERAL TAXING AUTHORITY UP TO THREE YEARS FROM THE EXTENDED DUE DATE OF THE TAX RETURN. AS OF AUGUST 31, 2019, TAX YEARS ENDING IN 2016 THROUGH 2018 ARE OPEN TO EXAMINATION, WITH LIMITED EXCEPTIONS FOR VARIOUS STATES. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT ADJUSTMENT 303,732. GAMING EXPENSES 262. PART XI, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT MANAGEMENT FEES 31,842. REIMBRUSEMENTS/RETURNS 1,455. CHANGE IN VALUE OF BENEFICIAL INTEREST 129,963. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS 428,204. PART XII, LINE 4B - OTHER ADJUSTMENTS: INVESTMENT MANAGEMENT FEES 31,842. OTHER EXPENSES 145. X X X X X 1 THOMSON HABIB & DENISON 55 OLD BEDFORD RD SUITE 201 LINCOLN MA 01773 FUNDRAISING COUNSEL 0 2481770 166126 2315644 2481770 166126 2315644 AL AK AZ AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MN MS NH NJ NM NY NC ND OH OK OR PA RI SD TN UT VA WA WV WI OPTIMISM WALK 1347998 1347998 9982 35516 5476 127934 GALA/DINNER 607703 545302 62401 17219 62401 2200 54166 3 491214 429143 62071 3132 5194 150 104834 2446915 2322443 124472 30333 103111 7826 286934 428204 -303732 35186 262 1 0.80000 35186 262 262 34924 IA MA WA 1 0 0 0 1.00000 CHERYL WEINER 135 PARKINSON AVE STATEN ISLAND NY 10305 0 CHERYL WEINER X 0 1 BINGHAMTON UNIVERSITY 4400 VESTAL PARKWAY EAST BINGHAMTON NY 13902 130827234 501(C)(3) 50000 MEDICAL RESEARCH BOSTON UNIVERSITY SCHOOL OF MEDICINE 715 ALBANY STREET SUITE C-32 BOSTON MA 02118 042103545 501(C)(3) 100000 MEDICAL RESEARCH BOSTON UNIVERSITY 635 COMMONWEALTH AVENUE BOSTON MA 02118 042103547 501(C)(3) 52000 REHAB CENTER BOSTON UNIVERSITY 772 EAST CONCORD STREET BOSTON MA 02215 042103545 501(C)(3) 87000 INFORMATION & REFERRAL BRIGHAM AND WOMEN'S HOSPITAL 77 AVENUE LOUIS PASTEUR BOSTON MA 02115 131962771 501(C)(3) 150000 MEDICAL RESEARCH CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 50000 MEDICAL RESEARCH EMORY UNIVERSITY SCHOOL OF MEDICINE 401 WOODRUFF MEMORIAL BOULEVARD ATLANTA GA 30329 580566256 501(C)(3) 100000 MEDICAL RESEARCH EMORY UNIVERSITY SCHOOL OF MEDICINE 401 WOODRUFF MEMORIAL BOULEVARD ATLANTA GA 30329 580566256 501(C)(3) 40000 INFORMATION & REFERRAL HARTFORD HEALTHCARE (AYER NEUROSCIENCE INSTITUTE) 35 TALCOTTVILLE ROAD SUITE 6 VERNON CT 06066 222672834 501(C)(3) 30821 INFORMATION & REFERRAL IOWA HEALTH - DES MOINES 1200 PLEASANT STREET E-524 DES MOINES IA 50309 421195202 501(C)(3) 41250 INFORMATION & REFERRAL KENT HOSPITAL 455 TOLL GATE ROAD WARWICK RI 02886 050258894 501(C)(3) 39000 INFORMATION & REFERRAL LSU HEALTH SCIENCE CENTER 1501 KINGS HWY SHREVEPORT LA 71103 364774713 501(C)(3) 50000 MEDICAL RESEARCH MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 590714831 501(C)(3) 100000 MEDICAL RESEARCH MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 590714831 501(C)(3) 30000 INFORMATION & REFERRAL NEW YORK PRESBYTERIAN BROOKLYN METHODIST HOSPITAL 506 6TH STREET BROOKLYN NY 11215 111631796 501(C)(3) 30000 INFORMATION & REFERRAL NEW YORK UNIVERSITY SCHOOL OF MEDICINE ONE PARK AVENUE 6TH FLOOR NEW YORK NY 11215 135562308 501(C)(3) 35000 MEDICAL RESEARCH NY COLLEGE OF OSTEOPATHIC PO BOX 8000 OLD WESTBURY NY 11568 237190271 501(C)(3) 29700 INFORMATION & REFERRAL OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK ROAD PORTLAND OR 97239 364631835 501(C)(3) 80000 MEDICAL RESEARCH PACIFIC NEUROSCIENCE INSTITUTEST JOHNS' PROVIDENCE 2125 ARIZONA AVENUE SANTA MONICA CA 90404 956100079 501(C)(3) 30000 INFORMATION & REFERRAL PARKINSON'S DISEASE FOUNDATION 1359 BROADWAY 1509 NEW YORK NY 10018 131866796 501(C)(3) 20000 MEDICAL RESEARCH PENN STATE HERSHEY COLLEGE OF MEDICINE 500 UNIVERSITY DRIVE HERSHEY PA 17033 246000376 501(C)(3) 30000 INFORMATION & REFERRAL RUTGERS ROBERT WOOD JOHNSON MEDICAL CENTER 100 KIRKPATRICK STREET NEW BRUNSWICK NJ 08901 221487243 501(C)(3) 50000 INFORMATION & REFERRAL RUTGERS ROBERT WOOD JOHNSON SCHOOL OF MEDICINE 97 PATERSON STREET ROOM 206 NEW BRUNSWICK NJ 08901 078795875 501(C)(3) 150000 MEDICAL RESEARCH ST CATHERINE OF SIENNA HOSPITAL 50 ROUTE 25A SMITHTOWN NY 11787 061562701 501(C)(3) 29700 INFORMATION & REFERRAL ST CATHERINE OF SIENNA HOSPITAL 50 ROUTE 25A SMITHTOWN NY 11787 061562701 501(C)(3) 6000 PHYSICAL THERAPY PROGRAM STANFORD UNIVERSITY 300 PASTEUR DRIVE STANFORD CA 94305 941156365 501(C)(3) 35000 MEDICAL RESEARCH STANFORD UNIVERSITY 300 PASTEUR DRIVE STANFORD CA 94305 941156365 501(C)(3) 33000 INFORMATION & REFERRAL THE UNIVERSITY OF CHICAGO 5841 S MARYLAND AVENUE MAIL CODE 2030 CHICAGO IL 60637 362177139 501(C)(3) 35000 INFORMATION & REFERRAL THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER 7000 FANNIN STREET 1200 HOUSTON TX 77030 741761309 501(C)(3) 50000 MEDICAL RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 1719 6TH AVENUE BIRMINGHAM AL 35244 636005396 501(C)(3) 150000 MEDICAL RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 1719 6TH AVENUE BIRMINGHAM AL 35244 636005396 501(C)(3) 34650 INFORMATION & REFERRAL UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1635 DIVISADERO STREET SUITE 520 SAN FRANCISCO CA 94115 946036493 501(C)(3) 34039 INFORMATION & REFERRAL UNIVERSITY OF KENTUCKY 800 ROSE STREET LEXINGTON KY 40536 616033693 501(C)(3) 30000 INFORMATION & REFERRAL UNIVERSITY OF MARYLAND 110 S PACA STREET 3RD FLOOR BALTIMORE MD 21201 522238893 501(C)(3) 20790 INFORMATION & REFERRAL UNIVERSITY OF PITTSBURGH 3109 CATHEDRAL OF LEARNING PITTSBURG PA 15260 250965591 501(C)(3) 100000 MEDICAL RESEARCH UNIVERSITY OF VIRGINIA THE MCKIM HALL BOX 394 CHARLOTTESVILLE VA 22908 237173411 501(C)(3) 29700 INFORMATION & REFERRAL V A HOSPITAL (SIERRA VETERANS) 1000 LOCUST STREET RENO NV 89502 208903914 501(C)(3) 30000 INFORMATION & REFERRAL VANDERBILT UNIVERSITY MEDICAL CENTER 1211 MEDICAL CENTER DRIVE NASHVILLE TN 37212 352528741 501(C)(3) 50000 MEDICAL RESEARCH WASHINGTON UNIVERSITY MEDICAL SCHOOL 4525 SCOTT AVENUE ST LOUIS MO 63110 430653611 501(C)(3) 100000 MEDICAL RESEARCH WEILL CORNELL MEDICAL COLLEGE 1300 YORK AVENUE NEW YORK NY 10065 131623978 501(C)(3) 50000 MEDICAL RESEARCH CASE WESTERN RESERVE UNIVERSITY & CLEVELAND VA 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 240000 MEDICAL RESEARCH UNIVERSITY OF MICHIGAN 503 THOMPSON ST ANN ARBOR MI 48109 386006309 501(C)(3) 100000 MEDICAL RESEARCH ABBOTT NORTHWESTERN HOSPITAL 800 EAST 28TH STREET MR 12209 MINNEAPOLIS MN 55407 043643816 47565 INFORMATION & REFERRAL 43 1 PART I, LINE 2: APDA HAS A SCIENTIFIC ADVISORY BOARD (SAB) THAT RECOMMENDS THE RECIPIENTS OF THE GRANTS, WHO ARE IN TURN APPROVED BY THE BOARD OF DIRECTORS. INITIAL FUNDING IS MADE BASED ON THE GRANT AND SUBSEQUENT PAYMENTS ARE MADE CONTINGENT ON PROGRESS REPORTS. FINAL REPORTS ARE MANDATORY FOR THE GRANTS AND ONLY AFTER THEIR RECEIPT IS FINAL PAYMENT DISBURSED. CENTERS FOR ADVANCED RESEARCH WHERE FUNDING EXTENDS OUT MORE THAN ONE YEAR SUBMIT ANNUAL PROGRESS REPORTS. INFORMATION AND REFERRAL CENTERS ARE MONITORED FOR VOLUME ACTIVITY AND SIMILARLY, AFTER THE INITIAL PAYMENT, SUBSEQUENT PAYMENTS ARE CONTINGENT UPON RECEIPT OF PROGRESS REPORTS. X X X X X 0 0 0 0 0 0 0 0 0 LESLIE A CHAMBERS PRESIDENT/CEO 272724 0 0 0 0 0 35045 0 25139 0 332908 0 0 0 STEPHANIE PAUL SR. VP DEVELOPMENT & MARKETING 178787 0 0 0 0 0 18186 0 24784 0 221757 0 0 0 ROBIN KORNHABER SR. VP PROGRAM & SERVICES 149754 0 0 0 0 0 15347 0 25139 0 190240 0 0 0 PENNY WESTBERRY VP CHAPTER DEV & FIELD OPE 137024 0 0 0 0 0 13448 0 25639 0 176111 0 0 0 DAVID G STANDAERT MD PHD MEMBER, BOD 184650 GRANTS RESEARCH/ I&R SCHEDULE L, PART III, LINE 1 DAVID G. STANDAERT, MD, PHD IS A MEMBER OF THE BOARD OF DIRECTORS OF APDA AND IS ALSO CHAIRMAN OF THE SCIENTIFIC ADVISORY BOARD. IN ADDITION, THIS MEMBER HEADS THE DEPARTMENT OF NEUROLOGY AT THE UNIVERSITY OF ALABAMA AT BIRMINGHAM AND RECEIVES RESEARCH FUNDING IN THE AMOUNT OF $150,000 PER YEAR AND INFORMATION AND REFERRAL FUNDING IN THE AMOUNT OF $34,650 PER YEAR. FORM 990, PART VI, SECTION A, LINE 2 1. ELIZABETH BRAUN - BOARD MEMBER. SHE IS A SISTER TO BOARD MEMBER ELENA IMPERATO. 2. LISA ESPOSITO - BOARD MEMBER. SHE IS A SISTER TO BOARD MEMBER SALLY ANN ESPOSITO BROWNE. 3. ELENA MAESTRONE IMPERATO - TREASURER. SHE IS A SISTER TO BOARD MEMBER ELIZABETH BRAUN. 4. SALLY ANN ESPOSITO BROWNE - SECRETARY. SHE IS A SISTER TO BOARD MEMBER LISA ESPOSITO FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WAS REVIEWED IN DETAIL BY FINANCE AND AUDIT COMMITTEES AND DISTRIBUTED ELECTRONICALLY TO ALL OTHER BOARD MEMBERS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY SIGNED BY THE BOARD ANNUALLY. MEMBERS RECUSE THEMSELVES FROM VOTING IF THERE IS POTENTIAL CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 INDEPENDENT COMPENSATION COMMITTEE FORMED TO APPROVE THE SALARIES OF THE PRESIDENT/ CEO AND KEY EMPLOYEES. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS AVAILABLE ON WEBSITE AND UPON REQUEST. GOVERNING DOCUMENTS AND POLICIES PROVIDED UPON REQUEST. FORM 990, PART XI, LINE 9: ADJUSTMENTS - SPECIAL EVENTS -125,520. FORM 990, PART XII, LINE 2C THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS. FOR FISCAL YEAR ENDED 8/31/19, THE ORGANIZATION HAS NOT CHANGED ITS SELECTION OF AN INDEPENDENT ACCOUNTANT. FORM 990, PART XI, LINE 8 - PRIOR PERIOD ADJUSTMENT PRIOR PERIOD ADJUSTMENT: ON THE AUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 8/31/19, THE ORGANIZATION RECORDED A BENEFICIAL INTEREST IN PERPETUAL AND REMAIDER TRUSTS OF $3,675,843 ON THE DATE APDA RECEIVES NOTICE OF A BENEFICIAL INTEREST, A CONTRIBUTION WITH DONOR RESTRICTIONS OF A PERPETUAL NATURE IS RECORDED IN THE STATEMENTS OF ACTIVITIES, AND A BENEFICIAL INTEREST IN PERPETUAL AND REMAINDER TRUST IS RECORDED IN THE STATEMENTS OF FINANCIAL POSITION AT THE FAIR VALUE OF THE UNDERLYING TRUST ASSETS. THEREAFTER, BENEFICIAL INTERESTS IN THE TRUSTS ARE REPORTED AT THE FAIR VALUE OF THE TRUSTS' ASSETS IN THE STATEMENTS OF FINANCIAL POSITION, WITH TRUST DISTRIBUTIONS AND CHANGES IN FAIR VALUE RECOGNIZED IN THE STATEMENTS OF ACTIVITIES AND CHANGES IN NET ASSETS. THE INCREASE OF $3,675,843 WAS RECORDED ON FORM 990 AS A PRIOR PERIOD ADJUSTMENT.