2020-11-13T12:09:41-06:00 2019-12-31 HW&CO 23240 Chagrin Blvd Suite 700 Cleveland OH 441225450 990 2019-01-01 133349708 GALACTOSEMIA FOUNDATION % NICOLE CASALE GALA 8669007421 350 NORTHERN BLVD STE 324-1079 ALBANY NY 122041000 NICOLE CASALE TREASURER 9858753136 2020-11-02 true David M Reape CPA P00068117 2168311200 2020-10-21 12.203.198.2 34122420203185000004 2020-11-13 P 0B9CEC56E7D7AED94D6C12A1AC71A259EF49A470 0B9CEC56E7D7AED94D6C12A1AC71A259EF49A470 2019 2021-01-29 14:40:06Z NICOLE CASALE 350 NORTHERN BLVD STE 324-1079 ALBANY NY 122041000 116235 false X WWW.GALACTOSEMIA.ORG X 1985 DE TO SPREAD AWARENESS OF GALACTOSEMIA; TO PROVIDE SUPPORT FOR PARENTS OF CHILDREN WITH GALACTOSEMIA THROUGH EDUCATION AND FUNDING RESEARCH. 7 7 0 12 0 139893 116185 67194 29 14 21 0 0 207101 116235 0 107483 0 0 0 0 0 0 0 143788 15888 143788 123371 63313 -7136 306309 299650 0 0 306309 299650 TO EDUCATE, SUPPORT AND PROVIDE ADVOCACY FOR THOSE AFFECTED BY GALACTOSEMIA. false false 122531 PROVIDED SUPPORT TO INDIVIDUALS WITH GALACTOSEMIA AND SPREAD AWARENESS BY PUBLISHING TWO NEWSLETTERS WORLDWIDE, SETTING UP A NATIONWIDE WEBSITE DISCUSSION FORUM, THROUGH TELEPHONE SUPPORT, AND A BIENNIAL CONFERENCE. 122531 true true false false false false false false false false false false false false false false false false false false true true false false false false false true false false false false false false false false false false false false false false false false false false true 0 0 0 false false false false false false false false false false false false false false false X 7 7 false false false false false false false true false false true true true true false false false NY X NICOLE CASALE 8669007421 350 NORTHERN BLVD STE 324-1079 ALBANY NY 122041000 X KELLIE WILCOX PRESIDENT 10.0 0.0 X X 0 0 0 NICOLE CASALE TREASURER 5.0 0.0 X X 0 0 0 CARI MILLER SECRETARY 2.0 0.0 X X 0 0 0 SCOTT SAYLOR VICE PRESIDENT 2.0 0.0 X X 0 0 0 LAYNE LONG CONFERENCE CHAIR 2.0 0.0 X 0 0 0 BRITTANY CUDZILO OUTREACH LEAD 2.0 0.0 X 0 0 0 JODI SOLARI COMMUNICATIONS LEAD 2.0 0.0 X 0 0 0 0 0 0 0 false false false 0 116185 116185 PROGRAM REVENUE 611710 29 29 29 21 21 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 116235 29 21 82083 82083 0 25400 25400 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 5855 5855 0 0 0 0 0 9193 9193 0 0 0 0 BANK FEES 840 840 123371 122531 840 0 261885 241751 44424 57899 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 306309 299650 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 261885 241751 44424 57899 306309 299650 306309 299650 X -7136 477 X false false false X 175001 179320 124699 139893 116214 735127 0 0 175001 179320 124699 139893 116214 735127 64759 670368 24 24 28 14 21 111 0 0 735238 122298 0.91177 0.00000 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Europe (Including Iceland and Greenland) Grantmaking GALACTOSEMIA RESEARCH 25400 25400 25400 Europe (Including Iceland and Greenland) GALACTOSEMIA RESEARCH - DR. RUBIO-GOZALBO 25400 TRANSFER 1 1 false false false false false false SCHEDULE F, PART I, LINE 1 THE FOUNDATION ISSUES GRANTS BI-ANNUALLY. WE HAVE A RESEARCH TEAM THAT REVIEWS THE REQUEST FOR GRANTS AND MAKES SUGGESTIONS TO THE BOARD. THE BOARD VOTES ON WHICH GRANTS TO ISSUE AND WILL PROVIDE 75% OF THE GRANT INITIALLY. THE GRANTEES MUST PROVIDE A STATUS REPORT UPDATE MID-YEAR IN ORDER TO RECEIVE THE REMAINING 25%. THE RESEARCH COMMITTE MAKES A RECOMMENDATION TO AWARD THE REMAINING 25% IF GRANTEE SHOWS SATISFACTORY PROGRESS. THE GRANTEE PRESENTS THEIR RESEARCH AT THE BI-ANNUAL CONFERENCE. true UNIVERSITY OF UTAH 295 CHIPETA WAY SALT LAKE CITY UT 84108 876000525 501(C)(3) 47083 GALACTOSEMIA RESEARCH - DR. KENT LAI - MOUSE STUDY BOSTON CHILDREN'S HOSPITAL 300 Longwood Avenue BOSTON MA 02115 042774441 501(C)(3) 35000 GALACTOSEMIA RESEARCH - DR. BERRY 2 SCHEDULE I, PART I, LINE 2: THE FOUNDATION ISSUES GRANTS BI-ANNUALLY. WE HAVE A RESEARCH TEAM THAT REVIEWY THE REQUEST FOR GRANTS AND MAKES SUGGESTIONS TO THE BOARD. THE BOARD VOTES ON WHICH GRANTS TO ISSUE AND WILL PROVIDE 75% OF THE GRANT INITIALLY. THE GRANTEES MUST PROVIDE A STATUS REPORT UPDATE MID-YEAR IN ORDER TO RECEIVE THE REMAINING 25%. THE RESEARCH COMMITTE MAKES A RECOMMENDATION TO AWARD THE REMAINING 25% IF GRANTEE SHOWS SATISFACTORY PROGRESS. THE GRANTEE PRESENTS THEIR RESEARCH AT THE BI-ANNUAL CONFERENCE. FORM 990, PART VI, LINE 8B COMMITTEES DO NOT HAVE AUTHORITY TO ACT ON BEHALF OF GOVERNING BODY FORM 990, PART VI, LINE 11B TREASURER WILL EMAIL COPY TO GOVERNING BODY AND WAIT FOR ACCEPTANCE BY ALL BEFORE FILING FORM 990, PART VI, LINE 12C PERSONAL KNOWLEDGE OF BOARD MEMBERS IS SUFFICIENT TO COMPLY WITH CONFLICT OF INTEREST POLICY FORM 990, PART VI, LINE 19 YES, THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE INCLUDED TWICE A YEAR IN THE ORGANIZATION'S NEWSLETTER AND ALSO AVAILABLE UPON REQUEST FORM 990, PART XI, LINE 8 PRIOR PERIOD ADJUSTMENT TO NET ASSETS......$477