2020-11-13T13:39:58-06:00 2019-12-31 521711839 COUNCILOR BUCHANAN & MITCHELL PC 7910 WOODMONT AVE STE 500 BETHESDA MD 20814 990 2019-01-01 814459237 HEART VALVE VOICE US HEAR 2022855726 100 M STREET SE 600 WASHINGTON DC 20003 JOHN LEWIS EXECUTIVE DIRECTOR 2022855726 2020-11-12 1 DOMINICK V BELLIA P00560402 3019860600 2020-11-12 108.31.200.98 2020-11-12 22:17:53 ES P 9EB6C7ABDF90341FC865DF237D0CFEE310B22885 9EB6C7ABDF90341FC865DF237D0CFEE310B22885 2019 2021-01-29 14:40:06Z X JOHN LEWIS 100 M STREET SE 600 WASHINGTON DC 20003 422986 0 X WWW.HEARTVALVEVOICE-US.ORG X 2016 DC HEART VALVE VOICE US, A NONPROFIT PATIENT ADVOCACY ORGANIZATION, PROVIDES A UNITED VOICE FOR PEOPLE LIVING WITH HEART VALVE DISEASE. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. 11 11 1 11 0 0 323405 422986 0 0 0 0 0 0 323405 422986 0 0 0 0 31355 76528 0 0 10945 163288 283491 194643 360019 128762 62967 156728 221262 2043 3610 154685 217652 HEART VALVE VOICE US, A NONPROFIT PATIENT ADVOCACY ORGANIZATION, PROVIDES A UNITED VOICE FOR PEOPLE LIVING WITH HEART VALVE DISEASE. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE. 0 0 208858 HEART VALVE VOICE US RAISES AWARENESS OF HEART VALVE DISEASE THROUGH RADIO AND TELEVISION PUBLIC SERVICE ANNOUNCEMENTS (PSAS), ACTIVE SOCIAL MEDIA CAMPAIGNS, BUILDING PATIENT COMMUNITIES AND COALITION ACTIVITIES. THIS GRANT WAS PROVIDED BY THE EDWARDS LIFESCIENCES FOUNDATION EVERY HEARTBEAT MATTERS PROGRAM. 24522 SERIES OF PATIENT-FOCUSED WEBINARS ON TOPICS INCLUDED: TIME TO ACT: WHAT YOU NEED TO KNOW ABOUT MEDICARE'S PROPOSED TAVR DECISION AND HOW TO LEND YOUR VOICE TO MAKE A DIFFERENCE; PATIENTS HELPING PATIENTS; INNOVATION & THE FUTURE OF VALVE DISEASE TREATMENT; NEW OPTIONS FOR HEART VALVE PATIENTS: RESULTS OF THE LATEST TRIALS; LIVING WITH HEART VALVE DISEASE. MORE THAN 2,000 VIEWS. 700 HEART VALVE VOICE US WILL INTRODUCE AN INTENSIVE PROGRAM TO TRAIN PATIENTS AND CARE PARTNERS TO BECOME RESEARCH ADVISORS AND ADVOCATES. THE PROGRAM - VALUING ADVOCATES' LIVES, VOICES AND EXPERIENCE (VALVE) IN RESEARCH - WILL BE THE BASIS FOR THE CREATION OF THE HEART VALVE DISEASE RESEARCH NETWORK (HVD NETWORK). THIS TRAINING IS BEING FUNDED THROUGH A PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE (PCORI) EUGENE WASHINGTON PCORI ENGAGEMENT AWARD AND WILL COMMENCE IN 2020. 234080 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 1 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 DC X JOHN LEWIS 2022855726 100 M STREET SE 600 WASHINGTON DC 20003 DONNETTE SMITH CHAIR 2.00 X X 0 0 0 SUSAN PESCHIN SECRETARY 2.00 X X 0 0 0 NORM LINSKY TREASURER 2.00 X X 0 0 0 JOHN LEWIS EXECUTIVE DIRECTOR 40.00 X X 41538 0 2914 DONALD MAY EXECUTIVE VICE PRESIDENT 2.00 X X 0 0 0 DR OLUSEUN ALLI BOARD MEMBER 2.00 X 0 0 0 DAVID ANDELMAN BOARD MEMBER 2.00 X 0 0 0 DR CHARLES BOUSTANY BOARD MEMBER 2.00 X 0 0 0 CANDACE DEMATTEIS BOARD MEMBER 2.00 X 0 0 0 MARILYN SERAFINI BOARD MEMBER 2.00 X 0 0 0 TERESA WRIGHT-JOHNSON BOARD MEMBER 2.00 X 0 0 0 CHRISTINA REKASH BOARD MEMBER 2.00 X 0 0 0 CHRIS MAY TREASURER (FORMER) 2.00 X 0 0 0 41538 0 2914 0 0 0 0 0 422986 422986 422986 0 0 0 44452 36829 3178 4445 18323 15180 1310 1833 7930 6570 567 793 5823 4825 416 582 117362 67673 48931 758 2716 1566 1132 18 40514 23361 16891 262 53556 30881 22329 346 2805 210 2595 41300 41300 19076 5435 11733 1908 4354 4354 SUBSCRIPTION 1808 250 1558 360019 234080 114994 10945 156728 221262 156728 221262 2043 3610 2043 3610 X 154685 217652 154685 217652 156728 221262 62967 0 X X 1 X 1 X 1 0 X 353500 173405 422986 949891 353500 173405 422986 949891 949891 949891 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 PAYROLL TAXES 3610 3610 896153 411222 61945 473167 422986 0 422986 831803 411222 60562 471784 360019 0 360019 PART XI, LINE 2D - OTHER ADJUSTMENTS: CASH BASIS ADJUSTMENT PART XII, LINE 2D - OTHER ADJUSTMENTS: CASH BASIS ADJUSTMENT FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION C, LINE 19 COPIES OF THE ORGANIZATION'S DOCUMENTS ARE AVAILABLE UPON REQUEST THROUGH THE U.S. POSTAL SERVICE. FORM 990,PART XII, LINE 2C THE PROCESS DID NOT CHANGE FROM PREVIOUS YEAR.