2020-11-09T15:04:30-08:00 2019-12-31 410746749 CLIFTONLARSONALLEN LLP 2875 MICHELLE STE 300 IRVINE CA 926061020 990 2019-01-01 263331487 Global Genes GLOB 9492487273 28 Argonaut Suite 140 150 Aliso Viejo CA 92656 Peter Pellizzon Chairman 2020-11-09 true Christina M Wenk CPA P01255081 7149781300 2019 2021-01-29 14:40:06Z Kimberly Haugstad 28 Argonaut Suite 140 150 Aliso Viejo CA 92656 6988193 false X globalgenes.org X 2008 CA Increase public awareness for rare disease and globally connect, empower and educate individuals and rare disease foundations in person, print and online. 12 9 24 50 0 4955803 5297898 1667194 1250 23101 -26121 0 4930932 6988193 379628 695910 0 1499844 2036801 0 200016 2596954 3731996 4476426 6464707 454506 523486 1746498 2925050 330560 1283097 1415938 1641953 Global Genes mission is to connect, empower and inspire the rare disease community. false false 5702811 695910 1667194 Outreach servicesProvide capacity building educational and connective networking opportunities to patients, caregivers and disease foundations via in person meetings, print and online tools and online education. 5702811 true true false false false false false false false false true false false false true true true false false false true false true false false false false true true true false false false false false false false false false false false false false false false false false true 21 0 true 24 true false false false false false false false 0 false false false false false false false X 12 9 false false false false false false false true true false false true true true true true true true true false CA X Fohrman Fohrman 9494580836 23232 Peralta Suite 222 Laguna Hills CA 92653 Nicole Boice Founder 40.00 0.00 X X 197997 0 0 Christian Rubio VP Strategic Advancement 40.00 0.00 163935 0 0 Tiffany Leite COO 40.00 0.00 X 152988 0 0 Craig Martin Strategic Advis 40.00 0.00 X X 135000 0 0 Mary K O'Connor Dir. Corporate Eng 40.00 0.00 125375 0 0 Kimberly Haugstad CEO 40.00 0.00 X X 112838 0 0 Angie Rowe Interim ED 50.00 0.00 101258 0 0 Melissa Strodtbeck Fin. Director 40.00 0.00 X 82795 0 0 Caroline Loewy Director 1.00 0.00 X X 0 0 0 John Crowley Director 1.00 0.00 X 0 0 0 Natalie Douglas Vice Chairman 5.00 0.00 X 0 0 0 Hugh Hempel Director 1.00 0.00 X 0 0 0 Peter Pellizzon Treasurer 1.00 0.00 X X 0 0 0 Brad Marcus Director 1.00 0.00 X 0 0 0 Wendy White Chairman 5.00 0.00 X 0 0 0 Susan Stein Director 1.00 0.00 X 0 0 0 Nauman Shah Director 1.00 0.00 X 0 0 0 1072186 7 true true false Sheraton San Diego Hotel 1380 Harbor Island Dr San Diego CA 92101 Meeting Services 646142 Key Events 220 Montgomery St 1300 San Francisco CA 94104 Travel Agency 207776 Rithm Health 54 Morton St Andover MA 01810 Strategy Consultant 142006 Korn Ferry PO Box 1450 Minneapolis MN 55485 Executive Search 128839 Levine Media 21 Kingston Rd Kesington CA 94707 Editorial Services 112705 6 5297898 5297898 Conference sponsorships 900099 350500 350500 Exhibit booths 900099 106194 106194 Membership fees 900099 1210500 1210500 1667194 23101 23101 0 0 0 0 0 0 0 0 6988193 1667194 23101 501733 501733 69371 69371 124806 124806 0 811810 593875 178777 39158 0 1070497 975451 54232 40814 0 0 154494 128805 19125 6564 0 41013 19527 21486 0 0 0 0 95284 15435 79849 0 0 0 0 114887 95784 14222 4881 290376 213885 49210 27281 0 600897 599292 1605 0 0 58606 48861 7255 2490 13924 9346 4102 476 Outside Services 923496 825017 47612 50867 Funded Travel for Patients 916393 916393 Printing and Publications 159649 153878 575 5196 program awareness 129770 129770 387701 281582 85435 20684 6464707 5702811 561880 200016 1105306 2405810 0 155964 147808 22161 6910 0 0 0 8302 7320 240056 196590 295961 145336 204722 150625 0 0 0 0 9987 9987 1746498 2925050 209819 322199 2501 725611 118240 235287 330560 1283097 X 879974 1494144 535964 147809 1415938 1641953 1746498 2925050 X 523486 7529 -305000 X false true X true false X 3585077 3892521 4076960 4955803 5297898 21808259 0 0 3585077 3892521 4076960 4955803 5297898 21808259 2267265 19540994 1250 23101 24351 0 0 21832610 1667194 0.89500 0.94670 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 10314 8907 1407 260275 118352 141923 25372 18077 7295 150625 Accrued Liabilities 235287 235287 X 7102322 7529 23445 83155 114129 6988193 6988193 6488152 23445 23445 6464707 6464707 Part X : FIN48 Footnote The organization does not believe there are any material uncertain tax positions, and accordingly, it has not recognized any liability for unrecognized tax benefits or any related interest or penalties. Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 Net Assets released from restrictions $83155 true Canada 0 0 Contribution/ Scholarship 52695 Europe 0 0 Program Service/ Assistance Travel Assistance 42011 Asia 0 0 Program Service/ Assistance Travel Assistance 11300 Australia/New Zeland 0 0 Program Service/ Assistance Travel Assistance 14500 South America 0 0 Program Service/ Assistance Travel Assistance 4300 124806 124806 Program Expense - videography Canada 3 40902 Wire Program service donation Australia 1 5000 Wire Speaker expense Canada 6 2093 Check Strategic consulting UK 9 15306 Wire Tech services India 1 1800 Wire Travel assistance Australia 5 9500 Wire Travel assistance Canada 11 9700 Check Travel assistance France 1 600 Wire Travel assistance India 2 2500 Wire Travel assistance Ireland 1 2000 Wire Travel assistance Italy 2 3400 Wire Travel assistance Malaysia 1 2500 Wire Travel assistance Pakistan 1 2500 Wire Travel assistance Scotland 1 2500 Wire Travel assistance Switzerland 1 9105 Wire Travel Assistance Brazil 2 4300 Wire Travel Assistance Malta 1 2000 Wire Travel assitance UK 4 9100 Wire false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US Scholarships/prizes do not require monitoring, as there are no ongoing conditions after it has been awarded. true Angel Aid Cares 773 Center Blvd 464 Fairfax CA 94030 832660329 10000 0 Book Rare Patient Impact Grant CFC Intl 500 State St Chicago Heights IL 60411 161569293 10000 0 Book Rare Patient Impact Grant Champ1 Research Foundation 1367 Whitewood Ave Spring Hill FL 34609 830516268 10000 0 Book Rare Patient Impact Grant Childrens Cardiomyopathy Fdn PO Box 547 Tenafly NJ 07670 752986661 8000 0 Book Rare Patient Impact Grant Cold Agglutinin Disease Found 1874 Marlton Pike E Ste 4 Cherry Hill NJ 08003 842650853 10000 0 Book Rare Patient Impact Grant Congenital Hyperinsulinism PO Box 135 Glen Ridge NJ 07028 203068945 15000 0 Book Rare Patient Impact Grant Cure CMD 3217 E Carson St 1014 Lakewood CA 90712 262640975 15000 0 Book Rare Patient Impact Grant Fibrous Dysplacia Foundation 2885 Sanford Ave 40754 Grandville MI 49418 020715210 8640 0 Book Rare Patient Impact Grant Foundation for Sarcoidosis Re 1820 W Webster ave 304 Chicago IL 60614 364378232 12000 0 Book Rare Patient Impact Grant Global Impact for Mission Cur 1199 North Fairfax St 300 Alexandria VA 22314 521273585 10000 0 Book Rare Patient Impact Grant Ints Fibrod Ossificans Prog 101 The City Dr S Orange CA 92868 592918100 10000 0 Book Rare Patient Impact Grant Koolen-de Vries Syndrome PO Box 470218 Fort Worth TX 76147 423208388 6000 0 Book Rare Patient Impact Grant Lipodystrophy United 22 Frances Rd Los Lunas NM 87031 461165699 12875 0 Book Rare Patient Impact Grant Littlest tumor Foundation PO Box 7051 Appleton WI 54912 270917237 8000 0 Book Rare Patient Impact Grant Mast Cell Hope Inc 73 Huckleberry Lane Southington CT 06489 834544114 10000 0 Book Rare Patient Impact Grant Mickies Miracles 6675 S Tenaya Way 200 Las Vegas NV 89113 813470196 10000 0 Book Sponsorship National PKU News 6869 Woodlawn Ave NE 116 Seattle WA 98115 943098601 15000 0 Book Rare Patient Impact Grant Organization for Rare Disease 3501 Via del Prado Calabasas CA 91302 814688753 37500 0 Book General donation Our Odyssey 95 Pine Street 17th Floor New York NY 10005 841853376 10000 0 Book Rare Patient Impact Grant Prog Familial Intrahepatic Ch 28 Argonaut 140-150 Aliso Viejo CA 92656 831084501 10000 0 Book Rare Patient Impact Grant Rare X 7 Stonebrook Aliso Viejo CA 92656 842298259 118018 0 Book General Assistance SATB2 Gene Foundation 3050 Five Forks Trickum Rd D5 Lilburn GA 30047 823474637 10000 0 Book Rare Patient Impact Grant Scleroderma FDN 8929 S Sepulveda Blvd 412 Los Angeles CA 90045 521375827 10000 0 Book Rare Patient Impact Grant Stone Soup Group 307 E Northern Lights Blvd 10 Anchorage AK 99503 920149995 10000 0 Book Rare Patient Impact Grant TEAM 4 Travis PO Box 361 Litchfield Park AZ 85340 833419579 10000 0 Book Rare Patient Impact Grant Team Telomere 1562 First Ave 205 New York NY 10028 263776187 8500 0 Book Rare Patient Impact Grant The Brain Recovery Project 969 Colorado Blvd 101 Los Angeles CA 90041 452571898 14200 0 Book Rare Patient Impact Grant The Global FDN for Peroxisoma 5321 S Sheridan Rd 26a Tulsa OK 74145 273646193 13000 0 Book Rare Patient Impact Grant The Myositis Assoc 2000 Duke St 300 Alexandria VA 22314 541660976 15000 0 Book Rare Patient Impact Grant TN PKU Foundation 1201 W La Veta Ave Orange CA 92868 208160776 15000 0 Book Rare Patient Impact Grant Turner Syndrome Global Allian 10708 W 129th St Overland Park KS 66213 465424047 10000 0 Book Rare Patient Impact Grant 31 0 Scholarship Patient Advocacy 109 69371 Grantmaker's Description of How Grants are Used Scholarships/prizes do not require monitoring, as there are no ongoing conditions after it has been awarded. X X X X false false false false false false false false false Angie Rowe Interim ED 101258 101258 Christian Rubio VP Strategic Advancement 163935 163935 Nicole Boice Founder 197997 197997 Tiffany Leite COO 152988 152988 Form 990, Part VI, Line 11b: Form 990 Review Process Form 990 is sent to all Board of Directors members for their review and approval before filing. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts Board of Directors members are required to file a signed conflict of interest agreement annually. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management Board reviews and approves by vote all executive salaries on an annual basis during closed session of the first Board of Directors meeting of the year Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees Board reviews and approves by vote all other officer's salaries on an annual basis during closed session of the first Board of Directors meeting of the year Form 990, Part VI, Line 19: Other Organization Documents Publicly Available The organization makes its governing documents and financial statements available on its own website. Other Changes In Net Assets Or Fund Balances - Other Decreases Adjustment on adoption of new accounting standard = -$305000