2020-07-13T12:17:43-05:00 2019-12-31 352088734 PATRICIA A FIELD CPA PC 6832 TREE TOP TRAIL FORT WAYNE IN 468458919 990EZ 2019-01-01 352096448 DOWN SYNDROME ASSN OF NE INDIANA DOWN 2604719964 PO BOX 13611 FORT WAYNE IN 46865 TAYLOR FRANZEN TREASURER 2604719964 2020-07-09 true PATRICIA A FIELD P00016358 2604849391 2020-07-09 50.121.84.108 2020-07-13 12:17:43 CD P B036F144B268C7EFE666F82AAAAE61E7464CC75F B036F144B268C7EFE666F82AAAAE61E7464CC75F 2019 2021-01-29 14:40:06Z X X WWW.DSANI.ORG X X 143231 X 143054 177 143231 57262 1925 3360 735 77315 140597 2634 170229 172863 X 171282 173953 171282 173953 1053 1090 170229 172863 X TO ENHANCE THE LIVES OF PEOPLE LIVING WITH DOWN SYNDROME, TO ADVOCATE ON THEIR BEHALF, TO PROVIDE INFORMATION AND SUPPORT TO FAMILIES AND PROFESSIONALS, AND TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME IN NORTHEAST INDIANA. THE DOWN SYNDROME ASSOCIATION OF NORTHEAST INDIANA, INC. (DSANI) PROVIDED SUPPORT AND SERVICES TO OVER 290 MEMBER FAMILIES AND PROFESSIONALS IN THE FOLLOWING AREAS: INFANT-TODDLER PLAYGROUP: THIS PLAYGROUP CREATES OPPORTUNITIES FOR INFANT AND YOUNGSTERS (AGES 0-4) TO PLAY AND SOCIALIZE WHILE THEIR PARENTS AND SIBLINGS FIND SUPPORT IN A FUN ENVIRONMENT. DURING THE YEAR, 60 FAMILIES TOOK PART IN ACTIVITES OFFERED. ACTIVITIES INCLUDED: PLAYGROUPS IN VARIOUS LOCATIONS, AVERAGE ATTENDANCE 16, ANDORFER COMMONS ACTIVITY - 42, KUEHNERT FARMS - 24. BUDDY CLUB: THIS GROUP OFFERS SOCIAL AND RECREATIONAL ACTIVITIES FOR CHILDREN AGES 5-12, TYPICALLY MEETING EVERY THREE MONTHS. CURRENT AVERAGE ATTENDANCE IS 26. ACTIVITIES INCLUDED: ANDORFER COMMONS ACTIVITY - 15, KUEHNERT FARMS - 62, SKYZONE - 25, DANCE COLLECTIVE - 8. FRIENDSHIP CLUB: AIMED AT TEENS AND YOUNG ADULTS AGES 13-21, THIS GROUP INCLUDES TEENS WITH DOWN SYNDROME AND OTHER LEARNING DISABILITIES, AS YOUTHS WITH DS DEVELOP FRIENDSHIPS IN SCHOOL AND IN THE COMMUNITY. AVERAGE ATTENDANCE FOR EVENTS IS 10. ACTIVITIES INCLUDED: ANDORFER COMMONS - 50, SKYZONE - 24, CRAZY PINZ - 24, COMBAT OPS - 16, KUEHNERT FARMS - 60. SELF-ADVOCATES: FOR INDIVIDUALS WITH DOWN SYNDROME WHO ARE 21 OR OLDER. AVERAGE ATTENDANCE FOR SOCIAL EVENTS IS 23. ACTIVITIES INCLUDED: PIZZA & MOVIE NIGHT - 58, SUMMER PARTY - 24, GAME NIGHT - 17, KUEHNERT FARMS - 10, MEAL PREP VOLUNTEERS - 5. GRANDPARENT'S GROUP: THIS GROUP OFFERS A WONDERFUL OPPORTUNITY FOR GRANDPARENTS TO SUPPORT FAMILY MEMBERS AND EACH OTHER IN A NURTURING, CARING ENVIRONMENT. AVERAGE ATTENDANCE IS 8. ACTIVITIES INCLUDED: 6 OFFICIAL MEETINGS WITH AN AVERAGE ATTENDANCE OF 7-10. DADS GROUP - DADS APPRECIATING DOWN SYNDROME. THIS GROUP PROVIDES SPECIAL EVENTS TO BRING TOGETHER DADS IN SUPPORT OF EACH OTHER AND TO BUILD STRONG FAMILIES. AVERAGE ATTENDANCE IS 5. ACTIVITIES INCLUDED: DADS GOLF OUTING - 80, PROVIDED GIFTS FOR THE ALL DSANI HOLIDAY PARTY - GIFTS FOR 153 CHILDREN, BI-MONTHLY MEETINGS - 26. MOMS GROUP - THIS GROUP WAS FORMED TO PROVIDE DSANI MOTHERS THE OPPORTUNITY TO NETWORK WITH OTHER MOTHERS, LISTEN TO GUEST SPEAKERS AND ENJOY TIME WITH OTHER MOMS. AVERAGE ATTENDANCE IS 18. ACTIVITIES INCLUDED: DINNER MEETINGS - 80. OUTREACH: THE OUTREACH COMMITTEE IS UNDOUBTEDLY OUR MOST IMPORTANT, AS THIS IS THE COMMITTEE WHO WELCOMES FAMILIES NEW TO THE WORLD OF DOWN SYNDROME INTO OUR ORGANIZATION. IN 2019, WE CONTINUED MEETING WITH HOSPITALS IN OUR 11 COUNTY SERVICE AREA. THIS WAS DONE TO INTRODUCE DSANI TO THEM, PROVIDE INFORMATION TO THEM FOR WHEN A DOWN SYNDROME DIAGNOSIS IS MADE, AND TO EMPHASIZE THAT THEY ARE CRITICAL IN CONNECTING NEW FAMILIES TO DSANI. IN 2019, WE WELCOMED 11 NEW FAMILIES TO DSANI. OTHER PROGRAM EVENTS: IN ADDITION TO THE SPECIAL-INTEREST OR AGE-SPECIFIC ACTIVITIES THAT DSANI SPONSORED IN 2019, A NUMBER OF OTHER PROGRAMS ALSO MET WITH GREAT SUCCESS. EVENTS INCLUDED: DSANI ANNUAL MEETING - 18; SPONSORED EDUCATIONAL WORKSHOPS IN THE AREAS OF SPECIAL NEEDS TRUSTS/WILLS, CASS HOUSING, MEDICAID WAIVER SERVICES, ABLE ACT UPDATES, RESTAURANT NIGHTS, SELF-ADVOCATE LETTER WRITING NIGHT, ETC. ESTIMATED 65 PEOPLE ATTENDED THESE EVENTS; SPONSORED CAMP RED CEDAR IN JULY AND AUGUST WITH PARTIAL SCHOLARSHIPS FOR 50 CHILDREN; DSANI FAMILY OUTING TIN CAPS GAME - 149; DSANI FAMILY OUTING MAD ANTS GAME - 135; 21ST ANNUAL BUDDY WALK - ESTIMATED 1,500 PLUS 100 AT PRE-PARTY EVENT; SPONSORED A FALL FEST EVENT AT KUEHNERT FARMS - 158; CO-SPONSORED A WORLD DOWN SYNDROME DAY CELEBRATION - 140; PARTICIPATED IN A TRUNK OR TREAT EVENT - 300; SPONSORED ALL DSANI HOLIDAY PARTY - 320; SPONSORED DSANI TALENT SHOW - 48; DSANI FAMILY OUTING OAKWOOD RESORT - 147; BROUGHT DR. BRIAN SKOTKO, A WORLD RENOWNED DOWN SYNDROME EXPERT TO FORT WAYNE TO ADDRESS FAMILIES AND AREA MEDICAL PROFESSIONALS - 180. ALONG WITH OUR MANY GROUPS AND PROGRAMS, DSANI ALSO PROVIDES LIBRARY RESOURCES, INFORMATIONAL EMAILS TO MEMBERS, OUTREACH AND EDUCATIONAL MATERIALS TO MEDICAL PROFESSIONALS AND COMMUNITY GROUPS, RESOURCE REFERRALS TO REQUESTING FAMILIES, A WEBSITE, A DIRECTORY DISTRIBUTED TO MEMBERS. DSANI IS A TREMENDOUS SUPPORT/MENTOR NETWORK FOR PARENTS. IN 2019, DSANI MADE A CONCERTED EFFORT TO BE A PART OF A NUMBER OF COMMUNITY EVENTS AND SPOKE TO A NUMBER OF COMMUNITY GROUPS. THIS INCLUDED SPONSORSHIPS FOR THE FANTASY OF LIGHTS DISPLAY AT FRANKE PARK, A JESTER PERFORMANCE (A THEATER GROUP FOR PEOPLE WITH DISABILITIES) AND THE THREE RIVERS FESTIVAL CHALK WALK. DSANI ALSO PARTCIPATED IN A NUMBER OF AREA RESOURCE AND INFORMATION FAIRS. IT IS ESTIMATED THAT THE NUMBER OF PEOPLE MADE AWARE OF DSANI'S MISSION THROUGH THESE EFFORTS TOTALED OVER 15,000. 99131 99131 RICHARD BROUGH PRESIDENT 2.00 0 TAYLOR FRANZEN TREASURER 2.00 0 BROOKE COLVIN SECRETARY 1.00 0 ETHAN PICKETT DIRECTOR 1.00 0 KAYLEY COLVIN DIRECTOR 1.00 0 APRIL CONLEY DIRECTOR 1.00 0 URIEL CASTILLO DIRECTOR 1.00 0 MIKE ERDEI DIRECTOR 1.00 0 TOM O'NEILL DIRECTOR EME 1.00 0 false false false false false false false false false IN TAYLOR FRANZEN PO BOX 13611 FORT WAYNE IN 46865 2604719964 false false false false false false false false false false false NONE NONE true X 112252 109755 110838 134879 143054 610778 112252 109755 110838 134879 143054 610778 610778 141 210 183 176 177 887 611665 536 0.99850 0.99850 X FORM 990-EZ, PART I, LINE 16 EXPENSES OFFICE 9,450 CONFERENCES/MEETINGS 202 INSURANCE 3,514 PROGRAM EXPENSES 64,149 TOTAL 77,315 FORM 990-EZ, PART II, LINE 24 OFFICE EQUIPMENT 9,103 9,103 LESS ACCUMULATED DEPRECIATION 9,103 9,103 TOTAL 0 0 FORM 990-EZ, PART II, LINE 26 PAYROLL TAX WITHHOLDINGS 1,053 1,090 FORM 990-EZ, PART III TO ENHANCE THE LIVES OF PEOPLE LIVING WITH DOWN SYNDROME, TO ADVOCATE ON THEIR BEHALF, TO PROVIDE INFORMATION AND SUPPORT TO FAMILIES AND PROFESSIONALS, AND TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME IN NORTHEAST INDIANA. FORM 990-EZ, PART III, LINE 28 THE DOWN SYNDROME ASSOCIATION OF NORTHEAST INDIANA, INC. (DSANI) PROVIDED SUPPORT AND SERVICES TO OVER 290 MEMBER FAMILIES AND PROFESSIONALS IN THE FOLLOWING AREAS: INFANT-TODDLER PLAYGROUP: THIS PLAYGROUP CREATES OPPORTUNITIES FOR INFANT AND YOUNGSTERS (AGES 0-4) TO PLAY AND SOCIALIZE WHILE THEIR PARENTS AND SIBLINGS FIND SUPPORT IN A FUN ENVIRONMENT. DURING THE YEAR, 60 FAMILIES TOOK PART IN ACTIVITES OFFERED. ACTIVITIES INCLUDED: PLAYGROUPS IN VARIOUS LOCATIONS, AVERAGE ATTENDANCE 16, ANDORFER COMMONS ACTIVITY - 42, KUEHNERT FARMS - 24. BUDDY CLUB: THIS GROUP OFFERS SOCIAL AND RECREATIONAL ACTIVITIES FOR CHILDREN AGES 5-12, TYPICALLY MEETING EVERY THREE MONTHS. CURRENT AVERAGE ATTENDANCE IS 26. ACTIVITIES INCLUDED: ANDORFER COMMONS ACTIVITY - 15, KUEHNERT FARMS - 62, SKYZONE - 25, DANCE COLLECTIVE - 8. FRIENDSHIP CLUB: AIMED AT TEENS AND YOUNG ADULTS AGES 13-21, THIS GROUP INCLUDES TEENS WITH DOWN SYNDROME AND OTHER LEARNING DISABILITIES, AS YOUTHS WITH DS DEVELOP FRIENDSHIPS IN SCHOOL AND IN THE COMMUNITY. AVERAGE ATTENDANCE FOR EVENTS IS 10. ACTIVITIES INCLUDED: ANDORFER COMMONS - 50, SKYZONE - 24, CRAZY PINZ - 24, COMBAT OPS - 16, KUEHNERT FARMS - 60. SELF-ADVOCATES: FOR INDIVIDUALS WITH DOWN SYNDROME WHO ARE 21 OR OLDER. AVERAGE ATTENDANCE FOR SOCIAL EVENTS IS 23. ACTIVITIES INCLUDED: PIZZA & MOVIE NIGHT - 58, SUMMER PARTY - 24, GAME NIGHT - 17, KUEHNERT FARMS - 10, MEAL PREP VOLUNTEERS - 5. GRANDPARENT'S GROUP: THIS GROUP OFFERS A WONDERFUL OPPORTUNITY FOR GRANDPARENTS TO SUPPORT FAMILY MEMBERS AND EACH OTHER IN A NURTURING, CARING ENVIRONMENT. AVERAGE ATTENDANCE IS 8. ACTIVITIES INCLUDED: 6 OFFICIAL MEETINGS WITH AN AVERAGE ATTENDANCE OF 7-10. DADS GROUP - DADS APPRECIATING DOWN SYNDROME. THIS GROUP PROVIDES SPECIAL EVENTS TO BRING TOGETHER DADS IN SUPPORT OF EACH OTHER AND TO BUILD STRONG FAMILIES. AVERAGE ATTENDANCE IS 5. ACTIVITIES INCLUDED: DADS GOLF OUTING - 80, PROVIDED GIFTS FOR THE ALL DSANI HOLIDAY PARTY - GIFTS FOR 153 CHILDREN, BI-MONTHLY MEETINGS - 26. MOMS GROUP - THIS GROUP WAS FORMED TO PROVIDE DSANI MOTHERS THE OPPORTUNITY TO NETWORK WITH OTHER MOTHERS, LISTEN TO GUEST SPEAKERS AND ENJOY TIME WITH OTHER MOMS. AVERAGE ATTENDANCE IS 18. ACTIVITIES INCLUDED: DINNER MEETINGS - 80. OUTREACH: THE OUTREACH COMMITTEE IS UNDOUBTEDLY OUR MOST IMPORTANT, AS THIS IS THE COMMITTEE WHO WELCOMES FAMILIES NEW TO THE WORLD OF DOWN SYNDROME INTO OUR ORGANIZATION. IN 2019, WE CONTINUED MEETING WITH HOSPITALS IN OUR 11 COUNTY SERVICE AREA. THIS WAS DONE TO INTRODUCE DSANI TO THEM, PROVIDE INFORMATION TO THEM FOR WHEN A DOWN SYNDROME DIAGNOSIS IS MADE, AND TO EMPHASIZE THAT THEY ARE CRITICAL IN CONNECTING NEW FAMILIES TO DSANI. IN 2019, WE WELCOMED 11 NEW FAMILIES TO DSANI. OTHER PROGRAM EVENTS: IN ADDITION TO THE SPECIAL-INTEREST OR AGE-SPECIFIC ACTIVITIES THAT DSANI SPONSORED IN 2019, A NUMBER OF OTHER PROGRAMS ALSO MET WITH GREAT SUCCESS. EVENTS INCLUDED: DSANI ANNUAL MEETING - 18; SPONSORED EDUCATIONAL WORKSHOPS IN THE AREAS OF SPECIAL NEEDS TRUSTS/WILLS, CASS HOUSING, MEDICAID WAIVER SERVICES, ABLE ACT UPDATES, RESTAURANT NIGHTS, SELF-ADVOCATE LETTER WRITING NIGHT, ETC. ESTIMATED 65 PEOPLE ATTENDED THESE EVENTS; SPONSORED CAMP RED CEDAR IN JULY AND AUGUST WITH PARTIAL SCHOLARSHIPS FOR 50 CHILDREN; DSANI FAMILY OUTING TIN CAPS GAME - 149; DSANI FAMILY OUTING MAD ANTS GAME - 135; 21ST ANNUAL BUDDY WALK - ESTIMATED 1,500 PLUS 100 AT PRE-PARTY EVENT; SPONSORED A FALL FEST EVENT AT KUEHNERT FARMS - 158; CO-SPONSORED A WORLD DOWN SYNDROME DAY CELEBRATION - 140; PARTICIPATED IN A TRUNK OR TREAT EVENT - 300; SPONSORED ALL DSANI HOLIDAY PARTY - 320; SPONSORED DSANI TALENT SHOW - 48; DSANI FAMILY OUTING OAKWOOD RESORT - 147; BROUGHT DR. BRIAN SKOTKO, A WORLD RENOWNED DOWN SYNDROME EXPERT TO FORT WAYNE TO ADDRESS FAMILIES AND AREA MEDICAL PROFESSIONALS - 180. ALONG WITH OUR MANY GROUPS AND PROGRAMS, DSANI ALSO PROVIDES LIBRARY RESOURCES, INFORMATIONAL EMAILS TO MEMBERS, OUTREACH AND EDUCATIONAL MATERIALS TO MEDICAL PROFESSIONALS AND COMMUNITY GROUPS, RESOURCE REFERRALS TO REQUESTING FAMILIES, A WEBSITE, A DIRECTORY DISTRIBUTED TO MEMBERS. DSANI IS A TREMENDOUS SUPPORT/MENTOR NETWORK FOR PARENTS. IN 2019, DSANI MADE A CONCERTED EFFORT TO BE A PART OF A NUMBER OF COMMUNITY EVENTS AND SPOKE TO A NUMBER OF COMMUNITY GROUPS. THIS INCLUDED SPONSORSHIPS FOR THE FANTASY OF LIGHTS DISPLAY AT FRANKE PARK, A JESTER PERFORMANCE (A THEATER GROUP FOR PEOPLE WITH DISABILITIES) AND THE THREE RIVERS FESTIVAL CHALK WALK. DSANI ALSO PARTCIPATED IN A NUMBER OF AREA RESOURCE AND INFORMATION FAIRS. IT IS ESTIMATED THAT THE NUMBER OF PEOPLE MADE AWARE OF DSANI'S MISSION THROUGH THESE EFFORTS TOTALED OVER 15,000.