2020-07-09T12:14:17-05:00 2019-06-30 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2018-07-01 824218205 ASH REGISTRY INC ASHR 2027760544 2021 L STREET NW NO 900 WASHINGTON DC 20036 MATTHEW GERTZOG EXECUTIVE DIRECTOR 2027760544 2020-07-09 1 RICHARD J LOCASTRO CPA P00288314 3019519090 75.103.231.202 2020-07-09 13:14:12 ED P 8A04992F9AA5330EDB38CCF362EE047B41C21F8B 0F5B552EC05A2334C44C0D6588D3D4B1DB8DEF54 2018 2020-11-19 02:30:22Z ASH RESEARCH COLLABORATIVE MATTHEW GERTZOG 2021 L STREET NW NO 900 WASHINGTON DC 20036 10000 0 X WWW.HEMATOLOGY.ORG/REGISTRY X 2017 DC SEE PART III, LINE 1. 13 12 0 0 0 0 0 10000 0 0 0 0 0 0 0 10000 0 0 0 0 0 1094396 0 0 0 0 3049735 0 4144131 0 -4134131 0 1466643 0 5600774 0 -4134131 X THE ASH RESEARCH COLLABORATIVE (ASH RC) WAS ESTABLISHED BY THE AMERICAN SOCIETY OF HEMATOLOGY IN 2017 TO FOSTER COLLABORATIVE PARTNERSHIPS TO ACCELERATE PROGRESS IN HEMATOLOGY, WITH THE ULTIMATE GOAL OF IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLOOD DISEASES. THE FOUNDATION OF THE ASH RC IS ITS DATA REPOSITORY, THE DATA HUB. THIS TECHNOLOGY PLATFORM FACILITATES THE EXCHANGE OF INFORMATION BY AGGREGATING AND MAKING AVAILABLE FOR INQUIRY, RESEARCH-GRADE DATA ON HEMATOLOGIC DISEASES. THE SECOND COMPONENT OF THE ASH RC IS THE SICKLE CELL DISEASE (SCD) CLINICAL TRIALS NETWORK. THE GOAL OF THE NETWORK IS TO CREATE A NETWORK OF COLLABORATING CLINICAL RESEARCH SITES TO ACCELERATE AND OPTIMIZE CLINICAL TRIALS RESEARCH IN SCD AND IMPROVE OUTCOMES FOR INDIVIDUALS LIVING WITH SICKLE CELL DISEASE. 0 0 4144131 THE ASH RC DATA HUB WAS CREATED TO FACILITATE THE SHARING OF DATA ON BENIGN AND MALIGNANT HEMATOLOGIC CONDITIONS TO SUPPORT OF SCIENTIFIC INQUIRY AND DISCOVERY. AS A MAJOR INITIATIVE WITHIN ASH RC, THE DATA HUB AIMS TO CREATE THE LARGEST SHARED INFORMATION RESOURCE WITHIN THE GLOBAL HEMATOLOGY COMMUNITY. THE DATA HUB IS CURRENTLY COLLECTING DATA ON THE NOVEL CORONAVIRUS (COVID-19) AND ITS IMPACT ON INDIVIDUALS LIVING WITH HEMATOLOGIC CONDITIONS (COVID-19 REGISTRY), MULTIPLE MYELOMA AND SICKLE CELL DISEASE. THE LONG-TERM GOAL OF THE ASH RC IS TO ADDRESS THE ENTIRE SPECTRUM OF MALIGNANT AND NONMALIGNANT HEMATOLOGIC DISEASES, WHICH MEANS THE DATA HUB WILL EXPAND ITS SCOPE ONCE THESE INITIAL EFFORTS HAVE REACHED MATURITY. CURRENTLY, THE DATA HUB HOUSES DATA ON MORE THAN 3,000 PATIENTS WITH SCD AND 2,000 PATIENTS WITH MULTIPLE MYELOMA. 4144131 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X TIFFANY AKE 2027760544 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 X ROY L SILVERSTEIN SEE SCH O PRES-ELECT; THEN PRES (TRANS 1/1/19) 1.00 2.00 X X 0 6750 0 ALEXIS THOMPSON SEE SCH O PRESIDENT (UNTIL 12/31/18) 1.00 2.00 X X 0 16000 0 STEPHANIE J LEE V.P.; THEN PRES-ELECT (TRANS 1/1/19) 1.00 2.00 X X 0 0 0 MARTIN S TALLMAN BD MEMBER; THEN VP (TRANS 1/1/2019) 1.00 2.00 X X 0 0 0 ROBERT A BRODSKY SEE SCH O SECRETARY 1.00 2.00 X X 0 14500 0 SUSAN B SHURIN SEE SCH O TREASURER (UNTIL 12/31/18) 1.00 2.00 X X 0 13500 0 MARK CROWTHER TREASURER (FROM 1/1/19) 1.00 2.00 X X 0 0 0 STEVEN L ALLEN BOARD MEMBER 1.00 2.00 X 0 0 0 JOHN C BYRD SEE SCH O BOARD MEMBER 1.00 2.00 X 0 3750 0 MARY C DINAUER BOARD MEMBER (UNTIL 12/31/18) 1.00 2.00 X 0 0 0 CYNTHIA E DUNBAR BOARD MEMBER 1.00 2.00 X 0 0 0 TERRY GERNSHEIMER BOARD MEMBER (UNTIL 12/31/18) 1.00 2.00 X 0 0 0 JANE N WINTER BOARD MEMBER 1.00 2.00 X 0 0 0 AGNES LEE BOARD MEMBER 1.00 2.00 X 0 0 0 JOSEPH MIKHAEL SEE SCH O BOARD MEMBER 1.00 2.00 X 0 3000 0 ARNOLD GANSER BOARD MEMBER (FROM 1/1/2019) 1.00 2.00 X 0 0 0 BELINDA AVALOS BOARD MEMBER (FROM 1/1/2019) 1.00 2.00 X 0 0 0 MARTHA LIGGETT EXECUTIVE DIRECTOR 1.00 59.00 X 0 605336 67928 UCHENNA ONYEACHOM SR. MANAGER, DATA HUB INFORMATICS 40.00 0.00 X 0 167186 16588 CHARLES CHESSON DIR., SICKLE CELL CLINIC. TRIAL. NWK. 40.00 0.00 X 0 131847 9945 LATASHA LEE SR. MANAGER, PARTNERSHIP ENGAGEMENT 40.00 0.00 X 0 125885 14928 0 1087754 109389 0 0 1 0 PROMETHEUS PO BOX 41125 SAN JOSE CA 95160 DATA DEVELOPMENT 268225 1 10000 10000 10000 0 0 0 X 45638 45638 785296 785296 209322 209322 54140 54140 112119 112119 2330591 2330591 90745 90745 24223 24223 13411 13411 165779 165779 89577 89577 140775 140775 32903 32903 20466 20466 MISCELLANEOUS 15010 15010 STAFF DEVELOPMENT 7369 7369 DUES & SUBSCRIPTIONS 5543 5543 TUITION REIMBURSEMENT 1224 1224 4144131 4144131 0 0 1378507 88136 0 1466643 310334 0 5290440 0 5600774 X -4134131 0 -4134131 0 1466643 -4134131 0 X 0 1 X 1 0 X X 1 AMERICAN SOCIETY OF HEMATOLOGY INC 237080568 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 DUE TO ASH 5290440 5290440 X 10000 0 10000 0 10000 4144131 0 4144131 0 4144131 PART X, LINE 2: FOR THE YEARS ENDED JUNE 30, 2019 AND 2018, THE SOCIETY HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. 0 0 0 0 0 0 0 0 0 MARTHA LIGGETT EXECUTIVE DIRECTOR 0 543976 0 61360 0 0 0 46495 0 21433 0 673264 0 0 UCHENNA ONYEACHOM SR. MANAGER, DATA HUB INFORMATICS 0 167186 0 0 0 0 0 2613 0 13975 0 183774 0 0 PART I, LINE 3 ASH RC RELIED ON ASH, A RELATED ORGANIZATION, TO DETERMINE COMPENSATION. ASH USED THE FOLLOWING METHODS TO DETERMINE COMPENSATION: - INDEPENDENT COMPENSATION CONSULTANT - COMPENSATION SURVEY OR STUDY - APPROVAL BY THE BOARD OR COMPENSATION COMMITTEE FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED FIRST BY THE CHIEF FINANCIAL OFFICER, AND THEN BY THE EXECUTIVE DIRECTOR. IT WAS THEN SENT TO THE ENTIRE BOARD PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ASH RC'S CONFLICT OF INTEREST POLICY QUESTIONNAIRE IS FILLED OUT ELECTRONICALLY BY ALL BOARD MEMBERS AND OFFICERS. BEFORE EACH BOARD OR COMMITTEE MEETING A MEMBER IS PUT IN CHARGE OF REVIEWING ALL CONFLICT OF INTEREST STATEMENTS FOR THE MEMBERS ATTENDING. FURTHERMORE, MEMBERS ARE ASKED TO DISCLOSE ANY CHANGES BEFORE EVERY MEETING. WHEN AN ASH RC MEMBER HAS A CONFLICT, S/HE WILL NOT: 1. TAKE ANY ACTION ON BEHALF OF ASH CONCERNING THE SUBJECT IN CONFLICT OR ANY ISSUE RELEVANT TO THE SUBJECT IN CONFLICT; 2. PARTICIPATE IN DISCUSSIONS ON THE SUBJECT WITHOUT FULL DISCLOSURE; 3. PARTICIPATE IN DECISION-MAKING DISCUSSIONS OR CAST A VOTE; 4. IMPLY THAT HE/SHE IS ACTING ON BEHALF OF ASH RC WHEN DISCUSSING THE RELEVANT SUBJECT WITH THIRD PARTIES; OR 5. FAIL TO CLARIFY WITH THIRD PARTIES WITH WHOM HE/SHE DEALS ON THE RELEVANT SUBJECT THAT HE/SHE IS NOT ACTING ON BEHALF OF ASH RC. FORM 990, PART VI, SECTION B, LINE 15A ASH RC RELIES ON A RELATED ORGANIZATION, ASH TO DETERMINE COMPENSATION. ASH'S COMPENSATION PROCESS IS DESCRIBED BELOW: TO ATTRACT AND RETAIN STELLAR TALENT IN THIS TOP EXECUTIVE POSITION, ASH PERIODICALLY ASSESSES MARKET SALARY TRENDS FOR THIS ROLE. THIS INCLUDES A COMPREHENSIVE MARKET SALARY REVIEW CONDUCTED BY NONPROFIT HR SOLUTIONS (NPHRS) AND ASSOCIATION STRATEGIES, INC. EVERY THREE YEARS. THIS BENCHMARKING INCLUDES AN ASSESSMENT OF SALARIES AND BENEFITS OF OTHER NON-PROFIT MEDICAL ASSOCIATION CHIEF EXECUTIVES WITH COMPARABLE BUDGET, STAFF SIZE, AND MISSION. WITH THE RESULTS OF THIS DATA, ASH CONSIDERS THE PERFORMANCE OF THE EXECUTIVE DIRECTOR, AND SETS A SALARY ALIGNED AT LEAST WITH THE MEAN OF THE MARKET. EXECUTIVE COMPENSATION FOR THE EXECUTIVE DIRECTOR IS ESTABLISHED BY CONTRACT BETWEEN THE BOARD OF DIRECTORS AND THE EXECUTIVE DIRECTOR WHICH IS TYPICALLY RENEGOTIATED EVERY THREE YEARS. EXECUTIVE COMPENSATION FOR THE EXECUTIVE DIRECTOR IS DETERMINED BY THE BOARD OF DIRECTORS AND CONFIRMED IN A FULLY EXECUTED CONTRACT SIGNED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR. THE LAST SALARY REVIEW WAS DONE IN JANUARY 2018. THE COMPENSATION FOR THE OTHER OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION IS REVIEWED BY AN OUTSIDE HR GROUP AND APPROVED BY THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. THE CONFLICT OF INTEREST POLICY IS LOCATED ON THE ORGANIZATION'S WEBSITE. PART VII, SECTION A - COMPENSATION OF BOARD MEMBERS: BOARD MEMBERS MAY RECEIVE COMPENSATION RELATED TO SPEAKING ENGAGEMENTS OR WRITING ARTICLES FOR THE SOCIETY. FORM 990, PART IX, LINE 11G ASH REGISTRY CONSULTANTS: PROGRAM SERVICE EXPENSES 2,330,591. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,330,591. AMERICAN SOCIETY OF HEMATOLOGY INC 2021 L STREET NW SUITE 900 WASHINGTON DC 20036 237080568 SEE PART VII DC 501(C)(3) LINE 10 N/A 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 SCHEDULE R, PART II, RELATED TAX-EXEMPT ORGANIZATIONS: (B) PRIMARY ACTIVITY: PROFESSIONAL SOCIETY SERVING BOTH CLINICIANS & SCIENTISTS AROUND THE WORLD WHO ARE WORKING TO CONQUER BLOOD DISEASES.