2020-10-20T12:35:49-05:00 2019-12-31 BKD LLP 1155 Avenue of the Americas 1200 New York NY 10036 990 2019-01-01 362883000 American Liver Foundation % DAVID TICKER AMER 2126681000 39 Broadway Suite 2700 New York NY 10006 DAVID TICKER CFO 2126681000 2020-07-15 true Aaron Shapiro P01333816 2128674000 167.68.126.162 26511920202945000003 2020-10-20 P 6EF7E506F0EB9D8B772D1A3D38FBD5C32131A5DB 6EF7E506F0EB9D8B772D1A3D38FBD5C32131A5DB 2019 2021-01-29 14:40:06Z DAVID TICKER 39 BROADWAY SUITE 2700 NEW YORK NY 10006 10052798 false X WWW.LIVERFOUNDATION.ORG X 1976 NY OUR MISSION IS TO FACILITATE, ADVOCATE, AND PROMOTE EDUCATION, SUPPORT SERVICES, AND RESEARCH FOR THE PREVENTION, TREATMENT, AND CURE OF LIVER DISEASE. 27 26 78 2000 0 0 9257672 8927298 0 0 115387 103785 -174702 -179794 9198357 8851289 475000 275000 0 0 5484590 5391464 0 0 1080670 3336259 3071102 9295849 8737566 -97492 113723 5260328 5267197 1933110 1566244 3327218 3700953 X OUR MISSION IS TO FACILITATE, ADVOCATE, AND PROMOTE EDUCATION, SUPPORT SERVICES, AND RESEARCH FOR THE PREVENTION, TREATMENT, AND CURE OF LIVER DISEASE. false false 1790670 PUBLIC AND PATIENT EDUCATION: Information specialists are available to answer questions about liver disease and liver wellness, including risk factors, prevention, symptoms, early detection, diagnosis, and treatment options. ALF can direct callers to local services in their area, help them learn about clinical trials, and help them find a physician. Interpretation services are available for non-English speakers. We also host a vibrant online community across numerous social media platforms and one website. The Liver Lowdown e-newsletter is disseminated to provide information about the prevention, treatment, and cure of liver disease and about the Foundations educational and signature programs; an in-depth focus on specific types of liver disease, and profiles of liver patients and caregivers personal experiences. In 2019, nearly 120,000 people received each of our issues. In CY 2019, our HelpLine answered over 9,500 requests for information via phone, e-chat, email, and "snail mail". The American Liver Foundations digital content allows us to reach millions of people with our information and resource. The ALF website helps us better deliver quality programs and events to our constituents including multimedia webinars, videos, and broadcasts. We've seen a steady rise in use with approximately 5 million page views in 2019 from 3.5 million in 2018 and 1.9 in 2017. At the end of this year, we had 159,920 Facebook fans and 6,693 Twitter followers. Our support community on the Inspire platform had over 26,000 members, an increase from 19,000 in 2018. We released two Public Service Announcements (PSA) in 2019. Chicago Bears Safety Deon Bush spoke about the importance of being screened for Liver Cancer and Charles Esten of the hit show Nashville educated viewers about Living Donor Liver Transplantation. Combined, these PSAs reached 25,000 people. We created a 4-minute alcohol-related liver disease education video which explains the effects of alcohol consumption on the liver. This is available on our YouTube page and has received over 9,000 views: https://www.youtube.com/watch?v=xaTYclP8F8Q&t=1s In 2019, we created NAFLD/NASH education videos and shared NAFLD/NASH patient and caregivers stories. These videos received nearly 10,000 views. In CY 2019, we continued our series of patient education webinars. Webinars sponsored by our Divisions include features on elimination of hepatitis c, alcohol related hepatitis, auto-immune hepatitis, pediatric liver disease, nutrition and the liver, prevention of fatty liver disease, mental health, and liver transplantation. On the National Level, we hosted both patient and professional education webinars on Clinical Trials, Cirrhosis, NAFLD/NASH, pediatric liver diseases, Wilson Disease, navigating financial issues for patients, and a Liver Cancer Webinar in Spanish. Additionally, we collaborated with the CDC on two webinars on Hepatitis A and the Opioid Epidemic. These and other videos on our You Tube channel were viewed more than 270,000 times. ALF expanded its educational resource library by creating updated and new resources on viral hepatitis, liver transplant, and nonalcoholic fatty liver disease including four new at-a-glance educational materials on Hepatitis C -Interpreting your Test Results, Hepatitis C in Children, Pregnancy and Hepatitis C, and Hepatitis C and Young People. (Many of these resources are available in English, Chinese, Korean, Vietnamese, Russian and Spanish). All brochures are available for download from our website at https://liverfoundation.org/for-patients/resources/brochures/ ALFs National Patient Advisory Committee, made up of patient advocates from across the country with hepatitis C, NAFLD, primary biliary cholangitis, Hepatic Encephalopathy, and alcohol-related liver disease, was expanded to include patients with Hepatorenal Syndrome. Our patient education and support program for Primary Biliary Cholangitis (PBC) continued with Mind Body Workshops, which were facilitated by the PBC Foundations Head of Education and Development, Robert Mitchell-Thain. We held two workshops in New York City and Cleveland. Additionally, we held two train the trainer sessions in each city so our PBC NPAC members and program staff could be trained on holding these workshops. Four additional workshops were held by our newly trained facilitators in St. Louis, Boston, New York and Cincinnati. These mind-body workshops focus on the interaction between a persons brain, body, and behavior which have been practiced for centuries to alleviate physical dysfunction. The NASH Facebook Support Group, a support community for those affected by Nonalcoholic Steatohepatitis (NASH) has grown significantly since its inception in 2018. The group has 1,196 members from 522 members in 2018. This group is open to anyone connected to NASH around the country and serves as a space to feel less alone and seek answers to questions they may have about their journey. Our Ask the Experts educational program offered participants across the United States access to hear from medical professionals on a variety of topics, including viral hepatitis, non-alcoholic fatty liver disease, alcohol-related liver disease, liver cancer, nutrition, managing your medications, and liver wellness. Nearly 1,000 people participated in these programs. 1677847 PATIENT SUPPORT: ALFs Viral Hepatitis community education program provides comprehensive and accurate information about hepatitis (A, B, and C), including risk factors, transmission and prevention, and an overview of treatment options. In CY 2019, ALF reached 4,097 people through this important program. 1480641 COMMUNITY SERVICES: ALF offers several Community Education Programs on liver health and liver disease that are interactive and age appropriate. These popular programs include: Love Your Liver, Liver Wellness - What Everybody Needs to Know, Teens to Twenties - Liver Wellness Guide, Non-Alcoholic Fatty Liver Disease, and Alcohol-Related Liver Disease. In addition, ALF participates in community health fairs and coalition meetings to raise awareness of liver disease. In CY 2019, Community Education Programs reached a combined total of 7,629 people nationwide, and health fairs/outreach reached 6,281 people. ALF participates in federal, state, and local advocacy efforts to address the needs of people affected by liver disease and that focus on larger healthcare issues to improve liver health and increase research funding. In CY 2019, ALF has been included in community sign-on letters advocating for patients with chronic diseases on issues including access to care and research; participated in coalitions with various other patient advocacy groups to urge increased funding for the NIH, CDC, VA, and DOD; distributed "calls to actions" for our community to contact their elected officials regarding a variety of issues relating to liver disease through our Advocacy Platform, which currently includes 850 constituents; hosted an education and advocacy day in Washington, DC that included 57 patient advocates representing multiple disease states; and brought patient advocates to Liver Hill Day with the American Association for the Study of Liver Disease and the Digestive Diseases National Coalition. During The American Liver Foundations Advocacy Day, we held a Congressional Briefing Luncheon at which Dr. Jono Mermin, the Director of the National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention at the CDC spoke about spike in infectious diseases attributed to the opioid epidemic and National Patient Advisory Committee Member Sherry Tierney spoke about her patient journey with hepatitis C and receiving a liver transplant. Additionally, we presented ALFs 2019 Distinguished Service Awards to Senator Kevin Cramer (R-ND), Sponsor of the Access to Marketplace Insurance Act; Senator Kirsten Gillibrand (D-NY), Sponsor of the Living Donor Protection Act; Congressman Jerry Nadler (D-NY), Sponsor of the Living Donor Protection Act and Congresswoman Nydia Velazquez (D-NY), Sponsor of the LIVER Act. 1884479 275000 RESEARCH AND PROFESSIONAL EDUCATION 1884479 275000 6833637 true true false false false false false false true true true false false false true false true false false false false false false false true false false true true true false false false false false false false false false false false false false false false false false true 186 0 78 true false false false false false true true false false false true false false false X 27 26 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR AP CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X DAVID TICKER 2126681000 39 BROADWAY SUITE 2700 NEW YORK NY 10006 Thomas F Nealon III President & CEO 35.0 0.0 X X 245695 0 42968 David Ticker CFO 35.0 0.0 X 192342 0 21294 Lynn Seim COO 35.0 0.0 X 197727 0 6547 Erika Goodman Nat'l Director of Development 35.0 0.0 X 143762 0 18755 Kelly Smith Nat'l Dir. of Special Events 35.0 0.0 X 121562 0 39491 Kathleen Flynn Executive Director - CT Div. 35.0 0.0 X 141029 0 15564 Veronica Perez Executive Director - GNY Div. 35.0 0.0 X 128130 0 17592 Farrah Douglas Executive Director - GLA Div. 35.0 0.0 X 128197 0 13502 Nicholas J DeRoma Chairman 0.3 0.0 X X 0 0 0 Daniel E Weil Treasurer 0.3 0.0 X X 0 0 0 Gene Cautillo Secretary 0.3 0.0 X X 0 0 0 Caroline Berlinger Board Member 0.3 0.0 X 0 0 0 Mike Braunstein Board Member 0.3 0.0 X 0 0 0 Robert Brickman Board Member 0.3 0.0 X 0 0 0 Eddie Cheung MD FACG Board Member 0.3 0.0 X 0 0 0 Brian Christie Board Member 0.3 0.0 X 0 0 0 Edgar Delgado Board Member 0.3 0.0 X 0 0 0 Allan J Doerr Board Member 0.3 0.0 X 0 0 0 T Clark Gamblin MD Board Member 0.3 0.0 X 0 0 0 Sanjiv Harpavat MD P Board Member 0.3 0.0 X 0 0 0 Mary Ann Huang MD MS Board Member 0.3 0.0 X 0 0 0 Michael Kerr Board Member 0.3 0.0 X 0 0 0 Elizabeth Leesmann Board Member 0.3 0.0 X 0 0 0 Robert Leventahl MD Board Member 0.3 0.0 X 0 0 0 Rohit Loomba MD Board Member 0.3 0.0 X 0 0 0 Robert Merowitz Board Member 0.3 0.0 X 0 0 0 Sammy Saab MD MPH Board Member 0.3 0.0 X 0 0 0 Nicole Smith PhD Board Member 0.3 0.0 X 0 0 0 Karen Hoffman Snyder Board Member 0.3 0.0 X 0 0 0 Susan Sherman Stone C Board Member 0.3 0.0 X 0 0 0 Emmanuel Thomas MD P Board Member 0.3 0.0 X 0 0 0 Traci Tigue Board Member 0.3 0.0 X 0 0 0 Hillel Tobias MD PhD Board Member 0.3 0.0 X 0 0 0 Rocky Yapp MD MPH A Board Member 0.3 0.0 X 0 0 0 1298444 0 175713 12 false true false JPA HEALTH COMMUNICATIONS 1101 CONNECTICUT AVE NW WASHINGTON DC 20036 PUBLIC RELATIONS 101595 AMPLOTECH LLC PO BOX 16422 SAN JUAN PR 00908 MARKETING 150522 2 16852 4786004 4124442 21426 8927298 0 73774 73774 0 0 0 0 0 304354 274343 30011 30011 30011 711482 4786004 927166 -215684 -215684 0 0 0 0 0 0 OTHER 900099 35890 35890 35890 8851289 -76009 225000 225000 50000 50000 0 0 706573 561703 67052 77818 0 3941774 3133583 374066 434125 22804 18128 2164 2512 372552 296167 35354 41031 347761 276459 33002 38300 0 257 257 0 0 0 14492 14492 550679 419185 26186 105308 63772 54688 489 8595 423932 178997 143184 101751 285725 226695 27057 31973 0 661965 525541 62732 73692 382850 328027 18153 36670 0 0 5348 5348 0 34598 27504 3283 3811 20871 16591 1981 2299 HOTEL AND CATERING 473554 385351 2239 85964 MISCELLANEOUS 153059 110018 6220 36821 8737566 6833637 823259 1080670 1570520 1791670 80389 11538 1117480 196618 0 0 0 0 0 0 0 0 0 0 219161 191894 1314633 1267512 78556 47121 2194222 3028356 0 0 0 0 0 0 0 0 5260328 5267197 668614 572902 237500 137500 0 0 0 0 793980 774204 0 0 99509 0 0 0 133507 81638 1933110 1566244 X -474617 614131 3801835 3086822 3327218 3700953 5260328 5267197 113723 260012 X false true X true false X 1318021 7306322 6597397 9257672 8927298 33406710 0 0 1318021 7306322 6597397 9257672 8927298 33406710 6270616 27136094 28795 52306 55931 58839 73774 269645 0 711 15001 25994 25653 35890 103249 33779604 0.80333 0.76793 X 0.00000 part Ii AMERICAN LIVER FOUNDATION CHANGED THEIR YEAR-END IN 2015 FROM SEPTEMBER 30 TO DECEMBER 31. THE DATA IN 2015 REPRESENTS THE 3 MONTHS ENDED DECEMBER 31, 2015. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false true X 1112588 222118 112500 1222206 1215883 -75352 27943 1112588 1103423 174960 62500 1215883 1095696 57727 50000 1103423 1073159 22537 1095696 0.81200 0.18800 false false 97448 97414 34 465745 456940 8805 751440 713158 38282 47121 0 DEFERRED RENT 81638 81638 9622271 260012 525462 785474 8836797 14492 14492 8851289 9248536 525462 525462 8723074 14492 14492 8737566 PART IV, LINE 2B FUNDS HELD ON BEHALF OF OTHERS - ALF ACTS AS AN ADMINISTRATOR FOR FUNDS COLLECTED ON BEHALF OF LIVER TRANSPLANT PATIENTS. ALF DISBURSES FUNDS TO COVER THE COST OF PROPERLY DOCUMENTED POST-SURGERY EXPENSES. PART V, LINE 4 The intended use of endowment funds has been specified by the donor. all funds on hand are used to generate interest/dividend income and capital gains to support various research initiatives. 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X X false false false false false false false false false Thomas F Nealon III President & CEO 245695 2314 40654 288663 Lynn Seim COO 197727 1802 4745 204274 David Ticker CFO 192342 1802 19492 213636 Erika Goodman Nat'l Director of Development 143762 1500 17255 162517 Kathleen Flynn Executive Director - CT Div. 141029 1444 14120 156593 Kelly Smith Nat'l Dir. of Special Events 121562 1287 38204 161053 FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF THE FORM 990 IS SENT TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS IN THE MONTHLY MEETING PRIOR TO FILING. IN ADDITION, A DRAFT OF THE FORM 990 IS ALSO SENT TO EACH BOARD MEMBER FOR DISCUSSION. AFTER QUESTIONS AND COMMENTS ARE ADDRESSED AND THE FORM 990 IS APPROVED, IT IS READY FOR FILING. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, OUR CONFLICT OF INTEREST FORM IS COMPLETED BY OFFICERS AND DIRECTORS. THE FORM MUST INDICATE ANY POSSIBLE CONFLICTS OF INTEREST AND BE SIGNED BY ALL OFFICERS AND DIRECTORS. WHEN ANY SUCH CONFLICT OF INTEREST IS RELEVANT TO A MATTER REQUIRING ACTION BY THE BOARD, THE INTERESTED PERSON SHALL CALL IT TO THE ATTENTION OF THE BOARD AND SUCH PERSON SHALL NOT VOTE ON THE MATTER. MOREOVER, THE PERSON HAVING A CONFLICT SHALL RETIRE FROM THE ROOM IN WHICH THE BOARD IS MEETING AND SHALL NOT PARTICIPATE IN THE FINAL DELIBERATION OR DECISION REGARDING THE MATTER UNDER CONSIDERATION. HOWEVER, THAT PERSON SHALL PROVIDE THE BOARD WITH ANY AND ALL RELEVANT INFORMATION. THE MINUTES OF THE MEETING OF THE BOARD, SHALL REFLECT THAT THE CONFLICT OF INTEREST WAS DISCLOSED AND THAT THE INTERESTED PERSON WAS NOT PRESENT DURING THE FINAL DISCUSSION OR VOTE AND DID NOT VOTE. WHEN THERE IS A DOUBT AS TO WHETHER A CONFLICT OF INTEREST EXISTS, THE MATTER SHALL BE RESOLVED BY A VOTE OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 15A CEO COMPENSATION IS DETERMINED BY THE NATIONAL BOARD OF DIRECTOR'S EXECUTIVE COMMITTEE AND APPROVED BY THE BOARD MEMBERS. IN DETERMINING SALARY LEVELS, THE EXECUTIVE COMMITTEE REVIEWS AN ANNUAL SALARY SURVEY OF NATIONAL VOLUNTARY HEALTH ORGANIZATIONS PREPARED FOR THE NATIONAL HEALTH COUNCIL AND REVIEWS PRIOR YEAR PERFORMANCE. CURRENT MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICAN LIVER FOUNDATION ARE ALSO CONSIDERED IN SETTING COMPENSATION. THIS REVIEW WAS LAST CONDUCTED IN 2019. FORM 990, PART VI, SECTION B, LINE 15B THE SALARY OF OFFICERS AND KEY EMPLOYEES ARE DETERMINED BY THE CEO, COO AND CFO BASED ON PERFORMANCE, MARKET CONDITIONS AND THE FINANCIAL CONDITION OF THE AMERICAN LIVER FOUNDATION. FORM 990, PART VI, SECTION C, LINE 19 THE FORM 990 IS AVAILABLE VIA WWW.LIVERFOUNDATION.ORG AND FORM 1023 IS AVAILABLE UPON REQUEST.