2020-10-15T09:06:18-05:00 2020-06-30 420714325 RSM US LLP 2021 L STREET NW 400 WASHINGTON DC 20036 990 2019-07-01 521638207 CHILDREN'S INN AT NIH INC CHIL 3014965672 7 WEST DRIVE BETHESDA MD 20814 JENNIE LUCCA CHIEF EXECUTIVE OFFICER 3014965672 2020-10-15 1 MIKE SORRELLS P00001737 2022932200 2020-09-30 66.98.98.88 2020-10-15 09:04:39 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 1FE53BDFCB5A9E7ADF2C1FAEFD07FCB2349EA307 2019 2021-01-29 14:40:06Z THE CHILDREN'S INN AT NIH INC JENNIE LUCCA 7 WEST DRIVE BETHESDA MD 20814 11226496 0 X WWW.CHILDRENSINN.ORG X 1988 MD TO KEEP FAMILIES TOGETHER DURING ILLNESS IN A SUPPORTIVE, THERAPEUTIC, & EDUCATIONAL ENVIRONMENT. 20 20 52 193 0 0 5094027 6256363 986121 952251 3000250 1864335 344339 -74245 9424737 8998704 32115 76800 0 0 3682218 4237378 0 63300 1528688 5016501 4726479 8730834 9103957 693903 -105253 62318561 63199204 944632 1721702 61373929 61477502 X THE CHILDREN'S INN AT NIH, INC. (THE INN) IS A PRIVATE, NONPROFIT RESIDENCE FOR FAMILIES AND THEIR CHILDREN WHO ARE PARTICIPATING IN PEDIATRIC RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH'S (NIH) CLINICAL CENTER. THE INN'S MISSION IS TO FULLY AND CONSISTENTLY MEET THE NEEDS OF CHILDREN AND FAMILIES PARTICIPATING IN GROUNDBREAKING RESEARCH AT NIH, BY:- RESPONDING TO EVOLVING FAMILY SUPPORT NEEDS FROM PEDIATRIC RESEARCH AND CLINICAL CARE- PROVIDING A FREE FAMILY-CENTERED "PLACE LIKE HOME"- REDUCING THE BURDENS OF ILLNESS THROUGH THERAPEUTIC, EDUCATIONAL AND RECREATIONAL PROGRAMMING. 0 0 3608014 0 952251 HOUSING - THE CHILDREN'S INN AT NIH IS A HOSPITAL HOSPITALITY HOUSE THAT PROVIDES FREE LODGING AND SUPPORT SERVICES FOR CHILDREN AND THEIR FAMILIES PARTICIPATING IN CLINICAL RESEARCH STUDIES AT THE NATIONAL INSTITUTES OF HEALTH (NIH), THE WORLD'S LARGEST BIOMEDICAL RESEARCH HOSPITAL. FAMILIES WHO STAY AT THE INN HAVE PEDIATRIC AND YOUNG ADULT PATIENTS WITH RARE, UNDIAGNOSED, OR LIFE-THREATENING, CATASTROPHIC DISEASES THAT CANNOT BE SUCCESSFULLY TREATED OR CURED OUTSIDE OF CLINICAL RESEARCH STUDIES. OVER THE PAST 30 YEARS, MORE THAN 16,000 CHILDREN AND YOUNG ADULTS FROM 104 COUNTRIES HAVE CALLED THE INN HOME.OUR MISSION IS TO PROVIDE A "PLACE LIKE HOME" FOR FAMILIES TO STAY TOGETHER COMFORTABLY AT NO COST. THE STUDIES CHILDREN AND YOUNG ADULTS PARTICIPATE IN ARE THEIR BEST HOPE FOR A DIAGNOSIS, TREATMENT, OR CURE AND LEAD TO INNOVATIONS THAT HELP IMPROVE THE LIVES AND SURVIVAL RATES OF COUNTLESS CHILDREN AND YOUNG PEOPLE WITH DEVASTATING DISEASES WORLDWIDE. THE CHILDREN'S INN FEATURES 59 ROOMS AND PROVIDES OFF-CAMPUS LODGING AT FIVE APARTMENTS LOCATED IN BETHESDA, MARYLAND, FOR FAMILIES WHOSE CHILDREN ARE ON ISOLATION AND TO ACCOMMODATE FAMILIES WHEN THE INN'S ROOMS ARE FULLY OCCUPIED. SOME OF OUR ROOMS HAVE BEEN SPECIALLY FURNISHED TO SERVE AS ISOLATION ROOMS FOR CHILDREN WHOSE FRAGILE IMMUNE SYSTEMS OR OTHER UNIQUE HEALTH ISSUES DO NOT PERMIT THEM TO STAY IN REGULAR ROOMS. ISOLATION ROOMS HAVE SPECIAL FLOORING AND OTHER SURFACES THAT ARE EASY TO CLEAN AND ALLOW FAMILIES TO STAY COMFORTABLY TOGETHER DURING ESPECIALLY STRESSFUL TIMES. WHILE MOST FAMILIES SPEND BETWEEN ONE AND FIVE NIGHTS AT THE INN PER VISIT, MANY STAY FOR WEEKS OR EVEN MONTHS AT A TIME TO UNDERGO SUCH COMPLEX TREATMENTS AS GENE THERAPY, IMMUNE THERAPY OR BONE MARROW TRANSPLANTS THAT REQUIRE LENGTHY PREPARATION AND RECUPERATION TIMES. AS A "PLACE LIKE HOME", THE INN MAKES IT POSSIBLE FOR FAMILIES TO EASILY AND COMFORTABLY ENGAGE IN TYPICAL ACTIVITIES - MEAL PREPARATION, HOMEWORK, LAUNDRY, EXERCISING, AND SPENDING TIME TOGETHER AS A FAMILY - WHILE ALSO PROVIDING CHILDREN WITH AMPLE SPACE TO PLAY AND PARTICIPATE IN FUN ACTIVITIES. FAMILIES HAVE ACCESS TO THREE FULLY EQUIPPED KITCHENS WITH SEPARATE REFRIGERATOR/FREEZERS AND CABINET SPACE, SHARED DINING ROOMS, AND SHARED LIVING AND LAUNDRY ROOMS. COMMUNITY PANTRIES ARE STOCKED WITH FREE, NON-PERISHABLE FOODS FOR SIMPLE MEALS, AND TRANSPORTATION TO GROCERY STORES IS PROVIDED TWICE A WEEK. EVERY FAMILY IS ELIGIBLE FOR GROCERY GIFT CARDS. THE CHILDREN'S INN HAS MULTIPLE INDOOR PLAY SPACES, A COMPUTER ROOM, AN EDUCATION CENTER, AND AN ART ROOM TO PLAY, LEARN, MAKE FRIENDS AND PARTICIPATE IN THE INN'S WIDE ARRAY OF RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES.THE INN'S EXERCISE ROOM GIVES FAMILIES THE CHANCE TO WORK OUT ALONE OR AS PART OF INSTRUCTOR-LED GROUP EXERCISE CLASSES. A REFLECTION SPACE PROVIDES FAMILIES WITH A QUIET ROOM TO PRAY OR ENGAGE IN SPIRITUAL ACTIVITIES. WHEN THE WEATHER ALLOWS, THE INN'S LARGE PLAYGROUND IS THE PERFECT PLACE FOR CHILDREN TO LET OFF STEAM AND MEET OTHER CHILDREN, WHILE THE SPORTS COURT GIVES CHILDREN THE CHANCE TO PRACTICE A VARIETY OF SPORTS. COMMUNITY BIKES, TRIKES, SCOOTERS AND OTHER EQUIPMENT ARE AVAILABLE, AND WALKING PATHS ALLOW FAMILIES TO STROLL. CHILDREN'S INN STAFF IS ONSITE AROUND THE CLOCK FOR ASSISTANCE. MANY OF THE INN'S STAFF SPEAK MULTIPLE LANGUAGES, AND A FREE ON-CALL INTERPRETATION SERVICE IS AVAILABLE TO HELP FAMILIES AND STAFF COMMUNICATE. THE INN'S WELCOMING, LIGHT-FILLED PHYSICAL SPACE AND ITS MANY FAMILY-CENTERED ACTIVITIES MAKE IT EASY FOR FAMILIES TO GET TO KNOW ONE ANOTHER AND FORM DEEP CONNECTIONS THAT LEAD TO LASTING, SUPPORTIVE FRIENDSHIPS REGARDLESS OF AGE OR BACKGROUND.IN JUNE 2018, THE INN LAUNCHED ITS MULTIYEAR STRATEGIC PLAN TITLED, "#INN2025." THE PLAN'S THREE MAIN GOALS ARE:- TO IMPROVE OUR FACILITY TO SERVE FAMILIES BETTER- TO ENHANCE OUR ABILITY TO SUPPORT FAMILIES AND NIH CLINICIANS, AND - TO STRENGTHEN OUR FISCAL SUSTAINABILITY. DURING FY20, A MASTER PLAN FOR RENOVATIONS WAS COMPLETED AND PRESENTED TO THE INN'S BOARD OF DIRECTORS. AN INTERNAL WORKGROUP OF STAFF IS DETERMINING THE MOST FEASIBLE APPROACH FOR IMPLEMENTATION. THE INN'S HOUSING PLANS FOR THE NEAR FUTURE ALSO INCLUDE CREATING LODGING TO MEET OUR YOUNG ADULT POPULATION'S UNIQUE NEEDS. THE INN IS IN THE DESIGN PHASE OF RENOVATIONS FOR A BUILDING ON THE NIH CAMPUS THAT IS LOCATED ACROSS FROM THE INN. THE BUILDING WAS GIVEN TO THE INN BY THE NIH AT NO COST TO TURN IT INTO ADDITIONAL PATIENT HOUSING. WHEN COMPLETED IN 2022, THE BUILDING WILL COMPRISE SIX PRIVATE BEDROOMS, A SHARED KITCHEN AND SHARED LIVING SPACE GEARED TOWARD YOUNG ADULTS.OVER THE PAST YEAR, 1,110 NIH PEDIATRIC AND YOUNG ADULT PATIENTS AND THEIR FAMILIES STAYED AT THE INN FOR A TOTAL OF 11,212 OVERNIGHT STAYS. THE HOUSING COSTS TO SUPPORT THESE FAMILIES AMOUNTED TO $3,608,014. THE INN RECEIVED IN-KIND SUPPORT TOTALING $2,162,250 THROUGH A PARTNERSHIP WITH THE NIH, CORPORATE SPONSORSHIPS AND INDIVIDUAL DONATIONS. THE INN IS ALSO SUPPORTED BY A DEDICATED GROUP OF VOLUNTEERS WHOSE MORE THAN 850 HOURS OF SERVICE HAS AN ESTIMATED VALUE OF $ 24,353. THE TOTAL MANAGED EFFORT OF HOUSING SERVICES WAS $5,788,975. ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. AS A RESULT, ONLY RESEARCH PARTICIPANTS IN NIH CLINICAL PROTOCOLS THAT WERE NON-ELECTIVE WERE ABLE TO CONTINUE THEIR TREATMENTS AND STAYS AT THE INN. THIS FOLLOWED THE MARCH 13 GUIDANCE TO ALL ELIGIBLE NIH STAFF TO TELEWORK TO THE MAXIMUM EXTENT POSSIBLE.TO FURTHER THE HEALTH AND SAFETY OF ALL INN FAMILIES, STAFF AND VOLUNTEERS, THE INN CHANGED HOW SUPPORT WAS PROVIDED. THESE CHANGES INCLUDE:- MANDATORY MASK USAGE, SOCIAL DISTANCING AND HEALTH SCREENING.- ALL ONSITE VOLUNTEERS AND VISITORS ARE SUSPENDED.- ONLY MISSION-CRITICAL STAFF ARE ONSITE WHILE OTHERS WORK FROM HOME.- TRIPS TO THE GROCERY STORES ARE SUSPENDED. INSTEAD, INN STAFF COORDINATE GROCERY DELIVERIES FOR FAMILIES. - TO REPLACE THE MEALS DONATED TO INN RESIDENTS SIX TIMES PER WEEK BY COMMUNITY GROUPS, THE INN NOW PURCHASES AND COORDINATES THE DELIVERY OF INDIVIDUALLY PACKAGED MEALS.- IF FAMILIES CHOOSE TO COOK IN ONE OF THE KITCHENS, THEY MUST RESERVE A TIME TO PRACTICE SAFE DISTANCING.- ONLINE ACTIVITIES HAVE REPLACED ALL OFF-SITE FIELD TRIPS AND GROUP ACTIVITIES. IN LATE AUGUST, SOME SOCIALLY DISTANCED ACTIVITIES BEGAN TO ALLOW CHILDREN TO PARTICIPATE IN SOME LIMITED IN-PERSON ACTIVITIES. THE INN ALSO HOLDS OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS.- THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED. 2301594 76800 0 RESIDENT SERVICES - THE CHILDREN'S INN AT NIH WAS FOUNDED 30 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" FREE OF CHARGE TO CHILDREN AND THEIR FAMILIES PARTICIPATING IN CLINICAL RESEARCH STUDIES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). FAMILIES WHO STAY AT THE INN HAVE PEDIATRIC AND YOUNG ADULT PATIENTS WITH RARE, UNDIAGNOSED, OR LIFE-THREATENING DISEASES THAT CANNOT BE SUCCESSFULLY TREATED OR CURED OUTSIDE OF CLINICAL RESEARCH STUDIES. FOR MANY, IT IS THEIR BEST HOPE FOR A DIAGNOSIS, TREATMENT OR CURE. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH. THE INN'S RESIDENT SERVICES TEAM IS PRIMARILY RESPONSIBLE FOR DEVELOPING AND IMPLEMENTING PROGRAMS THAT MEET THE THERAPEUTIC NEEDS OF FAMILIES. KEEPING FAMILIES TOGETHER IS CRUCIAL FOR THE ENTIRE FAMILY'S WELL-BEING, ESPECIALLY WHEN FACED WITH A CHILD'S RARE AND SERIOUS DISEASE. THE INN'S ENVIRONMENT IS DESIGNED TO SUPPORT FAMILY LIFE AND MEET EVERY DAY NEEDS SUCH AS COOKING A CHILD'S FAVORITE MEAL, THE CHANCE TO SPEND QUALITY TIME TOGETHER OUTSIDE OF THE HOSPITAL AND PARTICIPATING IN FAMILY ACTIVITIES DURING ONE OF THE MOST CHALLENGING TIMES OF THEIR LIVES. MOST OF OUR FAMILIES LOOK FORWARD TO THE MANY FREE RECREATIONAL, EDUCATIONAL, AND THERAPEUTIC ACTIVITIES THE INN'S RESIDENT SERVICES TEAM PROVIDES. THESE ACTIVITIES NOT ONLY ENTERTAIN FAMILIES AND BRING JOY TO CHILDREN BUT ALSO HELP FOSTER LASTING RELATIONSHIPS WITH CHILDREN'S INN STAFF AND OTHER FAMILIES, WHICH CREATES THE INN'S UNIQUE NURTURING AND SUPPORTIVE COMMUNITY. THE INN PROVIDES A HOST OF EDUCATIONAL PROGRAMS FOR CHILDREN AND THEIR SIBLINGS TO SUPPORT THEM WITH THEIR SCHOOLWORK AND COMMUNICATE WITH THEIR HOMESCHOOL TEACHERS. CHILDREN MAY BE MATCHED WITH INDIVIDUAL TUTORS BASED ON THEIR EDUCATIONAL NEEDS AND LANGUAGE PREFERENCES. SOME OF THE EDUCATIONAL GROUP ACTIVITIES INCLUDE LEARNING ABOUT TECHNOLOGY AND CONNECTING INN RESIDENTS WITH CHILDREN'S BOOK AUTHORS WHO ENGAGE CHILDREN AND FAMILIES IN LIVELY DISCUSSIONS ABOUT THE FUN OF READING AND WRITING STORIES. ACTIVITIES ARE DESIGNED TO ALLOW FAMILIES TO DROP THEIR CHILDREN OFF FOR AN HOUR OF LEARNING AND FUN WHILE PARENTS RECLAIM AN HOUR OF MUCH-NEEDED REST. THE CHILDREN'S INN ALSO PROVIDES SUPPORT TO AND ACTIVITIES GEARED TOWARD OUR TEEN AND YOUNG ADULT RESIDENTS. THE TEEN AND YOUNG ADULT LOUNGE IS DESIGNED FOR CHILDREN AGES 13 AND OLDER TO HAVE THEIR OWN SPACE TO PLAY BOARD AND VIDEO GAMES, FOOSBALL, READ, STUDY, PARTICIPATE IN ORGANIZED GROUP DISCUSSIONS OR GATHER BEFORE OUTINGS TO LOCAL RESTAURANTS, LIVE CONCERTS AND SHOWS. THE CHANCE TO GET TO KNOW, SOCIALIZE AND MAKE FRIENDS WITH PEERS OF THE SAME AGE FACED WITH CHRONIC OR LIFE-THREATENING DISEASES IS WELCOMED BY OUR YOUNG PEOPLE WHO TYPICALLY HAVE NEVER HAD THE CHANCE TO MEET OTHER YOUNG ADULTS FACED WITH SIMILAR, RARE HEALTH CHALLENGES. THE CHILDREN'S INN IS EXPANDING PROGRAMS AND ACTIVITIES FOR OUR YOUNG ADULTS WHO OFTEN HAVE NOT HAD THE CHANCE TO DEVELOP INDEPENDENT LIVING SKILLS TO THE SAME DEGREE AS HEALTHY PEERS THEIR AGE. BY 2022, WE PLAN TO DEDICATE A FULL-TIME STAFF MEMBER TO SUPPORT OUR YOUNG ADULT RESIDENTS AND THEIR UNIQUE NEEDS. OUR RESIDENT SERVICES TEAM IS WORKING CLOSELY WITH OUR PARTNERS AT THE NIH TO COORDINATE THIS NEW POSITION. IN 2022, THE INN ALSO PLANS TO OPEN A SECOND BUILDING LOCATED DIRECTLY ACROSS THE STREET, WHICH WILL PROVIDE HOUSING DESIGNED FOR OUR YOUNG ADULTS, AGES 18-29. CAREGIVER GATHERINGS LED BY THE CLINICAL CENTER'S NON-DENOMINATIONAL CHAPLAIN PROVIDE PARENTS, GRANDPARENTS AND OTHERS WITH THE CHANCE TO ENGAGE IN THERAPEUTIC DISCUSSIONS, SING SONGS TOGETHER AND EXPLORE THEIR SPIRITUALITY. MANY CAREGIVERS REPORT THEY FIND SOLACE AND INSPIRATION IN CONVERSATIONS WITH THE CHAPLAIN AND OTHER CAREGIVERS. THE CHANCE TO EXPRESS AND DISCUSS THE DIFFICULTIES OF THEIR SITUATION STRENGTHENS FAMILIES' BONDS AND THE INN'S NURTURING COMMUNITY. EXERCISE IS ANOTHER MEANINGFUL WAY FOR PARENTS AND CAREGIVERS TO PRACTICE SELF-CARE. THE INN'S EXERCISE ROOM PROVIDES WEIGHTS AND CARDIAC EQUIPMENT FOR AN EASY WAY TO STAY IN SHAPE AND DE-STRESS. IN ADDITION, THE INN OFFERS FREE FITNESS CLASSES TAUGHT BY CERTIFIED TRAINERS. THE INN'S RESIDENT SERVICES TEAM ALSO PROVIDES A WIDE RANGE OF RECREATIONAL ACTIVITIES FOR FAMILIES. THESE INCLUDE FIELD TRIPS TO TOURIST ATTRACTIONS, LOCAL MUSEUMS AND ART STUDIOS, SPORTING EVENTS, RESTAURANTS, CONCERTS, MUSICALS, ICE DANCING AND OTHER FAMILY-FRIENDLY PERFORMANCES. FOR MANY FAMILIES, THESE OUTINGS ARE THEIR VERY FIRST TIME ATTENDING WORLD-CLASS PERFORMANCES, AND THEY CHERISH THESE EXTRAORDINARY EXPERIENCES AND SHARED MOMENTS OF JOY. SPECIAL ACTIVITIES FOR PATIENTS AND THEIR SIBLINGS INCLUDE:- A DROP-OFF CAMP CALLED "CAMP INNCREDIBLE" ALLOWS CHILDREN TO PARTICIPATE IN TYPICAL CAMP ACTIVITIES DURING THE SUMMER MONTHS. IN RECENT YEARS, THE INN HAS ADDED CAMP ACTIVITIES FOR TEENS, AS WELL AS ACTIVITIES DURING THE SPRING AND WINTER BREAKS. - "SIBLING DAY," WHICH PROVIDES THE CHANCE FOR SIBLINGS TO LEARN ABOUT THE MEDICAL PROCEDURES THEIR SICK SIBLING MAY UNDERGO AND RECOGNIZES THESE SIBLINGS AS "SUPER SIBS" FOR THEIR MANY IMPORTANT CONTRIBUTIONS TO THEIR FAMILIES.- TWO DAYS OF ACTIVITIES JUST FOR OUR TEEN RESIDENTS WHO PARTICIPATE IN "TEEN RETREAT".- "CHRISTMAS IN JULY," WHICH IS A SPECIAL SUMMERTIME CHRISTMAS THAT SHOWERS CHILDREN WITH GIFTS AND SURPRISES THEM WITH A VISIT FROM SANTA.-HOLIDAY DECORATIONS AND VISITS FROM SANTA AND THE ELVES TRANSFORM THE INN INTO A MAGICAL PLACE DURING THE MONTH OF DECEMBER. EVERY CHILD AND FAMILY MEMBER CAN WRITE SANTA A WISH LIST, AND SANTA AND OUR CARING VOLUNTEER ELVES MAKE SURE WISHES ARE FILLED TO THE BEST EXTENT POSSIBLE. -MEALS AND ACTIVITIES SO THAT FAMILIES CAN CELEBRATE THE HOLIDAYS. FOR INTERNATIONAL FAMILIES, THE OPPORTUNITY TO ENJOY A TRADITIONAL THANKSGIVING MEAL IS ALWAYS SPECIAL. MEALS SERVED BY VOLUNTEERS OR INN STAFF PROVIDE FAMILIES WITH THE CHANCE TO FOCUS ON THEIR CHILD AND THEIR HEALTH RATHER THAN COOK AFTER LONG DAYS OF TRAVEL OR MEDICAL APPOINTMENTS. TO SUPPORT FAMILIES, VOLUNTEERS AND COMMUNITY GROUPS SERVE BREAKFAST MOST DAYS AND DINNERS MOST NIGHTS OF THE WEEK, AS WELL AS SUNDAY BRUNCH. RECENTLY, THE INN BEGAN SERVING LUNCH TO FURTHER SUPPORT FAMILIES AND OFFER THEM AN ADDITIONAL MEAL FREE OF CHARGE. SINCE THEN, WE HAVE EXPANDED OUR LUNCH PROGRAM TO INCLUDE MEAL OPTIONS FOR VARIOUS DIETARY RESTRICTIONS AND MEET STRICT FOOD STANDARDS FOR OUR TRANSPLANT PATIENTS. THE EXPANDED OPTIONS INCLUDE GLUTEN-FREE, FAT-FREE AND DAIRY-FREE MEALS, AS WELL AS FRESH FRUIT AND VEGETABLES AND VEGETARIAN OPTIONS. SHARED MEALS BRING PEOPLE TOGETHER AND ARE AN EASY WAY FOR FAMILIES TO MEET ONE ANOTHER AND BOND. INTERNATIONALLY THEMED MEALS ORGANIZED BY OUR RESIDENT SERVICES STAFF PROVIDE THE OPPORTUNITY FOR FAMILIES FROM DIFFERENT COUNTRIES AND CULTURES TO SHARE THEIR NATIONAL DISHES AND CELEBRATE THEIR CULTURES WITH OUR COMMUNITY OF RESIDENTS FROM ALL BACKGROUNDS, FAITHS AND NATIONALITIES. FOR FAMILIES WISHING TO COOK, NON-PERISHABLE ITEMS FOR QUICK MEALS ARE PROVIDED FREE OF CHARGE IN OUR KITCHENS' COMMUNITY PANTRIES. TWICE A WEEK, OUR TEAM ORGANIZES TRIPS TO THE GROCERY STORE AND GIVES OUT GROCERY GIFT CARDS TO FAMILIES. OUR KITCHENS ARE EQUIPPED WITH INDIVIDUAL REFRIGERATOR/FREEZERS AND PANTRY SPACE FOR EASY, HYGIENIC FOOD STORAGE. TO HELP NON-ENGLISH-SPEAKING FAMILIES, TUTORING IS AVAILABLE FREE OF CHARGE. MULTILINGUAL STAFF AND PHONE-ACCESSIBLE TRANSLATION SERVICES ARE ALWAYS AVAILABLE TO HELP FAMILIES COMMUNICATE. A GROUP OF DEDICATED VOLUNTEERS SUPPORTS THE INN'S RESIDENT SERVICES TEAM BY MANAGING THE WELCOME DESK AND CHECKING FAMILIES IN AND OUT OF THE INN, STOCKING THE KITCHENS, ORGANIZING IN-KIND DONATIONS AND OFFERING INFORMATION TO FAMILIES ABOUT LOCAL CULTURAL AND TOURIST ATTRACTIONS, PUBLIC TRANSPORTATION AND MORE. IN FY2020, THE INN OFFERED MORE THAN 787 HOURS OF ORGANIZED FAMILY ACTIVITIES. THE INN DEDICATED $2,301,594 OF ITS RESOURCES TO PROVIDING FAMILY SUPPORT SERVICES AND RECEIVED ADDITIONAL IN-KIND SERVICES VALUED AT $555,128 FOR OUR FAMILY SUPPORT PROGRAMS AND OUTINGS. VOLUNTEER SUPPORT FOR RESIDENT SERVICES AND FAMILY PROGRAMS TOTALED 8,719 HOURS OR THE EQUIVALENT OF 4.2 STAFF MEMBERS, VALUED AT $249,800. THE TOTAL MANAGED EFFORT OF OUR FAMILY SUPPORT SERVICES IS $3,106,522. 5909608 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 0 1 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 47 0 1 52 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 20 20 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OK OR PA RI SC TN UT VA WV WI ND X X JEAN BUERGLER 3014965672 7 WEST DRIVE BETHESDA MD 20814 BETH MALONEY CHAIR 4.00 X X 0 0 0 SUSAN PENFIELD VICE CHAIR 2.00 X X 0 0 0 COKIE ROBERTS SECRETARY (TIL 9/19) 2.00 X X 0 0 0 BRIAN KELLY SECRETARY (FROM 9/19) 2.00 X X 0 0 0 MATT BELL PHD TREASURER 2.00 X X 0 0 0 LOIS ALPERSTEIN DIRECTOR 1.00 X 0 0 0 TIMOTHY J ATKIN DIRECTOR 1.00 X 0 0 0 DIANE BAKER DIRECTOR 1.00 X 0 0 0 PRACHEE DEVADAS DIRECTOR 1.00 X 0 0 0 ERIN DARLING JD DIRECTOR 1.00 X 0 0 0 CHRISTINE GRADY MSN PHD DIRECTOR 1.00 X 0 0 0 BETH MEAGHER DIRECTOR 1.00 X 0 0 0 KAMAL NARANG DIRECTOR 1.00 X 0 0 0 JILL OLMSTEAD DIRECTOR 1.00 X 0 0 0 KRISTINE RIBAS DIRECTOR 1.00 X 0 0 0 RYAN A RIEL DIRECTOR 1.00 X 0 0 0 CONSTANTINE STRATAKIS MD DIRECTOR 1.00 X 0 0 0 PORTER SHIFFLETT DIRECTOR 1.00 X 0 0 0 SCOTT VOGEL DIRECTOR 1.00 X 0 0 0 DANIEL L WEAVER CPA DIRECTOR 1.00 X 0 0 0 LIZ WURSTER DIRECTOR 1.00 X 0 0 0 ROBERT J FILIPPONE PHD DIRECTOR (TIL 10/19) 1.00 X 0 0 0 NEAL KATYAL JD DIRECTOR (TIL 10/19) 1.00 X 0 0 0 KELVIN WOMACK DIRECTOR (TIL 10/19) 1.00 X 0 0 0 JENNIE LUCCA CHIEF EXECUTIVE OFFICER 40.00 X 253959 0 48148 JEAN BUERGLER SR. DIRECTOR OF FINANCE 40.00 X 134118 0 22284 FERN STONE CHIEF DEV & COMM OFFICER 40.00 X 234439 0 32009 TAMMY PINSON CHIEF OPERATING OFFICER 40.00 X 165316 0 43109 CATHY MORALES CHIEF PROGRAM & SERVICES OFFICER 40.00 X 143650 0 13345 RICHARD SAUNDERS SR. DIRECTOR, INFORMATION SYSTEMS 40.00 X 116449 0 12618 LAURA KING SR. DIR., COMMUNITY ENGAGEMENT 40.00 X 106026 0 27522 ANNE MANDEVILLE SR. DIR., DEV. OPS & STRATEGIC PTPS 40.00 X 104897 0 10754 1258854 0 209789 8 0 1 0 CROTHALL HEALTHCARE 13028 COLLECTION CENTER DRIVE CHICAGO IL 60693 HOUSEKEEPING SERVICES 701998 MINDSET DIRECT 12110 SUNSET HILLS ROAD STE 600 RESTON VA 20190 FUNDRAISING SERVICES 251912 GENSLER 4541 COLLECTION CENTER DR CHICAGO IL 60693 MASTER PLANNING SERVICES 156329 PERKINS EASTMAN 115 FIFTH AVE NEW YORK NY 100031004 ARCHITECTURAL SERVICES 121284 WELLS FARGO BANK NA 550 SOUTH 4TH ST MINNEAPOLIS MN 55415 INVESTMENT ADVISOR 101155 5 74904 1566646 4614813 1530583 6256363 PATIENT LODGING 900099 952251 952251 952251 1361082 1361082 2574817 2066544 5020 508273 -5020 503253 503253 72934 1566646 156228 -83294 -83294 MISCELLANEOUS 900099 9049 9049 9049 8998704 952251 0 1790090 76800 76800 739840 136250 343655 259935 2686504 1608281 529706 548517 237483 142919 45970 48594 346866 222162 62450 62254 226685 117184 56399 53102 8455 8455 32000 32000 63300 63300 146747 146747 78888 53152 13114 12622 582393 146023 57111 379259 116193 67164 31082 17947 257642 104242 111349 42051 54958 51661 3297 128681 19527 99117 10037 1307873 1203243 91551 13079 39896 11812 23110 4974 CLEANING 689132 672592 5513 11027 RESIDENT PROGRAMMING 503964 503964 FACILITIES & EQUIPMENT 431390 428667 2723 RESIDENT SUPPLIES 299949 299949 48318 44016 2312 1990 9103957 5909608 1665661 1528688 385651 112298 125138 148215 14989 13457 1079436 1830175 1062328 565463 219819 46656 21195 19504 102306 106230 13394524 9888245 3131647 3506279 56686841 57111440 62318561 63199204 914632 1095300 30000 9000 0 617402 944632 1721702 X 26395962 24572728 34977967 36904774 61373929 61477502 62318561 63199204 -105253 208826 0 X X 0 1 X 1 0 X 4974294 5681551 5267008 5094027 6256363 27273243 2908141 2734859 2778247 2796161 2823175 14040583 7882435 8416410 8045255 7890188 9079538 41313826 539204 40774622 1483599 1152163 1666624 3020976 1361082 8684444 2162 3777 196 526361 9049 541545 50539815 2257051 0.80680 0.77600 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2015 AMOUNT: $ 2,162. 2016 AMOUNT: $ 3,777. 2017 AMOUNT: $ 196. 2018 AMOUNT: $ 5,222. 2019 AMOUNT: $ 9,049. INSURANCE CLAIMS - 2018 AMOUNT: $ 521,139. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 30854553 455629 1054505 13185 32351502 28852173 186660 1850865 35145 30854553 26494725 928217 1452751 23520 28852173 22990935 1324137 2179653 26494725 22452850 530976 7109 22990935 0.87160 0.12840 0 0 8673912 7062626 1611286 3212007 2675422 536585 1508605 150197 1358408 3506279 PAYROLL PROTECTION PROGRAM LOAN 617402 617402 12112851 208826 2895840 156228 3260894 8851957 146747 146747 8998704 12009278 2895840 156228 3052068 8957210 146747 146747 9103957 PART V, LINE 4: THE INN HOLDS VARIOUS PERMANENTLY RESTRICTED ENDOWMENTS, WHICH ARE DESCRIBED AS FOLLOWS: SANOFI AVENTIS LEGACY FUND - THIS FUND WAS ESTABLISHED IN 2008 TO SUPPORT THE NEEDS OF CHILDREN AND FAMILIES RECEIVING MEDICAL CARE AT THE NIH. THE MERCK COMPANY FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1996 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. THE WEINBERG FOUNDATION FUND - THIS FUND WAS ESTABLISHED IN 1993 THROUGH RESTRICTED CONTRIBUTIONS FROM DONORS TO SUBSIDIZE VARIOUS PROGRAMS AND SERVICES FOR TEMPORARY RESIDENTS AND VISITORS OF THE INN. THE JOYCE A. JENKINS ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2006 TO SUPPORT THE NEEDS OF CHILDREN AND THEIR FAMILIES RECEIVING MEDICAL CARE AT THE NIH. GENERAL ENDOWMENT FUND - THE PURPOSE OF THIS FUND IS TO PROVIDE INVESTMENT INCOME TO BE USED FOR OPERATING EXPENSES. ROBERT JAMES FITZGERALD ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO PROVIDE SUPPORT FOR FUTURE OPERATING EXPENSES OF THE INN. AFCEA ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2008 TO ENSURE THAT CHILDREN AND THEIR FAMILIES RECEIVE THE UTMOST CARE AND COMFORT DURING THEIR STAY AT THE INN. ROSE AND HAROLD KRAMER ENDOWMENT FUND - THIS FUND WAS ESTABLISHED IN 2007 TO RAISE FUNDS TO PROVIDE SERVICES TO CHILDREN AND/OR FOR RESEARCH PURPOSES. OTHER - USED FOR DESIGNATED PURPOSE OR, IF NO SPECIAL PURPOSE WAS SPECIFIED, FOR GENERAL OPERATING EXPENSES. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 156,228. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSES 156,228. X X X X X 1 MINDSET DIRECT 12110 SUNSET HILLS RD STE 600 RESTON VA 20190 PLANNING/PROGRAM MGMT OF FUNDRAISING CAMPAIGNS & DIRECT MAIL 0 915464 254516 660948 915464 254516 660948 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY ONLINE AUCTION 1257370 1257370 0 11998 50479 CONGRESSIONAL RECEPTION 225300 201000 24300 20598 5741 106 2 156910 108276 48634 39135 26565 1606 1639580 1566646 72934 59733 44304 52191 156228 -83294 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE INN PAID MINDSET DIRECT PROFESSIONAL FUNDRAISING FEES IN THE AMOUNT OF $63,300. THIS IS IN ADDITION TO PRODUCTION EXPENSES THAT WERE ALSO PAID TO MINDSET DIRECT IN THE AMOUNT OF $191,216. 1 TUITION 35 36872 EMERGENCY ASSISTANCE TO RESIDENTS 24 39928 PART I, LINE 2: GENERALLY, THE INN PAYS EXPENSES DIRECTLY TO GOODS AND SERVICE PROVIDERS ON BEHALF OF THE RECIPIENTS, AND THEREFORE, DOES NOT NEED TO MONITOR THE USE OF GRANT FUNDS. IF A GRANT IS MADE DIRECTLY TO A RESIDENT OR FAMILY MEMBER, THE RECEIPIENT MUST PROVIDE PROOF OF PAYMENT FOR THE GOODS OR SERVICES FOR WHICH THE GRANT WAS INTENDED. X X X X X X 0 0 0 0 0 0 0 1 0 JENNIE LUCCA CHIEF EXECUTIVE OFFICER 220109 0 33580 0 270 0 22231 0 27149 0 303339 0 0 0 JEAN BUERGLER SR. DIRECTOR OF FINANCE 122750 0 8500 0 2868 0 12609 0 10741 0 157468 0 0 0 FERN STONE CHIEF DEV & COMM OFFICER 221153 0 11000 0 2286 0 22334 0 10907 0 267680 0 0 0 TAMMY PINSON CHIEF OPERATING OFFICER 155046 0 10000 0 270 0 15892 0 28446 0 209654 0 0 0 CATHY MORALES CHIEF PROGRAM & SERVICES OFFICER 132876 0 10000 0 774 0 13345 0 1108 0 158103 0 0 0 PART I, LINE 7 ALL BONUSES RECEIVED BY OFFICERS, KEY EMPLOYEES AND HIGHEST COMPENSATED EMPLOYEES LISTED IN FORM 990, PART VII WERE BASED ON AN APPRAISAL OF HIS/HER PERFORMANCE. X 15 928070 FMV X 333 122795 ESTIMATED X GRILL STATION 1 193424 ESTIMATE X SUPPLIES 671 135534 FMV X AUCTION ITEMS 360 112730 FMV X EVENT SUPPORT 2 38030 FMV 0 0 1 0 PART I, LINE 32B: THE INN HAS A GIFT ACCEPTANCE POLICY THAT REQUIRES SPECIFIC REVIEW BY BOARD & DEVELOPMENT COMMITTEE MEMBERS FOR NON-STANDARD CONTRIBUTION. NO NON-STANDARD CONTRIBUTIONS WERE RECEIVED DURING THE YEAR ENDED JUNE 30, 2020. FORM 990, PART III, LINE 4B, CONTINUED: ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. AS A RESULT, ONLY RESEARCH PARTICIPANTS IN NIH CLINICAL PROTOCOLS THAT WERE NON-ELECTIVE WERE ABLE TO CONTINUE THEIR TREATMENTS AND STAYS AT THE INN. THIS FOLLOWED THE MARCH 13 GUIDANCE TO ALL ELIGIBLE NIH STAFF TO TELEWORK TO THE MAXIMUM EXTENT POSSIBLE. TO FURTHER THE HEALTH AND SAFETY OF ALL INN FAMILIES, STAFF AND VOLUNTEERS, THE INN CHANGED HOW SUPPORT WAS PROVIDED. THESE CHANGES INCLUDE: - MANDATORY MASK USAGE, SOCIAL DISTANCING AND HEALTH SCREENING. - ALL ONSITE VOLUNTEERS AND VISITORS ARE SUSPENDED. - ONLY MISSION-CRITICAL STAFF ARE ONSITE WHILE OTHERS WORK FROM HOME. - TRIPS TO THE GROCERY STORES ARE SUSPENDED. INSTEAD, INN STAFF COORDINATE GROCERY DELIVERIES FOR FAMILIES. - TO REPLACE THE MEALS DONATED TO INN RESIDENTS SIX TIMES PER WEEK BY COMMUNITY GROUPS, THE INN NOW PURCHASES AND COORDINATES THE DELIVERY OF INDIVIDUALLY PACKAGED MEALS. - IF FAMILIES CHOOSE TO COOK IN ONE OF THE KITCHENS, THEY MUST RESERVE A TIME TO PRACTICE SAFE DISTANCING. - ONLINE ACTIVITIES HAVE REPLACED ALL OFF-SITE FIELD TRIPS AND GROUP ACTIVITIES. IN LATE AUGUST, SOME SOCIALLY DISTANCED ACTIVITIES BEGAN TO ALLOW CHILDREN TO PARTICIPATE IN SOME LIMITED IN-PERSON ACTIVITIES. THE INN ALSO HOLDS OUTDOOR ACTIVITIES THAT MAKE PHYSICAL DISTANCING EASIER, SUCH AS MOVIE NIGHTS ON THE PLAYGROUND, PICNICS AND CAMPOUTS. - THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED. FORM 990, PART VI, SECTION B, LINE 11B THE INN HIRES AN INDEPENDENT ACCOUNTING FIRM TO PREPARE THE FEDERAL FORM 990. THE FEDERAL FORM 990 IS THEN REVIEWED BY THE AUDIT COMMITTEE. UPON APPROVAL, THE FEDERAL FORM 990 IS THEN DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C ALL STAFF, COMMITTEE MEMBERS AND BOARD MEMBERS ARE REQUIRED TO SIGN THE CONFLICT OF INTEREST DECLARATION WHEN THEY INITIALLY BECOME A MEMBER OF THE INN'S TEAM AND THEN ANNUALLY, THEREAFTER. THE CHIEF OPERATING OFFICER MONITORS STAFF. COMMITTEE AND BOARD MEMBERS ARE MONITORED BY THE SPECIAL ASSISTANT TO THE CEO. COMPLIANCE IS ENFORCED BY THE CHAIR OF THE AUDIT COMMITTEE. A BOARD MEMBER WITH A DUAL INTEREST IN A PROPOSED TRANSACTION SHALL BE EXCLUDED FROM ANY DISCUSSION OR VOTE REGARDING THE MATTER EXCEPT WHEN POINTS OF CLARIFICATION ARE NEEDED. FORM 990, PART VI, SECTION B, LINE 15A JENNIE LUCCA, CEO, WAS HIRED EFFECTIVE 1/1/2015 FOLLOWING THE UNANIMOUS APPROVAL BY THE BOARD. AN AUTOMATICALLY RENEWING CONTRACT IS IN PLACE, AND THE INCREASE AND BONUS AWARDED WERE CONSISTENT WITH THE TERMS OF THE CONTRACT, INCLUDING THE USE OF COMPARABILITY DATA, REVIEW AND APPROVAL BY THE BOARD (INDEPENDENT PERSONS) AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION. FORM 990, PART VI, SECTION C, LINE 19 THE COMPLETE FINANCIAL STATEMENTS, GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY, AND THE FORM 1023 ARE AVAILABLE IN OUR OFFICES AND WILL BE MADE AVAILABLE TO ANYONE REQUESTING COPIES. BASIC INCOME, EXPENSE, FUNCTIONAL EXPENSE BREAKDOWN, CLASSIFICATION OF NET ASSETS, MOST RECENT FEDERAL FORM 990, MOST RECENT AUDITED FINANCIAL STATEMENTS, OUR CODE OF ETHICS AND CORE VALUES ARE AVAILABLE ON OUR WEBSITE. FORM 990, PART XII, LINE 2C: THE PROCESS FOR OVERSIGHT OF THE AUDIT HAS NOT CHANGED DURING THE TAX YEAR. SEVENWEST LLC 7 WEST DRIVE BETHESDA MD 20814 521638207 HOLDING DEED TO TIME-SHARE MD 0 10000 THE CHILDREN'S INN AT NIH INC LIAC LLC 7 WEST DRIVE BETHESDA MD 20814 813423277 HOLDING 10% INTEREST IN LIFE IS A COUPON MD 0 0 THE CHILDREN'S INN AT NIH INC