2020-06-30T05:28:34-05:00 2019-12-31 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS ROAD SUITE 1500 RALEIGH NC 27609 990 2019-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 420 N WABASH AVE NO 650 CHICAGO IL 60611 BETH LEWIN DEAN CHIEF EXECUTIVE OFFICER 3122551801 2020-06-30 1 J CALVIN MARKS P01226973 9197196400 34.233.173.235 2020-06-30 05:28:29 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 5CA57564C3F4EED809CA878CC7A574EC5BA228EA 2019 2021-01-29 14:40:06Z BETH LEWIN DEAN 420 N WABASH AVE NO 650 CHICAGO IL 60611 8053189 0 X WWW.CUREEPILEPSY.ORG X 1998 IL TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 10 10 21 250 0 0 7555195 7599997 0 0 82998 127285 -187331 -242369 7450862 7484913 3205929 3260536 0 0 1149320 1719233 0 36574 578128 1613764 1247103 5969013 6263446 1481849 1221467 6395235 11158995 1104241 4278558 5290994 6880437 THE MISSION OF CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 0 0 4313713 3260536 SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $70 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO POST-TRAUMATIC EPILEPSY, ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES. CURE FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TO DATE HAS AWARDED MORE THAN 235 CUTTING-EDGE PROJECTS IN 15 COUNTRIES AROUND THE WORLD. 1004242 CURE SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES, DRIVING AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY THROUGH THE FRONTIERS IN RESEARCH SEMINAR SERIES, WEBINARS, DAY OF SCIENCE EDUCATIONAL EVENTS, THE SEIZING LIFE PODCAST SERIES, OUR WEBSITE AND OTHER DIGITAL COMMUNICATION. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. 5317955 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 17 0 1 21 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 10 10 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK AL AR CA CO CT FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OH OR PA RI SC TN UT VA WI WV X X JOHN ANDERLUH 3122551801 420 N WABASH AVE NO 650 CHICAGO IL 60611 STACEY PIGOTT CHAIR 1.00 X X 0 0 0 KATHY MCKENNA TREASURER (FROM JUN '19) 1.00 X X 0 0 0 KELLY CERVANTES SECRETARY 1.00 X X 0 0 0 PAUL HELDMAN SECRETARY (TO SEP '19) 1.00 X X 0 0 0 ANN BENSCHOTER PAST CHAIR 1.00 X X 0 0 0 MIKE AXELROD DIRECTOR 1.00 X 0 0 0 LISA COTTON DIRECTOR 1.00 X 0 0 0 BLAKE CUNNEEN DIRECTOR 1.00 X 0 0 0 MARILYNN GARDNER DIRECTOR 1.00 X 0 0 0 CELIA HUBER DIRECTOR 1.00 X 0 0 0 DAVID REIFMAN DIRECTOR FROM DEC '19) 1.00 X 0 0 0 BETH LEWIN DEAN CEO (FROM APR '19) 37.50 X 183370 0 23125 JOHN ANDERLUH CFO (FROM OCT '19) 37.50 X 18206 0 1485 ROBIN HARDING INTERIM COO (TO MAR '19) 37.50 X 89899 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 37.50 X 277064 0 15402 PRIYA BALASUBRAMANIAN ASSOC DIRECTOR OF RESEARCH 37.50 X 100545 0 25154 LAUREN HARTE ASSOC DIRECTOR OF RESEARCH 37.50 X 103150 0 2963 772234 0 68129 4 0 1 0 PATINA SOLUTIONS GROUP INC 13890 BISHOPS DR STE 320 BROOKEFIELD WI 53005 OUTSOURCED EXECUTIVE 150935 FACEBOOK 1 HACKER WAY MENLO PARK CA 94025 ADVERTISING 140496 2 1788165 2252602 3559230 70751 7599997 175964 175964 121486 121595 48570 -109 -48570 -48679 -48679 154550 1788165 398111 -243561 -243561 OTHER 900099 1192 1192 1192 7484913 0 0 -115084 3012890 3012890 247646 247646 608551 408237 92168 108146 897981 609433 135253 153295 17442 11350 2993 3099 89787 58426 15405 15956 105472 71010 15664 18798 98701 69513 11442 17746 36574 36574 25920 14515 6740 4665 183461 160335 22041 1085 206539 206539 182541 111656 22370 48515 155342 121893 15679 17770 90789 60487 14204 16098 46723 44453 2270 162418 54528 440 107450 17534 11682 2743 3109 10897 7260 1705 1932 LICENSES & FEES 17270 11506 2702 3062 DUES & SUBSCRIPTIONS 9580 6836 1279 1465 39388 17760 2265 19363 6263446 5317955 367363 578128 803783 1100686 826967 3901028 936008 1841173 42089 45606 209093 151828 78986 57265 3696308 4199911 11094 13326 6395235 11158995 115448 359136 712099 951959 276694 2967463 1104241 4278558 X 4204477 5077553 1086517 1802884 5290994 6880437 6395235 11158995 X 1221467 342861 25115 X X 0 1 X 1 0 X 5734565 4560949 4103518 7555195 7599997 29554224 5734565 4560949 4103518 7555195 7599997 29554224 1206399 28347825 182661 157025 182025 71470 175964 769145 30323369 837500 0.93490 0.95270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 6263446 6263446 463172 115793 0 0 453521 377462 427783 463172 1721938 2582907 113380 94366 106946 115793 430485 645728 87081 69043 18038 53852 39702 14150 68160 43083 25077 57265 X 7861637 342861 83210 15459 3156 444686 7416951 25920 42042 67962 7484913 6272194 83210 83210 6188984 25920 48542 74462 6263446 PART X, LINE 2: MANAGEMENT HAS CONCLUDED THAT CURE HAS PROPERLY MAINTAINED ITS EXEMPT STATUS. THE PREVIOUS THREE TAX YEARS ARE SUBJECT TO EXAMINATION BY FEDERAL AUTHORITIES, THERE ARE CURRENTLY NO EXAMINATIONS BEING CONDUCTED. PART XI, LINE 2D - OTHER ADJUSTMENTS: GRANT WRITE OFFS 3,156. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS 90,612. FIXED ASSET RETIREMENT -48,570. PART XII, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENTS 90,612. RETURN GRANTS 6,500. FIXED ASSET RETIREMENT -48,570. 1 EAST ASIA & THE PACIFIC 0 0 GRANTS TO RECIPIENTS IN REGION 226000 EUROPE 0 0 GRANTS TO RECIPIENTS IN REGION, CONFERENCE 13000 MIDDLE EAST AND NORTH AFRICA 0 0 GRANTS TO RECIPIENTS IN REGION 8000 SUB-SAHARAN AFRICA 0 0 GRANTS TO RECIPIENTS IN REGION 1000 0 0 0 0 0 0 248000 0 248000 E. ASIA & THE PACIFIC RESEARCH GRANT 225982 MIDDLE EAST AND NORTH AFRICA RESEARCH GRANT 7500 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. PART III ACCOUNTING METHOD: 1 GIVING TREE ASSOCIATES 220 N GREEN ST CHICAGO IL 60607 PROFESSIONAL FUNDRAISING 0 0 36574 -36574 36574 -36574 AK AL AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV CHICAGO GALA BENEFIT 1785320 1662170 123150 63965 113087 8197 120547 NYC GALA BENEFIT 157395 125995 31400 2062 29508 26947 4986 28813 1942715 1788165 154550 2062 93473 140034 13183 149360 398112 -243562 1 BAYLOR COLLEGE OF MEDICINE ONE BEAR PLACE 97043 WACO TX 76798 741159753 501(C)(3) 7500 RESEARCH GRANT CHILDREN'S HOSPITAL BOSTON 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)(3) 100000 RESEARCH GRANT COLUMBIA UNIVERSITY 615 WEST 131 ST MC 8741 NEW YORK NY 10027 135598093 501(C)(3) 82803 RESEARCH GRANT EMORY UNIVERSITY 1599 CLIFTON RD 3RD FLR STE ATLANTA GA 30322 580566256 501(C)(3) 251000 RESEARCH GRANT GORDON RESEARCH CONFERENCES 512 LIBERTY LN WEST KINGSTON RI 02892 260150662 501(C)(3) 28750 RESEARCH GRANT INTERNATIONAL LEAGUE AGAINST EPILEPSY 2221 JUSTIN RD STE 119 352 FLOWER MOUND TX 75028 521298610 501(C)(3) 8086 RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 593963 RESEARCH GRANT MID-ATLANTIC EPILEPSY & SLEEP CENTER LLC 6410 ROCKLEDGE DR STE 610 BETHESDA MD 20817 300767458 242926 RESEARCH GRANT STXBP1 FOUNDATION 2001 HAMILTON ST STE 917 PHILADELPHIA PA 19130 821439459 501(C)(3) 7500 RESEARCH GRANT THE UNIVERSITY OF ILLINOIS 507 EAST GREEN ST CHAMPAIGN IL 61820 376000511 115 230000 RESEARCH GRANT UNIVERSITY OF CALIFORNIA SAN FRANCISCO 9500 GILLMAN DR LA JOLLA CA 92093 956006144 115 104000 RESEARCH GRANT UNIVERSITY OF FLORIDA PO BOX 115500 GAINSVILLE FL 32611 596002052 115 187481 RESEARCH GRANT UNIVERSITY OF NORTH CAROLINA CHAPEL HILL CAMPUS BOX 1210 104 AIRPORT DR STE 3400 CHAPEL HILL NC 27599 566001393 115 99972 RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST STE 305 PHILADELPHIA PA 19104 231352685 501(C)(3) 174754 RESEARCH GRANT UNIVERSITY OF WASHINGTON 333 BROOKLYN AVE NE SEATTLE WA 98195 916001537 115 250000 RESEARCH GRANT VANDERBILT UNIVERSITY MEDICAL CENTER 3322 WEST END AVE STE 900 NASHVILLE TN 37203 352528741 501(C)(3) 13634 RESEARCH GRANT VIRGINIA TECH 902 PRICES FORK RD STE 4400 BLACKSBURG VA 24060 540721690 115 613270 RESEARCH GRANT 16 1 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X X 0 0 0 0 0 0 0 0 0 BETH LEWIN DEAN CEO (FROM APR '19) 183370 0 0 0 0 0 5671 0 17454 0 206495 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 277064 0 0 0 0 0 5806 0 9596 0 292466 0 0 0 X 13 70751 FMV 0 0 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS RECEIVED, RATHER THAN THE NUMBER OF STOCK SHARES RECEIVED, ARE BEING REPORTED FOR SCHEDULE M PURPOSES. PART I, LINE 32B: THE ORGANIZATION DISPOSES OF DONATED SECURITIES THROUGH AN INVESTMENT BROKER UPON RECEIPT. FORM 990, PART VI, SECTION A, LINE 4 DURING 2019, CURE DETERMINED IT WOULD NO LONGER MAINTAIN A SEPARATE AUDIT AND FINANCE COMMITTEE. ALL DUTIES PREVIOUSLY OWNED BY THE AUDIT COMMITTEE ARE NOW MANAGED BY THE FINANCE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. FORM 990, PART XI, LINE 9: RETURN GRANTS 21,959. GRANT WRITE-OFFS 3,156. FORM 990, PART XII, LINE 2C: OVERSIGHT OF THE ANNUAL AUDIT IS NOW PERFORMED BY THE FINANCE COMMITTEE, INSTEAD OF A SEPARATE AUDIT COMMITTEE.