2020-01-21T10:03:12-06:00 2019-06-30 460952065 BOUNTIFUL PEAK ADVISORS 1564 SOUTH 500 WEST SUITE 201 BOUNTIFUL UT 840107400 990 2018-07-01 205776861 THE CHOLANGIOCARCINOMA FOUNDATION CHOL 8889366731 5526 WEST 13400 SOUTH STE 510 HERRIMAN UT 84096 STACIE LINDSEY PRESIDENT 8019990455 2019-11-30 true SHALAUN T HOWELL CPA P00969274 8012943155 2020-01-21 50.243.4.142 2020-01-21 10:03:12 CS P B99BEC7BAD97C2571CA920651A847A022F506BEA B99BEC7BAD97C2571CA920651A847A022F506BEA 2018 2020-11-06 18:47:13Z STACIE LINDSEY 5965 W FRAGRANT LANE HERRIMAN UT 84096 2221587 false X WWW.CHOLANGIOCARCINOMA.ORG X 2006 UT TO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA. 8 7 9 188 0 1526930 2210880 0 -289 816 680 -2093 1527321 2209603 400454 417936 0 361829 621437 0 185541 526779 893704 1289062 1933077 238259 276526 699116 815602 266865 105904 432251 709698 X TO FIND A CURE FOR AND IMPROVE THE QUALITY OF LIFE OF THOSE AFFECTED BY CHOLANGIOCARCINOMA. false false 531888 417936 RESEARCH THE CHOLANGIOCARCINOMA FOUNDATION (CCF) CONTINUES TO FOCUS ON COLLABORATIVE RESEARCH EFFORTS WITH MEDICAL, SCIENTIFIC, ACADEMIC, REGULATORY, AND NOT- FOR-PROFIT PARTNERS. DURING THE YEAR ENDED JUNE 30, 2019, THE ORGANIZATION AWARDED SEVEN RESEARCH FELLOWSHIP AWARDS TO YOUNG INVESTIGATORS TO RAISE AWARENESS ABOUT CHOLANGIOCARCINOMA AND INSPIRE INNOVATIVE, QUALITY RESEARCH. NEW IN 2019 WAS THE LAUNCH OF THE INDUSTRY COUNCIL, WHOSE PURPOSE IS TO PROVIDE A COLLABORATIVE FORUM FOR ONGOING ENGAGEMENT AND BUILD STRONGER PARTNERSHIPS WITH INDUSTRY AND BIOTECH INVESTED IN CHOLANGIOCARCINOMA RESEARCH. 1026332 ADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATIONS ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY. 1558220 true true false false false false false false false false true false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 7 0 9 true false false false false false false false false false false false false X 8 7 false false false false false false false true true false false true true true true true true true true false AL AR CA CO CT FL GA HI ID IL KS KY LA MA MD ME MI MN MS MT NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WI WV WA X X X STACIE LINDSEY 8889366731 5965 W FRAGRANT LANE HERRIMAN UT 84096 STACIE LINDSEY PRESIDENT 40.00 X X 81000 0 0 JASON SCOTT CHAIR 1.00 X X 0 0 0 BRUCE COPPOCK VICE PRESIDE 1.00 X X 0 0 0 BARBARA DUPONT SECRETARY 1.00 X X 0 0 0 DANIEL BLUM TREASURER 1.00 X X 0 0 0 ROSS GREEN BOARD MEMBER 1.00 X 0 0 0 SARA HINKLEY BOARD MEMBER 1.00 X 0 0 0 PATRICIA MAXIN BOARD MEMBER 1.00 X 0 0 0 DONNA MAYER EXECUTIVE DI 40.00 X 98544 0 0 179544 false false false 12025 2198855 1729 2210880 816 816 9891 11984 -2093 -2093 2209603 -2093 816 X 364936 364936 3000 3000 50000 50000 212533 147887 37858 26788 364539 179908 70624 114007 44365 25201 8340 10824 1675 1675 15303 15303 203170 191687 11483 8116 2120 5996 34090 26816 2982 4292 90815 68933 5096 16786 53634 47687 5947 265424 265424 22871 22871 1858 1056 349 453 3718 454 3069 195 MEALS & CATERING 138053 138053 MISCELLANEOUS 19896 14663 5102 131 BANK FEES 16030 16030 SUPPLIES 11483 7524 1080 2879 7568 4378 3190 1933077 1558220 189316 185541 466952 287992 84238 342281 125000 136700 2531 4531 26188 10396 12024 14769 5478 5468 9291 1126 699116 815602 66865 105904 200000 266865 105904 X 304751 572342 127500 137356 432251 709698 699116 815602 X 276526 921 X false true X true false X 834567 842813 337479 1526930 2210880 5752669 834567 842813 337479 1526930 2210880 5752669 339199 5413470 127 117 27 599 816 1686 5754355 15820 0.94080 0.88850 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 14769 5478 9291 9291 X 2222508 921 11984 12905 2209603 2209603 1945061 11984 11984 1933077 1933077 SCHEDULE D, PAGE 3, PART X THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C) (3) OF THE INTERNAL REVENUE CODE AND THEREFORE HAS MADE NO PROVISION FOR FEDERAL INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. IN ADDITION, THE ORGANIZATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509 (A) OF THE INTERNAL REVENUE CODE. THERE WAS NO UNRELATED BUSINESS INCOME FOR THE YEAR ENDED JUNE 30, 2019. THE ORGANIZATION'S FORMS 990, RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, FOR THE YEAR ENDING JUNE 30, 2019, JUNE 30, 2018, THE SIX MONTHS ENDING JUNE 30, 2017, THE YEAR ENDING DECEMBER 31, 2017 AND THE YEAR ENDING DECEMBER 31, 2016 ARE SUBJECT TO EXAMINATION BY THE IRS, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. GENERALLY ACCEPTED ACCOUNTING PRINCIPLES REQUIRE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS MORE LIKELY THAN NOT TO BE SUSTAINED IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE ASSESSMENT OF THE TAX POSITION IS BASED SOLELY ON THE TECHNICAL MERITS OF THE POSITION, WITHOUT REGARD TO THE LIKELIHOOD THAT THE TAX POSITION MAY BE CHALLENGED. IF AN UNCERTAIN TAX POSITION MEETS THE MORE-LIKELY-THAN-NOT THRESHOLD, THE LARGEST AMOUNT OF TAX BENEFIT THAT IS GREATER THAN 50% LIKELY TO BE RECOGNIZED UPON ULTIMATE SETTLEMENT WITH THE TAXING AUTHORITY IS RECORDED. THE ORGANIZATION'S PRIMARY TAX POSITIONS RELATE TO ITS STATUS AS A NOT-FOR-PROFIT ENTITY EXEMPT FROM INCOME TAXES AND CLASSIFICATION OF ACTIVITIES RELATED TO ITS EXEMPT PURPOSE. MANAGEMENT HAS EVALUATED THE TAX POSITIONS REFLECTED IN THE ORGANIZATION'S TAX FILINGS AND DOES NOT BELIEVE THAT ANY MATERIAL UNCERTAIN TAX POSITIONS EXIST. SCHEDULE D, PAGE 4, PART XI, LINE 2D COST OF GOODS SOLD 11,984 SCHEDULE D, PAGE 4, PART XII, LINE 2D COST OF GOODS SOLD 11,984 CANCER RESEARCH 50000 CHECK 1 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 THE ORGANIZATION PROVIDES GRANTS FOR SPECIFIC RESEARCH PROJECTS FOCUSED ON CHOLANGIOCARCINOMA. THE ORGANIZATION MONITORS SUMMARIES OF HOW THE FUNDING IS EXPENDED AND REQUIRES REPORTS OF RESEARCH PROGRESS AND RESULTS. true MAYO CLINIC PO BOX 860334 MINNEAPOLIS MN 554860334 416011702 501C3 99936 ICRN BIOREPOSITORY MASS GENERAL HOSPITAL PO BOX 414876 BOSTON MA 02241 041564655 501C3 115000 CANCER RESEARCH THE BROAD INSTITUTE 415 MAIN STREET 75A-11085 CAMBRIDGE MA 02142 263428781 501C3 50000 CANCER RESEARCH BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501C3 50000 CANCER RESEARCH NATIONAL CANCER INSTITUTE 9000 ROCKVILLE PIKE BUILDING 31 BETHESDA MD 20892 522858115 GOV 50000 CANCER RESEARCH 5 SCHEDULE I, PAGE 1, PART I, LINE 2 THE ORGANIZATION PROVIDES GRANTS FOR SPECIFIC RESEARCH PROJECTS FOCUSED ON CHOLANGIOCARCINOMA. THE ORGANIZATION MONITORS SUMMARIES OF HOW THE FUNDING IS EXPENDED AND REQUIRES REPORTS OF RESEARCH PROGRESS AND RESULTS. FORM 990, PAGE 2, PART III, LINE 4B ADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATIONS ANNUAL CONFERENCE, WEBSITE, AND BOOK, 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND A MULTITUDE OF RESOURCES THROUGH A DISCUSSION BOARD, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS ARE GIVEN THE OPPORTUNITY TO PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR OWN HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY. FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATION'S 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. THE 990 IS REVIEWED BY THE ORGANIZATION'S ACCOUNTANT, TREASURER, EXECUTIVE DIRECTOR, AND BOARD PRESIDENT FOR ACCURACY AND COMPLETENESS. THE 990 IS PROVIDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS PRIOR TO FILING FOR THEIR REVIEW. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION'S CONFLICT OF INTEREST POLICY REQUIRES ANNUAL DISCLOSURE OF POTENTIAL CONFLICTS BY ALL MEMBERS OF MANAGEMENT AND THE BOARD OF DIRECTORS. THE ORGANIZATION'S EXECUTIVE COMMITTEE IS RESPONSIBLE FOR REVIEWING ALL DISCLOSURES AND ASSESSING HOW POTENTIAL CONFLICTS DISCLOSED SHOULD BE ADDRESSED. IF A REAL OR PERCEIVED CONFLICT IS DETERMINED TO EXIST, ANY AFFECTED BOARD MEMBERS WILL BE RECUSED FROM VOTING ON ANY ISSUES RELATED TO THE CONFLICT. FORM 990, PAGE 6, PART VI, LINE 15A COMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR THE EXECUTIVE DIRECTOR AND BOARD PRESIDENT IS CONTEMPORANEOUSLY DOCUMENTED. FORM 990, PAGE 6, PART VI, LINE 15B COMPENSATION FOR OTHER OFFICERS IS DETERMINED BY INDIVIDUALS INDEPENDENT OF THE OTHER OFFICERS. IN DETERMINING A REASONABLE LEVEL OF COMPENSATION, THE BOARD CONSIDERS COMPARABILITY DATA SUCH AS SALARY SURVEYS AND INDICATING COMPARABLE WAGES PAID BY OTHER ORGANIZATIONS OF SIMILAR SIZE AND COMPLEXITY. THE DELIBERATION AND DETERMINATION OF COMPENSATION FOR OTHER OFFICERS IS CONTEMPORANEOUSLY DOCUMENTED. FORM 990, PAGE 6, PART VI, LINE 17 LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSISSIPPI, MONTANA, NORTH CAROLINA, NORTH DAKOTA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WISCONSIN, WEST VIRGINIA, WASHINGTON FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON WRITTEN REQUEST TO THE ORGANIZATION'S ADDRESS. FORM 990, PART IX, LINE 11G CONTRACT SERVICES 191,687 11,483 0 FORM 990, PART XI, LINE 9 COST OF GOODS SOLD 11,984 COST OF GOODS SOLD -11,984