2020-09-14T09:50:44-04:00 2019-12-31 461517562 Simmons & Jamieson CPAs 6525 The Corners Parkway Peachtree Corners GA 30092 990 2019-01-01 760700153 AMERICAN PARTNERSHIP FOR EOSINOPHILIC DISORDERS AMER PO BOX 29545 ATLANTA GA 30359 WENDY M BOOK PRESIDENT 7134937749 2020-06-10 true James B Murphy P00847588 7704482525 2020-09-14 75.147.197.177 2020-09-14 09:51:56 5851642020258lkxcznz 2020-09-14 P 7A8E87504A13D605D881BE3F558C74A7A5C4A600 7A8E87504A13D605D881BE3F558C74A7A5C4A600 2019 2021-01-29 14:40:06Z APFED 501037 false X APFED.ORG X 2001 TX SEE SCHEDULE O 11 11 3 0 0 223590 159978 187201 174538 155 121 77256 115503 488202 450140 254000 113855 0 129777 140083 0 14328 254800 227287 638577 481225 -150375 -31085 283082 238027 16944 2974 266138 235053 SEE SCHEDULE O 310164 EDUCATION, AWARENESS, ADVOCACY, AND SUPPORT: APFED HOSTED ITS ANNUAL PATIENT CONFERENCE, WITH AN ENDURING VIRTUAL COMPONENT FOR OFF-SITE ATTENDEES. WE CELEBRATED NATIONAL EOSINOPHIL AWARENESS WEEK BY DISSEMINATING RESOURCES AND PROVIDING ONLINE SUPPORT AND EDUCATION. WE AWARDED TWO COLLEGE SCHOLARSHIPS TO INDIVIDUALS WITH EGID. APFED UPDATED AND SHARED ONLINE PATIENT AND HEALTHCARE PROVIDER EDUCATIONAL CONTENT, AND DISSEMINATED MONTHLY NEWS TO OUR COMMUNITY. WE ADVOCATED, AND WORKED WITH IES AND CDC ON ICD-10 CODES FOR HES, EOSINOPHILIC PNEUMONIA, EOSINOPHILIC ASTHMA, DRESS, AND FOR A NAME INCLUSION OF EGPA. WE PARTICIPATED IN EDUCATION REGARDING MEDICAL FOODS. WE PUBLISHED A WHITE PAPER ABOUT HES PATIENT PERSPECTIVES IN DRUG DEVELOPMENT FOLLOWING A CONFERENCE ON HES. WE PARTICIPATED IN A COLLABORATIVE TO IDENTIFY UNMET NEEDS IN GI DISORDERS AND SERVED ON THE ON NIH RARE DISEASE DAY 2020 PLANNING COMMITTEE. 113855 RESEARCH: APFED SHARED FUNDING OPPORTUNITIES FOR INVESTIGATORS THROUGH OUR HOPE ON HORIZON RESEARCH PROGRAM AND IN COLLABORATION WITH AAAAI; TO PAY OUT IN 2020. WE AWARDED TWO ABSTRACT AWARDS FOR RESEARCH PRESENTED AT THE ANNUAL MEETINGS OF AAAAI AND NASPGHAN. WE CONTINUE TO BE AN ACTIVE PARTICIPANT IN THE RARE CLINICAL DISEASE RESEARCH NETWORK AND THE CONSORTIUM OF EOSINOPHILIC GASTROINTESTINAL DISEASE RESEARCHERS (CEGIR), PRESENTING THE PATIENT PERSPECTIVE AT CEGIR MEETINGS. APFED CO-AUTHORED MULTIPLE SCIENTIFIC PUBLICATIONS IN COLLABORATION WITH CEGIR AND WITH OTHER INVESTIGATORS. DATA FROM AN APFED SURVEY OF PATIENT-PERCEIVED CHALLENGES AND NEEDS PERTAINING TO TRANSITIONING CARE FROM PEDIATRIC TO ADULT FOR MANAGEMENT OF EGID WAS PRESENTED AT A SCIENTIFIC MEETING. WE DISSEMINATE INFORMATION ABOUT RESEARCH ACTIVITIES RECRUITING PATIENTS. 424019 true true false false false false false false false false false false false false false true false false false false false false false true false false true false false false false false false false false false false false false false false false false false false false true 0 0 3 true false false false false false false false false X 11 11 true false false false true false false true true false false true true true false true true false false false AK AL AR CA CO CT FL GA HI KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X MICHAEL PIANSKY MD 7134937749 PO BOX 29545 ATLANTA GA 30359 WENDY M BOOK PRESIDENT 15.00 0.00 X X 0 0 0 ELIZABETH MCCARTY VICE PRESIDENT 5.00 0.00 X X 0 0 0 MICHAEL PIANSKY TREASURER 20.00 0.00 X X 0 0 0 PRADYUMNA TUMMALA CHAIRMAN 5.00 0.00 X X 0 0 0 TOM FANNING WEB COORDINATOR 15.00 0.00 X 0 0 0 GERALD J GLEICH MEDICAL ADVISOR 5.00 0.00 X 0 0 0 KATHLEEN SABLE DIRECTOR 15.00 0.00 X 0 0 0 DAWN MCCOY DIRECTOR 15.00 0.00 X 0 0 0 GILES M SCHANEN SECRETARY 10.00 0.00 X X 0 0 0 DONALYN DENISE MACK DIRECTOR 15.00 0.00 X 0 0 0 JULIET ROSS DIRECTOR 10.00 0.00 X 0 0 0 MARY JO STROBEL EXECUTIVE DIRECTOR 50.00 0.00 X 79880 0 0 79880 0 0 0 false false false 3490 156488 159978 PATIENT EDUCATION PARTN 611710 174538 174538 174538 121 121 162461 49207 113254 113254 3939 1690 2249 2249 450140 174659 0 115503 113855 113855 130173 114950 8701 6522 9910 8752 662 496 10236 10236 201 201 1690 1690 710 710 14333 14333 741 741 3595 3595 STATE REGISTRATION 5620 5620 EDUCATION PROGRAMS 186462 186462 3699 3699 481225 424019 42878 14328 283082 238027 283082 238027 16944 2974 16944 2974 X 266138 235053 266138 235053 283082 238027 -31085 0 X false true X true X 229282 430110 541044 407444 322439 1930319 49133 74445 105700 101270 174538 505086 2785 1827 2112 3192 4059 13975 281200 506382 648856 511906 501036 2449380 2449380 500 369 299 155 121 1444 500 369 299 155 121 1444 281700 506751 649155 512061 501157 2450824 0.99940 0.99920 0.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true false false false false false false false false false 501037 501037 -50897 -50897 450140 -532122 -532122 50897 50897 -481225 Other revenues included on Form 990 (Part XI, line 4b) FUND RAISING EVENTS COST AND THE COST GOOD SOLD $50,897.00 Other expenses included on Form 990 (Part XII, line 4b) FUND RAISING EVENTS COST AND COST OF GOOD SOLD $50,897.00 EOE CONCERT 80268 80268 25719 HOPE-HORIZON 42063 42063 11745 10 40130 40130 11743 162461 162461 49207 49207 113254 false AAAAI 555 EAST WELLS ST STE 1100 MILWAUKEE WI 53202 RESEARCH LURIE CHILDRENS HOSPITAL 225 E CHICAGO AVE CHICAGO IL 60611 RESEARCH CINCINNATI CHILDRENS HOSPITAL MED MLC 7028 CINCINNATI OH 452293039 RESEARCH MASS GENERAL HOSPITAL - RESEARCH PO BOX 414876 BOSTON MA 022414876 RESEARCH NIAID 5601 FISHERS LAND SUITE 6D ROCKVILLE MD 20852 RESEARCH UNIVERSITY OF UTAH 201 S PRESIDENTS CIRCLE RM 406 SALT LAKE CITY UT 84112 RESEARCH International Eosinophil Society 555 East Wells St Suite 1100 Milwaukee WI 53202 Research NASPGHAN 714 N Bethlehem Pike Ambler PA 19002 Research Officer directors etc family relationship Part VI line 2 Wendy M Book, MD - PresidentMichael Piansky, MD - TreasurerRelated by marriage Members or stockholder classes and rights Part VI line 6 The organization has members and memberships that are open to anyone who wishes to be involved in the cause. Form 990 governing body review Part VI line 11 The organizations tax return preparer provided a preliminary copy of the return to board members for review. Any necessary changes are made and the final return is presented to the president for signature and filing. Governing documents etc available to public Part VI line 19 The organization makes its governing documents, conflicts of interest statement and financial statements available to the pubic upon written request. General explanation attachment Form 990, Part III, Item 1 Organizations MissionAPFED is dedicated to patients and their families coping with eosinophilic disorders. It strives to expand education, create awareness and support research regarding these disorders while promoting advocacy among its members. The mission is accomplished by various means conferences, newsletters, pamphlets, research grants and fundraising. Form 990, Part I, Item 1 Organizations Mission or Most Significant ActivitiesAPFED is dedicated to patients and their families coping with eosinophilic disorders. It strives to expand education, create awareness and support research regarding these disorders while promoting advocacy among its members. The mission is accomplished by various means conferences, newsletters, pamphlets, research grants and fundraising.