2020-09-09T13:15:11-05:00 2019-09-30 042578039 R A HALL & CO LLC CPA'S 183 STATE STREET BOSTON MA 02109 990 2018-10-01 371483975 LUMIND IDSC FOUNDATION (FORMERLY LUMIND-RESEARCH DOWN SYNDROME LUMI 7818251300 20 MALL ROAD BURLINGTON MA 01803 HAMPUS HILLERSTROM PRESIDENT/CEO 7818251300 2020-09-08 1 ERIC J HALL P00303080 6177233333 2020-09-05 74.65.147.81 2020-09-09 12:53:29 ED P DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 D8E21542657D056FCA3793A5209A6D1B336F5758 2018 2020-11-19 02:30:22Z HAMPUS HILLERSTROM 20 MALL ROAD BURLINGTON MA 01803 3940189 0 X LUMINDIDSC.ORG X 2003 CA TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 15 15 7 0 0 0 3261080 3589169 0 0 601 0 342877 243358 3604558 3832527 1400500 1439030 0 0 659925 1038853 0 0 515136 537004 1007395 2597429 3485278 1007129 347249 3084421 3828926 1883552 2280809 1200869 1548117 X TO ACCELERATE RESEARCH THAT WILL INCREASE THE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC AND MEDICAL CARE OPTIONS TO IMPROVE HEALTH AND INDEPENDENCE FOR PEOPLE WITH DOWN SYNDROME AND TO EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS AND SUPPORT. 1 0 907676 907676 DS-CTN - SUPPORT MEDICAL RESEARCH THAT WILL RESULT IN TREATMENTS TO SIGNIFICANTLY IMPROVE HEALTH AND INDEPENDENCE IN PERSONS WITH DOWN SYNDROME. 877206 0 COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS, RESEARCHPARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES AND MEDICAL INFORMATION. INCLUDES COSTS TO DEVELOP MY DOWN SYNDROME COMMUNITY (MYDSC) LAUNCHED IN AUGUST 2020 400000 0 A FILM PROJECT CALLED FORGET ME NOT ABOUT INCLUSION IN SOCIETY OF PEOPLE LIVING WITH DOWN SYNDROME IN PARTNERSHIP WITH ALANA FOUNDATION. 568829 531354 PROGRAMS TO ACCELERATE RESEARCH TO INCREASE AVAILABILITY OF THERAPEUTIC, DIAGNOSTIC, AND MEDICAL CARE OPTIONS AND WE EMPOWER FAMILIES THROUGH EDUCATION, CONNECTIONS, AND SUPPORT. 568829 531354 2753711 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 14 0 1 7 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA MA NY AL AK AZ AR CO CT DC FL GA IL KS KY ME MD MA MI MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X HAMPUS HILLERSTROM PRESIDENT AND C 7818251300 20 BURLINGTON MALL ROAD SUITE 200 BURLINGTON MA 01803 RYAN M HARTMAN MEMBER 1.00 X 0 0 0 PATRICK KANNAN BOARD MEMBER TREASURER 1.00 X X 0 0 0 MICHAEL J MANNOR PHD BOARD CHAIR 3.00 X X 0 0 0 PAUL MURASKO MEMBER, EXECUTIVE COMMITTEE 1.00 X X 0 0 0 TONY HUNG BOARD VICE CHAIR 1.00 X X 0 0 0 HECTOR GUINNESS MEMBER 1.00 X 0 0 0 ANULA JAYASURYA MEMBER 1.00 X X 0 0 0 ANTHONY PROVIDENTI MEMBER 1.00 X X 0 0 0 CHRISTOPHER LIS MEMBER 1.00 X 0 0 0 JEFF W STROBEL MEMBER 1.00 X X 0 0 0 CLAUDIA MOREIRA MEMBER 1.00 X 0 0 0 SOHAIL MASOOD MEMBER 1.00 X 0 0 0 MARIA DELLAPINA MEMBER, EXECUTIVE COMMITTEE 1.00 X 0 0 0 JENNIFER SMOLKA MEMBER 1.00 X 0 0 0 KIM WARREN MEMBER 1.00 X 0 0 0 BEVERLY PAPERIELLO MEMBER 1.00 X 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 40.00 X 331908 0 35250 331908 0 35250 1 0 1 0 0 3589169 3589169 329728 107662 222066 222066 OTHER INCOME 900099 21292 21292 21292 3832527 0 0 243358 1439030 1439030 330000 231000 33000 66000 478215 257200 61947 159068 19711 11004 1735 6972 152485 80993 14860 56632 58442 32628 5143 20671 491914 401679 13300 76935 3320 3320 46588 46588 10686 10686 26005 14383 4184 7438 74771 12182 420 62169 57650 32184 5072 20394 75145 74969 176 137883 129942 7941 2729 2729 8456 8456 BANK FEES AND CREDIT CA 16544 -85 556 16073 COMMUNICATION SERVICES 16019 8943 1409 5667 PRINTING 13981 8903 5078 STATE FILING FEES 13343 13343 12361 8070 193 4098 3485278 2753711 216431 515136 191627 137309 566218 890168 2223042 2615959 42692 53809 45087 90384 29039 12665 0 16374 2651 11819 13104 13104 3084421 3828926 150862 116540 1634444 1994854 50146 60995 48100 108420 1883552 2280809 X 2827 153167 1198042 1394950 1200869 1548117 3084421 3828926 X 347249 -1 X X 0 1 X 1 0 X 1426436 1451150 1420558 1378038 3555527 9231709 1426436 1451150 1420558 1378038 3555527 9231709 9231709 306 152 1241 601 1890 4190 976 10 240 21292 22518 9258417 0.99710 0.99930 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 29039 12665 16374 16374 CREDIT CARD 22206 WAGES AND TAXES PAYABLE 86214 108420 X 3832527 0 3832527 0 3832527 3485278 0 3485278 0 3485278 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM TAXATION UNDER THE PROVISION OF SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, EXCEPT ON ANY NET INCOME DERIVED FROM UNRELATED BUSINESS ACTIVITIES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A)(1) AND QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS AS PROVIDED IN SECTION 170(B)(1)(A)(VI). ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS INCLUDED IN THE FINANCIAL STATEMENTS. THE ORGANIZATION FOLLOWS THE RECOGNITION REQUIREMENTS FOR UNCERTAIN INCOME TAX POSITIONS AS REQUIRED BY GENERALLY ACCEPTED ACCOUNTING PRINCIPLES BY ANNUALLY EVALUATING ITS TAX STATUS AND TAX POSITIONS WITH RESPECT TO ITS OPERATIONS AND FINANCIAL POSITION. LUMIND HAS NOT RECORDED ANY RESERVES, OR RELATED ACCRUALS FOR INTEREST AND PENALTIES FOR UNCERTAIN INCOME TAX PROVISIONS AT SEPTEMBER 30, 2019 AND 2018. THE FEDERAL INFORMATION RETURNS OF THE ORGANIZATION FOR THE YEARS ENDED SEPTEMBER 30, 2019 AND 2018 AND 2017 ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY FOR THREE YEARS AFTER THEY WERE FILED. 1 UNITED KINGDOM 0 0 GRANTS TO FUND RESEARCH MEDICAL ALZHEIMER'S RESEARCH 36400 CANADA 0 0 GRANTS TO FUND RESEARCH MEDICAL ALZHEIMER'S RESEARCH 60000 0 0 0 0 0 0 96400 0 96400 UNITED KINGDOM ALZHEIMER'S ASSESSMENT SCALE 36400 WIRE TRANSFER CANADA ALZHEIMER'S ASSESSMENT SCALE 60000 WIRE TRANSFER 1 0 0 0 0 0 0 0 PART I, LINE 2: LUMIND REQUIRES DETAILED FINANCIAL AND OTHER REPORTS FROM OUR GRANTEES INSIDE AND OUTSIDE THE UNITED STATES INCLUDING DETAIL EXPENSE RECORDS TO ENSURE FUNDS ARE USED IN ACCORDANCE WITH THE GRANT. CHICAGO FUNDING FUTURES 155601 155601 5000 12842 3000 2500 SUMMER DOUBLE DIP 79759 79759 6495 5000 32000 19 94368 94368 2000 32325 6500 329728 329728 7000 19337 40325 41000 107662 222066 0 KINGS COLLEGE 5-11 LAVINGTON STREET LONDON UK SE1 0NZ 36400 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH DOWN SYNDROME CLINICAL TRIALS NETWORK MULTIPLE GRANTS 832630 TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH DGI CLINICAL 1730 MARKET ST HALIFAX CA B3J 2E3 60000 GOAL ATTAINMENT SCALING TO MEASURE DEMENTIA MASSACHUSETTS EYE AND EAR HOSPITAL 125 NASHUA STREET BOSTON MA 02114 15000 TO SUPPORT STUDY OF HYPOGLOSSAL NERVE STIMULATION FOR CHILDREN AND ADOLESCENTS WITH DOWN SYNDROME AND OSA UCONN HEALTH 236 FARMINGTON AVE FRAMINGTON CT 06030 501(C)(3) 50000 TO STUDY COMBINATORIAL DOSAGE CORRECTION IN DOWN SYNDROME MASSACHUESETTS GENERAL HOSPITAL 125 NASHUA ST BOSTON MA 02114 501(C)(3) 45000 TO SUPPORT DEVELOPMENT OF DR. BRIAN SKOTKO'S DOWN SYNDROME CLINI TO YOU FILM PROJECT WITH ALANA FOUNDATION 400000 FILM PROJECT CALLED FORGET ME NOT, ABOUT INCLUSION IN SOCIETY OF PEOPLE LIVING WITH DOWN SYNDROME X X 0 0 0 1 0 0 0 0 0 HAMPUS HILLERSTROM PRESIDENT AND CEO 271908 0 60000 0 0 0 0 0 35250 0 367158 0 0 0 PART I, LINE 3 BOARD OF DIRECTORS APPROVED CEO COMPENSATION IS CONTAINED IN A WRITTEN EMPLOYMENT AGREEMENT PART I, LINE 5 A PORTION OF THE CEO COMPENSATION IS RELATED TO REVENUE GROWTH FORM 990, PART III, LINE 2 COMMUNITY ENGAGEMENT PROGRAM FOR RESEARCH AWARENESS, RESEARCH PARTICIPATION AND EMPOWERING FAMILIES WITH RESOURCES AND MEDICAL INFORMATION. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER. FORM 990, PART VI, SECTION B, LINE 12C THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN QUARTERLY BOARD MEETINGS AND AD HOC CALLS AS NEEDED. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 9: ROUNDING -1. FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS AN AUDIT COMMITTEE TO OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR.