2020-07-10T17:23:36-05:00 2019-12-31 870343246 SQUIRE & COMPANY PC 215 S STATE ST STE 850 SALT LAKE CITY UT 841112380 990 2019-01-01 455354811 CROWDCARE FOUNDATION CROW 8019491034 3315 MAYFLOWER AVE SUITE 2 LEHI UT 84043 JENNIFER AHLSTROM PRESIDENT 8019491034 2020-06-02 true GREGORY O HYDE CPA P00641196 8015330409 2020-07-10 97.75.179.98 2020-07-10 17:23:36 CD P 71CB4E5C0864B177849FFA1FB838276D120E48EE DFB1D4FC6AE46974CAA2097056301C45453CD5A5 2019 2020-09-23 17:36:50Z JENNIFER AHLSTROM 3315 MAYFLOWER AVE SUITE 2 LEHI UT 84043 2860475 false X WWW.CROWDCARE.ORG X 2012 DE PROVIDING PATIENT-CENTERED TOOLS, EDUCATION, AND SUPPORT TO THOSE WITH RARE DISEASES USING A PATIENT-INITIATED DATA PLATFORM IN COLLABORATION WITH DISEASE EXPERTS TO IMPROVE OUTCOMES AND ACCELERATE CURES. 5 4 23 100 0 1231200 2860475 0 0 -88746 -51336 1142454 2809139 348441 127099 0 171109 1079771 0 103014 977684 971997 1497234 2178867 -354780 630272 326963 952796 15221 10782 311742 942014 X PROVIDING PATIENT-CENTERED TOOLS, EDUCATION, AND SUPPORT TO THOSE WITH RARE DISEASES USING A PATIENT-INITIATED DATA PLATFORM IN COLLABORATION WITH DISEASE EXPERTS TO IMPROVE OUTCOMES AND ACCELERATE CURES. true false 1112522 PATIENT ADVOCACY (PSA): WITH A PATIENT'S PERSPECTIVE THE CROWDCARE FOUNDATION PROVIDES PATIENT EDUCATION, MENTORING, PEER-TO-PEER ONLINE COMMUNICATION PLATFORMS AND UPDATED NEWS AND INFORMATION FOR EACH DISEASE COMMUNITY. 172179 127099 SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWDCARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE (MCRI) IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING THREE IMMUNOTHERAPY PROJECTS: DR. DAVID CHUNG AT THE MEMORIAL SLOAN KETTERING CANCER CENTER, DR. CESAR RODRIGUES AT WAKE FOREST UNIVERSITY, AND DR. FRANK ZHAN AT THE UNIVERSITY OF IOWA. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. 653544 DATA SOLUTIONS (DS): HEALTHTREE IS A PATIENT-INITIATED, RESEARCHER VALIDATED DATA PLATFORM THAT SERVES AS A DATA RESOURCE FOR RESEARCH BUT ALSO PROVIDES BENEFITS BACK TO PATIENTS. HEALTHTREE IS A SHARED-DECISION MAKING TOOL FOR PATIENTS AND HELPS PATIENTS UNDERSTAND THEIR TREATMENT OPTIONS, FIND CLINICAL TRIALS, CONNECT WITH OTHERS WITH SIMILAR DISEASE, AND BECOME EDUCATED ON THEIR DISEASE. 1938245 true true false false false false false false false false true false false false false false false false false false false false false false true false false true false true false false false false false false false false false false false false false false false false false true 11 0 23 true false false false false false false false false false false false false false false X 5 4 false false false false false false false true true false false true true true true false false true true false X JENNIFER AHLSTROM 8019491034 3315 MAYFLOWER AVE SUITE 2 LEHI UT 84043 JENNIFER AHLSTROM PRESIDENT 60.00 X X 124622 0 0 SETH CHRISTENSEN BOARD MEMBER 8.00 X 0 0 0 OWEN LEGARE BOARD MEMBER 3.00 X 0 0 0 DALE SANDERS BOARD MEMBER 1.00 X 0 0 0 ADAM BLUM BOARD MEMBER 2.00 X 0 0 0 ANNE DRENNAN BOARD MEMBER 2.00 X 0 0 0 ALLYSE SHUMWAY SECRETARY TR 40.00 X 53549 0 0 TODD FOSTER HT PRODUCT M 40.00 X 170603 0 22063 BEN OROZCO CTO 40.00 X 119014 0 12937 GREGOR BROZEIT ROUNDTABLE D 40.00 X 143633 0 15071 611421 50071 4 false true false X 157742 2702733 2860475 157742 51336 -51336 2809139 127099 127099 178171 119316 58855 767251 759474 7777 70709 70709 63640 58543 595 4502 7821 7821 11215 11215 36800 36800 29160 4908 21785 2467 159751 159751 19844 19844 34585 33773 812 542921 542531 390 5904 5904 775 775 FUNDRAISING - GENERAL 61350 61350 OPERATIONAL EXPENSES 61021 61021 MCRI 791 791 REGISTRATION FEES 59 59 2178867 1938245 137608 103014 308909 940646 27241 15091 18054 12150 326963 952796 15221 10782 15221 10782 X 311742 942014 311742 942014 326963 952796 630272 X false false false X 218003 636693 982751 1231200 2860475 5929122 218003 636693 982751 1231200 2860475 5929122 3586655 2342467 5929122 98965 0.39510 0.42310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 4263 4263 22978 10828 12150 12150 COLUMBUS RUN 130191 130191 1575 432 27141 MYELOMA CROWD C 27551 27551 22188 157742 157742 1575 432 49329 51336 -51336 true WAKE FOREST UNIVERSTIY 1834 WAKE FOREST ROAD WINSTONSALEM NC 27106 560532138 501C3 100000 MYELOMA RESEARCH OHIO STATE UNIVERSITY 660 ACKERMAN RD 6TH FLOOR COLUMBUS OH 43218 316025986 501C3 26099 MYELOMA RESEARCH 3 X X X false false false false false false false false false TODD FOSTER HT PRODUCT MANAGER 170603 22063 192666 GREGOR BROZEIT ROUNDTABLE DIRECTOR 143633 15071 158704 FORM 990, PAGE 2, PART III, LINE 2 THE ORGANIZATION EXPANDED THE HEALTHTREE DATA SOLUTION PROGRAM WITH HEALTHTREE UNIVERSITY. THE SERVICE INCLUDES A VIDEO PRODUCTION ELEMENT THAT IS DEDICATED TO TEACHING VIEWERS ABOUT MULTIPLE MYELOMA. FORM 990, PAGE 2, PART III, LINE 4B SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWDCARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE (MCRI) IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING THREE IMMUNOTHERAPY PROJECTS: DR. DAVID CHUNG AT THE MEMORIAL SLOAN KETTERING CANCER CENTER, DR. CESAR RODRIGUES AT WAKE FOREST UNIVERSITY, AND DR. FRANK ZHAN AT THE UNIVERSITY OF IOWA. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE. FORM 990, PAGE 6, PART VI, LINE 11B A COPY OF THE RETURN IS PROVIDED TO BOARD MEMBERS VIA EMAIL. FORM 990, PAGE 6, PART VI, LINE 12C COVERED ANNUALLY VIA BOARD MEETINGS. FORM 990, PAGE 6, PART VI, LINE 15A THE COMPENSATION COMMITTEE FOLLOWS THE REBUTTABLE PRESUMPTION OF REASONABLENESS PROCEDURE DESCRIBED IN IRS REGULATIONS SECTION 53.4958-6(C) WHEN SETTING COMPENSATION FOR THE POSITION OF PRESIDENT/CEO AND UTILIZES COMPARABLE NON-PROFIT SALARY DATA FOR ESTABLISHING COMPENSATION LEVELS. FORM 990, PAGE 6, PART VI, LINE 15B THE COMPENSATION COMMITTEE FOLLOWS THE REBUTTABLE PRESUMPTION OF REASONABLENESS PROCEDURE DESCRIBED IN IRS REGULATIONS SECTION 53.4958-6(C) WHEN SETTING COMPENSATION FOR OFFICERS OR KEY EMPLOYEES AND UTILIZES COMPARABLE NON-PROFIT SALARY DATA FOR ESTABLISHING COMPENSATION LEVELS. FORM 990, PAGE 6, PART VI, LINE 19 CROWDCARE FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, OR FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART VIII PART VIII, LINE 8C - THE NET LOSS FROM FUNDRAISING EVENTS REPORTED ON LINE 8C DOES NOT INCORPORATE THE CONTRIBUTION REVENUE FROM ALL FUNDRAISER GROSS RECEIPTS. THE CONTRIBUTION REVENUE IS REPORTED ON LINE 1C AND ON LINE 8A. THE NET ECONOMIC OUTCOME OF CROWDCARE FOUNDATION'S 2019 FUNDRAISERS: GROSS RECEIPTS FROM ALL EVENTS 157,742 LESS: CASH EXPENSES OF EVENTS (51,336) NET ECONOMIC BENEFIT FROM FUNDRAISERS 106,406