2020-06-25T10:50:38-05:00 2019-09-30 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2018-10-01 135661935 NATIONAL MULTIPLE SCLEROSIS SOCIETY % TAMI CAESAR CFO & COO NATI 2129863240 733 THIRD AVENUE NEW YORK NY 100173211 TAMI CAESAR CFO & COO 2129863240 2020-06-25 true Daniel Romano P00504182 2125990100 69.119.147.121 26377520201775000002 2020-06-25 P F8E25777DF00157D73DA55E6CE52E42E1968B2B6 A87539D75D44546F9E81755E19BD8DC508F41D5E 2018 2021-01-29 14:40:06Z CYNTHIA ZAGIEBOYLO 733 THIRD AVENUE NEW YORK NY 100173288 255286181 false 1048 X WWW.NATIONALMSSOCIETY.ORG X 1946 NY WE EXIST TO CREATE A WORLD FREE OF MS. WE ARE FOCUSED SO PEOPLE AFFECTED BY MS CAN LIVE THEIR BEST LIVES AS WE STOP MS IN ITS TRACKS, RESTORE WHAT HAS BEEN LOST AND END MS. 37 36 1117 50000 1468467 189707218 191054088 85488 68661 4265764 3350822 2492068 2416266 196550538 196889837 38697371 41056076 0 0 81964555 84199757 3364545 3227503 36484624 52072142 52810366 176098613 181293702 20451925 15596135 174750836 184662971 70305489 66108264 104445347 118554707 X WE EXIST TO CREATE A WORLD FREE OF MS. WE ARE FOCUSED SO PEOPLE AFFECTED BY MS CAN LIVE THEIR BEST LIVES AS WE STOP MS IN ITS TRACKS, RESTORE WHAT HAS BEEN LOST AND END MS. false false 48027547 3122675 0 CLIENT AND COMMUNITY SERVICES - THE SOCIETY PROVIDES INFORMATION, RESOURCES, AND SUPPORT THAT SEEKS TO MEET THE NEEDS OF PEOPLE AFFECTED BY MS AS A WHOLE AND INDIVIDUALLY. THE SOCIETY IS COMMITTED TO OFFERING PROGRAMS FOR ALL PEOPLE REGARDLESS OF WHERE THEY LIVE OR WHERE THEY ARE IN THEIR MS JOURNEY. PROGRAMS, SERVICES AND RESOURCES FOR PEOPLE AFFECTED BY MS FACILITATE EDUCATION, RECREATION, PHYSICAL AND EMOTIONAL WELLNESS, PROVIDE FINANCIAL RESOURCES AND A CONNECTION FOR PEOPLE AFFECTED BY MS. MS NAVIGATORS PARTNER WITH INDIVIDUALS TO NAVIGATE THE CHALLENGES OF MS UNIQUE TO EACH SITUATION. THEY PROVIDE: INFORMATION AND EDUCATION; EMOTIONAL SUPPORT RESOURCES; ASSIST WITH THE COMPLEXITIES OF FINDING A HEALTHCARE PROVIDER, BENEFITS, INSURANCE AND ACCESS TO COVERAGE, AND EMPLOYMENT; RESOURCES TO FACE FINANCIAL CHALLENGES AND PLAN FOR THE FUTURE; WELLNESS STRATEGIES THAT CAN MAKE AN IMPACT ON QUALITY OF LIFE WITH MS; ASSESSMENT OF PERSONALIZED CASE MANAGEMENT; AND CRISIS INTERVENTION IN TIMES OF NEED. IN 2019, MS NAVIGATOES PROVIDED SUPPORT TO 57,080 PEOPLE. IN ADDITION, MORE THAN 28,900 PEOPLE PARTICIPATED IN 378 SOCIETY PROGRAMS (IN PERSON, PHONE BASED, AND ONLINE) ON TOPICS SUCH AS: MS EDUCATION; HEALTH AND WELLNESS; FAMILY AND RELATIONSHIPS; FINANCIAL RESOURCES; MOBILITY AND ACCESSIBILITY; SOCIAL AND EMOTIONAL SUPPORT; AND RESEARCH AND CLINICAL TRIAL UPDATES. COMMUNITY PROGRAMS INCLUDE COLLABORATING WITH OTHER COMMUNITY ORGANIZATIONS, FOCUSING ON ACCESS TO HEALTHCARE, REHABILITATION, TREATMENTS AND THERAPIES; LONG-TERM CARE; DISABILITY RIGHTS ISSUES; VOCATIONAL TRAINING AND REHABILITATION, WELLNESS AND FITNESS; AND, OUTREACH AND EDUCATION TO RURAL AND UNDERSERVED POPULATIONS. 40553252 36521731 0 RESEARCH - IN FISCAL 2019, THE SOCIETY INVESTED $40.9 MILLION TO SUPPORT MORE THAN 400 NEW AND ONGOING RESEARCH PROJECTS AROUND THE WORLD AIMED AT STOPPING MS IN ITS TRACKS, RESTORING FUNCTION, AND ENDING THE DISEASE FOREVER. THE SOCIETY ENGAGED 80 EXPERT PEER REVIEWERS TO EVALUATE 520 RESEARCH GRANTS, FELLOWSHIPS AND PILOT GRANT PROPOSALS TO HELP THE SOCIETY IDENTIFY THE MOST PROMISING RESEARCH INVESTMENTS. RESEARCH PRIORITY AREAS TO DRIVE BREAKTHROUGHS INCLUDE: DEFINING THE CONTRIBUTION OF GENETICS AND THE RISK FOR DEVELOPING MS AND DISEASE COURSE; UNDERSTANDING MS PATHOLOGY AND PATHOPHYSIOLOGY; UNDERSTANDING AND TREATING MS PROGRESSION; IDENTIFYING STRATEGIES FOR NEUROPROTECTION AND NERVOUS SYSTEM REPAID; AND, ELUCIDATING THE CAUSE OF MS SYMPTOMS, THE IMPACT OF COMORBIDITIES, AND IDENTIFYING REHABILITATION, WELLNESS BEHAVIORS AND LIFESTYLE APPROACHES THAT IMPACT DISEASE COURSE, SYMPTOMS AND OVERALL HEALTH. 34175616 0 0 PUBLIC EDUCATION - THE SOCIETY SEEKS TO EXPAND AND DEEPEN THE INDIVIDUAL AND COLLECTIVE EXPERIENCES OF THE MS MOVEMENT. THIS INCLUDES EDUCATING THE PUBLIC ABOUT MULTIPLE SCLEROSIS INCLUDING THE SOCIETY'S AWARENESS CAMPAIGNS, PUBLIC SERVICE ANNOUNCEMENTS, MOMENTUM, WHICH IS THE SOCIETY'S FLAGSHIP MAGAZINE DISTRIBUTED QUARTERLY TO 538,000 PEOPLE LIVING WITH MULTIPLE SCLEROSIS, HEALTHCARE PROVIDERS, SUPPORTERS OF THE SOCIETY AND MS CONNECTION NEWSLETTER, WHICH INCLUDES INFORMATION ABOUT PROGRAMS AND ACTIVITIES IN LOCAL MARKETS. IN ADDITION TO NATIONWIDE EMAIL NEWSLETTERS SHARE TWICE MONTHLY WITH APPROXIMATELY 900,000 RECIPIENTS (ONE MESSAGE RELATED TO SERVICES, THE OTHER TO OVERALL NEWS), MANY PEOPLE ENGAGE IN CONVERSATIONS VIA THE SOCIETY'S ONLINE COMMUNITY (55,000 MEMBERS), AND SOCIAL MEDIA (OVER 1.2 MILLION FOLLOWERS). NEARLY 400,000 PEOPLE VISIT THE SOCIETY'S WEBSITE EACH MONTH TO ACCESS INFORMATION AND SUPPORT. 6309836 1684316 68661 Professional education and training 6309836 1684316 68661 129066251 true true false true false false false false true true true false false false true true false true false false true true false true true false false true true true false false false false false false false false true false false false true false false false false true 1300 0 true 1117 true true true false false false false true true false false false false false false X 37 36 false false false false true true true true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X X TAMI CAESAR CFO COO 2124760424 733 THIRD AVENUE NEW YORK NY 100173211 CYNTHIA ZAGIEBOYLO PRESIDENT & CEO 40.0 0.0 X X 553948 0 11000 PETER A GALLIGAN CHAIR 5.0 0.0 X X 0 0 0 RICHARD KNUTSON CHAIR ELECT 5.0 0.0 X X 0 0 0 William T Monahan VICE CHAIR 5.0 0.0 X X 0 0 0 Laura Vaccaro VICE CHAIR 5.0 0.0 X X 0 0 0 CAROLINE WHITACRE VICE CHAIR 5.0 0.0 X X 0 0 0 LINDA MCALEER SECRETARY 5.0 0.0 X X 0 0 0 PETER PORRINO TREASURER 5.0 0.0 X X 0 0 0 MINDY B ALPERT DIRECTOR 5.0 0.0 X 0 0 0 Rick Anderson DIRECTOR 5.0 0.0 X 0 0 0 Gregory R Bishop DIRECTOR 5.0 0.0 X 0 0 0 Michael Bogdonoff Director (As of 11/9/2018) 5.0 0.0 X 0 0 0 Ron Boire DIRECTOR 5.0 0.0 X 0 0 0 Hafiz Chandiwala DIRECTOR 5.0 0.0 X 0 0 0 DOUG COY DIRECTOR 5.0 0.0 X 0 0 0 DANA M FOOTE DIRECTOR 5.0 0.0 X 0 0 0 Elizabeth Forstneger DIRECTOR 5.0 0.0 X 0 0 0 SHYAM GIDUMAL DIRECTOR 5.0 0.0 X 0 0 0 Peter Harbilas DIRECTOR 5.0 0.0 X 0 0 0 Andy Harris Director (As of 11/9/2018) 5.0 0.0 X 0 0 0 Ian Harris Director (As of 11/9/2018) 5.0 0.0 X 0 0 0 BONNIE HIGGINS DIRECTOR 5.0 0.0 X 0 0 0 WILLIAM HOLLEY DIRECTOR 5.0 0.0 X 0 0 0 MARY HUGHES MD DIRECTOR 5.0 0.0 X 0 0 0 William Marraccini DIRECTOR 5.0 0.0 X 0 0 0 Eugene May DIRECTOR 5.0 0.0 X 0 0 0 Elizabeth Page DIRECTOR 5.0 0.0 X 0 0 0 RUSSEL PARKER DIRECTOR 5.0 0.0 X 0 0 0 MIKE PONGON DIRECTOR 5.0 0.0 X 0 0 0 Chet Porembski Director (As of 11/9/2018) 5.0 0.0 X 0 0 0 Tobi Rogowsky Director 5.0 0.0 X 0 0 0 DAVID M ROTTKAMP DIRECTOR 5.0 0.0 X 0 0 0 Larry Schmid Director 5.0 0.0 X 0 0 0 RICHARD B SLIFKA DIRECTOR 5.0 0.0 X 0 0 0 PETER G TARRICONE DIRECTOR 5.0 0.0 X 0 0 0 Diana Twadell Director 5.0 0.0 X 0 0 0 MALCOLM P WATTMAN ESQ DIRECTOR 5.0 0.0 X 0 0 0 VALLI BALDASSANO DIRECTOR (Thru 11/9/2018) 5.0 0.0 X 0 0 0 CYNTHIA PERRAZO DIRECTOR (Thru 11/9/2018) 5.0 0.0 X 0 0 0 TAMI CAESAR CFO & COO 40.0 0.0 X 265896 0 47355 ERIC HILTY CHIEF LEGAL OFFICER 40.0 0.0 X 225691 0 45433 PAUL WEISS CHIEF CRM, MKT & TECH OFFICER 40.0 0.0 X 330082 0 48635 TIM COETZEE CHF ADVOC, SVC & RSRCH OFFCR 40.0 0.0 X 325615 0 46735 LISA GOLDFARB CHIEF HR & VOL ENG OFFICER 40.0 0.0 X 274945 0 11000 JOHN SCOTT CHIEF DEV & COMM LEAD. OFFICER 40.0 0.0 X 325887 0 26386 Bruce Bebo EVP, RESEARCH PROGRAMS 40.0 0.0 X 205706 0 27696 Rebecca Fehlig EVP, OPERATIONS 40.0 0.0 X 186589 0 5412 JENNIFER DOUGLAS EVP, TECHNOLOGY (Thru 3/27/19) 40.0 0.0 X 230540 0 26998 Sherri Giger EVP, MARKETING (THRU 9/7/2018) 40.0 0.0 X 197259 0 7909 Graham McReynolds Chief M & D Officer 40.0 0.0 X 251636 0 34048 JENNIFER LEE EVP, FUNDRAISING EVENTS 40.0 0.0 X 238271 0 30701 KAY JULIAN EVP, SERVICES 40.0 0.0 X 235715 0 24723 PHYLLIS ROBSHAM EVP, COMMUNITY LEADERSHIP 40.0 0.0 X 252355 0 23322 Bari Talente EVP, ADVOCACY 40.0 0.0 X 218802 0 42399 MAUREEN REEDER EVP, LEAD & ORG (THRU 1/25/19) 40.0 0.0 X 278986 0 10966 4597923 0 470718 126 false true false Merkle Inc 29432 Network Place CHICAGO IL 60673 Direct Marketing 8857972 blackbaud po box 930256 ATLANTA GA 311930256 fundraising software 3594119 EVENT 360 INC 55 E JACKSON BOULEVARD SUITE 1010 CHICAGO IL 60604 event production 2607333 promotor line inc 4218 gateway drive suite 140 COLLEYVILLE TX 76034 event production 697062 scholarship america one scholarship way SAINT PETER MN 56082 scholarship support 535668 78 109937172 75000 81041916 1736787 191054088 PROGRAM REGISTRATION FEES 900099 68661 68661 0 0 68661 2976966 2976966 0 0 868544 868544 0 868544 868544 34905481 34531625 373856 373856 373856 23864719 109937172 23864719 0 0 0 0 0 0 ADVERTISING INCOME 900099 1468467 0 1468467 0 LEGAL SETTLEMENT 900099 2571 0 0 2571 MISCELLANEOUS 900099 15889 0 0 15889 60795 0 60795 1547722 196889837 68661 1468467 4298621 34089135 34089135 3106402 3106402 3860539 3860539 0 3964524 2811675 479532 673317 0 62408551 44260682 7548681 10599188 1863297 1321466 225377 316454 10954822 7769254 1325050 1860518 5008563 3552116 605815 850632 66022 66022 109265 109265 165610 165610 175268 175268 3227503 3227503 293304 293304 8695295 5552429 750254 2392612 2630882 122400 66244 2442238 4793846 199741 148310 4445795 6712814 4476383 845227 1391204 0 10052573 6883987 1306273 1862313 3535323 2234358 212990 1087975 0 3043241 2498893 96055 448293 0 0 1997555 1363531 266674 367350 1214756 832108 157918 224730 PRNTG, PUBLICATION, & POSTAGE 7107079 2494334 693851 3918894 EQUIPMENT RENTAL 737671 505303 95899 136469 AWARDS AND PRIZES 360052 291979 7311 60762 DUES 346985 296591 21308 29086 772825 367677 255857 149291 181293702 129066251 15742827 36484624 X 4049810 425193 580412 3044205 0 0 56262921 62786233 16412574 11504081 981589 1779167 0 0 0 0 0 0 0 0 4797031 6333401 15727499 11946290 4940792 3781209 88787448 95165057 267173 152704 0 0 0 0 2301308 3161119 174750836 184662971 12749900 11019663 33952635 31424423 8453878 8175570 0 0 9599002 10030005 0 0 0 0 0 0 5550074 5458603 70305489 66108264 X 63827269 68662718 23046932 32085925 17571146 17806064 104445347 118554707 174750836 184662971 X 15596135 -1839417 352642 X false true X true false X 110102818 106277577 175698717 189707218 191054088 772840418 0 0 110102818 106277577 175698717 189707218 191054088 772840418 9758827 763081591 970403 1020380 2186940 2842090 3845510 10865323 1922671 1605654 2213290 1669341 1468467 8879423 352073 2908 22954481 22220034 23943974 69473470 862058634 1482452 0.88518 0.91697 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true true 5383 true 280948 true 12323 false true 266983 true 261232 false 826869 false LOBBYING ACTIVITIES SCHEDULE C, PART II-B, LINE 1 34,155 MS ACTIVISTS ARE ON THE FRONTLINE, MOVING TOGETHER AND SPEAKING WITH ONE VOICE TO CREATE LEGISLATIVE AND REGULATORY CHANGES THAT BENEFIT PEOPLE LIVING WITH MS AND THEIR FAMILIES. MS ACTIVISM DRIVES CHANGE IN PUBLIC POLICIES TO BRING POSITIVE IMPACT FOR PEOPLE AFFECTED BY MS. ACTIVISTS SHARE STORIES ABOUT LIVING WITH MS, CONNECT WITH DECISION-MAKERS, WORK WITH LIKE-MINDED PARTNERS AND CREATE SYSTEMATIC CHANGE TO IMPACT THE GREATEST NUMBER OF PEOPLE POSSIBLE. STATE AND LOCAL ACTIVISM PRIORITIES ARE DETERMINED BY BOTH AN ORGANIZATIONAL PROCESS AND BY ADVOCACY STAFF AND GOVERNMENT RELATIONS VOLUNTEERS. TWO AREAS OF FOCUS FOR MS ACTIVISTS IN 2019 INCLUDED THE "LOWER HEALTH CARE COSTS ACT" WHICH WOULD END SURPRISE BILLING AND INCREASE TRANSPARENCY AND JUSTIFICATION AROUND DRUG PRICE INCREASES AND THE "CREATES ACT" WHICH WOULD HELP REMOVE BARRIERS TO GENERIC MEDICATIONS false true X 20596603 256566 1007744 219134 195638 21446141 9143474 10413196 1507782 145245 322604 20596603 2464959 5496277 1286554 104316 9143474 2402557 62402 2464959 2584378 -181821 2402557 0.00000 0.83000 0.17000 false false 4691562 3951691 739871 4687311 3542592 1144719 6348626 4452007 1896619 3781209 0 LONG-TERM DEFFERRED RENT 2101913 DUE TO ANNUITANTS 1861979 OTHER LIABILITIES 1494711 5458603 X 203488716 -1839417 8378958 352642 6892183 196596533 293304 293304 196889837 189379356 8378958 8378958 181000398 293304 293304 181293702 ESCROW LIABILITY ARRANGEMENT EXPLANATION SCHEDULE D, PART IV, LINE 2B THE SOCIETY IS A MANAGING MEMBER, ALONG WITH ASSOCIANZIONE ITALIANA SCLEROSI MULTIPLA (ITALY), MS RESEARCH AUSTRALIA, MULTIPLE SCLEROSIS INTERNATIONAL FEDERATION, MS SOCIETY (UNITED KINGDOM), AND THE MULTIPLE SCLEROSIS SOCIETY OF CANADA, OF THE PROGRESSIVE MS ALLIANCE (THE "ALLIANCE"). THE ALLIANCE IS OPEN TO MS ORGANIZATIONS FROM AROUND THE WORLD AND IS CONTINUALLY SEEKING NEW MEMBER ORGANIZATIONS FROM THE GLOBAL MS COMMUNITY. THE ALLIANCE MADE A JOINT COMMITMENT TO SPEED UP THE DEVELOPMENT OF TREATMENT FOR PROGRESSIVE MS BY REMOVING SCIENTIFIC AND TECHNOLOGY BARRIERS. THE ALLIANCE HAS FOUR STRATEGIC OBJECTIVES WHICH INCLUDE: better understand progression so treatments can be identified and tested, design shorter, faster trails that measure patient outcomes, conduct trails to test agents, develope and evaluate new therapies to manage symptoms. As a managing member, the Society committed to providing funds of $7,691,526 through 2019 and has committed $17,685,590 over the following six years, conditional on various factors. In addition, the Society maintains custody of the pooled funds contributed from other Alliance members. The disbursement of funds for various progressive MS research initiatives is approved by voting Alliance members. The Society received a total of $5,787,748 during the year ending September 30, 2019 from Alliance members, which will be held until such time the funds are approved for expenditure. As of September 30, 2019, the Society recorded unspent donated funds, consisting of both Society and other Alliance members monies, totaling $10,030,005, as a liability. INTENDED USES OF ENDOWMENT FUND SCHEDULE D, PART V THE ENDOWMENT ASSETS ARE INVESTED IN A MANNER INTENDED TO PRESERVE THEIR VALUE CONSISTENT WITH SUCH DONOR STIPULATIONS, MINIMIZE THE EFFECT OF HIGH ECONOMIC VOLATILITY AND/OR LOW INVESTMENT RETURN AND PROVIDE FUNDING FOR THE PROGRAMS SPECIFIED BY THE DONORS. FIN 48 FOOTNOTE SCHEDULE D, PART X, LINE 2 GUIDANCE IN "ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES" UNDER THE FINANCIAL ACCOUNTING STANDARDS BOARD (THE "FASB") ACCOUNTING STANDARDS CODIFICATION, CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, INCLUDING ISSUES RELATED TO FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT. THIS STANDARD PROVIDES THAT THE TAX EFFECTS FROM AN UNCERTAIN TAX POSITION CAN BE RECOGNIZED IN THE FINANCIAL STATEMENTS ONLY IF THE POSITION IS "MORE-LIKELY-THAN-NOT" TO BE SUSTAINED, IF THE POSITION WERE TO BE CHALLENGED BY A TAXING AUTHORITY. THE STANDARD ALSO PROVIDES GUIDANCE ON MEASUREMENT, CLASSIFICATION, INTEREST AND PENALTIES, AND DISCLOSURE. THE SOCIETY HAS PROCESSES PRESENTLY IN PLACE TO ENSURE THE MAINTENANCE OF ITS TAX-EXEMPT STATUS; TO IDENTIFY AND REPORT UNRELATED INCOME; TO DETERMINE ITS FILING AND TAX OBLIGATIONS IN JURISDICTIONS FOR WHICH IT HAS NEXUS; AND, TO IDENTIFY AND EVALUATE OTHER MATTERS THAT MAY BE CONSIDERED TAX POSITIONS. THE SOCIETY HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS. IN ADDITION, THE SOCIETY HAS NOT RECORDED A PROVISION FOR INCOME TAXES AS IT HAS NO MATERIAL TAX LIABILITY FROM UNRELATED BUSINESS INCOME ACTIVITIES. INCOME AMOUNTS INCLUDED IN FINANCIALS - OTHER SCHEDULE D, PART XI, LINE 2D Change in fair value of beneficial interest in trust $ 39,036 Change in value of split-interest agreements $313,606 ---------- Total $352,642 true East Asia and the Pacific 3 Grantmaking 571300 Europe (Including Iceland and Greenland) 16 Grantmaking 2031039 Middle East and North Africa 5 Grantmaking 607390 North America 7 Grantmaking 600810 South America 1 Grantmaking 50000 32 32 3860539 3860539 Europe (Including Iceland and Greenland) Research 615424 WIRE Europe (Including Iceland and Greenland) Research 216820 WIRE Europe (Including Iceland and Greenland) Research 135262 WIRE North America Research 60015 WIRE Europe (Including Iceland and Greenland) Research 67359 WIRE Middle East and North Africa Research 287338 WIRE Middle East and North Africa Research 175000 WIRE North America Research 109287 WIRE Europe (Including Iceland and Greenland) Research 73598 WIRE Europe (Including Iceland and Greenland) Research 160988 WIRE North America Research 90119 WIRE Europe (Including Iceland and Greenland) Research 58333 WIRE Middle East and North Africa Research 49900 WIRE Europe (Including Iceland and Greenland) Research 50000 WIRE Europe (Including Iceland and Greenland) Research 55802 WIRE Europe (Including Iceland and Greenland) Research 50000 WIRE North America Research 95600 WIRE Middle East and North Africa Research 69244 WIRE East Asia and the Pacific Research 44129 WIRE East Asia and the Pacific Research 313171 WIRE North America Research 49871 WIRE South America Research 50000 WIRE Europe (Including Iceland and Greenland) Research 26391 WIRE Europe (Including Iceland and Greenland) Research 168676 WIRE Europe (Including Iceland and Greenland) Research 48000 WIRE North America Research 62097 WIRE Europe (Including Iceland and Greenland) Research 101079 WIRE Europe (Including Iceland and Greenland) Research 42354 WIRE East Asia and the Pacific Research 214000 WIRE North America Fast Forward 133820 WIRE Middle East and North Africa Fast Forward 25908 WIRE Europe (Including Iceland and Greenland) Fast Forward 160953 WIRE 32 false false false false false false PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS SCHEDULE F, PART I, LINE 2 THE SOCIETY HAS AN INDEPENDENT RESEARCH ADVISORY COMMITTEE THAT EVALUATES ALL GRANT APPLICATIONS AND RECOMMENDS GRANTS TO BE FUNDED BY THE SOCIETY BASED UPON THE QUALIFICATIONS OF THE INSTITUTION AND RESEARCHER(S), AND THE RESEARCH PROJECT'S SCIENTIFIC MERIT AND POTENTIAL APPLICABILITY TO MS. ONCE A GRANT HAS BEEN APPROVED, GRANTEES ARE REQUIRED TO SUBMIT PROGRESS REPORTS BEFORE ADDITIONAL FUNDING IS AUTHORIZED. X X X X X X X true MERKLE PO BOX 64897 BALTIMORE MD 21264 DONOR DATA false 8539936 3156760 5383176 THE GAVEL GROUP INC 26439 RANCHO PARKWAY 110 LAKE FOREST CA 92630 AUCTIONEER false 248764 70743 178021 8788700 3227503 5561197 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY Bike MS (74) 66664604 53131277 13533327 1623642 2221609 2630428 240779 6816869 Walk MS (404) 44230171 39507619 4722552 851466 1534694 426395 165631 1744366 122 22907116 17298276 5608840 80628 846471 2012043 204359 2465339 133801891 109937172 23864719 2555736 4602774 5068866 610769 11026574 23864719 Professional Fundraisers SCHEDULE G, PART I, LINE 2B THE SOCIETY USED MERKLE FOR THE MAJORITY OF ITS DIRECT MAIL CAMPAIGNS IN FY2019. THESE CAMPAIGNS COLLECTIVELY RAISED $8,539,936 IN REVENUE FOR FY2019. ADDITIONALY, THE GAVEL GROUP ASSISTS THE SOCIETY IN ACQUIRING MERCHANDISE TO BE AUCTIONED. THE GAVEL GROUP RAISED $248,764 IN REVENUE FOR 2019. Fundraising Events Schedule G, Part II BIKE MS BIKE MS IS THE LARGEST FUNDRAISING BIKE SERIES IN THE WORLD. WITH BIKE MS RIDES ACROSS THE COUNTRY, ANYONE, ANYWHERE, CAN FUEL PROGRESS. EACH YEAR, 5,500 TEAMS AND MORE THAN 62,000 CYCLISTS CHOOSE BIKE MS. THERE WERE 74 BIKE EVENTS DURING FY2019. WALK MS EACH YEAR, 300,000 PEOPLE PARTICIPATE IN WALK MS EVENTS. EACH WALK IS FULLY-ACCESSIBLE, INCLUDES MULTIPLE DISTANCE OPTIONS, AND FEATURES SUPPORT FOR WALKERS BY OUR OUTSTANDING VOLUNTEERS. WALK MS IS ALSO THE PERFECT PLACE TO CONNECT TO THE SERVICES AND SUPPORT OFFERED BY THE NATIONAL MS SOCIETY. THERE WERE 404 WALK EVENTS DURING FY2019. true Accelerated Cure Project 460 Totten Pond Road Waltham MA 02451 043555864 501(C)(3) 328345 Research Baylor College of Medicine One Baylor Plaza Rm 600D Houston TX 77030 741613878 501(C)(3) 157976 Research Benaroya Research Institute 1201 9th Avenue Seattle WA 98101 910653422 501(C)(3) 165939 Research Brentwood Biomedical Research Institute 11301 Wilshire Boulevard Los Angeles CA 90073 954183712 501(C)(3) 140432 Research Brigham & Women's Hospital 75 Francis Street Boston MA 02115 042312909 501(C)(3) 2089777 Research Case Western Reserve University 10900 Euclid Avenue Cleveland OH 44106 341018992 501(C)(3) 280848 Research Children's Hospital Medical Center - Cincinnati 3333 Burnet Ave ML 490 Cincinnati OH 45229 310833936 501(C)(3) 116422 Research Children's Hospital of Philadelphia 3401 Civic Center Blvd Philadelphia PA 19104 231352166 501(C)(3) 94560 Research Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 912153073 501(C)(3) 1084701 Research Colorado State University 555 South Howes Fort Collins CO 80523 846000545 GOV. 88598 Research Columbia University 16th St Broadway New York NY 10027 135598093 501(C)(3) 204486 Research Duke University Medical Center 8 Duke University Medical Center Charlotte NC 27703 562070036 501(C)(3) 210442 Research Gryphon Scientific 6930 Carroll Avenue Suite 810 Takoma Park MD 20912 202858377 501(C)(3) 311330 Research Henry M Jackson Foundation 6720-A Rockledge Dr Bethesda MD 20817 521317896 501(C)(3) 305775 Research Icahn School of Medicine at Mount Sinai One Gustave L Levy Place New York NY 10029 136171197 501(C)(3) 205833 Research Institute for Clinical Research Inc 50 Irving Street NW RM 1F-134 Washington DC 20422 521336656 501(C)(3) 118394 Research Johns Hopkins University 600 North Wolfe Street Baltimore MD 21287 520595110 501(C)(3) 1635541 Research Kessler Foundation Research Center 300 Executive Drive Suite 70 West Orange NJ 07936 311562134 501(C)(3) 634335 Research Massachusetts General Hospital 55 Fruit St Boston MA 02114 041564655 501(C)(3) 414449 Research Mayo Clinic Rochester 200 First Street NW Rochester MN 55905 416011702 501(C)(3) 267707 Research Mount Sinai School of Medicine 1 Gustave L PL NEW YORK NY 10029 136171197 501(C)(3) 54470 Research National Cancer Institute National Institutes of 9000 Rockville Pike Bethesda MD 20892 520858115 501(C)(3) 125000 Research National Institute of Neurological Disorders and S 9000 Rockville Pike Bethesda MD 20892 520858115 501(C)(3) 73868 Research National Institutes of Health 9000 Rockville Pike Bethesda MD 20892 521986675 501(C)(3) 17010 Research New York University Langone Medical Center 550 First Avenue New York NY 10016 135562308 501(C)(3) 446557 Research Northwestern University 633 Clark Street Evanston IL 60208 362167817 501(C)(3) 11695 Research NYU School of Medicine 545 First Avenue New York NY 10016 135562308 501(C)(3) 25429 Research Ohio State University 1960 Kenny Road Columbus OH 43210 316025986 GOV. 270059 Research Oklahoma Medical Research Foundation 825 NE 13th S Oklahoma City OK 73104 730580274 501(C)(3) 55000 Research Oregon Health & Science University 3181 SW Sam Jackson Park Rd Portland OR 97239 611730890 501(C)(3) 1141609 Research Research Foundation of CUNY-ASRC 230 West 41st Street 7th Flr New York NY 10036 131988190 501(C)(3) 64501 Research RTI International Research Triangle Institute Raleigh NC 27675 560686338 501(C)(3) 8943 Research Rutgers The State University of New Jersey 33 Knightsbridge Road Piscataway NJ 08854 462354111 GOV. 533064 Research St Joseph's Hospital and Medical Center ST Josephs Hosp Med Los Angeles CA 90074 860096787 501(C)(3) 73150 Research St Jude Children's Research Hospital 262 Danny Thomas Pl Memphis TN 38105 620646012 501(C)(3) 220000 Research Stanford University 450 Serra Mall Stanford CA 94305 941156365 501(C)(3) 559035 Research State University of New York at Stony Brook 100 Nicolls Rd Stony Brook NY 11794 116077945 GOV. 194093 Research Temple University 1801 N Broad Street Philadelphia PA 19122 231365971 501(C)(3) 136508 Research The Children's National Medical Center 111 Michigan Ave NW Washington DC 20010 521640403 501(C)(3) 179404 Research The J David Gladstone Institutes 1650 Owens Street San Francisco CA 94158 237203666 501(C)(3) 58164 Research The State University of New York at Buffalo 12 Capen Hall Buffalo NY 14260 161514621 GOV. 843218 Research The University of Iowa 5 W Jefferson St Iowa City IA 52242 426004813 GOV. 259144 Research The University of Texas at Dallas 800 W Campbell Rd Richardson TX 75080 751305566 GOV. 108565 Research The University of Texas at San Antonio One UTSA Circle San Antonio TX 78249 741717115 GOV. 166172 Research Thomas Jefferson University 125 S 9th Street Philadelphia PA 19107 231352651 501(C)(3) 750042 Research Trustees of Dartmouth College 6010 Parkhurst Hall Hanover NH 03755 020222111 501(C)(3) 255008 Research University of Alabama at Birmingham 1720 2nd 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University of Wisconsin-Madison 1308 W Dayton St Madison WI 53706 396006492 GOV. 54950 Research Virginia Commonwealth University PO Box 843035 Richmond VA 23284 546001758 501(C)(3) 68443 Research Washington University School of Medicine-M 660 S Euclid Ave CB 8501 Saint Louis MO 63110 430653611 501(C)(3) 1165037 Research Weill Cornell Medical College 1300 York Avenue New York NY 10065 131623978 501(C)(3) 385707 Research Westat 1600 Research Boulevard Rockville MD 20850 840529566 501(C)(3) 55926 Research Yale University PO Box 208237 New Haven CT 06520 060646973 501(C)(3) 776715 Research Albany Medical College 47 New Scotland Ave MC-1 Albany NY 12208 141338310 501(C)(3) 55000 Research Beth Israel Deaconess Medical Center 330 Brookline Ave Boston MA 02215 042103881 501(C)(3) 39337 Research Georgetown University 37th and O Street NW Washington DC 20057 530196603 501(C)(3) 35216 Research Harvard Medical School 25 Shattuck St Boston MA 02115 042103580 501(C)(3) 65802 Research Henry Ford Health System 2799 West Grand Boulevard Detroit MI 48202 381357020 501(C)(3) 93916 Research Rocky Mountain MS Center Tissue Bank 8845 Wagner Street Westminster CO 80031 840795455 501(C)(3) 57214 Research Seattle Children's Hospital 4800 Sand Point Way NE Seattle WA 98145 910564748 501(C)(3) 180104 Research Shepherd Center 2020 Peachtree Rd NW Atlanta GA 30309 510141601 501(C)(3) 25000 Research The Feinstein Institute for Medical Research 972 Brush Hollow Rd Westbury NY 11590 112673595 501(C)(3) 55000 Research Tisch MS Research Center 521 West 57th St 4th Fl New York NY 10019 251922851 501(C)(3) 250000 Research University of Colorado Denver 1800 Grant St Ste 500 Denver CO 80203 846000555 GOV. 63084 Research University of Maryland Baltimore 4100 Chesapeake Bldg College Park MD 20742 526002033 GOV. 54155 Research University of Missouri-Columbia 118 University Hall Columbia MO 65211 436003859 GOV. 55000 Research University of Oklahoma 201 Stephenson Pkwy Ste 3100 Norman OK 73019 731377584 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San Francisco CA 94143 946036493 GOV. 87656 Clinical University of Chicago 5801 South Ellis Avenue Chicago IL 60637 362177139 GOV. 87656 Clinical University of Colorado Denver 1800 Grant St Ste 500 Denver CO 80203 846000555 GOV. 18750 Clinical University of Kansas Medical Center 3901 Rainbow Blvd Kansas City KS 66160 481108830 501(C)(3) 48750 Clinical University of Rochester Medical Center 910 Genosee Street Rochester NY 14611 160743209 501(C)(3) 111031 Clinical University of Southern California University Gardens Los Angeles CA 90089 951642394 GOV. 48750 Clinical University of Virginia 1001 N Emmet St Charlottesville VA 22904 546001796 GOV. 38330 Clinical University of Washington 4300 Roosevelt Way NE Seattle WA 98195 916001537 GOV. 115082 Clinical University of Texas at Austin 110 Inner Campus Dr Austin TX 78712 746000203 GOV. 100000 Clinical Oregon Health & Science University 3181 SW Sam Jcksn Prk Rd Portland OR 97239 611730890 501(C)(3) 23375 Clinical University of Massachusetts Medical School 55 N Lake Ave Worcester MA 01655 043167352 GOV. 121000 Clinical Annexon Biosciences 280 Utah Ave Ste 110 South San Francisco CA 94080 275414423 501(C)(3) 190000 Fast Forward Brigham and Women's Hospital 75 Francis Street Boston MA 02115 042312909 501(C)(3) 255000 Fast Forward Cashel Neural Inc 10000 Cedar Avenue Cleveland OH 44106 824625105 501(C)(3) 121138 Fast Forward Longevity Biotech Inc 3001 Market St Ste 140 Philadelphia PA 19104 272351016 N/A 77140 Fast Forward MedaredCorporation 1080 Marsh Rd Menlo Park CA 94025 814579978 N/A 107999 Fast Forward New York University Langone Medical Center 550 First Avenue New York NY 10016 135562308 501(C)(3) 52500 Fast Forward TG Therapeutics Inc 2 Gansevoort St 9th flr New York NY 10014 363898269 501(C)(3) 185855 Fast Forward 120 2 FINANCIAL ASSISTANCE 3780 3106402 PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS SCHEDULE I, PART I, LINE 2 RESEARCH GRANTS THE SOCIETY UTILIZED A VOLUNTEER COMMITTEE OF RENOWNED SCIENTISTS AND NEUROLOGISTS TO SELECT RESEARCH GRANTS FOR FUNDING IN THE UNITED STATES AND ABROAD. ALL GRANTEES ARE TO PROVIDE SCIENTIFIC AND FINANCIAL PROGRESS REPORTS ON A QUARTERLY BASIS WHICH ARE REVIEWED BY QUALIFIED STAFF. UPON ACCEPTANCE OF THE PROGRESS REPORTS, PAYMENTS ARE DISTRIBUTED TO GRANTEES. FINANCIAL ASSISTANCE GRANTS MS NAVIGATORS WORK WITH EACH INDIVIDUAL TO DEVELOP AN ASSISTANCE REQUEST THAT WOULD LEAD TO A CUSTOMIZED AND SUSTAINABLE SOLUTION. OTHER POTENTIAL RESOURCES ARE EXPLORED AND A DETERMINATION IS MADE WHETHER THE ASSISTANCE REQUEST MEETS THE CRITERIA ESTABLISHED IN THE SOCIETY'S FINANCIAL ASSISTANCE GUIDELINES. APPROVED REQUESTS RESULT IN PAYEMNTS MADE DIRECTLY TO THE VENDOR SPECIFIED IN THE REQUEST. X X X X X false false false false false false false false false CYNTHIA ZAGIEBOYLO PRESIDENT & CEO 553948 0 0 0 0 0 11000 0 1715 0 566663 0 0 0 TAMI CAESAR CFO & COO 265896 0 0 0 0 0 10959 0 36396 0 313251 0 0 0 ERIC HILTY CHIEF LEGAL OFFICER 225691 0 0 0 0 0 9009 0 36424 0 271124 0 0 0 PAUL WEISS CHIEF CRM, MKT & TECH OFFICER 330082 0 0 0 0 0 11000 0 37635 0 378717 0 0 0 TIM COETZEE CHF ADVOC, SVC & RSRCH OFFCR 325615 0 0 0 0 0 11000 0 35735 0 372350 0 0 0 LISA GOLDFARB CHIEF HR & VOL ENG OFFICER 274945 0 0 0 0 0 11000 0 2752 0 288697 0 0 0 JOHN SCOTT CHIEF DEV & COMM LEAD. OFFICER 325887 0 0 0 0 0 11000 0 15386 0 352273 0 0 0 Bruce Bebo EVP, RESEARCH PROGRAMS 205706 0 0 0 0 0 8272 0 19424 0 233402 0 0 0 Rebecca Fehlig EVP, OPERATIONS 186589 0 0 0 0 0 5412 0 1332 0 193333 0 0 0 JENNIFER DOUGLAS EVP, TECHNOLOGY (Thru 3/27/19) 230540 0 0 0 0 0 9562 0 17436 0 257538 0 0 0 Sherri Giger EVP, MARKETING (THRU 9/7/2018) 197259 0 0 0 0 0 7909 0 9091 0 214259 0 0 0 JENNIFER LEE EVP, FUNDRAISING EVENTS 238271 0 0 0 0 0 9657 0 21044 0 268972 0 0 0 KAY JULIAN EVP, SERVICES 235715 0 0 0 0 0 9524 0 15199 0 260438 0 0 0 PHYLLIS ROBSHAM EVP, COMMUNITY LEADERSHIP 252355 0 0 0 0 0 10077 0 13245 0 275677 0 0 0 Bari Talente EVP, ADVOCACY 218802 0 0 0 0 0 6896 0 35503 0 261201 0 0 0 MAUREEN REEDER EVP, LEAD & ORG (THRU 1/25/19) 278986 0 0 0 0 0 10966 0 2654 0 292606 0 0 0 Graham McReynolds Chief M & D Officer 251636 0 0 0 0 10247 0 23801 0 285684 0 0 0 X 171 1736787 FMV false true false NUMBER OF CONTRIBUTIONS SCHEDULE M, PART I, LINE 9 THE ORGANIZATION IS REPORTING THE NUMBER OF NONCASH CONTRIBUTIONS RECEIVED, NOT THE NUMBER OF ITEMS CONTRIBUTED. PROGRAM SERVICE ACCOMPLISHMENTS Other Program Services FORM 990, PART III, LINE 4D PROFESSIONAL EDUCATION AND TRAINING THE SOCIETY WANTS SCIENTISTS HEALTHCARE PROFESSIONALS TO BE AWARE OF AND TRAINED IN MS SO THAT THE VERY BEST EXPERTISE WORLDWIDE IS ENGAGED IN FINDING TREATMENTS AND SOLUTIONS FOR EVERYONE WITH MS. THIS INCLUDES ACTIVITIES AND PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE, SKILLS, AND CRITICAL JUDGEMENT OF SCIENTISTS, PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS ENGAGED (DIRECTLY OR INDIRECTLY) IN PROVIDING SERVICES TO PEOPLE LIVING WITH MS BY KEEPING THEM ABREAST OF NEW DIAGNOSTIC TECHNIQUES AND THERAPIES - 3,845 HEALTHCARE PROVIDERS PARTICIPATED IN THESE PROGRAMS DURING 2019. OF THOSE WHO ATTENDEND 94% REPORTED INCREASED KNOWLEDGE ABOUT MS CARE. A FREE QUARTERLY NEWSLETTER IS EMAILED TO MORE THAN 14,000 HEALTHCARE PROFESSIONALS. IN 2019, HEALTHCARE PROVIDERS MADE 9,924 REFERRALS TO THE SOCIETY. CLASSES OF MEMBERS OR STOCKHOLDERS FORM 990, PART VI, SECTION A, LINE 6 THE MEMBERS OF THE SOCIETY ARE COMPRISED OF THE MEMBERS OF THE 36 MARKETS WHO ARE NON-VOTING MEMBERS, AND THOSE MARKETS CHOOSE VOTING MEMBERS WHO COMPRISE THE DELEGATE ASSEMBLY. ELECTION OF MEMBERS AND THEIR RIGHTS FORM 990, PART VI, SECTION A, LINE 7A ALL MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED BY THE DELEGATE ASSEMBLY WHICH IS COMPRISED OF VOTING MEMBERS OF THE ORGANIZATION. EACH MARKET IS ALLOCATED A NUMBER OF VOTING MEMBERS BASED ON A FORMULA. VOTING MEMBERS ARE THE VOLUNTEER LEADERS OF THE MARKET AND THE NATIONAL BOARD OF DIRECTORS. DECISIONS SUBJECT TO APPROVAL OF MEMBERS FORM 990, PART VI, SECTION A, LINE 7B THE DELEGATE ASSEMBLY ELECTS THE GOVERNING BODY, APPROVES ANY BY-LAW CHANGES AND APPROVES THE SOCIETY'S STRATEGIC PLAN. ORGANIZATION'S PROCESS TO REVIEW FORM 990 FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 AND ACCOMPANYING SCHEDULES ARE PREPARED BY AN EXTERNAL INDEPENDENT ACCOUNTING FIRM IN CONJUNCTION WITH MANAGEMENT. IT IS THEN PROVIDED TO THE AUDIT COMMITTEE MEMBERS FOR REVIEW, COMMENTS, CORRECTIONS, AND EDITS. THE REVIEW COMMENTS OF THE AUDIT COMMITTEE ARE INCORPORATED INTO THE FORM 990 BY THE CFO. A MEETING OF THE AUDIT COMMITTEE IS HELD TO APPROVE THE REVISED FORM 990, AND TO APPROVE DISTRIBUTION TO THE ENTIRE SOCIETY BOARD OF DIRECTORS. THE SOCIETY BOARD OF DIRECTORS IS GIVEN A PERIOD OF TIME TO REVIEW AND COMMENT ON THE FORM 990 BEFORE THE RETURN IS FILED WITH THE INTERNAL REVENUE SERVICE. ENFORCEMENT OF CONFLICTS POLICY FORM 990, PART VI, SECTION B, LINE 12C ALL STAFF AND MEMBERS OF THE NATIONAL BOARD OF DIRECTORS AND VOLUNTEERS SERVING ON KEY COMMITTEES MUST REVIEW THE CONFLICT OF INTEREST POLICY & MAKE ANY APPROPRIATE DISCLOSURES. IF AN INDIVIDUAL DISCLOSES AN ACTUAL OR POTENTIAL CONFLICT, THE CHIEF LEGAL OFFICER REVIEWS THE DISCLOSURE AND DRAFTS A CONFLICT RESOLUTION REPORT TO ADDRESS THE ACTUAL OR POTENTIAL CONFLICT. THE RESOLUTION REPORT IS PRESENTED TO THE AUDIT COMMITTEE AND THE AUDIT COMMITTEE EDITS AND ULTIMATELY APPROVES A RESOLUTION REPORT FOR EACH OF THE DISCLOSED CONFLICTS. THE RESOLUTION REPORT ENSURES THAT THE INDIVIDUAL DOES NOT PARTICIPATE IN ANY DISCUSSIONS OR VOTES RELATED TO THE CONFLICT. THE INDIVIDUAL WHO DISCLOSED THE CONFLICT IS PROVIDED A COPY OF THE RESOLUTION REPORT AND COMPLIES WITH IT. COMPENSATION PROCESS FORM 990, PART VI, SECTION B, LINE 15A THE COMPENSATION COMMITTEE IS COMPRISED OF AT LEAST THREE (3) INDEPENDENT BOARD MEMBERS THAT DETERMINE THE COMPENSATION OF THE PRESIDENT AND CEO, OFFICERS AND OTHER KEY EMPLOYEES. THE COMMITTEE IS PROVIDED WITH COMPARABLE SALARY INFORMATION AND DATA FOR ALL POSITIONS AT OTHER VOLUNTARY HEALTHCARE AGENCIES OF SIMILAR SIZE AND NATIONAL INFLUENCE. THE PRESIDENT AND CEO'S PERFORMANCE IS EVALUATED ON AN ANNUAL BASIS BY THE MEMBERS OF THE COMPENSATION COMMITTEE. THE PRESIDENT AND CEO COMPENSATION IS THEN RATIFIED BY THE FULL BOARD DURING EXECUTIVE SESSION. THE PRESIDENT AND CEO OR HER DESIGNEE CONDUCTS PERFORMANCE EVALUATIONS FOR OFFICERS AND OTHER KEY EMPLOYEES. THE OUTCOME OF THESE EVALUATIONS IS SHARED WITH THE COMPENSATION COMMITTEE TO PROVIDE INFORMATION ON THEIR DECISIONS ABOUT COMPENSATION AND IS THEN RATIFIED BY THE FULL BOARD DURING EXECUTIVE SESSION. GOVERNING DOCUMENTS DISCLOSURE EXPLANATION FORM 990, PART VI, SECTION C, LINE 19 THE SOCIETYS IRS FORM 990, IRS FORM 990-T AND AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.NATIONALMSSOCIETY.ORG, AND ON THE CHARITY NAVIGATOR WEBSITE. THE SOCIETY'S GOVERNING DOCUMENTS, RECORD RETENTION AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. OTHER CHANGES IN NET ASSETS EXPLANATION FORM 990, PART XI, LINE 9 Change in fair value of beneficial interest in trust $ 39,036 Change in value of split-interest agreements $ 313,606 ------------ Total $ 352,642 FAST FORWARD LLC 733 THIRD AVENUE NEW YORK NY 100173211 261933619 RESEARCH DE 497707 674435 NMSS DISREGARDED ENTITIES SCHEDULE R, PART I, FAST FORWARD LLC ("FAST FORWARD"), A CONSOLIDATED NOT-FOR-PROFIT AFFILIATE OF THE SOCIETY, DERIVES ITS TAX EXEMPTION FROM THE SOCIETY AND IS TREATED AS A "DISREGARDED ENTITY" FOR TAX PURPOSES. FAST FORWARD PARTNERS WITH SELECTED BIOTECHNOLOGY COMPANIES AND ACADEMIC INSTITUTIONS ENGAGED IN RESEARCH AND DEVELOPMENT PROJECTS AIMED AT IDENTIFYING AND DEVELOPING THERAPIES AND/OR DIAGNOSTICS TO IMPROVE THE TREATMENT OF MS.