2020-06-12T10:00:08-05:00 2020-01-31 352043580 ALERDING CPA GROUP 4181 E 96TH ST STE 180 INDIANAPOLIS IN 46240 990 2019-02-01 352029321 THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC INDI 3179159888 7202 EAST 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 TINA KAETZEL EXECUTIVE DIRECTOR 3179159888 2020-05-15 true ROBERT K BRINKERS CPA P00409428 3175694181 2020-06-12 68.143.44.218 2020-06-12 10:57:31 P DFDEF1E554E2ED9684C71E694DD0EE62F4BE8701 DFDEF1E554E2ED9684C71E694DD0EE62F4BE8701 2019 2020-09-23 17:36:50Z TINA KAETZEL 7202 EAST 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 837918 false X WWW.ALSAINDIANA.ORG X 1997 IN INDIANA CHAPTER OF THE ALS ASSOCIATION (ALSA), A NATIONAL NOT-FOR-PROFIT ORGANIZATION, PROVIDING SERVICES TO PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THEIR FAMILIES. 12 12 7 155 0 876630 659906 0 116 23730 -40898 -30255 835848 653381 42753 52377 0 306400 340167 0 44954 326705 291725 675858 684269 159990 -30888 1261180 1218424 67481 34231 1193699 1184193 X TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. false false 62500 52377 ALS CLINICS AND CERTIFIED CENTER SUPPORT: TO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND FINANCIALLY SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS MULTIDISCIPLINARY CLINICS. THESE CLINICS ARE EVIDENCE BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS. THESE CLINICS ARE HELD AT ONE OF THE ALS ASSOCIATION CERTIFIED CENTERS OF EXCELLENCE AT IU NEUROSCIENCE CENTER, RECOGNIZED ALS CENTER AT RICHARD L. ROUDEBUSH VA MEDICAL CENTER, AS WELL AS THE NEWLY ESTABLISHED ALS CLINIC, OPENED NOVMEBER 2019, IN PARTNERSHIP WITH PARKVIEW NEUORSCIENCE. THE CHAPTER HAS ASSISTED WITH LICENSED SOCIAL WORK STAFFING, NUTRITION CART, SUPPLIES, AND FINANCIAL COMMITTMENT. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER SUPPORTED 831 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS. 472538 EDUCATION & SUPPORT PROGRAMS: STRATEGICALLY BASED IN AND NEAR PATIENT'S HOME COMMUNITIES, CARE SERVICE COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. IN FISCAL YEAR END JANUARY 31, 2020 CARE SERVICE COORDINATORS SERVED 515 PATIENTS PROVIDING 3,308 HOURS OF SOCIAL WORK. COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID AND LONG-TERM CARE PLANNING. COORDINATORS ASSISTED 7 MONTHLY SUPPORT GROUPS ACROSS THE REGION WITH 418 ENGAGEMENTS. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. THE CHAPTER HAS A VERY EXTENSIVE LENDING PROGRAM. WE RECOGNIZE THE IMPORTANCE OF PROPER EQUIPMENT AND ASSISTIVE DEVICES IN MAINTAINING SAFETY, INDEPENDENCE AND IN MAXIMIZING PATIENTS FUNCTIONALITY AND MINIMIZING FINANCIAL COST ASSOCIATED WITH ALS. THE EQUIPMENT LOAN CLOSET PROGRAM PROVIDES ACCESS TO THE NEEDED MEDICAL EQUIPMENT EITHER AS A BRIDGE WHILE AWAITING INSURANCE APPROVAL OR TO THOSE PATIENTS WITH NO INSURANCE COVERAGE FOR THE EQUIPMENT BEING REQUESTED. THE SUCCESS OF THIS PROGRAM IS DUE TO THE GENEROSITY OF OUR SUPPORTERS AND VENDORS WHO DONATE EQUIPMENT AND TO THE FUNDS RAISED THROUGH OUR WALK TO DEFEAT ALS PROGRAMS WHICH ALLOW US TO PURCHASE NEW ITEMS, REPAIR/REPLACE EXISTING ITEMS, AND ENSURES PROPER MAINTENANCE TO THE VARIOUS DME ITEMS IN THE LOAN CLOSET. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER LOANED 567 PIECES OF EQUIPMENT TO 189 PATIENTS. PATIENT FINANCIAL GRANT PROGRAMS SUPPORTED 55 PATIENTS FOR CAREGIVER RELIEF, NUTRITION, DME ITEMS NOT AVAILABLE IN CHAPTER LOAN CLOSET, MEDICAL TRANSPORTATION TO/FROM MEDICAL APPOINTMENTS, AND MEDICAL COPAYS. 41951 AWARENESS EVENTS: EVENTS SPONSORED BY THE CHAPTER INCLUDE THE WALK TO DEFEAT ALS, BOB KRAVITZ GOLF OUTING, CRUISIN' FOR A CURE CAR SHOW, ALS RESEARCH UPDATE, MAY ALS AWARENESS MONTH, AND MISSION CONNECTED SOCIAL MEDIA. NOVEMBER NATIONAL CAREGIVERS' MONTH ACTIVITIES SERVED AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. MORE THAN 5,000 PEOPLE PARTICIPATE IN THESE EFFORTS TO RAISE THE PROFILE OF THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE INDIANA CHAPTER. 9900 OUTREACH & ADVOCACY: AS ONE OF 39 CHAPTERS AFFILIATED WITH THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS GLOBAL RESEARCH WORKING TOWARDS TREATMENTS AND A CURE FOR ALS. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2020 INCLUDE SENDING A SUCCESSFUL DELEGATION OF PEOPLE WITH ALS TO WASHINGTON D.C. TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. 9900 586889 true true false false false false false false false false true false false false true true true false false false false false false false true false false true true false false false false false false false false false true false false false false false false false false true 6 0 7 true false false false false false false false false false false false false false false X 12 12 false false false false false false false true true false false true true true true true true true false false IN X REBECCA STARKS 5012503624 7202 EAST 87TH STREET SUITE 102 INDIANAPOLIS IN 46256 TINA KAETZEL EXECUTIVE DI 40.00 X 93681 0 0 JOSH NICHOLSON PRESIDENT 10.00 X X 0 0 0 MANUEL ORTIZ SMITH TREASURER 10.00 X X 0 0 0 BRETT GLAZE SECRETARY 10.00 X X 0 0 0 MONA EULER DIRECTOR 2.00 X 0 0 0 ERIC BEDEL DIRECTOR 10.00 X 0 0 0 GEOFF DAVIS DIRECTOR 2.00 X 0 0 0 NATE FELTMAN DIRECTOR 2.00 X 0 0 0 DEREK FRENCH DIRECTOR 2.00 X 0 0 0 AIMEE HARVEY DIRECTOR 2.00 X 0 0 0 JT LOUGHMILLER DIRECTOR 2.00 X 0 0 0 TRENT MCBRIDE DIRECTOR 10.00 X 0 0 0 DEREK MILLER DIRECTOR 2.00 X 0 0 0 MICHAEL MILLIKAN DIRECTOR 2.00 X 0 0 0 93681 false false false 390212 269694 50881 659906 25981 25981 112195 114446 -2251 -2251 -2251 39836 390212 70091 -30255 653381 23730 30000 30000 22377 22377 93817 81621 5629 6567 215455 187446 12927 15082 6446 689 533 5224 24449 21027 1711 1711 9777 5815 2700 1262 2869 2869 3085 1835 852 398 239 239 22799 14006 5364 3429 35152 21811 9236 4105 46024 39005 2411 4608 13572 10772 1000 1800 88109 88109 65067 60046 5021 2405 1960 256 189 MISCELLANEOUS 2627 370 1917 340 684269 586889 52426 44954 573584 513913 3843 6428 3986 2231 232068 176799 74368 55269 602734 637918 2665 2665 1261180 1218424 25579 20004 17000 24902 14227 67481 34231 X 1193699 1184193 1193699 1184193 1261180 1218424 X -30888 21614 -232 X false true X true false X 779678 770102 578662 876630 659906 3664978 779678 770102 578662 876630 659906 3664978 78608 3586370 25322 23930 21641 22927 25981 119801 3784779 115976 0.94760 0.94820 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 191276 139808 51468 40792 36991 3801 55269 DUE TO RELATED PARTY 14227 14227 X 745968 21614 3750 70092 95456 650512 2869 2869 653381 755474 3750 70324 74074 681400 2869 2869 684269 SCHEDULE D, PAGE 3, PART X MANAGEMENT OF THE ORGANIZATION EVALUATES ALL SIGNIFICANT TAX POSITIONS TO ENSURE COMPLIANCE WITH THE EXEMPT PURPOSE OF THE ORGANIZATION AS REQUIRED BY U.S. GAAP, INCLUDING CONSIDERATION OF ANY UNRELATED BUSINESS INCOME TAX. AS OF JANUARY 31, 2020, MANAGEMENT DOES NOT BELIEVE THE ORGANIZATION HAS TAKEN ANY TAX POSITIONS THAT ARE NOT IN COMPLIANCE WITH THE EXEMPT PURPOSE OF THE ORGANIZATION. THE ORGANIZATIONS FEDERAL AND STATE TAX RETURNS REMAIN OPEN AND SUBJECT TO EXAMINATION BEGINNING WITH THE CALENDAR TAX YEAR ENDED JANUARY 31, 2017. SCHEDULE D, PAGE 4, PART XI, LINE 2D DIRECT FUNDRAISING EXPENSES 70,092 SCHEDULE D, PAGE 4, PART XII, LINE 2D DIRECT FUNDRAISING EXPENSES 70,092 DEPRECIATION 232 INDY WALK 219164 215767 3397 13143 538 10864 GOLF OUTING 89801 53362 36439 28978 6773 3103 5 121083 121083 2037 1760 2895 430048 390212 39836 44158 9071 16862 70091 -30255 true IU NEUROSCIENCE CENTER ALS MULTIDISCIPLINARY CLINIC 362 WEST 15TH STREET INDIANAPOLIS IN 46202 264529479 501C3 25000 CLINIC SUPPORT 1 CAREGIVER RESPITE 12 15924 NUTRITION SUPPLEMENTS 9 1862 TRANSPORTATION 6 1052 DURABLE MEDICAL EQUIPMENT 24 2498 MEDICAL CO-PAYS 4 1041 SCHEDULE I, PAGE 1, PART I, LINE 2 THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM AND MONITORS HOW THE FUNDS ARE SPENT. SCHEDULE I, PAGE 4, PART IV PART III, LINE 1, COLUMN (F): EMERGENCY CAREGIVER RESPITE - IN 2019, THE CHAPTER PROVIDED 343 HOURS OF IN-HOME HEALTH CARE SUPPORT RESOURCES. RESPITE PROVIDES A TEMPORARY BREAK FROM THE ONGOING ACTIVITIES ASSOCIATED WITH PROVIDING CARE TO A LOVED ONE LIVING WITH ALS. PART III, LINE 2, COLUMN (F): NUTRITION SUPPLEMENT ASSISTANCE - IN 2019, THE CHAPTER'S NUTRITION SUPPLEMENT ASSISTANCE PROGRAM PROVIDED 1,094 UNITS TO OUR ALS FAMILIES. ADDRESSING COMPROMISED NUTRITION LEADING TO WEIGHT AND MUSCLE LOSS IS A COMMON AND SIGNIFICANT PROBLEM FOR PEOPLE LIVING WITH ALS. THE PROGRAM PROVIDES RESOURCES AND INFORMATION TO ASSIST WITH THE NUTRITIONAL NEEDS FOR ALL STAGES OF DISEASE PROGRESSION. PART III, LINE 3, COLUMN (F): TRANSPORTATION - IN 2019, THE CHAPTER PROVIDED TRANSPORTATION FOR 6 PATIENTS LIVING WITH ALS. PART III, LINE 4, COLUMN (F): DURABLE MEDICAL EQUIPMENT - IN 2019, THE CHAPTER PROVIDED MEDICAL EQUIPMENT NOT AVAILABLE IN THE CHAPTER EQUIPMENT LOAN CLOSET FOR 24 PATIENTS LIVING WITH ALS. X 8 46200 FMV X EVENT FOOD/BEV 6 4681 FMV false false false FORM 990, PAGE 2, PART III, LINE 4A ALS CLINICS AND CERTIFIED CENTER SUPPORT: TO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND FINANCIALLY SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS MULTIDISCIPLINARY CLINICS. THESE CLINICS ARE EVIDENCE BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS. THESE CLINICS ARE HELD AT ONE OF THE ALS ASSOCIATION CERTIFIED CENTERS OF EXCELLENCE AT IU NEUROSCIENCE CENTER, RECOGNIZED ALS CENTER AT RICHARD L. ROUDEBUSH VA MEDICAL CENTER, AS WELL AS THE NEWLY ESTABLISHED ALS CLINIC, OPENED NOVMEBER 2019, IN PARTNERSHIP WITH PARKVIEW NEUORSCIENCE. THE CHAPTER HAS ASSISTED WITH LICENSED SOCIAL WORK STAFFING, NUTRITION CART, SUPPLIES, AND FINANCIAL COMMITTMENT. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER SUPPORTED 831 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS. FORM 990, PAGE 2, PART III, LINE 4B EDUCATION & SUPPORT PROGRAMS: STRATEGICALLY BASED IN AND NEAR PATIENT'S HOME COMMUNITIES, CARE SERVICE COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. IN FISCAL YEAR END JANUARY 31, 2020 CARE SERVICE COORDINATORS SERVED 515 PATIENTS PROVIDING 3,308 HOURS OF SOCIAL WORK. COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID AND LONG-TERM CARE PLANNING. COORDINATORS ASSISTED 7 MONTHLY SUPPORT GROUPS ACROSS THE REGION WITH 418 ENGAGEMENTS. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. THE CHAPTER HAS A VERY EXTENSIVE LENDING PROGRAM. WE RECOGNIZE THE IMPORTANCE OF PROPER EQUIPMENT AND ASSISTIVE DEVICES IN MAINTAINING SAFETY, INDEPENDENCE AND IN MAXIMIZING PATIENTS FUNCTIONALITY AND MINIMIZING FINANCIAL COST ASSOCIATED WITH ALS. THE EQUIPMENT LOAN CLOSET PROGRAM PROVIDES ACCESS TO THE NEEDED MEDICAL EQUIPMENT EITHER AS A BRIDGE WHILE AWAITING INSURANCE APPROVAL OR TO THOSE PATIENTS WITH NO INSURANCE COVERAGE FOR THE EQUIPMENT BEING REQUESTED. THE SUCCESS OF THIS PROGRAM IS DUE TO THE GENEROSITY OF OUR SUPPORTERS AND VENDORS WHO DONATE EQUIPMENT AND TO THE FUNDS RAISED THROUGH OUR WALK TO DEFEAT ALS PROGRAMS WHICH ALLOW US TO PURCHASE NEW ITEMS, REPAIR/REPLACE EXISTING ITEMS, AND ENSURES PROPER MAINTENANCE TO THE VARIOUS DME ITEMS IN THE LOAN CLOSET. DURING THE YEAR ENDED JANUARY 31, 2020, THE CHAPTER LOANED 567 PIECES OF EQUIPMENT TO 189 PATIENTS. PATIENT FINANCIAL GRANT PROGRAMS SUPPORTED 55 PATIENTS FOR CAREGIVER RELIEF, NUTRITION, DME ITEMS NOT AVAILABLE IN CHAPTER LOAN CLOSET, MEDICAL TRANSPORTATION TO/FROM MEDICAL APPOINTMENTS, AND MEDICAL COPAYS. FORM 990, PAGE 2, PART III, LINE 4D OUTREACH & ADVOCACY: AS ONE OF 39 CHAPTERS AFFILIATED WITH THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS GLOBAL RESEARCH WORKING TOWARDS TREATMENTS AND A CURE FOR ALS. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2020 INCLUDE SENDING A SUCCESSFUL DELEGATION OF PEOPLE WITH ALS TO WASHINGTON D.C. TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. FORM 990, PAGE 6, PART VI, LINE 11B AN ELECTRONIC COPY OF THE 990 WAS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 12C THE EXECUTIVE DIRECTOR SENDS TO ALL EMPLOYEES THE CONFLICT OF INTEREST POLICY WHICH MUST BE SIGNED BY THE EMPLOYEE. THE EXECUTIVE DIRECTOR MONITORS THE RETURNS AND, WHEN RECEIVED, PLACES THEM IN THE EMPLOYEE'S PERSONNEL FILE HELD IN THE BOOKKEEPER'S OFFICE. A NEW FORM IS COMPLETED AT THE BEGINNING OF EACH FISCAL YEAR. THE BOARD OF DIRECTORS CHAIR SENDS THE FORM TO ALL DIRECTORS AT THE BEGINNING OF THE YEAR AND RETAINS THE SIGNED FORMS IN THE BOOKKEEPER'S OFFICE. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD OF DIRECTORS APPROVE ALL SALARIES, RAISES, AND DISCRETIONARY BONUSES, IF APPLICABLE, BASED ON PERFORMANCE/OPERATIONS DURING THE FISCAL YEAR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC IN THE CHAPTER OFFICE UPON REQUEST. FORM 990, PART XI, LINE 9 DIRECT FUNDRAISING EXPENSES 70,092 DIRECT FUNDRAISING EXPENSES -70,092 DEPRECIATION -232 TOTAL -232