2020-11-13T12:00:34-06:00 2019-12-31 GRANT THORNTON LLP 757 THIRD AVENUE 3RD FLOOR NEW YORK NY 100172013 990 2019-01-01 136193105 Crohn's & Colitis Foundation Inc % RONALD GOLDSMAN VP FINANCE CROH 8009322423 733 Third Avenue Suite 510 New York NY 10017 RONALD GOLDSMAN VP OF FINANCE 2126843440 2020-11-13 true Scott Thompsett P00741490 2125990100 2019 2022-09-23 18:48:47Z Michael Osso President 733 Third Avenue new york NY 10017 91603043 false X www.crohnscolitisfoundation.org X 1967 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 27 27 430 5425 0 0 67009903 66405320 4834276 5275500 778119 958595 1264933 1285835 73887231 73925250 24952189 25099238 0 0 29781678 31959212 456679 463544 4850525 18458329 18201536 73648875 75723530 238356 -1798280 46583088 45274249 37528315 36455900 9054773 8818349 X FOR more than FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). false false 31492679 0 780015 THE FOUNDATION PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN 3 MILLION IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS (TAKE CHARGE, UNDER THE MICROSCOPE), AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. THE FOUNDATION ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS, ELECTRONIC MAIL, AND SOCIAL MEDIA POSTS. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. REVENUES REPORTED AS PROGRAM SERVICE REVENUE OF $473,595 REPRESENTS CAMP REGISTRATION FEES FOR WORKSHOPS/CAMP PROGRAMS RUN FOR CHILDREN AND FAMILIES AFFECTED BY EITHER CROHN'S DISEASE OR ULCERATIVE COLITIS. THE FOUNDATION SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 300 SUPPORT GROUPS ANNUALLY, SUMMER CAMPS FOR CHILDREN WITH IBD, AND A RANGE OF EDUCATIONAL AND TRAINING PROGRAMS FOR LOCAL COMMUNITIES. READ MORE ABOUT THE FOUNDATION'S CHAPTERS ON ITS WEBSITE OR VIEW ITS webcasts. 29234702 25099238 4765830 SINCE ITS INCEPTION, THE FOUNDATION HAS BEEN FIRMLY COMMITTED TO FUNDING RESEARCH THAT HAS THE POTENTIAL TO CHANGE THE LIVES OF PATIENTS WITH IBD. - COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). THERE ARE TWO MAIN RESEARCH CATEGORIES. BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT IS THE UNDERLYING CAUSE OF CROHN'S AND Ulcerative COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? ALTHOUGH BASIC RESEARCH IS COMPLEX AND CAN BE DIFFICULT FOR LAYPERSONS TO UNDERSTAND, THESE STUDIES WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH DETERMINES WHICH MEDICAL AND SURGICAL OPTIONS WORK BEST FOR PATIENTS.- THE FOUNDATION BRINGS TOGETHER PATIENTS, CAREGIVERS AND THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL), TO DESIGN EDUCATION PROGRAMS AND SET THE RESEARCH AGENDA. - THE FOUNDATION INVESTS IN HUMAN RESOURCES: IT TAKES 10 YEARS TO "BUILD" A FULL-FLEDGED, SENIOR INVESTIGATOR. TO MAKE SURE THAT THE MOST TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, THE FOUNDATION PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM THE FOUNDATION EARLY IN THEIR CAREERS. - As part of its drive to push the boundaries of inflammatory bowel disease (IBD) research, the Foundation publishes its Challenges in IBD Research report to update the Foundations research agenda and identify new research priorities. 60727381 true true false true false false false false false false true false false false true true true false false false true true false true true true false true false true false false false false false false false false true false false false false false false false false true 463 0 true 430 true false false false false false true true false false false false false false X 27 27 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN VP FINANCE 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Michael Osso President/CEO(non-voting) 35.0 0.0 X X 472836 0 88176 Caren Heller Chief Science Officer 35.0 0.0 X 372382 0 14000 Robert Territo CFO/COO 35.0 0.0 X 271653 0 26424 Rohit Suri Chief Technology officer 35.0 0.0 X 257130 0 21385 Michael Elkow Chief Field Officer 35.0 0.0 X 251548 0 20334 Allison Coffey Chief Development Officer 35.0 0.0 X 208103 0 12154 Jennifer Fagerstrom VP, Chapter Growth and Develop 35.0 0.0 X 190804 0 17556 JUDY HOFFSTEIN CHIEF MARKETING OFFICER 35.0 0.0 X 186939 0 19742 Kimberly Frederick-Sna Regional Director 35.0 0.0 X 187907 0 11264 Kristin Kaplan VP, Special Events 35.0 0.0 X 174549 0 19608 Robert Bryan VP, Chapter Growth and Develop 35.0 0.0 X 181311 0 6799 Jack Matarasso VP Digital Marketing 35.0 0.0 X 168959 0 8439 Sheri Markus-Kennell SVP, Business Dev (THRU 05/19) 35.0 0.0 X 100609 0 8033 John Crosson Chairman 1.0 0.0 X X 0 0 0 Robert Van Pulley Treasurer 1.0 0.0 X X 0 0 0 Andrew Stern Secretary 1.0 0.0 X X 0 0 0 Brent Polk MD TRUSTEE/NSAC Chair 1.0 0.0 X 0 0 0 Alessandro DiNello Trustee 1.0 0.0 X 0 0 0 Alex Funderburg Trustee 1.0 0.0 X 0 0 0 Amber Backhaus Trustee 1.0 0.0 X 0 0 0 Christopher Collette Trustee 1.0 0.0 X 0 0 0 Cindi Roth Trustee 1.0 0.0 X 0 0 0 David Rubin MD Trustee 1.0 0.0 X 0 0 0 Donald Kortz Trustee 1.0 0.0 X 0 0 0 Eric Stone Trustee 1.0 0.0 X 0 0 0 f Rep Ander Crenshaw Trustee 1.0 0.0 X 0 0 0 Frank Russomano Trustee 1.0 0.0 X 0 0 0 Jason Burr Trustee 1.0 0.0 X 0 0 0 Jennifer O'Neill Trustee 1.0 0.0 X 0 0 0 Jodi Yellen Trustee 1.0 0.0 X 0 0 0 Joe Monk Trustee 1.0 0.0 X 0 0 0 Joel Rosh MD Trustee 1.0 0.0 X 0 0 0 Marcy Beth Nanus Trustee 1.0 0.0 X 0 0 0 Maria Oliva-Hemker MD Trustee 1.0 0.0 X 0 0 0 Mark Murray PhD Trustee 1.0 0.0 X 0 0 0 Michele Kissous-Hunt Trustee 1.0 0.0 X 0 0 0 Noel Brown Trustee 1.0 0.0 X 0 0 0 Paula Hilbert Trustee 1.0 0.0 X 0 0 0 Shelby Modell Co-Founder/Trustee 1.0 0.0 X 0 0 0 Troy Vollertsen Trustee (As of 03/2019) 1.0 0.0 X X 0 0 0 3024730 0 273914 54 false true false Deloitte Consulting LLP 4022 belle drive HERMINTAGE TN 37076 IBD Plexus 2002834 Blackbaud PO Box 930256 ATLANTA GA 311930256 DONOR DATABASE 1162927 PHASE2 TECHNOLOGY LLC 1735 north lynn street suite 720 ARLINGTON VA 22209 Website Development 853186 International Business Machines Cor north castle drive ARMONK NY 10504 IBD Plexus 596838 CHAPMAN CUBINE AND HUSSEY INC 2000 15TH STREET NORTH SUITE 550 ARLINGTON VA 22201 MARKETING CONSULTING 506297 25 1184804 28767167 581443 35871906 641800 66405320 EDUCATION & CAMP REGISTRATION FEES 900099 509670 509670 IBD PLEXUS DATABASE ACCESS FEES 900099 4765830 4765830 5275500 313200 313200 0 416509 416509 0 0 0 11007162 10361767 645395 645395 645395 6822830 28767167 7217387 -394557 -394557 493196 98639 394557 394557 0 0 0 EDUCATIONAL STIPEND 900099 270345 270345 VEHICLE DONATION PROGRAM 900099 41745 41745 REIMBURSEMENTS 900099 4839 4839 552397 552397 869326 73925250 5545845 1974085 23656358 23656358 0 1442880 1442880 0 2324523 1598291 491331 234901 0 22982064 15949077 4758156 2274831 891205 617954 184868 88383 3852548 2671323 799156 382069 1908872 1323595 395968 189309 0 20980 17116 2614 1250 183276 183276 524392 524392 463544 463544 0 7176425 6286003 856743 33679 854239 533143 217237 103859 627349 398267 154985 74097 1394984 1138093 173799 83092 0 1979957 1231930 506077 241950 1872684 1193654 459397 219633 0 743416 742669 506 241 0 0 736530 474287 177420 84823 378218 246059 89412 42747 PUBLICATIONS 841809 533105 208854 99850 LIST RENTAL FEES 42375 27568 10018 4789 GRANTS REFUNDED/RESCINDED -1187786 -1187786 ALL OTHER EXPENSES 2012688 1309403 475807 227478 75723530 60727381 10145624 4850525 0 0 12585946 3316952 10120199 13522713 0 0 0 0 0 0 0 0 598670 744033 3337082 3600532 7452291 5277288 2039912 2175003 16317981 19552807 911857 468887 0 0 0 0 671441 1893322 46583088 45274249 5219133 4791819 27522249 25547248 4167778 5552232 0 0 0 0 0 0 0 0 0 0 619155 564601 37528315 36455900 X -2111482 -5307069 11166255 14125418 9054773 8818349 46583088 45274249 X -1798280 1725416 -163560 X false true X true false X 65605925 68702957 71431094 67009903 66405320 339155199 0 0 65605925 68702957 71431094 67009903 66405320 339155199 38785577 300369622 650124 718756 685976 615382 729709 3399947 0 295805 0 0 295805 6677304 6852687 7441563 8568811 8185352 37725717 380576668 12793901 0.78925 0.76959 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false true false false true 317513 false true 144367 461880 false Schedule C, Part II-B, Line 1(i) IN 2019, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2019, EXPENSES INCURRED TOTALLED $144,367. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2019 WERE $171,862. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED DURING THE CALENDAR YEAR 2019, FOR WHICH EXPENSES INCURRED WERE $121,357. EXPENDITURES OF $121,357 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $121,357 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING). 486754 288735 198019 2740791 2357736 383055 4224746 2630817 1593929 2175003 0 REINSURANCE CONTRACTS 228669 DEFERRED RENT 335932 564601 X 83653673 1725416 7996354 6653 9728423 73925250 73925250 83890098 7996354 170214 8166568 75723530 75723530 Reconciliation of Revenue Part XI, Line 2d Changes in Charitable Remainder Trusts: $6,653 RECONCILIATION OF EXPENSES PART XII, LINE 2D Uncollectible Pledges: $170,214 Income Taxes Part X The Foundation is a not-for-profit voluntary health organization exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the "Code") and has been classified as a publicly supported charitable organization under Section 509(a)(1) of the Code and qualifies for the maximum charitable contribution deduction by donors. Contributions to the Foundation are tax deductible within the limitations prescribed by the Code. The Foundation is also exempt from state and local taxes under similar statutes. Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The Foundation has determined that there are no material uncertain tax positions that require recognition or disclosure in the consolidated financial statements. In addition, the Foundation has not recorded a provision for income taxes as it has no material tax liability from unrelated business income activities. true Europe (Including Iceland and Greenland) 0 0 Grantmaking research 1235786 North America 0 0 Grantmaking research 37990 Middle East and North Africa 0 0 Grantmaking research 104104 East Asia and the Pacific 0 0 Grantmaking research 65000 0 0 0 0 1442880 1442880 Europe (Including Iceland and Greenland) Broad Foundation 119991 BANK WIRE Europe (Including Iceland and Greenland) Broad Foundation 56354 BANK WIRE Europe (Including Iceland and Greenland) Broad Foundation 19297 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 58300 BANK WIRE Europe (Including Iceland and Greenland) Broad Foundation 66735 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 81071 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 28958 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 115830 BANK WIRE Europe (Including Iceland and Greenland) Research 81000 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 26171 BANK WIRE East Asia and the Pacific RESEARCH 65000 BANK WIRE North America Senior Research Award 27990 BANK WIRE Middle East and North Africa RESEARCH 104104 BANK WIRE Europe (Including Iceland and Greenland) Broad Foundation 119975 BANK WIRE North America RESEARCH 10000 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 88000 BANK WIRE Europe (Including Iceland and Greenland) Broad Foundation 82350 BANK WIRE Europe (Including Iceland and Greenland) RESEARCH 291753 BANK WIRE 18 0 false false false false false false Grants Part I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports annually as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X X X true chapman cubine and hussey 2000 15th Street Suite 550 Arlington VA 22201 direct mail false 5368046 463544 4904502 5368046 463544 4904502 AL AK AZ AR CA CO CT DE DC FL GA HI IL IN IA KS KY LA ME MD MA MI MN MS NE NH NJ NM NY NC ND OH OK OR PA RI SC TN TX UT VT VA WA WV WI WY TAKE STEPS 10824483 9305672 1518811 703027 48673 767111 TEAM CHALLENGE 4186557 3204444 982113 150748 22 831343 122 20578956 16257050 4321906 3221449 106885 1388129 35589996 28767166 6822830 4075224 155580 2986583 7217387 -394557 493196 98639 false 493196 98639 98639 394557 AR CA CT FL GA IL IN MA MI MN NJ NY NC OH PA TX WA true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - GAMING ACTIVITIES The Crohn's & Colitis Foundation, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only 36 chapters held raffles in 27 states: ALABAMA, ARIZONA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, OREGON, PENNSYLVANIA, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN. true ALBANY MEDICAL COLLEGE 47 NEW SCOTLAND AVE ALBANY NY 12208 141338310 501(c)(3) 29125 Research AURORA RESEARCH INSTITUTE LLC PO BOX 341880 MILWAUKEE WI 53234 464361213 501(c)(3) 68939 RESEARCH BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLZ BCM 320 HOUSTON TX 77030 741613878 501(c)(3) 146251 Research BAYLOR RESEARCH INSTITUTE 3310 LIVE OAK SUITE 501 DALLAS TX 75204 751921898 501(c)(3) 61384 Research BETH ISRAEL DEACONESS MEDICAL CENTER 330 BROOKLINE AVE BOSTON MA 02215 042103881 501(c)(3) 37903 Research BOSTON MEDICAL CENTER ONE BOSTON MED CNTR PL BOSTON MA 02118 043314093 501(c)(3) 44073 RESEARCH BRIGHAM AND WOMEN'S HOSPITAL INC 75 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NY 10065 131623978 501(c)(3) 520216 Research JOHNS HOPKINS UNIVERSITY 733 N BROADWAY BALTIMORE MD 21205 520595110 501(c)(3) 58198 Research LA JOLLA INSTITUTE FOR ALLERGY AND IMMUNOLOGY 9420 ATHENA CIR LA JOLLA CA 92037 330328688 501(c)(3) 72813 Research MASSACHUSETTS GENERAL HOSPITAL 7 CAMBRIDGE CENTER CAMBRIDGE MA 02241 042697983 501(c)(3) 788918 Research MASSACHUSETTS INSTITUTE OF TECHNOLOGY 77 MASSACHUSETTS AVE CAMBRIDGE MA 02139 042103594 501(c)(3) 119206 Research MAYO CLINIC COLLEGE OF MEDICINE 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(c)(3) 176026 Research MEDICAL COLLEGE OF WISCONSIN INC 8701 WATERTOWN PLNK RD MILWAUKEE WI 53226 390806261 501(c)(3) 79450 RESEARCH MICHIGAN STATE UNIVERSITY 426 AUDITORIUM ROAD EAST LANSING MI 48824 386005984 501(c)(3) 87207 Research NEW YORK UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 133971298 501(c)(3) 297992 Research NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 60208 362167817 501(c)(3) 131915 RESEARCH PALO ALTO VETERANS INSTITUTE FOR RESEARCH PO BOX V-38 PALO ALTO CA 94304 770207331 501(c)(3) 9000 RESEARCH PENNSYLVANIA STATE UNIVERSITY 227 W BEAVER AVE STATE COLLEGE PA 16801 246000376 501(c)(3) 100720 Research PRINCETON UNIVERSITY 701 CARNEGIE CENTER PRINCETON NJ 08540 210634501 501(c)(3) 9000 RESEARCH RESEARCH FOUNDATION OF SUNY AT STONY BROOK PO BOX 9 ALBANY NY 12201 141368361 501(c)(3) 88500 RESEARCH RESEARCH TRIANGLE INSTITUTE PO BOX 900002 RALEIGH NC 27676 560686338 501(c)(3) 64363 Research ROCKEFELLER UNIVERSITY 1230 YORK AVENUE BOX 82 NEW YORK NY 10065 131624158 501(c)(3) 28958 Research Salk Institute for Biological Studies 10010 N TORREY PINES RD LA JOLLA CA 92037 952160097 501(c)(3) 81081 Research SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES RD LA JOLLA CA 90237 330435954 501(c)(3) 114480 Research STANFORD UNIVERSITY DBA THE BOARD OF TRUSTEES 485 BROADWAY REDWOOD CITY CA 94063 941156365 501(c)(3) 115681 RESEARCH TEMPLE UNIVERSITY 1852 N 10TH ST PHILADELPHIA PA 19122 231365971 501(c)(3) 79504 Research THETIS PHARMACEUTICALS LLC 23 BUSINESS PARK DRIVE BRANFORD CT 06405 274940990 501(c)(3) 180000 RESEARCH UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVE S BIRMINGHAM AL 35294 636005396 501(c)(3) 444731 RESEARCH UNIVERSITY OF CALIFORNIA 10920 WHILSHIRE BLVD LOS ANGELES CA 90024 943067788 501(c)(3) 271660 Research UNIVERSITY OF CALIFORNIA - DAVIS ONE SHIELDS AVENUE DAVIS CA 95616 946036494 501(c)(3) 86873 RESEARCH UNIVERSITY OF CALIFORNIA LOS ANGELES 11000 KINROSS Ave LOS ANGELES CA 90095 956006143 501(c)(3) 325000 Research UNIVERSITY OF CALIFORNIA RIVERSIDE 200 UNIV OFFICE BLDG RIVERSIDE CA 92521 956006142 501(c)(3) 149873 Research UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DR LA JOLLA CA 92093 956006144 501(c)(3) 135183 Research UNIVERSITY OF CALIFORNIA SAN FRANCISCO 3333 CALIFORNIA ST SAN FRANCISCO CA 94143 946036493 501(c)(3) 190103 Research UNIVERSITY OF CHICAGO 5801 S ELLIS AVENUE CHICAGO IL 60637 362177139 501(c)(3) 298445 RESEARCH UNIVERSITY OF CINCINNATI (SPARC IBD) 260 STETSON ST CINCINNATI OH 45267 316000989 501(c)(3) 17006 RESEARCH UNIVERSITY OF COLORADO DENVER 12631 E 17TH AVE AURORA CO 80045 846000555 501(c)(3) 346107 RESEARCH UNIVERSITY OF HOUSTON PO BOX 988 HOUSTON TX 77001 746001399 501(c)(3) 115830 Research UNIVERSITY OF ILLINOIS 809 S MARSHFIELD AVE CHICAGO IL 60612 376000511 501(c)(3) 115830 RESEARCH UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON KY 40506 616033693 501(c)(3) 88000 RESEARCH UNIVERSITY OF MARYLAND BALTIMORE PO BOX 41428 BALTIMORE MD 21203 526002033 501(c)(3) 128609 Research UNIVERSITY OF MIAMI PO BOX 405803 ATLANTA GA 30384 590624458 501(c)(3) 23470 Research UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ANN ARBOR MI 48109 386006309 501(c)(3) 958923 Research UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DR CHAPEL HILL NC 27599 566001393 501(c)(3) 553492 Research UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST PHILADELPHIA PA 19104 231352685 501(c)(3) 544331 Research UNIVERSITY OF PITTSBURGH 200 LOTHROP STREET PITTSBURGH PA 15123 232919472 501(c)(3) 116494 Research UNIVERSITY OF PITTSBURGH-COMMONWEALTH SYSTEM OF HI 200 LOTHROP STREET PITTSBURGH PA 15213 250965591 501(c)(3) 39950 Research UNIVERSITY OF TEXAS AT DALLAS 800 W CAMPBELL ROAD RICHARDSON TX 75080 751305566 501(c)(3) 100000 RESEARCH UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON 301 UNIVERSITY BLVD GALVESTON TX 77555 746000949 501(c)(3) 498384 RESEARCH UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE 5323 HARRY HINES BLVD DALLAS TX 75235 756002868 501(c)(3) 87375 Research UNIVERSITY OF TOLEDO 2801 WEST BANCROFT STREET TOLEDO OH 43606 346401483 501(c)(3) 117018 RESEARCH UNIVERSITY OF UTAH 420 MONTGOMERY ST SAN FRANCISCO CA 94104 876000525 501(c)(3) 86873 Research UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST STE 6401 MADISON WI 53715 396006492 501(c)(3) 68044 Research VANDERBILT UNIVERSITY MEDICAL CENTER 1161 21ST AVE S NASHVILLE TN 37232 162047682 501(c)(3) 232642 Research VIRGINIA COMMONWEALTH UNIVERSITY PO BOX 980568 RICHMOND VA 23301 546001758 501(c)(3) 100341 Research WASHINGTON UNIVERSITY IN ST LOUIS ONE BROOKING DR ST LOUIS MO 63110 430653611 501(c)(3) 2813338 Research YALE UNIVERSITY 2 WHITNEY AVE NEW HAVEN CT 06510 060646973 501(c)(3) 111188 Research 76 0 Grants Part I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports annually as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED. X X X X X false true false false false false false true false Michael Osso President/CEO(non-voting) 419836 53000 84770 0 3406 0 561012 0 Caren Heller Chief Science Officer 362382 10000 14000 386382 Robert Territo CFO/COO 266153 5500 16359 10065 298077 Rohit Suri Chief Technology officer 251630 5500 8156 13229 278515 Michael Elkow Chief Field Officer 249548 2000 12705 7629 271882 Allison Coffey Chief Development Officer 203103 5000 12154 220257 Jennifer Fagerstrom VP, Chapter Growth and Develop 188804 2000 9768 7788 208360 JUDY HOFFSTEIN CHIEF MARKETING OFFICER 184939 2000 2563 17179 206681 Kimberly Frederick-Snapper Regional Director 187907 11264 199171 Kristin Kaplan VP, Special Events 174549 10859 8749 194157 Robert Bryan VP, Chapter Growth and Develop 181311 6799 188110 Jack Matarasso VP Digital Marketing 168959 8439 177398 Sheri Markus-Kennell SVP, Business Dev (THRU 05/19) 97309 3300 5950 2083 108642 COMPENSATION SCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATION, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION WILL COMMISSION ITS NEXT STUDY IN 2021. Part I, Line 4B The Foundation instituted a Section 457(f) nonqualified deferred compensation plan for the benefit of the President/CEO, Michael Osso, in 2018. The agreement allows for annual contributions to be made based on meeting pre-determined objectives. In 2019, the Foundation credited $50,000 to the President/CEO which has been reflected in Schedule J, Part II, Column C. No amount was actually paid to the CEO during the year under this agreement, as the terms of the agreement have not yet been satisfied. Incentive Program Schedule J, Part I, Line 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals. X 91 641800 Market Price false true true Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the audit committee for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with THE FOUNDATION. THE FOUNDATION monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic location, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. The Foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation THE FOUNDATION pays to its employees with compensation paid to employees of other not for profit organizations of similar size. The next compensation study will take place in 2021. Availability of documents to the public part vi, section C, line 19 The foundation makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.CROHNSCOLITISFOUNDATION.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation ("THE FOUNDATION") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to THE FOUNDATION nor does THE FOUNDATION have ownership rights to them. In 2019, THE FOUNDATION received $41,745 in revenues from this program. Additionally, THE FOUNDATION receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of THE FOUNDATION's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, THE FOUNDATION has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2019, contributed services and airtime amounted to $7,996,354. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts: $6,653 Uncollectible Pledges: ($170,214) TOTAL TO PART XI, LINE 9: ($163,561)