2021-11-24T11:31:57-08:00 2020-12-31 161559159 STOKES VISCA AND CO LLP CPAS 29 GOODWAY DR ROCHESTER NY 14623 990EZ 2020-01-01 431709945 SHWACHMAN-DIAMOND SYNDROME FOUNDATION SHWA 5135048402 106 HILLSIDE DRIVE PO BOX 6723 FLORENCE KY 41022 JOAN MOWERY ACTING PRES. 2021-11-24 true JOAN MOWERY 999009999 STEPHEN R STOKES CPA P01243868 5854270850 X 2 AAL1 IAL1 FAL1 2020 2022-09-23 18:48:47Z X WWW.SHWACHMAN-DIAMOND.ORG X 78849 X 78849 0 0 0 0 78849 10728 2668 1216 83142 97754 -18905 220690 201785 X 224102 201803 224102 201803 3412 18 220690 201785 RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME. PROVIDED RESEARCH GRANTS FOR THE STUDY OF THE RARE DISEASE SHWACHMAN-DIAMOND SYNDROME 65000 SPONSORED AND CONDUCTED VARIOUS EDUCATIONAL CONFERENCES ABOUT SHWACHMAN-DIAMOND SYNDROME 3693 PUBLISHED NEWSLETTERS,PUBLIC SERVICE ANNOUNCEMENTS AND GAVE FAMILY SUPPORT TO KEEP PUBLIC AWARENESS OF THE DISEASE. CONDUCTED GENERAL OPERATIONS. 11890 CONDUCTED CAMP SUNSHINE FOR CHILDREN WITH SHWACHMAN-DIAMOND SYNDROME. 80583 JOAN MOWERY ACTING PRES. 5.00 0 CHRISTIAN DEL RE Director 5.00 0 MARY BALINT Secretary 5.00 0 PAMELA MILLER Executive Dir. 5.00 0 BRYAN SAMPLE TREASURER 5.00 0 SAVANNAH LILLYWHITE Director 5.00 0 STEPHANIE GREGORETTI Director 5.00 0 JENNI WACHTER Director 5.00 0 NICOLE SHEN Director 5.00 0 SCOTT MILLER Director 5.00 0 CAROLINA CORDOVA Director 5.00 0 MICHELLE GRENELL Director 5.00 0 false false false false false false false 0 0 0 false 0 0 false PAMELA MILLER 106 HILLSIDE DRIVE PO BOX 6723 FLORENCE KY 41022 5135048402 false false false false false false false false false false false NONE NONE true X 121551 79812 154356 65678 78849 500246 0 0 121551 79812 154356 65678 78849 500246 0 500246 9 9 0 0 500255 1.00000 0.99990 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Other Expenses.1001 Advertising and Promotion $1689 Other Expenses.1002 Office Expenses $915 Other Expenses.1003 Information Technology $1433 Other Expenses.1007 Conferences, Conventions, and Meetings $3693 Other Expenses.1012 Insurance $1142 Other Expenses.1 RESEARCH $65000 Other Expenses.2 MISCELLANEOUS $5914 Other Expenses.3 FAMILY SUPPORT $3356 Total Liabilities.1001 Accounts Payable and Accrued Expenses - Beginning $3412 Accounts Payable and Accrued Expenses - Ending $18